#and mitral valve prolapse

[feverdreamsandlucidnightmares]

God I swear I’m not trying to be all doom and gloom talking about my health I know it’s annoying I just really need a break and everyone irl is already done with my shit bc I’ve been too anxious to go back to the doctor bc the last one told me I’d just have to deal with it and potentially get more surgeries and I’m 23 dude. It took nearly 3 years before my doctor even agreed that that surgery was necessary and it didn’t even fully fix my shit it just lessened the pain — which I’m grateful for, don’t get me wrong! But I haven’t had full limb function in my left arm since I was 15 and they made it sound like the surgery would fix it and then acted like I was overreacting when it didn’t. And my left leg has been deeply fucked for nearly as long, and at least slightly fucked at least since I hit double digits, and has gotten progressively worse. So like I know, I get it that I need to go to a doctor, but why would it go better now? What’s going to make a doctor take me seriously now?

I want to be angry, but I’m too tired.

#chronic health #chronic pain #cpunk #cripple punk #tw surgery #I was told (in a nonprofessional capacity) that I should be screened for ehlers danlos syndrome #which matches a lot of my symptoms #and my parental units want me to get screened for pots #and a heart murmur #and mitral valve prolapse #and asthma but I’ve been tested for that within the last 5 or 6 years and seem to be fine in that regard at least #I don’t want to keep doing this man #I would really like to be healthy #I miss ballet a fuckton #and martial arts #and just being able to go places with my friends without having to plan out how to avoid fainting or pain flares #maybe hEDS #I don’t want to clutter up the actual tags with my hypothetical shit #tw vent #fever’s vibe check #feverdreamsandlucidnightmares

[luxcardia]

My Mitral Panic

AKA LC’s Adventures in Cardiology

When I decided to stop lurking and start sharing cardiophile content, I always had this fear at the back of my mind: what if someone catches something abnormal in my recordings? For most of my life, I’ve struggled with health anxiety and hypochondria, so this worry was a natural extension of that.

When I got my Littmann, I could hear my heart much better than with my previous cheap steth, and started noticing new things. I’d already been thinking I had an extra sound, especially when lying down, but now it was much more distinct. Occasionally, I thought I could also hear a murmur, although it was so inconsistent, I figured it might just be my ears playing tricks on me. I studied auscultation guides trying to figure this out, but didn’t find anything that fit. In the end, the solution came from a fellow cardiophile with good ears and more knowledge. He said that the extra sound is most likely a mid-systolic click, which would mean mitral valve prolapse (MVP). Instantly, the pattern of my abnormal heart sounds made sense: a murmur that becomes more noticeable when going from lying down to standing up is common in MVP, and that was exactly what I was hearing.

I know there are plenty of others here who also have MVP, and it’s very common and nearly always benign. But I also learned from various publications and websites that it’s not always harmless - in some unlucky few, it can lead to severe mitral regurgitation that requires valve surgery. With my background of health anxiety, I got very worried about all this. Listening to my heart, which has always been a major turn-on for me, turned into something distressing, because all I could hear were these abnormalities. Occasional skips, which I’ve always had and are almost certainly harmless PVCs, also started to bother me in a way they never had before.

There was only one solution to this situation, and I knew it: I’d have to go and see an actual medical doctor, to find out what was going on with my heart and get some peace of mind.

Of course, seeing a cardiologist was a terrifying idea to me. The mix of excitement/arousal and anxiety/fear in these situations makes them really really difficult. After putting it off for many months, I finally somehow managed to gather up the courage and book an appointment with a cardiologist. Since it didn’t seem like a good idea to explain that some random online person had diagnosed me with MVP, I rather went to the appointment on the pretense of other concerns, such as the palpitations.

