#childhoodcancersurvivor | Explore Tumblr Posts and Blogs

junesomeday · 1 year

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7 year ago today it was the day we discovered Tatum’s brain tumor! So much has happened and changed since then, and we are so thankful every day that she is here, healthy and thriving! #braincancersurvivor #medulloblastomasurvivor #childhoodcancersurvivor https://www.instagram.com/p/CqbZOaXgvUh/?igshid=NGJjMDIxMWI=

#braincancersurvivor #medulloblastomasurvivor #childhoodcancersurvivor

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prathimahospitals · 3 months

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𝐈𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐂𝐡𝐢𝐥𝐝𝐡𝐨𝐨𝐝 𝐂𝐚𝐧𝐜𝐞𝐫 𝐃𝐚𝐲

Shining Light on Hope: Tackling Challenges for Childhood Cancer Awareness

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vallyg-blog · 6 years

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Cancerversary

I was watching TV with my mom one day and one of those fundraising commercials for children with cancer came on. I had to have been at least 6 years old and I asked my mom, “I will never get cancer right?” She responded, “Of course not baby.”

January 1998 (8 years old) I was visiting my grandparents in Florida and I broke out into a wild rash, which is not abnormal, however that is where my cancer journey began. One day I was on the playground and like a typical child tumbled over which resulted in a broken left arm? I got a hot pink cast of course. The WORSE was when I sprained my middle finger. You could imagine the amount of teasing I got from that while being a third grader with a huge splint on my middle finger. I remember going to the emergency room once for god knows what, and before I was released, a nurse spoke to me and my mother and said, “I am afraid she MIGHT have cancer.” I felt absolutely hopeless in that moment. I rememberer being in the school nurses office EVERYDAY and she was wonderful, however one day I think she got fed up and told me I could not keep going to her everyday. I am not one to fake an illness. Even now a days i don’t take a pill for every ache and pain. I was very offended and felt so sad. How can she tell me that I cant go to her when I could not function in class? You think a third grader would rather be sleeping in the nurses office instead of being with her friends? It was then Easter 1998, I remember being in a wheelchair and my uncle gave me a massage as he was a licensed massage therapist and when he was finished and left the room and whispered to my mom, “I think it is cancer.” I remember laying facedown behind the glass front door watching my cousins leave and waving goodbye. My mom told me recently that she was reported to CPS by my school. I HAD NO IDEA! I am one that is proud of the town I grew up in and only have good things for them to say about it. Then this was sprung upon me. I was pissed. During this ENTIRE time my mom was a single parent and my dad was struggling with his own battle of addiction at the time.

June 24 1998 I entered the hospital and I was immediately sent to get a bone marrow biopsy while awake. I had a needle up my spine for at least 20 minutes. After my mom was asked to talk to the social worker. I was then called in. My mom’s hands were in her face and she looked at me once and started to cry hysterically. I knew at that point my life was going to change forever. The social worker then told me, “Valerie you have Leukemia.” I was eight years old and knew what that was.

The next two and a half years of my life was spent in and out of the hospital. I had to get a mediport two days after I was diagnosed. The mediport was a small internal contraption that was placed right above my chest so my veins would not collapse in my arms since I had to get multiple iv treatments. I was not allowed to go in public places for a while and I could not play like normal kids. I had to always be in my home or at the hospital. If I was out in public, it was for a very short time. My grandparents had a summer house on the water and I had to always wear a t-shirt and be soaked in sunblock. Sometimes my Poppy would make me wear his bucket hat. So embarrassing. It was upsetting watching all the other kids playing and `I had to be controlled all the time. The worse experience I had was being told six months after remission that there were leukemic cells growing again and I was told that I may have to get a bone marrow transplant. I thought my life was over. I remember seeing those kids and they were worse off than me. I looked ill, they looked deathly. It ended up that it was normal for leukemic cells to resurface and I was in the clear. I never had to loose all my hair, although my hair did thin out. I missed all of 4th grade and I had a tutor. I was so sick that sometimes my tutor would just come and let me nap. School was really hard for me because I pretty much missed all of 4th grade and it was hard to bounce back. My mother was the soul caretaker of me at the time and due to the amount of attention needed to address my illness, my younger brother had to be bounced around from family member to family member. I used to have a book that I took pictures of hospital staff and hospital patients and many of the children have passed in that book.

