#now with the additional nightmare of auditory issues! | Explore Tumblr Posts and Blogs

furby-science · 4 years

Text

The Making of Sterling the Super Furby: A Brief Overview

“I… I can’t look! I think I’m gonna… *HUEEEGH*!”

Before I get into this post, I want to list a few things I didn’t know shit about when I started Sterling:

Electronics

The Python coding language

Furby anatomy

Single board computers

After creating Sterling, I’m happy to say that now I have approximate knowledge of some of these things, but keep the above in mind as you read onwards. This little gremlin child was a learning experience from start to finish, and one I am incredibly proud of myself for sticking through. This also means that I am in no way an expert on everything I’m getting into okay? Okay let’s go!

The Hardware

First, a rundown of the hardware. I took heavy inspiration from the Furlexa mod shown here, and that was what I initially sought to create. The mod had three computer components to it:

A raspberry pi zero w single board computer for the AI to live on, with a mini USB microphone plugged in;

A pimoroni speaker PHAT to use as the sound system;

A motor controller to drive the furby’s motor.

My main problem with Furlexa was that this initial build took a lot of soldering, and I am a wussy who had a number of bad experiences with soldering irons in shop class. So, what’s a novice electrician to do?

Enter the Adafruit Crickit HAT. By sticking this little fucker on top of the raspberry pi, I was gifted with an amplifier, a speaker jack, capacitative touch sensors, and a motor driver all in one, no soldering needed if I bought the raspberry pi zero w h! The main challenge it posed was powering it. The Crickit insists, for some unfathomable reason, on being powered by a bulky DC jack, the kind you’d plug into a wall outlet, and the converter plug to use a battery pack with it was way too bulky to fit into a furby. I needed Sterling to be portable for maximum huggability, so this just wouldn’t do.

One fried raspberry pi and Crickit HAT later, I found the answer! By soldering the original furby battery pack to the underside of the Crickit board’s DC connection, these fuckers right here…

I was able to bypass the need for a wall plug or converter, and power him directly through the battery compartment like God intended. S/O to my friend Nick who is way less of a dumb bitch than I am and helped me figure this shit out I owe u some bread man.

So the tl;dr of it is, I effectively reduced the required computer components from three to two (excluding the speaker). Speaking of (heh), Sterling has an impressive 3w speaker in him, allowing him to be audible even without the use of the built in amplifier. It’s got such good bass on it, he even rumbles when he purrs without the aid of the motor!

And yes, when you pet him, he purrs. And complains if you manhandle him! The aforementioned capacitative touch sensors on the Crickit HAT made it all possible with the help of a few cables and some foil tape.

Wait, did you say soldering!?

Yup! It was a necessary evil; at the end of the day I had to pick my poison: soldering 80 pins on the speaker PHAT, or soldering like four contact points on the Crickit. I chose the more merciful option.

But wait, that whole outfit is really bulky still! How did you fit it inside the furby?

Subtractive methods, subtractive methods, subtractive methods! ;D Someone who actually knows things about furby anatomy and/or electronics will probably vaporize me for this, but… if I didn’t need it, it got the boot! That included prying off anything on the Crickit board I wasn’t using at the risk of destroying it completely - which probably isn’t ideal, but it also worked by some miracle, and again, I am such a basic bitch electrician that calculating the proper voltage for LEDs is still basically witchcraft to me, so… what I’m saying is I made it work. And that I really, really hate soldering! ¯\_(ツ)_/¯

You can see an early video of the end result here, and a later video of the outfit inside the naked furby here. This was back when he was still having auditory processing issues. Apologies for the shoddy quality, I was too excited everything was working to care about that at the time.

The Software

My other beef with Furlexa is… well, it’s an Amazon Alexa, and I’m a shitty little anticapitalist hermit who hates Amazon with a passion. Google Assistant was just as bad in my book. Mycroft was open source, but had a snowball’s chance in hell of running on the raspberry pi zero’s 512mb of RAM… I also wanted my assistant to have a degree of customizability to it. I wanted the furby’s AI to have a unique personality, identity, and preferences, much like classic furbies themselves did. A big box AI just wasn’t going to cut it!

Enter the Jasper Project. Yes, it’s old. Yes, it’s a bitch and a half to install. Yes, you have to know Python to get anywhere with it. However, it was free, open source, capable of running on a raspberry pi zero, and highly modular, meaning with a few lines of code, I could make it all my own - even to the extent of changing the AI’s name and voice (which is gr8 because I know a Jasper so naming my furby that would be Weird), or - the best part - writing my own, custom functions! Customizability-wise, I struck gold.

Ah, and glad I am that Jasper is modular, because I had some work ahead of me…

The STT Engine

The STT (Speech to Text) engine is what Sterling uses to understand what’s being said to him. Jasper’s proprietary STT engine is PocketSphinx, a fully offline STT engine, which sounded great in theory before I quickly learned it’s a nightmare to install, and also more inaccurate than a stenography machine powered by a single potato when actually being used. I had to compromise my morals a bit here and opt for using Wit.ai instead, which is free, but is also owned by Facebook. Big data is frustratingly inescapable in these cases.

