It has been incredibly painful to have been a parent caregiver for a whole decade, from ages 22-32, and have absolutely no support with the exception of certain family members. It's especially painful because my Vietnamese mom cannot understand my emotional needs and often exacerbates my mental health issues, but cannot live by herself because of her health problems.
From ages 22-24, I was navigating college, grief (lost my dad unexpectedly before my 3rd year of college), my repressed orientation, and being a caregiver before I even knew what being a caregiver was.
From age 25 until now, I have been dealing with freelancing, trying to live my dream as a poet and author, mental health issues, navigating my different aspects of my identity (race, orientation, gender identity), and being a caregiver.
The last three years have been even more difficult due to the ongoing pandemic & other world on fire stuff, especially since I live in the United States.
The United States has such a backwards view of what adulthood should be like that they can't provide adequate support for young caregivers like myself, especially caregivers of color (I'm Black-Asian). I've been put down for living with my parent past my early twenties in an online caregiver support group, despite the fact that I need to do so to take care of my mom. I've been told that by my state that I would have to give up my freelance writing career to receive any financial support, because people think you can't freelance and be a caregiver at the same time. My freelance career has been integral to my writing dream and I've managed it for 8 years.
I'm a young caregiver of color, I'm very tired, and desperately need something to change ASAP.
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It's a thing I have to remind myself of, again and again. People in moderate and severe stages of dementia often are unable to engage in conversations about respect or political correctness. Even if they are, they’ll likely forget the discussion shortly afterward. Instead, the best option is to quickly end their abrasive comments through acknowledgment and redirection. Reasoning with your care recipient or teaching them the error of their thinking is flat-out impossible.
A proactive way for caregivers to avoid conflict in public is to carry a card that says "My companion has dementia. Please be patient. Thank You!" Silently sliding one of these across the counter to a receptionist or server can be a great way to get ahead of potentially stressful interactions.
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Caregiver Guide: Ensuring Loving Care for Those Close to Your Heart
Embark on a journey to enhance your caregiving skills, tackling challenges, adopting self-care regimes, and perfecting communication. Unveil safety protocols, emotional support techniques, and useful resources. Understand legal aspects and burnout prevention tips.
Stepping into the role of a caregiver means immersing oneself in a universe of compassion, offering care to those who hold a dear…
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"If something's not working, or it's ending up hurting you, or it's toxic if you're working in a toxic environment and people are not pulling their weight, and you feel like you're always having to take up the slack -- just watch out."
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Feeling very overwhelmed, the package, my stupid english assessment not working >:( other personal issues- everyone preaches on here not to stress over the bullshit but what to do when you want it to go away but it doesnt ? I look at the bright side n the positives of today. I'm just gonna age dream today 🥺🧸 and allow myself to feel safe ♡ if anyone feels this way too my dms/asks r always open💗🎀
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Good News! Caregiving Probably Won't Kill You
Burnout is a real issue affecting caregivers of all types, and some shocking statistics have been floating around lately. One study claims that 70% of caregivers over the age of 70 die before their care recipients. Another study suggests that 30% of all caregivers die before those they are caring for. After some cursory research, I find these numbers to be a bit "click-baity" and hard to swallow, as these articles lack citations and are often posted and promoted by estate planning businesses. (Is EVERYTHING a scam these days? Sometimes it feels that way.)
Turning to real science, I found an ACTUAL research paper posted on the National Library of Medicine's website. Researchers conducted descriptive and survival analyses on up to 17 years of data from a nationally representative Health and Retirement Study to evaluate the proportion of spouse caregivers who died before their care recipients. The results show that only 18% of spouse caregivers died before their care recipients, and spouse caregivers had a significantly lower risk of mortality than their husbands or wives with Alzheimer's disease or a related dementia (ADRD).
"Available syntheses of population-based studies suggest mixed overall effects of caregiving status on mortality. In brief, the available findings imply that caregiving itself is not associated with an increased risk of death."
Kaplan-Meier survival curves for spouse caregivers and persons with ADRD–current version. Abbreviation: ADRD, Alzheimer's disease or a related dementia.
