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#potsieproblems
livinglifewithpots · 2 years
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a day in the life of a potsie: summer edition #chronicillnesswarrior #traumaticbraininjury #chronicillness #potsieproblems #restingnow #fyp #potssyndrome #realtalk #dysautonomia #dysautonomiapots #potsietok #potsieproblems #potsielife #spoonie #chargie #selfcare
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PoTsie post
My dysautonomia people I decided to make a list of things that help make my life easier with it ,figured this might help someone who just got diagnosed or some new tips, these may help you they may not idk but they work for me
Feeling really sluggish or drained from over doing it: pedialtye and carbs
Propel water works better than Gatorade for sodium intake and also had less sugar
Diet can influence a lot , try to eat healthy if you can but I understand that’s not always a option
Mood can also influence it, I notice my depression and anxiety can make my pots symptoms worse
Don’t over work yourself , do everything at your own pace
Ask your cardiologist if they treat anyone else with pots or have treated anyone with pots and ask how familiar they are with it
Magnesium supplements help with muscle arches and fatigue
I’ll add more as I think of things that have helped or find new things that work, feel free to add things that have helped you
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daaconnections · 3 years
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🤣 POTS PROBLEMS This was too funny not to share! ➡️ Tell me you have POTS, without telling me you have POTS! 🧂 🧂 dont be salty about it…. 🧂 🧂 😂🤣😂🤣 Photo Description: Food order is placed with notes that say “Please, if possible; add an extra; extraordinarily unhealthy amount of salt. Like you cannot see thme fry under all the salt that’s on there. I have a problem and I like having a problem.” #pots #posturalorthostatictachycardiasyndrome #zebrastrong🦓 #zebras #dysautonomia #dysautonomiaawareness #disability #disabilities #invisibledisabilities #servicedogs #servicedogsforpots #potsie #potsie_probs #potsielife #potsiestrong #potsieproblems #spoonie #spoonielife #spooniesupport #spoonies #spooniecommunity #spooniesisterhood #disabledautoimmune #mastcellactivationsyndrome #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #mcas #mastcellactivationdisorder #mastcelldisorder https://www.instagram.com/p/CT_QBdqMoq0/?utm_medium=tumblr
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spoonielivingapp · 7 years
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Thank you for sharing 💜🥄✨💜 Repost: @fiyera_rae Today on "why I use mobility aids"! My wheelchair allows me to enjoy myself without my illnesses limiting me as much. I'm at the mall helping someone shop for new clothes, and I wouldn't be able to be comfortable or safe if I was on my feet. With my 3 most disruptive illnesses (EDS/GP/POTS) being jerks, I would be stuck at home this afternoon because I need to rest and be careful after work. However, thanks to my wheelchair I can be out and about for an hour or two! #PartTimeWheelchairUser #thisishowiroll #EhlersDanlosSyndrome #Gastroparesis #POTSieProblems #PosturalOrthostaticTachycardiaSyndrome#POTS #spoonielivingapp
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shebaisqueen · 8 years
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People just don't listen. #potsie #spoonie #spoonieproblems #chronicillness #potsieproblems
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People just don't listen. #potsie #spoonie #spoonieproblems #chronicillness #potsieproblems
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sluts-in-tutus · 11 years
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Trying to get my blood pressure down. Three pillows under my legs is no fun. #potsieproblems
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livinglifewithpots · 2 years
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I got these pictures off Instagram and wanted to share with you guys. this is a harsh reality I have to face with daily. and I struggle with it all because sometimes I don't feel good enough or feel worthy enough.
living with an illness that I got through no fault of my own is hard and rough and sometimes lonely. but I'm thankful for everyone in my life. I don't know where I'd be without their love and support. #potsieproblems #chronicillness #chronicillnesswarrior #traumaticbraininjury
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