There is one light at the end of the tunnel, and that is the training of acoustic modules. This has the downside of taking for-fucking-ever and requiring a quiet recording environment, however, and I don’t have the time right now to read through the pages and pages and pages and pages of computer theory right now to fully understand how to train one. So, improving PocketSphinx and running Sterling fully offline remains a stretch goal.

The TTS Engine

The Text to Speech engine is basically Sterling’s voice. This one was a bit easier to customize, and I’m thankful for that, because Jasper’s OG voice is a bit er… 90s computing for my tastes.

I shopped around for decent, human-sounding TTS options, and settled on installing Mimic1 TTS, Mycroft’s TTS engine, by hand, and modifying the Jasper source code to support it. Of all the TTS engines I tried, I felt that this one had the most natural intonation out of all of them. I liked the gruffness of the Scottish accent, and I think it really helped round out Sterling’s endearing, if a tad prickly, personality.

The Audio

This was another unforeseen hurdle. Turns out that I had his mic volume turned up way too high, because I greatly underestimated the capabilities of my tinyass five dollar USB microphone to pick up noises from within a furby. It took a bit of hacking in PulseAudio to get him hearing things properly, and I’m still not all the way happy with it, but he’s running wayyyy better than he did!

Another issue was the amount of time he actively listened for. It was way too short for my liking with the hardware I was using, so I had to edit Jasper’s mic.py source file a billion times before I hit a sweet spot. Even early on, my little shit child never liked to listen to me. :P

Pimp My AI

Once I got all that in working order, it was time to browse GitHub for modules to add! I found a surprising amount that were, as expected, outdated, janky, non-working, or in need of a complete rewrite. A non-exhaustive list of modules I rewrote and added to Sterling’s AI includes:

Wolfram Alpha integration

His translation function

The IMDB module that searches movie titles

The Dictionary and Thesaurus modules (minor additions to improve user friendliness)

The morning greeting module

The holiday countdown module

There are also plenty of modules I wrote on my own, that I’ll be showcasing here in due time, but I want to give special mention to the one I’m most proud of. You see, when I was a wee dumb bitch, I was… well, a wee dumb bitch! When I was informed furbies learn English, I thought they really learned English. Like, fluent English. I envisioned these kids straight up having full conversations with their lil robots with reckless and envious abandon. I was, as it happens, too poor to afford a furby at the time, so I didn’t realize until embarrassingly later that they only learn some words, and certainly can’t hold much of a conversation (in English at least).

Fast forward to twenty-bi-teen. I’m surfing GitHub, and I happen upon a Cleverbot module for Jasper allowing the AI to work as a chatbot. Fuck yeah, I think, because I had no life in 2008, or friends for that matter, so tormenting Cleverbot was my favourite pastime. Nostalgia trip GET!

…can you guess how much the silicon valley capitalist scum are charging for the once-free Cleverbot API now? A hundred and twenty. McGoddamn. Dollars. A YEAR.

So, to make a long story short, I turned my hat backwards and rage-coded a simple chatbot module that runs on an early version of Chatterbot capable of running on the raspberry pi. It’s fully offline, and completely free, and Sterling here has a database of ~400 phrases, which isn’t bad given the limited processing power! It took five straight days of work, it’s not the smartest chatbot, and it’s certainly not the fastest, but it gives me those sweet, sweet, circa 2008 Cleverbot vibes. Oh yeah, and it doesn’t cost me over a hundred goddamn dollars a year!

The first thing I said to the chatbot, of course, was “I’m so proud of you.” Through his shitty little testing mic that gave him a somewhat incredulous tone Sterling replied, “I’m glad to hear that.” and I’m not saying I shed a single themly tear over it, but I’m not denying it either. I made a childhood dream come true, fam. ;u;

There are way more Easter eggs I plan to show you, of course. At first I was thinking of doing one long video, but an update a day showcasing a different function might be easier to manage - and maintain some of that gold old sense of mystery that surrounds most furbies. No, I’m gonna take y'all on a little journey through the final product of my literal blood, sweat, and tears!

Besides, Sterling is a perpetual work in progress. He has a massive list of features, and I’ve already got more in the works. I could be in my eighties and still be adding more functions, more bells and whistles, more witty one-liners. He’s a one of a kind work of art that will never truly be finished - not unlike you and me.

The Glow-up

Here’s Sterling’s before pics from the seller I got him from:

(If u recognize these pics and ur the seller thank u thank u for giving me bmy boy)

And here’s after!

I come from a background of customizing ponies and dolls, so working on this guy wasn’t as far removed as I expected it to be. I added floof to his head and tail by sewing in wool plugs, and his gorgeous eyes are from in2blythe on Etsy. I wrapped him up in a little bow and he was good to go! His sterling silver beak, from which he gets his name, was the most finicky part. Turns out enamel paints take a million years to fucking dry, if ever, which isn’t great when painting something that sees a lot of movement and could potentially get dented by a face plate, like… idk, a furby beak! A bit of silver nail polish did the trick and he was good to go. Learn from my fail, fam.