The first appointment started with a “resting” ECG, pulse ox and blood pressure from both arms, taken by a very professional and not very talkative nurse. Resting in quotes, because my heart rate was around 100, while normally it’s around 60 at rest, and my BP was something like 160/100, also very much higher than what I see at home. Then, I met the doctor. I was expecting him to auscultate me, but he didn’t do that at all - instead, he guided me to the room next doors for an echocardiogram! I’d never had an echo before, so this was pretty exciting, although the positive excitement was toned down by my fear of what he might find. The doctor had me lie down on my left side and pressed the probe to my chest, and there it was: my beating heart, projected on a big screen where I could easily see it! The doctor was very nice, and kept pointing out details to me - what valves are on the screen and so on. He also commented on how high my heart rate was at the start. Somehow, I was able to relax a little as he kept going, and then he commented on that as well, saying that clearly I’m less afraid now, because it was down to 80. I tried not to focus on his words too much, because the were really quite hot to me…

Finally, after looking at many angles and using the doppler mode as well, the doctor noted that my mitral valve seems to be prolapsing ever so slightly, which is causing a tiny bit of regurgitation. He even showed me the images where it’s visible. I feigned that I didn’t know what it meant, but inside, I was extremely relieved. It was the best possible outcome: I got the explanation for the extra sounds that I was expecting, and at the least serious grade possible. In his statement, he marked the amount of prolapse as 2 mm, when according to various sources >2 mm is the limit of what counts as prolapse. The regurgitation was also trivial, below what even counts as mild. Aside from this, everything else was perfectly fine, all measures were normal, ejection fraction was good, no structural abnormalities. I was incredibly happy to hear all this!

Even though my mitral panic was over, my cardiological adventures didn’t end quite yet. There was also the question of those palpitations, not to mention the high BP readings. This cardiologist was very thorough, and decided that the best way to get to the bottom of this was doing 24h Holter for both BP and ECG. When I went to get the devices set up, I was thinking this would be interesting and kind of exciting, but it turned out to be a complete nightmare. Taking the bus home, I was super self-conscious, because the weather was hot, and the bulky wiring was impossible to hide under a t-shirt, not to mention that the BP cuff was in plain sight. I’ve also always been concerned about having hypertension, and this became a self-fulfilling prophecy. Every time the cuff started to inflate around my arm, I freaked out. I tested a few times with my home monitor on the other arm, and the values were constantly high. At night, I couldn’t sleep, because the measurement went off every half hour. Funnily enough, the BP cuff was messing with my head so badly that I kept forgetting I also had the ECG electrodes on. They were itchy, and I would just unthinkingly start scratching at them until I remembered what they were and that I shouldn’t touch them.

The 24 hours that I had to wear the Holters felt like an absolute eternity, and I was so relieved when I could go back to the doctor’s office and get rid of that horrible BP cuff. As for the results - I was prepared to get a lecture about how my BP is too high and I have to do something about it. Really, I was trying to mentally prepare for a prescription for antihypertensive medication. Instead, the doctor - probably factoring in my explanation of how desperately uncomfortable and nervous I was this whole time - just declared that he doesn’t think I have a problem, and I could stop worrying so much. The ECG didn’t have anything too unusual in it, either. I saw the printout mentioned some PVCs, but apparently such a low amount that it wasn’t meaningful, as he didn’t even bring them up.

So, here we are: my heart has gone through the most extensive testing in my life so far, and the conclusion was that it’s perfectly fine! As a bonus, the very mild MVP does give me an excuse to ask for repeat echos later, if I’m brave enough… I sure would love to have another one of those, it was amazing to see my heart on the screen with the doctor describing all the details! One thing is for sure, though: I never, ever want to experience a BP Holter again! Cannot recommend that experience, 0/5.

#mitral valve prolapse #echocardiography #personal #my heart #blood pressure #holter monitor #ecg #cardiophilia #medical examination #long text post

[engagemythrusters]

ngl coughing bc of my MVP always makes me feel like those theoretical Sickly Victorian Boys. mama says i have a weak heart. papa says i shan't see the light of another day.

#i also feel like someone should punch me in the chest to get it started right but i KNOW thats not how it works #mitral valve prolapse

[singlethread]

Love that so much of my family has various doctor’s appointments in December for various issues 😭

#my dad is having shoulder surgery #my grandma might be having a procedure for her mitral valve prolapse issue #I’m getting evaluated for eds #my brother is having a procedure done for his thyroid #my mom is being evaluated for surgery on her feet #like BRO DKDHDKDJDKD

[batsbaby]

I am cramping so bad and I open tomorrow and have to train a new person/do the store tour lmao but then I have two days off, even if one of those is gonna be a cardiologist appointment

#I’m being seen about my mitral valve prolapse finally!!

[sedehaven]

MVP

Quarterback, dead on the field. Aged sixteen years, two months, six days. Mitral valve prolapse.

Footfalls hard in soft turf, grass reaching for ankles thumbing green noses at regulation length.

