#rarecancer

[xluvmymelaniex]

There are days like today when I feel completely alone. Not in a way of being misunderstood, but in a way of being isolated from society.

I was a very social person before I was diagnosed. I miss long walks, being around people, going to clubs, on gigs and all of that...

Im just teenager and all i would like to think about is partying, getting drunk with friends and later regretting things on a second day.

The most devastating for me is that I have no one. I feel so alone. I have never been in a relationship. I never loved and I never was loved by someone. I am scared i will never experience love, that's my biggest fear.

#love #cancer #youthcancer #chemotherapy #chemo #ovarian cancer #rarecancer #lgbtq #loneliness

[tonydianajday]

1,309 days living with Stage IVB Cancer. Today CTScans at UT Medical Center Cancer Institute today/results next week “the waiting is the hardest part” #utmedicalcenter #utcancerinstitute #cancer #ctscan #stage4cancer #rarecancer #uterinecancer #trustgod #godsplan #pray https://www.instagram.com/p/CejjhgOpnwpzeMMXWfHs4e-8j3zozb2J0KXahg0/?igshid=NGJjMDIxMWI=

#utmedicalcenter #utcancerinstitute #cancer #ctscan #stage4cancer #rarecancer #uterinecancer #trustgod #godsplan #pray

[heather78]

Calender

Cancer Months

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#cancer awareness #cancersurvivor #rarediseaseday2024 rarecancer

[personaldiarysblog]

Houston , Texas Is Where I Was Raised But Not Where I'm From. I Went To Texas When I Was 18 Years Old & Ended Up In A Good Life With A Boss From Houston , Texas As Well But Things Turned Bad Over Out Of My Control So I Left. Long Story , How I Ended Up Back In Houston , Texas. I Actually As Well Ended Up In Sex Trafficking For Years & Didn't Know My Place On What To Do. I've Lost Respect Within Myself Because I Was Drinking On Drugs , Around A Lot Of Music & People. The Hardest Part About Being In Sex Trafficking Was Getting Out. I Was Careless About My Body & Not Only That I Could Have Caught HIV/AIDS , Many Others In My Community (Talking About Houston , Texas) Did & I Just Were Not One Of Them. It Had Strings To Do With Looking For My Boss & Unknowingly Did I Know He Passed Away From Rare Cancer (That Is A Long Story To) I've Overcame The Control Of Sex Trafficking Had On Me & Just Left It As That , Poor Thing Was In Sex Trafficking 🫣🫣🫣 ..

#PersonalDiarysBlog #HoustonTexas #Boss #RareCancer #SexTrafficking #Smoking #Drugs #Rape #Music #People #Passing #PoorThing #PersonalDiary #Blog

[devchunar-blog]

An estimated two-thirds of all cancers are preventable. Information and education are key to cancer prevention, early detection add to sound decision making about treatment options.

#cancer #canceraawareness #pheochromocytoma #rarecancer #cancer research

[momoftwinsbattlingcancer]

Part 1 The Day Our Lives Were Put on Hold, and Worlds’ Turned Upside Down

Eve and Ella were born at 9PM (twins) on December 19th 2017.  We were so happy and overcome with joy.  I kept them in my belly for 37 weeks and 2 days.  This is great considering twins often are born early.  The first few days in the hospital were tough and overwhelming.  They were jaundice and needed to be placed under lights to assist with resolving that issue.  After 3 long days, we brought them home.  YAY!!!

Wow, it was a lot the first couple of days.  I didn't realize how tough it is to care for newborn twins.  No sleep, constant feeds, changing diapers, and all around caring for them round the clock.  I actually now realize how easy that time was, and had know idea what was to come.  

On day 10, Little Miss Eve stopped eating and was very lethargic.  We rushed her to the hospital, not realizing she wouldn't be returning home.  She wouldn't be returning home that day, week, or month.  

At the hospital, New Years Eve, Eve’s vitals began to drop and her color faded.  The next morning, the surgeons did exploratory surgery on her abdomen.  They discovered it was a volvulus.  A volvulus is when a loop of intestine twists around itself and the mesentery that supports it, resulting in a bowel obstruction.  The removed that portion of the bowel and she was provided an ostomy bag.  