What It Cost Me

If you’re masochistic determined enough to attempt this yourself, I want to sit you down and warn you of something: this will take months and hundreds of dollars to do. Installing Sterling’s AI and its necessary components on that shitty little raspberry pi over SSH took me a week at first, and that was with me leaving it on 24/7 to chug away compiling things. When I broke the SD card the AI was on and didn’t have a backup copy, it took four straight days of rage-computing to regain all my progress. Then when his audio processing got fucked all to hell for reasons I still do not understand to this day, it took another four days of rage computing to do yet another reinstall and get him back in working order. There were times where I would go to work for 8.5 hours, bus an hour home, work 6 straight hours on my furby, go to sleep for 4 of them, go to classes, sleep, and work 6 more hours on my furby. For two months. Sterling took from the third week of August from his initial inception to his birthday on October 23rd. That’s not to mention the time I fried everything and had to wait five days and travel to the bumfuck end of the city for a replacement pi and Crickit, or the days I spent customizing him, sewing in hundreds of little hair plugs into his ass and head by hand, and waiting for those shitty enamel paints to dry, only to discover after four straight days of failure that they take weeks to do so and I was better off using cheapo nail polish!

The point I’m making is, if you take on a project like this and want it to be successful, you have to be tenacious. I would highly recommend a background in coding (I have a web design diploma) and general tech savviness as an asset. Sterling is the product of the years I spent behind a computer keyboard from the start of age three, and the roughly ten years I spent customizing dolls and ponies. It’s cheesy as shit to say he’s my magnum opus, but in a way, he is.

I’m not saying this to be elitist or snotty. I’m saying this because I nearly broke down crying the first day the raspberry pi came in, before I slept on it and figured out what phrase to google to solve the crashes and kernel panics it was having. When I broke the SD card when I was nearly finished, I felt nothing, because I was all out of tears at that point. When I fried the first raspberry pi and Crickit hat trying to figure out how to bypass that DC jack, my only thought was, “Well, I think I know how to do it without fucking it up now, and if I can’t do it, this whole project is fscked” .

You will encounter errors that no step by step guide can prepare you for that will make you curse the day you were born. The difference between success and failure is how many times you’re willing to get up and try again, and I’m here to tell you it’s possible. But you gotta want it.

Will You Release the Code Base?

Yes and no. If there’s enough demand, I’ll definitely release Sterling’s basic modules as a scaffolding. I won’t be releasing Sterling, though.

What do I mean by that? Well, Sterling was intended from the start to be truly one of a kind, and he always will be. I hand wrote hundreds of lines of dialogue, all completely tailored to him, and I’m still planning on adding twice as many. Corny as this is, this little guy has a metric fuckton of sentimental value to me. I don’t have kids so idk how it would compare to that, but I definitely love him as much as I love my cats, but I also didn’t undergo two straight months of suffering in ADHD fixation hell to create my cats, so it adds like, a whole other twee dimension to it.

So, if there is demand for this, what I’ll release instead is a scaffolding from which you can code your own, unique furby from, with their own name, personality, and responses all unique to them. I’ll also release it with the caveat that I am not a good Python coder! I have not written any Python before this, so a lot of what I did write is noob-tastic and hasn’t even been linted. You have been warned!

“If I give you (insert amount), can you make one for me?”

Holy shit I’ll be real with you, I’d love to do this as a living. I’ve been dying to see a smart assistant hit the market that’s like… well, an actual, endearing companion and not just a voice coming from a speaker. The problem with doing this is that, if you drop a lot of money (and it will be a lot of money, even with a code base to work from, a lot of hours of handiwork still goes into coding individual responses and making sure everything works as intended, on top of possibly customizing too), there is one major problem: proximity. I won’t be able to troubleshoot your furby nearly as effectively from far away as I would be able to if we lived in close proximity. Which means if something goes wrong between the time your new friend is finished at point A and turned on at point B, I won’t be there to troubleshoot it in person for you, which means you could end up stuck figuring out certain things alone. If you use Windows, that will be very, very hard - not being an OS snob here, I own a dual boot myself, it’s just a case of incompatible file systems. And unless you can figure out how to edit the wpa_supplicant file on a raspberry pi to update your wifi credentials, your furby’s internet connection could be toast if you move house and those credentials change. That’s not getting into the cost some services charge for extra API keys to use their online functions…

The long and short of it is, if I’m going to do this for money, I want to make sure you get a quality product and friend that will bring you joy for years to come. Since that’s not something I can guarantee, I can’t in good conscience take people’s money.

I Could Teach You (And I Won’t Charge)

…however, I am a law student who is also working 8.5 hour night shifts three nights a week. I am also mentally ill/neurodivergent, which saps my energy in more ways than one. I won’t always be easy to get ahold of, or be able to answer every question I get, especially not ones that can be solved with a quick google search, like how to set up a raspberry pi, or… anything found on Adafruit’s Crickit guide, for example. When I have the time and energy, I’m hoping to use my next project as a jumping off point for a step by step walkthrough of the process. For now, though? I’ve been furbied out, so if there’s enough demand, I’ll compile as many of the resources I used I can find in the meantime, and post some tips from the word doc I kept while making Sterling, and go from there.