In addition, the medication I was on affected my brain chemistry so it is very hard for me to focus and stay on track. I have a hard time paying attention during conversations. A lot of times my mind just goes blank and I just look dumb founded. I also have hard time expressing my thoughts verbally where ill stop mid-thought and have to think about what I was talking about in the first place. It is very hard to socialize and be professional with my “chemo brain.” College was where I first stared to notice I was different. Not only was I attending a private school while in a sorority with a lower-middle class background that made it hard for me to relate, I also struggled fit in due to my lack of communication skills. I had my own pledge sister say to me verbatim, “Val’s brain is like wind,” and she proceeded to make a gestural gust of wind. I have had my own friends that I grew up with make comments alluding to me being “slow.”

June 24th this year will be my 20 year anniversary. I have had many wonderful experiences since. But not everything has been rainbows and butterflies either. I also continued to experience adversity. I will continue to write about the good, the bad and the ugly in my following blogs so you can see how a child who lived traumatic experiences (more to come) fought through hardship. Life is beautiful, but life is also hard and it is not always perfect, but it is important to never give up.

#childhoodcancersurvivor #leukemia #cancerfree #ellen

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swimmiey · 6 years

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I’ve had an amazing swim clinic tonight from Olympic swimmers @idekker and @saskia_de_jonge. And even though I’m pretty tired now, I’ve had a blast. It was so nice to be able to swim again. I was so happy I was able to do this even though I was pretty tired all day, I really needed some positive energy. Doing thing like this is really helping me to get through the bad days. Big thanks to Inge and Saskia for making my day. 🏊‍♀️ #swimmerforlife #swimclinic #iloveswimming #missswimmingsomuch #chronicillness #invisibleillness #njtube #chronichope #headachefromhell #ineedanap #itneverstops #intracranialhypertension #fanconisyndrome #electrolyteimbalance #kidneydisease #kidneyproblems #kidneyfailure #childhoodcancersurvivor #nursingstudent #butyoudontlooksick #myheadhurts #positiveenergy #totiredtofunction #spoonielife #spoonie #spooniestrong #spoonielife (bij Optisport Dronten zwembad Overboord)

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stemcell-survivor · 4 years

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No words could express my feelings towards this🙏🙏🙏 Posted @withregram • @pediatriccancersociety Via @yochowdaa Aaaaand just like that - things change. • You're fine, and then you're not. • You're home, and then you're admitted ... Don't panic, Link is okay. He's had a hard couple days. I'm not even sure what exactly is going on right now .. Headaches, tummy aches, fever, fever, and body pain have lead him to be admitted again. We might go home today! We might not And that just about sums up life with a pediatric cancer patient. As always - more detailed and real time updates in my stories. If you're planning on getting a #lincolnsleague T - shirt, grab it soon! They'll only be available for a little while longer. The link is in my bio... #childhoodcancerawarenessweek #childhoodcancerawarenessday #childhoodcancersurvivor #pediatriccancerfoundation #pediatriccancercenter #pediatriccancersucks #pediatriccancerawarenessmonth #pediatriccancerresearch #pediatriccancerawareness #pediatriccancer #pediatriccancersurvivor #pediatriccancerresearchfoundation #pediatriccancerisnotrare #childhoodcancerawareness #childhoodcancerawarenessmonth #childhoodcancersucks #childhoodcancerresearch #childhoodcancersurvivor (at Around the World) https://www.instagram.com/p/CFyJOhogQJ_/?igshid=1m520mfvutzy1

#lincolnsleague #childhoodcancerawarenessweek #childhoodcancerawarenessday #childhoodcancersurvivor #pediatriccancerfoundation #pediatriccancercenter #pediatriccancersucks #pediatriccancerawarenessmonth #pediatriccancerresearch #pediatriccancerawareness #pediatriccancer #pediatriccancersurvivor #pediatriccancerresearchfoundation #pediatriccancerisnotrare #childhoodcancerawareness #childhoodcancerawarenessmonth #childhoodcancersucks #childhoodcancerresearch