When she came out of surgery, she was on life support for 11 horrible days.  She was only able to withstand a few ml a day of fluids through a feeding tube.  She was hooked up to so many machines, i cannot count them on both of my hands.  Shortly after, she suffered from severe septic shock.  She also had kidney and liver failure, as well as cardiac arrest. This was due to removal of a portion of her bowel.  She was very sick.  I remember asking one of the doctors if she was going to pull through.  The doctor’s response was, “I hoped she would have pulled through this easier.  This isn't looking so great.”  At that point, i broke down.  My husband had to come down and take my place at the hospital.  He was at home caring for Eve’s twin, Ella.  I returned home to be with Ella.

Approximately 5 days after all of this, both twins were diagnosed with a rare eye cancer known as Retinoblastoma.  Retinoblastoma (Rb) is a rare form of cancer that rapidly develops from the immature cells of a retina, the light-detecting tissue of the eye.  Eve would need to be flown to a hospital 2 hours away.  Ella would also have to start treatment (chemotherapy) 2 hours away at the same hospital where Eve would be transported to.

All of this was just so hard to take in.  I felt as though I couldn't breathe.  It was so hard to believe one day they are at home, the next there are terribly sick.  This is only the beginning of our story.  I will continue post our journey daily, until I am up-to-date.  They are 1 yr old now, and they are still on their cancer journey.  

Please feel free to like, comment, share, or ask questions.  

“No One Fights Alone”

#childhoodcancer #cancersux #cancerwarrior #rarecancer #twins #twinwarrior #follow4follow #hope #strength #love #follow by follow #retinoblastoma #heal #twinsfight

[stemcell-survivor]

Our prayers are going out to you. We all hope you lives beautiful life😊😊🙏🙏🙏 Posted @withregram • @ihadcancer Since this photo was taken, this adorable warrior has been officially declared over 1 year NED from relapsed Stage 4 Neuroblastoma. Thank you for sharing with us @taylor_nellis! ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ Thursday, February 13, 2020 NYC This big girl did it! Azalea did her whole 40 minute Brain MRI completely awake! There were some tears and it was scary at first but with the help of child life, Mommy and movie goggles she did it! We are extremely proud of Azalea and she is very proud of herself. Thank you! 💗🌺🙏🏻🎗 ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ #neuroblastoma #childhoodcancer #MRI #brain #child #brave #childhood #nevergiveup #cancer #gogold #childrenwithcancer #rarecancer #cancerfighter #cancerthriver #cancersurvivor #childhoodcancersurvivor #morethan4 (at Around The World) https://www.instagram.com/p/CCtJNfXAFXR/?igshid=g0in4sxrm6ad

#neuroblastoma #childhoodcancer #mri #brain #child #brave #childhood #nevergiveup #cancer #gogold #childrenwithcancer #rarecancer #cancerfighter #cancerthriver #cancersurvivor #childhoodcancersurvivor #morethan4

[theinvidinvasion]

Real fighter. • • #Repost @yuma_tini_bie ・・・ semoga terus kuat dan sihat ye syg..walaupon bintik2 tetap naik..kita buat x tau je k..😅...kita family yang kuat..kekal aktif dan ceria ye..😍😍😘... #prayforfirashamim #fightlikehamim #relapsedlangerhancellhistiocytosismultisystem #rarecancer #lchwarrior #hapybesdayayah #bilenakmaintananceniehamim

#rarecancer #fightlikehamim #repost #hapybesdayayah #lchwarrior #prayforfirashamim #relapsedlangerhancellhistiocytosismultisystem #bilenakmaintananceniehamim

[5stonesdesigns]

Handstamped 14k Gold Fill cuff bracelet for cancer warriors ~ f*ck cancer ~ ✨ https://etsy.me/2VvNvBW ✨ . . . . . . #cancer #cancersucks #cancerwarrior #breastcancer #breastcancerawareness #survivor #remission #recovery #ovariancancer #lymphoma #rarecancer #skincancer #melanoma #cancersurvivor #fuckcancer #fcancer #5stonesdesigns #14k #14kgold https://www.instagram.com/p/BxVDhKwBMEq/?utm_source=ig_tumblr_share&igshid=9cnd55hnewiw

#cancer #cancersucks #cancerwarrior #breastcancer #breastcancerawareness #survivor #remission #recovery #ovariancancer #lymphoma #rarecancer #skincancer #melanoma #cancersurvivor #fuckcancer #fcancer #5stonesdesigns #14k #14kgold

[crimsonmoonlightbear]

Today we honor a wonderful woman who made it all possible! Thanks, Suzanne, for your legacy and strength. We are here making your dreams reality more than 20 years later!