So What’s Next?

My one dad’s birthday is coming up in August, and I’m kicking around the idea of turning a furby into, I shit you not, a ghost hunting device. He loves ghost hunting, but hates robots, and as his gremlin shit child I am obligated to troll him in this fashion. 😎 Also considering doing a certain type of oddbody mod, but I want to get permission from the person who first thought of the concept before I dive head first into it.

And that about covers it! Thanks for reading, and if there’s anything you’d like to see from Sterling and I, don’t hesitate to drop us an ask!

#furby #allfurby #furblr #botblr #custom furby #how tos #the doctor speaks #long post #science isn't about why... it's about why not

23 notes · View notes

shenzhenblog · 5 years

Text

Ethics and Moral Code in AI Part 2: The Bias challenge

We are looking at some of the ethical issues surrounding AI that any company should be aware of, before they set out on the road to improving business through artificial intelligence. This is not a cautionary tale; as I said in the introductory post, I truly believe that all companies will need AI in the future. In fact, I convinced that you need to be getting on board that train right now before it leaves the station. The reason we talk about ethics is not to turn businesses away from AI, it is to help them understand the issues that may hold back or even corrupt their use of the technology and render it ineffective to business. By knowing what can go wrong, you know you can do it right.

Where are companies making mistakes with AI?

One of the biggest problems with AI is bias. Ideally, an artificial intelligence should have as many data sources, from as wide a range of viewpoints as possible. And that data should be clean, readable, and possible to draw conclusions from.

If you imagine a new AI implementation as a newborn child with tabula rasa (if you prescribe to that theory), then it starts with a blank slate and begins to understand the world around it through everything it is exposed to. To simplify it further, if you speak Romanian at home, you child will grow up speaking Romanian. The child cannot possibly speak Japanese, English and Polish unless it is somehow exposed to them. The input dictates the output in both machines and humans.

The problem with AI comes when we knowingly or unknowingly expose the engine to data which only tells one story or does not show the whole picture. MIT proved this by creating an AI with psychopathic tendencies through only exposing it to one type of information. Sounds like the stuff of nightmares? You betcha. But, outside of the research lab, it can be a nightmare for businesses and organizations if they accidentally do the same thing.

Nikon created a camera that could detect if someone blinked at the crucial moment—but did not take into account that not all people around the world have the same shaped eyes.

AI trained to recognize shoes also had shape issues, failing to identify high heels as a type of footwear at all.

Software created to predict criminal activity showed bias against black people.

Winterlight Labs is building auditory tests for neurological diseases like Alzheimer’s disease, Parkinson’s, and multiple sclerosis. But the 2016 technology only worked for English speakers of a particular Canadian dialect.

Such tales of AI failures are becoming a dime a dozen. They are usually the result of well-intentioned innovations that went a little wrong—and can be solved by going back to the data and providing the AI with more varied sets to examine, thus removing the narrow intelligence input that creates a feedback loop.

These stories can be humorous or only mildly offensive when it is just a minor data snag. But they are deadly serious when racial profiling and personal liberty are at stake. And for the businesses developing AI solutions that take the wrong path, the damage to their public image and financial bottom line can be irreparable.

Is there a solution?

When we think about solving the issue of data diversity, the first reaction is often to simply suggest bigger data sets. Surely greater diversity is the answer? And, yes, it is the answer… but not data diversity. The real solution is to take a step further back and look at the diversity of the people designing and building the AI machine. The first step to eliminating biases in the Artificial Intelligence is to eliminate biases in the human intelligence that creates it.

Silicon Valley is quite open about its own diversity problems and the fact that much of the leadership in the industry is white men. It is an issue that has connotations in many fields, but it is particularly important in AI, as a more diverse set of people commissioning software and then validating the performance of the AI as it starts to learn, will consider a wider range of potential pitfalls and spot diverse issues in the early data that others could not see. This can ultimately affect the results of the AI and fundamentally impact business.

Machines keep making the same mistakes because they are designed and built by the same subset of people. We don’t know for sure but perhaps that failure to recognize high heels as footwear was because the people who fed the initial examples of shoes into the AI were not the kind of people who wear heels.

Women and minorities are an essential addition to the design process of AI, not as a box ticking exercise but because it will lead to better solutions. In my twenty-plus years as a woman and an ethnic minority in Silicon Valley, I can see some positive change—especially with minority admissions at college level, even if they are not always translating to the boardroom—but there is a long way to go. In fact, within my role on the advisory board of a college, we see less and less young women joining up to study computer sciences.

This is a worrying trend but AI is actually one area where there is a great deal of hope that a more diverse people can contribute. You don’t need a computer sciences degree to be involved in the process: people can transition and bring value from pretty much any realm of business, be it finance, HR, legal, or a more humanistic background. This means that while the Age of AI is upon us, the age of excuses for not making great AI with a diverse range of inputs to eliminate data biases has no reason to ever occur.