Scent of boysweat, metal tang in young mouths.

Silver whistle trill– shrieking scrimmage.

Boys line up, quarterback laughs at fullback’s joke song about sweaty balls.

Calls the play, pauses, looks at the empty sky, feels the cool fingers brushing the meat

of his heart.

Falls to the soft green of the uncut grass, falls in pieces. A toddler’s first

steps. First day of kindergarten, a head taller than the rest of his class. First kiss,

unsure, in a closet, on a dare. The lab report he hadn’t finished. His mother’s face exploding

into stars, fading into the deep dark that lives beyond the stars. Little sister’s scream from cheer

practice. Father’s words rising like a cloud of monarchs – orange and black –

“I’m proud of you, son.”

Everything between him and the blue of the sky fades to dust motes, and he is rising

past butterflies, past screams, and stars. To the place beyond.

-- S. E. De Haven

#mitral valve prolapse #poetry #spilled ink #inkstay #poetryriot #writerscreed #poem #poets on tumblr #twcpoetry #lit

[jerek]

emotionally transported in the shower to the exact time and place where i was lectured about how "well sorry that happened but yeah we don't know the side effects of all this hormone stuff" from a guy who was 110% closer to a heart attack than i am

#resting heartbeat in the 40s and 50s git gud #mitral valve prolapse bc god malded and reached in and manually tweaked my heart valves #if i die from some cardiac problem i will die laughing

[autumnbell32]

Haven’t heard this song since college. It came on today while I was pacing my apartment and crying this morning, as one does.

I’ve decided I’m just going to stop crying and smear green eyeshadow under my eyes and go to work. Fuck it, whose sick here?

#would a doctor please actually figure out what the FUCK is wrong wrong with me #the killers #autumnbellradio #mood disorder #vitamin d deficiency #mitral valve prolapse #WHICH THE FUCK IS IT #why do i wake up feeling like this most days #Youtube

[slyth3rinbab3]

Mitral Valve Prolapse: What To Know About It

One of the things I would often ask about mitral valve prolapse is: Is it congenital or acquired? How come symptoms of this comes late in adulthood?

What Mitral Valve Prolapse Is

Also known as Barlowe’s syndrome, mitral valve prolapse is a type of heart valve disease in which the flaps of the mitral valve becomes enlarged or stretched and these flaps bulge into the left atrium as the heart contracts with each heartbeat. (Source: “Mitral Valve Prolapse” from Penn Medicine; https://www.pennmedicine.org/for-patients-and-visitors/patient-information/conditions-treated-a-to-z/mitral-valve-prolapse#:~:text=Mitral%20valve%20prolapse%2C%20also%20known,heart%20contracts%20with%20each%20heartbeat.)

When a mitral valve becomes prolapsed, it means that the valve’s flaps doesn’t always fit and close properly, between each heartbeat, causing it to leak blood backward through the valve back to the left atrium.

Mitral valve prolapse is said to be present at birth and its prevalence is studied in 1734 consecutive new borns without any congenital structural heart disease. (Source: “Is Mitral Valve Prolapse A Congenital Or Acquired Disease?” by R Nascimento, A Freitas, F Teixeira, … from National Library of Medicine; https://pubmed.ncbi.nlm.nih.gov/9193034/)

Other names of mitral valve prolapse are: click-murmur syndrome, Barlowe syndrome, balloon mitral valve, or flappy valve syndrome. Mitral valve prolapse is also said to occur in around 3% of the population. (Source: “Mitral Valve Prolapse” from John Hopkins Medicine; https://www.hopkinsmedicine.org/health/conditions-and-diseases/mitral-valve-prolapse).

Though the cause of mitral valve is unknown, this condition is thought to be linked to heredity. Mitral valve prolapse is known to be asymptomatic (showing little or no symptoms at all) , however, here are common symptoms of MVP:

Palpitations

Chest pain

Racing heartbeat (arrhythmia)

Light-headedness

Fatigue

#mitral valve prolapse #heart health

[healthcare021]

#Cost of Mitral Valve Replacement Treatment in India #Mitral Valve Prolapse #Mitral Valve Prolapse Treatment In India #Mitral Valve Replacement Surgery In India #Mitral Valve Replacement Treatment Hospitals in India #Symptoms of Mitral Valve

[allthiings]