#cancersurvivor rarecancer synovialsarcoma twodecades

[teganillustration]

One of my entries for the #aoi #worldillustrationawards2017 - 'Testing, Testing' illustrates the struggles of correct diagnosis of #neuroendocrinetumours (#nets) - a disease that creeps up and gives off #vague symptoms which lead to #misdiagnosis. #socialawareness #neuroendocrine #throwback #creep #creeping #rarecancer #testing #testtube #diagnosis

#throwback #diagnosis #nets #neuroendocrine #worldillustrationawards2017 #testing #neuroendocrinetumours #aoi #misdiagnosis #socialawareness #rarecancer #creep #creeping #vague #testtube

[tonydianajday]

#NationalCancerSurvivorDay 1,305 Days Living with Stage IVB Rare Uterine Cancer (LGESS) #GodIsAlwaysGood #Stage4Cancer #RareCancer #LivingWithCancer #UterineCancer #CancerSurvivor https://www.instagram.com/p/CeaSqyhMoyL0x_DkCZ0l7P7eVSuv_IOPWv1h2I0/?igshid=NGJjMDIxMWI=

#nationalcancersurvivorday #godisalwaysgood #stage4cancer #rarecancer #livingwithcancer #uterinecancer #cancersurvivor

[heather78]

Some Natural Home Remedies for Cough, Cold, Fever and Sore Throat

Cough, cold, fever, and sore throat are common illnesses that can be caused by a variety of factors, including viruses and bacteria. The common cold …Some Natural Home Remedies for Cough, Cold, Fever and Sore Throat

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#aromatherapy #essential oil’s #Health Natural Healings ( Herbs ) #HealthMeans.com #herbs #herbs flavors #Nat ural remedies #natural Plants #natural remedies #naturalmediciane #naturalremedies naturalmedicine #rarediseaseday2024 rarecancer

[shaheidah-blog]

Zebra demoks sama mcm tuan yg lukis 😄Happy Sunday Gais🙋- . . #GoodMorning #KeepHanging #BeStrongGegurl #RareCancer #IamAZebra #ShidahOneInAMillionJourneyWithAdrenalCancer #Recuperating #PostSurgeryDay17 #DoodleBySHaHEiDaH ⚀191117⚀

#bestronggegurl #shidahoneinamillionjourneywithadrenalcancer #doodlebyshaheidah #recuperating #goodmorning #postsurgeryday17 #rarecancer #iamazebra #keephanging

[ubernailsandbeauty-blog]

#goodcause #pleasehelp #raisingmoney #raisingmoneyforcancer #cancerawareness #cancer #rarecancer #needstreatment #neededsoon #pleasejoinher #facebook #cancerfundraiser #cancerfund #cancerawareness

#facebook #cancerfundraiser #raisingmoneyforcancer #pleasejoinher #goodcause #cancerfund #rarecancer #needstreatment #raisingmoney #pleasehelp #cancer #cancerawareness #neededsoon

[ahhlex]

please donate to cycle for survival, a complete non profit organization that raises awareness and funds the research and treatments of kids/adults with rare cancers. People diagnosed with rare cancers don't get as many treatment options as others with more normal, we'll-known cancers! Just because they're rare, doesn't mean they're not well known, rare cancers are more common than you think! Cancer is a very personal topic and it touches many people's lives in some way, so be apart of this battle and let's do something! Every penny counts

#repost #cancer #donate #money #treatment #cycleforsurvival #jointhemovement #jointhebattle #fuvk cancer #rarecancer #help me #likeforlike #smile #love quotes #family #friends #love #happy #happiness