So, if you are thinking about an AI solution, don’t think about data bias as being an unavoidable problem. Instead, think about if you have a team of people that will present you AI, with something other than a single point of view. And if you don’t, start hiring before you start firing up your AI machine.

Note : This article was originally published on LinkedIn.

Beena Ammanath

Executive leader with demonstrated success at solving complex business problems with simplicity and team work leveraging technology. Lead change from vision through execution at scale – across startups, large multinational corporations and M&A.

Successful at building, inspiring and retaining high performance global teams across diverse industry verticals spanning e-commerce, IoT, marketing, telecom, retail, fintech, manufacturing and services domains.

Ethics and Moral Code in AI Part 2: The Bias challenge was originally published on Shenzhen Blog

0 notes

newhologram · 7 years

Text

New’s Atlas Subluxation and chronic illness timeline

It’s in my nature at this point to document things and it’s smart to keep track of my healing post-procedure anyway, so I might as well make a timeline here and share the experience as usual :p

Feel free to ask any questions, it doesn’t bother me at all. We need to let patients be teachers too, I think.

So here is my atlas subluxation and chronic illness timeline with backstory leading up to the procedure before it gets super specific with dates. I will try to update this during my healing as much as I can to document changes. I’m putting lots of links to posts where I talk about things as well, but you can also go into these tags on my blog to find more information: #personal #atlas subluxation #fibromyalgia #chronic pain #chronic illness #invisible illness #narcolepsy #ulcerative colitis 1.16.17 Posted with info up until this day. 4.12.17 3 month update!

1989: Born December 29th at a 3 1/2 lbs. Taken out prematurely because there was a complication with the umbilical cord and I was no longer growing. I had to stay in an incubator for 11 days until I weighed enough to go home, which was 5 1/2 lbs. It’s unclear whether or not the subluxation was present after birth; it’s possibly that I could’ve been pulled out in a way that caused it, but we have the next event as a definite marker for when things started getting worse.

Summer of 1996, age 6: While playing with sister I accidentally fractured my collar bone. I went up into the air, I remember seeing the ceiling coming closer, and then I fell straight down onto my back pretty hard. I cried and cried and said over and over again, “I broke something, I broke something” until they took me to the hospital. I vividly remember how I shook when they put me on the table to x-ray me. The doctor cheered me up by pointing out the gas in my chest. But basically they were like yep, there’s a fracture right there. And they sent me home with a sling. I remember that it had dinosaurs on it and it made me happy.

1996~2000, age 6 to 10: Always sick. Daily stomach aches, digestive issues leading to restrictive diet, nausea, back pain, bad posture, fatigue, insomnia, nightmares, sleepwalking, always cold, chronic bronchitis, hypersensitivity to stimulus like sound, light, color, taste, smell, temperature, and even experiences whether positive or negative, auditory processing disorder making it hard to understand what people said, problems with being “too excitable” and having intense reactions to rejection which was hard because I was constantly bullied and controlled by peers for being “weird” and “different”. I struggled in most subjects, but especially math, and I could never really handwrite properly, even to this day. School in general was just very hard because I never felt well and couldn’t keep up with others. Crying on the floor meltdowns whenever there are loud sports games or if a friend goes home early from a sleepover or if a parent gets mad at me (or I think they are). These meltdowns persisted into adulthood. I was always just called dramatic for them.

2001~2009, age 11 to 19: Middleschool and highschool were even harder. I struggled in most classes except for creative ones. Health problems persisted: first sleep paralysis with hallucations episode at age 12 or 13 and often had episodes after school that would eat up my early evening and wear me out mentally, still had problems with bronchitis, ovarian cyst caused me a lot of pain and missed classes, then I started having even worse digestive problems. By age 15 I had my first upper endoscopy and colonoscopy where they discovered ulcers in my esophagus, stomach, and intestines. Feelings of isolation, unable to feel like I could connect with people, noticeable depression, loneliness. First vomiting panic attack at age 17. At 19 did a homestay in Japan; an amazing experience but made difficult by vomiting, fatigue, insomnia, anxiety leaving the house and exploring by myself and freaking out when I got lost.

