#invisible illnesses

[myalgicencephalomyelitiscfstom]

#chronic illness #chronically ill #invisible illnesses #hiddenillness #long term illness

[newhologram]

So confusing when our loved ones act annoyed and ignore us when we're sick, but then act like they would be devastated if we died.

#spoonie #chronic illness #chronically ill #disability #invisible illnesses #teku

[beawritingbooks]

Invisible Illness & Chronic Pain Ramble:

I was raised Mormon, and I remember how the bishops and teachers in the church would often say that every single thing that happens to a person in this life is something that they agreed to in the “pre-existence.”

That didn’t sit right with me.

When I left Mormonism at 18, I eventually explored different types of spiritual beliefs. Within those spiritual belief systems, I was also told that every single thing that happens to a person in this life is something that they agreed to prior to reincarnating on Earth.

That still doesn’t sit right with me.

In fact, that’s toxic nonsense!

No one chooses suffering. No one chooses to have disabilities, autoimmune disorders, various illnesses, mental health issues, or to be neurodivergent. Furthermore, no one would choose to be poor, starving, abused, bullied, beaten, raped, manipulated, murdered, and/or harmed in any way either.

The idea that we choose our lives before we get here is rooted in ableism, classism, and a ridiculous amount of delusional privilege. It lets neurotypical, non-traumatized, healthy, wealthy, able-bodied people pretend that they have complete control over their own lives.

This way of thinking also allows them to judge others in worse situations. After all, why should people that choose good lives have to empathize with those that choose bad lives.

Whether god (or gods) do or don’t exist doesn’t matter to me. I don’t care if we reincarnate, and I don’t even care if the pre-existence, heaven, hell, or purgatory are real.

That being said, if the pre-existence is real, and/or if reincarnation is real, I don’t think we choose our lives. Instead, I think it’s a random luck of the draw.

Humans/human souls would never choose pain & suffering, & if we were allowed to design our own lives they would all be very nice. For this reason, randomized life circumstances make the most sense to me.

Sometimes you get a good/easy life, and sometimes you get a bad/difficult life.

There is no reason to look at someone in a worse situation than you and think they chose that situation before they were born…that’s just blaming people for shit that’s out of their control.

People need to let the illusion of control go. Shit’s going to be fucked up sometimes, and there’s nothing any of us can do about it except weather the storm and hope we survive it.

I’m going to step down off of my soapbox now. I just needed to scream into the void a little bit and get that off of my chest.

#chronic illness #chronic pain #invisible illness #spirituality #religion #religious trauma #exmormon #different perspective #we don’t choose to suffer #we don’t choose pain #life is random and that’s okay #invisible illnesses #toxic spirituality #toxic positivity #be kind to yourself

[terafied-heart]

#spoonie #neurodivergent #invisible illnesses #tired and sassy 🔪

[shifterscribbles]

Invisible Illness Trauma

#art #artwork #drawing #digital art #digital artwork #drawings #digital media #furry art #furry #vent art #borderline personality disorder #actually borderline #bpd #bpd feels #invisible illness #invisible illnesses #crohn’s disease #ulcerative colitis #inflammatory bowel disease #gore artwork #trauma art #cptsd art #cptsd #complex post traumatic stress disorder #post traumatic stress disorder #ptsd #disabled #disability #invisible disability #head trauma

[fibro-memes]

#fibromyalgia #chronic pain #chronic fatigue #chronic illness #spoonie #fibro #chronically ill #invisible illness

[chroniclesofchronicillness]

This makes so much sense

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #potsandspoonies #100 percent

[potsiepumpkin]

When the chronic fatigue is chronic

#chronic illness #chronic pain #disability #pots syndrome #postural orthostatic tachycardia syndrome #chronic fatigue #invisible disability #fibromyalgia #spoonie #chronic life #hypermobile eds

[colourmeastonished]

Body swap movie where one of them has invisible disabilities and when the other one lands in their body they immediately collapse catatonic on the floor from the pain and fatigue and the first one is like 'oh damn guess I don't have to worry that I'm faking it anymore'

#i have this fantasy of one my able bodied friends and or coworkers occupying my body for like an hour #just to get a real sense of how much i am truly weathering hellfire every day of my life #sometimes i take stock and im like holy crap ive gotten so used to so much #im a frog in a pot and ive convinced myself the bubbling is just fun ambience #my thoughts #invisible disability #chronic illness #chronic pain

[sunnywalnut]

Local PSA: invisible disability does NOT mean you can live your life like a "normal person" invisible disability meant that if a stranger looks at you in public they wouldn't know what's going on.