Mitral Valve Prolapse: Symptoms, Causes, & Treatment | Medanta

#mitral valve prolapse #mitral valve prolapse symptoms #mitral valve prolapse treatment #mitral valve prolapse causes

[into-wonderland-caroline]

Today is the day☀️

Dad got home from drill and now me and my parents are headed to Seattle so I can get my stitches out from my heart surgery but first a dunkin coffee pit stop of course because...priorities ☕

#growing up millitary #health problems #heart surgery #heart problems #doctor appointments #mitral valve regurgitation #mitral valve prolapse #heart murmur #thinned heart walls #slow heart rate

[bluelotusrises]

My Chronic Illness Story

My name is April and I have dealt with chronic illnesses all of my life. From the day I was born, during the blizzard of ’78. I was a preemie and born with a heart condition. Growing up there were other issues. Some figured out at that time and others not until I was an adult and could be my own advocate. And unfortunately I still have been diagnosed with new diseases just this year, in 2022.

I was born with a dysrhythmia that was later diagnosed to be caused by the fact I that had Mitral Valve Prolapse. So I have been regularly and routinely under a doctor’s care since then.

By the time I was 12, I had also been diagnosed with Pollen Allergies, High Cholesterol (hereditary) and had already had a surgery to repair an Inguinal Hernia.

By the age of 22, I had a few things added to my list: Chronic Intractable Migraines, Hashimoto’s Disease, PCOS (Poly-Cystic Ovarian Syndrome) and Insulin Resistance. Also by that time I had been married to my now ex-husband for 2 years. And the abuse and control had already begun. In the 10 years that followed that I would be diagnosed with Degenerative Disc Disease after being in a vehicle accident where my truck and travel trailer were totaled. The accident caused 2 discs to herniate. I had 2 seperate Laminectomies and then a 2-level Spinal Fusion (L4/L5/S1) in a 3 year period. And was told after the fusion I likely would one day need L3 fused to it all.

In the last 10 years doctor’s have only added to my diagnosed list with IBS-D, Gastritis, Diverticulosis, Redundant & Mobile Colon, Uterine Fibroids, Bilateral SCDS (Semicircular Canal Dehiscence Syndrome) and EPI (Exocrine Pancreatic Insufficiency). Also in that time I had gone through 3 Nerve Root Block Injections at L3/L4 and a Right SI Joint Injection w/TPI. Then there was a Colonoscopy, 2 Endoscopies, a MRI, a HIDA Scan, Esophageal Motility Study and an Esophageal Bravo PH Study, that resulted in first having my Gallbladder taken out, then 6 months later I had a Nissen Fundoplication and Hiatal Hernia Repair.

A few years ago, I started having a lot of vestibular symptoms like vertigo, tinnitus (both ringing and pulsatile), autophony, hyperacusis, ear fullness, oscillopsia and nystagmus. They first diagnosed me with Vestibular Migraines and put me on meds to help it. It did ease a couple of the symptoms, but I still was greatly suffering. So I went through several hearing tests, a thin-slice CT scan, oVEMP, cVEMP and a VNG. Finally after 2 years of searching for a diagnosis the testing showed I had bilateral SCDS. A very rare disease, only affecting 1-2% of the population. It finally explained a lot I had dealt with as even a child, though I had no idea at the time since they were mild symptoms. My right side was the worst so I had that side repaired first. It required a brain surgery or MFC (Middle Fossa Craniotomy) in which the surgeon plugged the canal, rebuilt a section of the temporal bone, did a tegman reinforcement and repaired a CFS Leak (Cerebral Spinal Fluid) that he found during surgery. I need the left side done, but since it still isn’t as bad, I am waiting.

This year I was given the EPI diagnosis and most recently my Hashimoto’s has mutated into Oscillating Hypo/Hyper Thyroidism which has been very difficult to get under control. Also in the last few years I have been divorced, remarried to the most amazing man and had my beautiful daughter. The divorce was long due and I’m glad there were a couple people finally in my life who were willing to step up and help me out of a very bad situation.

Now I don’t say all this for sympathy or pity. As in the end I am so happy where my life has taken me. I am now married to the most amazing, caring and loving man in the world and we have a beautiful daughter together. I say all this because, if you are going through anything like these illnesses or similar, I understand and you are not alone. I know from experience it feels sometimes like you are alone in your fight, but you are not. You just haven’t found your true family or friends yet. But they are out there. And I am here for anyone. Feel free to reach out to me.