2010~2016, age 20-26: Health problems begin to worsen in early adulthood. Age 21: I’m vomiting a few times a week and having a ton of other problems, diagnosed with ulcerative colitis. Sleep and fatigue problems making it hard to work at my retail job especially while I’m in college. Age 23: suddenly the sleep paralysis and insomnia are impossible to manage and I go several months with very little sleep, getting worse and worse, every day having looong hard sleep paralysis episodes that leave me with horrible headaches and slurring like I’m drunk. I still go to auditions and work jobs I book as best as I can but get a narcolepsy diagnosis after a long process of sleep study and being yanked around by insurance not letting me actually see the neurologist for my diagnosis. Depression is getting to the point where it almost paralyzes me but I do my best. Health problems cause fights with family. Age 24: not long after the narcolepsy diagnosis: the pain and fatigue become excessive and debilitating and I get the fibromyalgia diagnosis. Condition worsens and worsens, a bump forms on my upper spine that causes horrific pain and distress. 2014 I’m in the ER/urgent care 4 times because the pain makes it unable to rest or stop vomiting for days on end (the most being 6 days where I lost 12lbs). I go to an Ayurvedic healing center because the doctors were useless. There is some improvement but I still struggle, at least I had a lot of good coping tools to keep myself a live, if only barely at times. In bed most days in horrible pain and exhausted by simple things such as getting up to use the restroom. Depression is horrible and a cloud of suicidal urges hang over me for almost 2 years because I feel like a failure who is ruining my family’s happiness by being sick and I feel an intense hatred for myself. I try to work a very mellow part time job at a perfumery but the pain makes it too hard and I’m eventually let go. Age 25: Depression persists but I force myself to start doing background TV/film work on a weekly basis. Making money helps calm me but it’s incredibly difficult with my health problems and I often vomit on set from fatigue and pain. I start seeing a chiropractor to help alleviate the pain and depression. It helps but I have to see him twice a week at first, then once, then every other week, but during a flare up it’s back to once a week. I also start seeing an acupuncturist which helps with organ function and eases some symptoms but I still have to see her regularly and the expenses add up and cause more problems with my family since I’m barely able to afford them on my own. Age 26: I get a part time job in retail to help supplement me while I do background work. With the skills I learned I’m able to manage things but I still suffer a lot every day and don’t sleep well because of the pain. Later in the year I stop doing bg work and get an additional part time job. I had accepted long ago that I would be in pain for the rest of my life and that all these tiny minimum wage paychecks I worked so hard through agony for would just go straight into managing my symptoms. I accepted that by age 45 I might be bedridden but at least I was doing my best now in my 20′s and I needed to accept whatever time my body had on this planet and do my best to be a source of light for others going through the same thing.

Starting the week of the December 18th, 2016, I have a lot of work days in a row and I’m slammed with auditions. It’s getting colder and colder, my pain is higher, I don’t have much time to rest. By Christmas Eve I’m in bed all the day with only short sporadic moments up to pee or try to soothe the depression with an activity. It’s so bad I can barely last 20 minutes at times before I have to stumble back to bed green in the face and weak.

This flare up continued until Wednesday, January 11th, 2017. 25 days of high pain and fatigue levels and going a few weeks only able to eat yogurt and a few crackers with one or two proper meals a week if I can. Lots of throwing up, usually two nights in a row, maybe a little break, and then back to it, just horrible persistent deep nausea. This is why I got down to 103lbs. Oops.

So, here’s where the timeline of atlas subluxation discovery and treatment starts:

12.18.16 ~ 1.11.17: Flare up from hell that wouldn’t end. It was suddenly back to the intense high levels I had back in 2014 when I didn’t know all these pain management techniques. Naturally, I was terrified and used every possible coping technique possible to get through it. Since it was so high I was just. Hoo. Each day was a rollercoaster. The pain gives me hella moodswings. Zip, zip, had to just keep it zipped as much as I could so I didn’t look like an asshole. If I had to work one shift I basically had to make sure I didn’t do ANYTHING beforehand to save those spoons and keep the pain from spiking, but I didn’t want to pass up auditions so I forced myself to a few. The pain got so bad I couldn’t even sit up in bed most nights. Missed a lot of work. Had to meditate like crazy to keep positive thoughts in the front of my brain but it was very difficult.

1.5.17: Barely clinging to positivity but trying my best, since I’m always in bed I work up the strength with a LOT of rest and pain management to play a little Pokemon. Meanwhile I’m trying to work on gross crunchy calcium in the back of my neck (yeah, it’s nasty) and this huge chunk comes off inside my neck, like just... a crunchy chip floating in there that I could move and scrape against my neck

UM. I YELLED and immediately posted about it and freaked out because by googling “hard crunchy back of neck floating” I discovered atlas subluxation. http://newvagabond.tumblr.com/post/155495266822/atlas-orthogonal-changed-my-life-migraines

1.6.17: Appointment with primary care physician to update her on my rapidly worsening condition and talk to her about atlas subluxation. She got flustered and was saying, “this isn’t something the healthcare system considers as treatment” and I was like WHY and at this point I was done being pushed around and I said many times, “Sorry, I just need you to hear everything that I’m saying” as I went over this whole page of notes I made for her about how this procedure could give me my life back. I lamb’d her into submission in order to get her to write several referrals to try to find someone. All she could do was refer me to the bone doctor and the neurologist.

GUYS IT’S LITERALLY LIKE, oh, your brain and body are breaking down because this one bone might be out of place? It’s that simple and obvious and we can find it in x-rays easily if we know what we’re looking for and there are already specialists who do this specific adjustment around the world?