So this is good news! However, this doesn't change the fact that caregivers are constantly confronted by direct threats to their mental health, and indirect threats to their physical well being. Peter Vitaliano, a professor of geriatric psychiatry at the University of Washington and an expert on caregiving, said that the chronic stress of caring for someone can lead to high blood pressure, diabetes and a compromised immune system. "Caregivers are usually so immersed in their role that they neglect their own care—The stress is not only related to the daunting work of caregiving, but also the grief associated with the decline in the health of their loved ones." This is a condition that is increasingly being referred to as “caregiver syndrome” by the medical community.
But Vitaliano isn’t sure giving caregiver syndrome the status of an official diagnosis would be a good thing. He argues that if “caregiver syndrome” were listed in the Diagnostic and Statistical Manual of Mental Disorders (a text published by the American Psychiatric Association that defines all mental health disorders) it could stigmatize those that have it. “Caregiver stress is directly related to the way our society views the elderly and the people who care for them,” Vitaliano says. "Today, caregiving is viewed largely as a burden in this country. If it were viewed as more of a societal expectation and people were willing to offer more support, fewer caregivers would suffer in isolation."
From a personal level to a societal level, the remedy for suffering is the same. We have to work on ourselves and seek a path of compassion for others. Sometimes that feels unfair, because we're already burdened with responsibility and grief. Why do we have to add self-improvement to our to-do lists? Can't the universe cut us some slack and allow us to point to external causes for our suffering? The truth, really, is that this is also good news for us, because it puts us in control of our suffering. The one thing we can actually control in this reality is how we react to things.
Working on ourselves is not easy. In fact it's some of the hardest work there is. But for ourselves and everyone around us, it is always the most important work we can do. When viewed through this lens we see that caregiving becomes a gift instead of a burden. Caregiving presents us with a firehose of opportunities to practice patience and forgiveness, and not just for our care recipients and health care institutions. We need to develop patience and forgiveness for ourselves. Finding a balance of self-care and caring for others is the key to moderating our mood, and staying mentally fit in the face of grief and adversity.
We must take every opportunity to appreciate the tiny, wonderful things in our lives. We must let go of our resentments and hangups that truly do not matter. And we must not beat ourselves up for getting hung up on them in the first place. We can breathe. We can let go.
The good news is we are in control.
Link to the study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6292823
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StressMonster101 as a Agere Caregiver
(yes I did her first because she is the easiest to imagine CG headcanons for)
(Also! Note: this is about the character Stress and not the content creator Stress. Also, Hermits interact at own risk.)
I imagine that Stress would be a very soft and comforting CG, she would absolutely spoil her littles with too many baked goods and treats. But she also knows when to say no to a little brat (as long as she doesn't get overwhelmed by their cuteness!)
She would make lots of teas and angel milk for her littles.
She makes sure that her littles have a space filled with blankets and soft things to be in and be comfortable. She can never say no to buying a stuffie for her littles, so they never go without many soft friends.
She also tries her hardest to be brave! If her little is particularly into spooky things or kid-horror movies (like Coraline) she will watch them with you, only to be the one most scared!
She goes completely all-out each Halloween and makes sure that her littles have the best costumes and would almost certainly plan out a route to go trick-or-treating most effectively! When her little isn't looking she might steal a piece of candy or two while out trick-or-treating. She would absolutely do matching costumes if she can!
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4/17/23
So far.... 24 oz water x 2, ACV shot, large cup of lemon water.
Woke up and mom was having an low oxygen episode.
I called in late to work and am sitting with her watching TV until she recovers.
The hardest part of caregiving is focusing on me while focusing on someone else is that I feel like someone always loses and someone always wins. It is hard to focus on 2 things at once.
Hard to deal with everything but I am trying. I tried to relax as much as I can this weekend. I spent time with people I love and care about. 💗
I was really stressed out last week and that makes it hard not to over consume food.
But I have my coach and we are working in things. Focusing on whole foods, drinking water, and working in daily habits for success. Walking daily, cardio as often as I can, and strength classes at least 2-3 x a week at work.
My coach reminded me that my mom would never want me to be harming myself because of her health.
And he is right. She wouldn't. She always wants the best for me. She lets me live here rent free and pays all the bills so I can catch up from my travesty of a marriage. She is supportive of me going to school and doing all the work things.
Working on creating better pathways for stress management.
Some meals:
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