Like if a wheelchair user were to decide to run into a corner store to grab a candy bar because they know that their legs can last that long without, the cashier wouldn't know.

Or someone with "mild" scoliosis walking upright through their shoulder leans slightly to the left. Maybe they just have bad posture. The lady in the next isle thinks to herself.

The person with EDS or POTS or whatever sort of condition wearing compression gloves out and about. Perhaps it's a fashion statement?

Or what about the people with intestinal issues? They can look like "normal people" too.

You never know what someone is going through.

You never know what they might need to survive or if they're on the edge of a flare up or even if they are currently going through one just by one look.

I think both disabled and non disabled need to realize this. You're not "no longer disabled" because you can "live without" disability aids. They're there to help you. To make your life easier. If living without a cane is going to make it more likely you'll fall over and hurt yourself, use the cane.

If you need to sit down to do dishes or cut vegetables because you need to save your legs for taking out the trash, sit down.

If you need a shower chair because you don't know if you'll pass out, use the shower chair.

People are going to judge you regardless for multiple reasons out of your control.

I'd rather they judge you while you're being safe.

You don't need to struggle to be "normal."

You can just be you.

However that looks for you.

Use your disability aids.

#disability #disabled #disabilties #this has been a psa #mobility aid #invisible disability #invisible illness

[myalgicencephalomyelitiscfstom]

#chronic illness #invisible illnesses #Disabled #spoonie #homebound

[newhologram]

Me having access to pain mgmt now doesn’t mean I’m comfortable or pain-free. It means I can slow flare ups before they get out of hand, and keep out of the ER when a severe one sneaks up on me. It means I am able to RECOVER faster. I’m still in pain every single day. I can’t take narcotics every day for many reasons but also bc even my Big Emergency pain meds make me really sick and require recovery too. So I’m often trading a painful and dangerous flare for being sick and useless anyway. My new stuff is way stronger than the weak little amount of morphine the ER would give me anyway. Life with chronic pain requires braving an inner storm alone most of the time that people can’t see.

#chronic pain #chronic illness #spoonie #disability #invisible illnesses #teku

[tumble-tv]

"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽

#wheelchair #ambulatory wheelchair user #ambulatory mobility aid user #chronic illness #chronicpain #chronic disability #other chronic illness bs #chronic disease #chronically ill #disabled #fibromyalgia #undiagnosed chronic illness #disablity #chronic disorder #chronic pain #chronic fatigue #invisible illness #invisible disability #disability #physically disabled #disabilties #cpunk #cripple life #cripple problems #cripple punk #queer cripple #crip punk #undiagnosed chronic pain #joint pain #screenreader unfriendly

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

#signal boost #please reblog #chronic pain #chronic illness #disability #fibromyalgia #cfs #chronic fаtiguе ѕуndrоmе #actually disabled #spoonie #me/cfs #cfs/me #long covid #important #invisible disability #ehlers danlos syndrome #lyme disease #chronically ill #cpunk #cripplepunk

[missmin33]

Medical Gaslighting

Image courtesy of FreeDigitalPhotos.net/imagerymajestic Today I delve into a unique form of abuse perpetrated against a unique group of people…those with invisible illnesses. The culprits are our respected and trusted medical professionals, to whom we turn at our most vulnerable. A demonstrable link exists between long term abuse and the development of chronic, auto-immune and neurological…

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#Abuse #Emotional Abuse #gaslighting #Invisible Illnesses #Medical Abuse #Medical Gaslighting #Myalgic Encephalomyelitis #Psychology #Verbal Abuse

[cosmiccripple]

idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.

it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.

stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person

leave me alone and let me be disabled in peace

#physical disability #actually disabled #disability #invisible disability #physically disabled #chronic disability #chronic illness #chronically ill #chronic pain #crip punk #cpunk #c punk #cripplepunk #cripple punk #angry cripple #cripple #multiply disabled #disabled #disabilities #ableist bullshit #ableism