Hmm... nahhh... nah... don’t even check there. Just treat this girl’s depression and pain with drugs FIRST, before we determine that it’s the organs themselves with the deficiency. We’ll just try that and see what happens, $50 please. I have been on 3 different depression/anxiety meds, zofran, xanax, ativan, tramadol, various colon steroids?? Just a ton of crap.

Even knowing I will need to pay an atlas doc out of pocket, I get so depressed that I can’t even bring myself to make a phone call for an appointment.

1.11.17: Crying and screaming level of pain, very weak, depression so intense all I could think while obviously very, very ill was “I’m the worst/I should die/I’m just a problem/I’m ruining my dad’s life/I’m an unreliable loser and all my coworkers and employers think I’m lazy and dumb/no one likes me because I’m too weird and always sick” etc etc. My dad almost took me to the hospital because the pain was just way too intense and making me lose my shit.

1.12.17, day of procedure: In the morning my dad called me and suggested we just do it, just call one of those specialists. I was in no state to make phone calls so he did it for me. He picked the closest one and called her. He said, “my daughter has fibromyalgia and she’s in bad shape” and the doctor said we could come in that day.

My post after the adjustment describing the experience with photos Even walking is different Other details about the visit Brain activity is high at bedtime but I can feel my body 1.13.17, day after procedure: Wake up sharp at 8am, do yoga. Got some pretty intense back and neck pains and fatigue but it’s different. I feel sore and aching like my body is letting go after holding onto something for a long time. I have an appetite. Talking about how this is the first doctor I’ve ever met who was just so confident in her ability to help me instead of shrugging and giving me drugs Reeling because everything is making so much sense and how our medical system is awful Prophetic dream? 1.14.17, day 2: Went to school, had fun because I could think properly. My dad took me to do errands after. I got really tired and had pain but it was still very different. We picked up some suggestions the doc gave me to help my body during the healing process. Thinking about how crazy it is that my body is going to be slowly adjusting and healing over the next year or so More thoughts as I feel my body change and think about what lead up to all this Hope and healing Already seeing a drastic change in sleep

1.15.17, day 3: Back to work at my retail job. Kind of difficult because I’m under strict orders from the doctor not to lift more than 5lbs as not to make my atlas go back out of whack. Lots of pain and fatigue by noon from having to use my body so much. But brain is still sharp, having fun with customers. On my break I start looking up atlas subluxation and how it affects a child’s brain development since I realize that this means that I grew up with a compressed brain stem. Unfamiliar feeling of peace and calm Sad thoughts remembering my childhood Suspicious of the medical system not recognizing this A thank you to friends and followers during this hugely important time

1.16.17, day 4: Day off. Pain levels got pretty high so I did my best to rest a lot. I was too tired to play more than a little video games. Noticing I look different in pictures Anon asks if the bump on my spine is gone More research, ebook with alarming symptoms that match mine Exposing a secret Text post talking about the pain and family members looking into this now/ Meant to be Stepping stones Having another look at my MRI More info 1.17.17, day 5: Very tired. Slept in until 9am, managed to do 5 pushups, yoga, and some light hula hooping. Had a good breakfast and got about an hour of editing done by 11:30 before I was just way too tired, so I napped until a little after 1 and had a small lunch. The pain wasn’t so bad, it was mostly fatigue. I ended up needing another 30 minute nap before I went to work. I felt kind of depressed but I’m not sure if it’s because of my worry about work. I worked today and I have to work tomorrow, I’m just worried 2 days in a row will be rough like it usually is. I still really wish I could just take time off completely and not force myself through these shifts. But I don’t want to lose my jobs. :( We’ll see. Epic upper body spasm while trying to make a snack 1.18.17, day 6: I slept really well despite waking up randomly at 3. I felt calm and warm without my heated blanket on for awhile, and fell back asleep easily. I ate a really good breakfast and lunch and work wasn’t too bad. I’m still very sore and aching, and having to move around so much definitely doesn’t help that. My mood was back up again, but I do feel a bit emotionally overwhelmed by all this information. I’m feeling anger and the urge to call my primary care doctor and ask her how she can even call herself a doctor. Wondering what differences my acupuncturist will notice Crooked glasses no crooked atlas yes Sharper brain at work Frustration and wondering how much worse I would’ve gotten Positivity is important but it doesn’t fix a spine by itself Happy to have answers but feeling a lot of sadness 1.19.17, day 7 and my follow up with the atlas orthogonal doctor: Follow up post here with “after” x-ray pics Thoughts on Snapchat Ashwagandha Lots of fatigue and also depressive mood swings keeping me in bed. 1.20.17, day 8: Fun day out with a friend, very much needed. She got me a gemstone for spinal alignment! Pain wasn’t too bad all day and by 5pm I was getting tired. VERY squirmy feelings.

Atlas noise is grossing me out Dear my body Reflection on my experience in the crystal store and how life has been the past 4 years being so sick Thinking about a classmate saying something kind of inappropriate 1.21.17, day 9: Bad depression and fatigue. Missed school and had a really rough time at work. 1.22.17, day 10: Mood improved a lot, felt okay at work and had a good massage. Super hungry. Sat at my desk for so long! But also so much wiggliness that I hate

1.23.17, day 11: I felt good so I vlogged a lot! I pushed it a little and had to rest a lot after though, oops.