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cidrepsickkids · 5 years

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#Repost @princess_aubreykate ・・・ Due to treatment, 99% of childhood cancer survivors will have a life-long, chronic health problem. And 96% of childhood cancer survivors will have a severe or life threatening condition. Aubrey suffers from ototoxicity from one of the chemotherapies she received during treatment. This has caused her to have significant hearing loss. This hearing loss is permanent and is progressing getting worse. She can continue to experience this progressing hearing loss for years to come. Aubrey’s last chemo dose was in October 2018 and she is still experiencing effects from the chemo. She is at risk for completely losing the ability to hear high frequency sounds. The hearing loss has also affected her speech. She has difficulty hearing and saying sounds like s, t, f, ch, sh, and k. These kids deserve better and it starts with us! These babies deserve more that 4% of funding and it starts now! Follow the link in the bio and continue to donate. #goGold . . . #childhoodcancerawarenessmonth #childhoodcancerwawarenessmonth2019 #childhoodcancersucks #childhoodcancer #endchildhoodcancer #kidsgetcancertoo #worthmorethan4 #childhoodcancersurvivor #noonefightsalone #hepatoblastoma #hepatoblastomasurvivor https://www.instagram.com/p/B2Ful7NJvX-/?igshid=1vk5jfwgstyqq

#repost #gogold #childhoodcancerawarenessmonth #childhoodcancerwawarenessmonth2019 #childhoodcancersucks #childhoodcancer #endchildhoodcancer #kidsgetcancertoo #worthmorethan4 #childhoodcancersurvivor #noonefightsalone #hepatoblastoma #hepatoblastomasurvivor

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aikidocenterofmiami · 5 years

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Spent the day out on the water with my daughter Sofia. Had a great Daddy & Daughter Day. #lovemydaughter #myhero #childhoodcancersurvivor #saltlife (at Key Biscayne, Florida) https://www.instagram.com/p/B04YUJqpEum5c8Plu1wcvCMSXzYnMJv96pados0/?igshid=1he6l18zxn2wk

#lovemydaughter #myhero #childhoodcancersurvivor #saltlife

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silverspoonscatering · 5 years

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What a beautiful morning we had for the Morgan Adams Petri Dish race! #childhoodcancer #childhoodcancerawareness #childhoodcancersucks #ChildhoodCancerAwarenessMonth #childhoodcancerresearch #childhoodcancermonth #childhoodCancerSurvivor #childhoodcancerawarness #childhoodcancerawarenessday #childhoodcancersupport #childhoodcancerwarriors (at Centennial, Colorado) https://www.instagram.com/p/Bv-oaK0lS1C/?utm_source=ig_tumblr_share&igshid=rnkjig1s8sti

#childhoodcancer #childhoodcancerawareness #childhoodcancersucks #childhoodcancerawarenessmonth #childhoodcancerresearch #childhoodcancermonth #childhoodcancersurvivor #childhoodcancerawarness #childhoodcancerawarenessday #childhoodcancersupport #childhoodcancerwarriors

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conquerorssoftwaretechnologies · 2 years

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Let's contribute to the fight for Childhood Cancer by building strength and support to all the children in the world. International Childhood Cancer Day 2022

#childhoodcancer childhoodcancerday cancerday2022 ChildhoodCancerAwarenessMonth childhoodcancersurvivor

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junesomeday · 2 years

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Brain clinic today! Everything looked good so T is officially 5 years cancer free and considered in remission!! #tatumstribe #braincancersurvivor #childhoodcancersurvivor #medulloblastomasurvivor #remission #hellyeah https://www.instagram.com/p/Cf42NNQgVRM/?igshid=NGJjMDIxMWI=

#tatumstribe #braincancersurvivor #childhoodcancersurvivor #medulloblastomasurvivor #remission #hellyeah

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iconquerorsblr · 2 years

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Let’s help the children who are fighting Cancer by emotionally supporting them during their fight!

#childhoodcancer childhoodcancerday cancerday2022 ChildhoodCancerAwarenessMonth childhoodcancersurvivor

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orbitclinics · 2 years

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Cancer can affect you even in childhood and childhood cancer is increasing at an alarming rate so it is important to provide better health care to your child and protect them from life-threatening diseases.

Sending love and positivity to all the little ones who are battling cancer.

