had another cardiologist appointment this past monday (actual cardiologist this time not np/pa) went as follows:
acknowledged that the meds are helping me a lot
said "no, nausea's not part of POTS. you have to talk to your primary care physician about that because that could be something else". 1, it is a symptom of POTS, and 2, it's listed as a symptom of POTS on the information YOUR OFFICE SENT ME
he acknowledged the meds are helping me and wants me off them in 6 months, or at least decreased
he said that there was a mayoclinic study where the majority of POTS patients grew out of that. 1, that was pediatric diagnosed POTS, 2 they had been treated for 5 prior to the data collection, and 3 only 18.2% actually "grew out of it" and fully recovered. 50-ish% percent did have better health/fewer symptoms but they still had pots. and that still leaves about 30% unaccounted for who either dropped out of the study, stayed the same, or got worse
said he tries to lower meds for his other POTS patients and it usually doesn't work. i can't even say i asked him that he just straight up volunteered it
i had an ecg at this appointment :) he came in to talk to me after and had it pulled up on his screen :)) days later it's available on the website and gives the time of him interpreting and signing it as after my appointment time. admittedly i would not give a shit about this but i was normal sinus rhythm on other ecg's in the past and now have "incomplete right bundle branch block". this was not mentioned to ME. we even had to call the office after to get my meds refilled because forgot to at the appointment and it wasn't mentioned. the FUCK does that mean for me???? internet says either not dangerous or sign of dangerous "depending on signs of presyncope and chest pain" which i already get with my POTS
listened to my heart over my sweater even though i had a tank top on underneath and said as much. the FUCK do you plan to hear that way, jackshit??
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i’m so burnt out every time i wake up the idea of going outside and pretending to be a functional adult is so unbearable i just want to stay in bed all day so i can be in my own head because the world i have invented there is the only one in which i can find any kind of peace or comfort and it’s because i don’t exist in that version of the world. i’m not compatible with reality and i’m not compatible with normal people and it takes so much out of me to keep functioning that once i get home and peel it all back there is literally nothing left. it’s so annoying because even though i constantly wish i was dead it’s not because i actually want to die because i don’t want to die at all. i just want to stop feeling like this all the time and i want to exist in a world that isn’t so overwhelming and horrible and confusing for me and if i could just take the time off that i need to rest and decompress when i’m overstimulated and burnt out then i’d probably be ok. but the real world is just relentless and if you want to get a degree and hold down a job you’re not allowed to stop so i guess i have to just do this until it kills me
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