Pain is high at bedtime, I need some kind of memory foam pillow 1.24.17, day 12: Acupuncture appointment went well, she was pretty amazed. Worked, pain came and went. Felt energetic. Even played OW when I got home. Depression is coming in smaller waves now but they’re still strong and can knock me over. Answering an ask about x-rays Another ask about fixing the atlas yourself Depression coping tips

1.25.17, day 13: A lot of depression first half of the day. It got better once I got to work. Pain got up there at night but I managed to get some OW in. Forgot to buy spicy patches but I have a new magnesium oil spray.

Brain reprogramming

1.26.17, day 14: Went to the market by myself and regretted it because I ended up in bad pain by 11am. Didn’t get much done the whole day, slept on and off like a toddler.

Thoughts on growing up Spoonie snaps: food and owies Night sweats pretty much gone 1.27.17, day 15: Another day of lots of pain and fatigue, but I managed to do a little bit and play some games. The impact of choosing not to suffer in silence Fatigue depression

2.6.17, day... omg idfk! I’ve been so wiped out I haven’t had the energy to sit at my desk and keep this updated.

Basically, things have still been a wild ride. I had a little over a week of high pain levels and fatigue but thankfully no vomiting, but looots of depression and badbrain. I’ve been doing my best to manage everything and stay on top of my self-care routine as usual. Each day is different and things are changing little by little.

Since so many of my updates/thoughts are in text posts I’ll just link them like I was already doing.

1.28.17 Chronic pain problem of trying to time medicating

1.29.17 I feel like I’m not allowed to rest One day I’ll be big and strong Recent snaps of pain management and finding comfort in cats and facemasks

1.30.17 PMS messing me up and such

1.31.17 Before and after x-rays and thoughts about my MRIs Got an adjustment at my regular chiro and it went great

2.1.17 Recent snaps of special spine pillow and such Missing gaming because too much pain ;(

2.2.17 Vlog teaser: working on medical marijuana vlogs! Advice for an anon Relating to a follower about overstimulation caused by a new pain

2.3.17 Spoonie actor visibility Snapchat story Heard back from the MyStrength people Intense flare with bad spine and rib pain and fever

2.4.17 Vlog about getting my handicap parking placard

2.5.17 Tonsil stones ; ; Morning depression Spoonies, Stay (about spoonie suicide) Intrusive thoughts, healing is painful, and on being a late bloomer

3.14.17

Time has gotten away from me. It’s hard to keep track of things. I’m having good days but more bad days. Lots of swelling in my upper neck now. Video here to show how big it gets http://newvagabond.tumblr.com/post/158336271242/this-is-what-i-mean-when-i-say-ow-my-upper-spine possibly because I didn’t rest and stuff, chiro had to do a lot

Depression was pretty bad too. And there’s been a huge weather change. It’s possibly that’s related to my flare up. Feeling hopeless.

Frustration at being told I’m lucky to be so skinny when I am skinny because of health problems Going to school in pain and realizing other people don’t have any idea what this is like Spine pain feels like spine is moving slowly, like braces on teeth Feeling pressured to work when my body is not well I wish I’d known it’s not normal Bad pain, acupuncture, experimenting with oils Threw up for the first time since January Being happy isn’t only for the neurotypical ER doctors hate us Malingering, teachers thinking I was faking Low spoons from having to keep up with people who have near infinite spoons

March got better towards the end with more frequent massage and me getting very serious about my Ayurveda self-care routine. Yoga deep stretch 2x a day, strict rest breaks, lots of ashwagandha, etc. Sleep became difficult again, both at night and during the day.

Neurological tics and SP Spine spoonie end of March Appreciate the time a spoonie gives you Emotional detox the past 4 years Low pain day despite stress and activity ?? didn’t have to medicate until 9pm Ashwagandha powder feeling changes Two days in a row of low pain and good brain function Survival is anything but typical More ashwa goodness Glass half full Suddenly back to being in bed most of the day Medical records showing just how incompetent my old docs were What does it mean to be strong? Spine swelling stealing my days I want a spinal implant Spoonies are always performing Losing friends when you get sick

Sesame oil and hot/cold pack life New vape cartridge for spine pain relief! Golden milk with ashwagandha every night!

Had a very busy week even with low pain days and got worn out after 6 days, high pain, but still great mood. I felt very positive and optimistic. Reality felt very strange with low pain. But I was back to my usual struggle the next week.

I still feel very much like the only way people will take my health seriously is if I push myself into collapsing. Also spine is so noisy when I do my yoga. I got my tax return and I’m so thankful because I was able to stock up on pain relief products! But I’m still kinda worried about the neurological symptoms I’m having.

I saw my new doctor and was really surprised.

4.12.17 3 month update and thoughts.

#atlas subluxation #chronic illness #invisible illnesses #disability #personal #teku #new's medical timeline

18 notes · View notes