#worldchildhoodcancerday cancer cancerawareness childcancer childhoodcancerawareness childhoodcancer childhoodcancersurvivor OrbitClinics Hom

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vallyg-blog · 6 years

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CANCERVERSARY: 20 Years. I never thought I would see the pyramids, nevermind finally not getting pricked with needles everyday. #cancerversary #leukemia #twentyyearanniversary #cancerfree #cancercard #childhoodcancersurvivor #stupidcancer #kidswithasscancer

#stupidcancer #cancercard #leukemia #kidswithasscancer #twentyyearanniversary #cancerversary #cancerfree #childhoodcancersurvivor

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swimmiey · 7 years

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When you think you look cute with a snap chat filter 😂😂 starting to get a bit nervous for my surgery Monday. In 32 hours I will be admitted to the hospital (have to be there at 7.30 am). Even though I'm starting to get nervous, I'm not nervous for the surgery at all. I'm most nervous for getting the iv, because last time it took them over 4 hours, 20+ pokes and 4 anesthesiologists before they finally were able to start an iv. I know it's stupid to be more nervous for starting the iv rather than the surgery itself. But this will be my 16th surgery so I know what I can expect. If everything goes well and my electrolytes behave I'll be home Monday evening. I just hope that this time they won't refuse giving iv potassium during the surgery. Last 3 times they refused, said it wasn't necessary, but my levels dropped like crazy after surgery.. Last time they did give some iv potassium and my levels stayed within range. So I'm hoping I have a nice anesthesiologist Monday that's willing to listen to me, because I know my body and what's best. I know I will have Hypokalemia after surgery and feel like 💩 when they won't give it. I'll update Monday after surgery. Hope you all have a nice weekend. ************************************************* #hypokalemia #spoonieproblems #surgery #portacath #portacathsurgery #nervousaf #chronicillness #invisibleillness #intracranialhypertension #electrolyteimbalance #lowphosphate #lowpotassium #spooniestrong #totiredtofunction #headachefromhell #ineedaspinaltap #irregularheartbeat #generalanesthesia #shuntlife #shuntproblems #childhoodcancersurvivor #anesthesiologist #hospitallife #operatie #ziekenhuis #ziekenhuisleven #operatingroom #gripperneedle

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stemcell-survivor · 4 years

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Our prayers are going out to you. We all hope you lives beautiful life😊😊🙏🙏🙏 Posted @withregram • @ihadcancer Since this photo was taken, this adorable warrior has been officially declared over 1 year NED from relapsed Stage 4 Neuroblastoma. Thank you for sharing with us @taylor_nellis! ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ Thursday, February 13, 2020 NYC This big girl did it! Azalea did her whole 40 minute Brain MRI completely awake! There were some tears and it was scary at first but with the help of child life, Mommy and movie goggles she did it! We are extremely proud of Azalea and she is very proud of herself. Thank you! 💗🌺🙏🏻🎗 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #neuroblastoma #childhoodcancer #MRI #brain #child #brave #childhood #nevergiveup #cancer #gogold #childrenwithcancer #rarecancer #cancerfighter #cancerthriver #cancersurvivor #childhoodcancersurvivor #morethan4 (at Around The World) https://www.instagram.com/p/CCtJNfXAFXR/?igshid=g0in4sxrm6ad

#neuroblastoma #childhoodcancer #mri #brain #child #brave #childhood #nevergiveup #cancer #gogold #childrenwithcancer #rarecancer #cancerfighter #cancerthriver #cancersurvivor #childhoodcancersurvivor #morethan4

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aforfresh · 6 years

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#Repost from @rainbow94.1fm with @regram.app ... @thedorcascancerfoundation - It was an enlightening session today with @p.j.adeniran and @aforfresh as they talked about the hallmark of childhood cancer presentations in Nigeria from diagnosis - treatment and proffered eclectic solutions to better care in Nigearia Viz-a-Viz Proper education and awareness in recognition of symptoms, better health seeking behavior, better and available treatment options , better health insurance policies and of course, political will. . . #RealityCheck #realitycheckwithaforfem #20daysofgold #childhoodcancer #singseptember #childhoodcancerawareness #childhood #tdcf #childhoodcancerawarenessmonth #childhoodcancersurvivor #childhoodcancerwarriors #childcancerawareness #childhoodcancerngo #canceradvocate #monday https://www.instagram.com/p/Bn1a9BZnYYW/?utm_source=ig_tumblr_share&igshid=dptite1j34ej

#repost #realitycheck #realitycheckwithaforfem #20daysofgold #childhoodcancer #singseptember #childhoodcancerawareness #childhood #tdcf #childhoodcancerawarenessmonth #childhoodcancersurvivor #childhoodcancerwarriors #childcancerawareness #childhoodcancerngo #canceradvocate #monday

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