#chronic illness warrior #autoimmune disorders #hashimotosdisease #pcos #scds #chronic migraine #spinal fusion #mitral valve prolapse #insulin resistance #no gallbladder

[gokhaledr]

Looking for Mitral Valve Prolapse Treatment in Hyderabad, Book an Appointment with Dr Gokhale, Best Mitral Valve Prolapse Treatments Doctor in Hyderabad

#mitral valve prolapse symptoms #mitral valve prolapse treatment in hyderabad #mitral valve prolapse causes #heart specialist in telangana

[ayurveda4all]

MITRAL VALVE PROLAPSE- Ayurvedic Treatment, Diet, Exercises, Research Papers, Yoga & Pranayama

MITRAL VALVE PROLAPSE- Ayurvedic Treatment, Diet, Exercises, Research Papers, Yoga & Pranayama

Mitral valve prolapse is the condition in which the valve between the left heart chambers closed improperly. This condition is also known as ‘click murmur syndrome’. SIGNS AND SYMPTOMS OF MITRAL VALVE PROLAPSE  CAUSES OF MITRAL VALVE PROLAPSE  PATHOPHYSIOLOGY OF MITRAL VALVE PROLAPSE  DIAGNOSIS OF MITRAL VALVE PROLAPSE  TREATMENTS FOR MITRAL VALVE PROLAPSE  PROGNOSIS OF MITRAL VALVE…

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#MITRAL VALVE PROLAPSE-ayurvedic-treatment #MITRAL VALVE PROLAPSE-herbal-medicines #MITRAL VALVE PROLAPSE-herbal-treatment

[thebibliosphere]

Hey Joy, this isn't a question so much as a way for me to convince myself I'm not a hypochondriac, lol. Lately, I've been experiencing symptoms of fatigue, brain fog or memory issues, light-headedness, etc, that are uncommon for my age (30). I have related disorders such as anemia, anxiety, & ADHD that may be contributing to these symptoms, although they seem to have gotten worse or appear more frequently now than when I was initially diagnosed with those disorders. My work allows me to read & interact with disabled people with rare diseases, so I often find similarities with their medical issues. At first, I thought this was all just burnout or something related to the lockdown during COVID. I just saw my doctor and had blood work done to check my levels, and I may have a heart condition (tachycardia, mitral valve prolapse). I've fallen asleep at work before because I can't keep my eyes open, even after a full 8 hours of sleep. I can get dizzy from standing up too fast & can't seem to be on my feet for very long without discomfort & pain (I used to work retail, how did I ever do it?). I've researched some of my symptoms and found ME/CFS and POTS as possible conditions. Do you think it's a possibility I have these, or is it just my anxiety? Thank you! (P.s. Hunger Pangs is on my tbr!)

I obviously cannot tell you with any certainty what is wrong--and I am glad you are seeing doctors about it already and may have possible answers wrt tachycardia and the mitral valve.

What I will say is that there are many types of dysautonomia, of which POTS is one, and that what you are describing sounds very familiar to me as someone with two known types of dysautonomia.

The fact that this is hampering your quality of life to the point where you fall asleep at work, are unable to stand without getting dizzy, and are experiencing chronic pain, is enough of a reason to pursue further testing for things like dysautonomia and, yes, possibly even ME/CFS though given your history of anemia, I'm inclined more toward dysautonomia because the two often go hand in hand.

Also, it is normal to feel anxiety experiencing these types of symptoms. Even if it turns out to be a symptom of your anxiety, doesn't make the experiences any less real and debilitating, and you deserve treatment that will help improve your quality and comfort of life. And there is treatment and things you can do that will make you feel better. Getting your anemia under control should be a top priority if it isn't already. Mines was allowed to go untreated for years until we found out my iron anemia was being caused by pernicious anemia (b12 deficiency), and the iron anemia I'd been plagued with since birth suddenly cleared up.

Years and years of blood transfusions and infusion treatments, and the whole time I needed b12. Who knew? Certainly not my old doctors.

Anyway. If your symptoms are at the point where you are recognizing yourself in things like POTS? It's time to pursue that with your doctor. Don't put it off because you think it's not that bad or others have it worse. Everyone deserves to feel well.

Good luck.

#chronic health tag #and have fun reading Phangs when you get to it!