I’m posting the ever-so-rare photo of myself alongside one of my characters based on my childhood because today is World Autism Acceptance Day, and I wanted to show my little corner of the internet who this particular autistic person is:
I was officially diagnosed in February, at age 38 (I’m now 39). A lot of people thought I couldn’t be autistic. Some people who know me in real life still don’t. And until around 10 years ago, I didn’t think I could be either, because I was nothing like the stereotype media portrays. I was told that autistics lacked empathy (untrue), and never played make-believe (also often untrue) and only enjoyed STEM. I was — and am — an empathetic artist -- and make believe? I can spend days sketching finely bedecked bears brewing tea or carefully choosing the right words to weave tapestries of fiction — though perhaps my hyper focus was a bit of a red flag. Even so, how could autism describe me? I was a good student. I got straight A's. I didn’t act out in class. I can make eye contact…if I must. And lots of girls hate having their hair brushed with an unholy passion, right? Clearly I swim in sarcasm like a fish, so autism couldn't be why I was so anxious all the time, could it?
If someone had told me when I was younger what autism ACTUALLY is — instead of the nonsense I’d seen on screens — I would have seen myself in it. I didn’t hear that autistics have sensory issues until I was in my mid-twenties, which is when I first began to really research autism symptoms, and I had almost all of them: sensitivity to light, smells, fabrics, temperatures, textures, and certain touches, all of which make me feel anxious, I fidget (stim), I never know what the hell to do with my hands or where to look, I talk too little or too much, I have special interests, I have entire animated movies memorized shot-by-shot and can remember the first time and place I saw every movie I've ever seen but I often forget what I'm trying to say mid-sentence, I echo movies and tv shows (my husband and I have a whole repertoire of shared echolalias, making up about 20% of our conversations), I was in speech therapy as a kid, I have issues with dysnomia and verbal fluency, I toe-walk, I can't multitask to save my life, I like things just-so, I’m deeply introverted but not shy, I need to recover from all social interaction — even social interaction I enjoy — and I find stupid, every day things like grocery shopping, driving and making appointments overwhelming and intensely stressful, sometimes to the point where I struggle to speak. It turns out, I am definitely autistic. My results weren't borderline. Not even close. And while these aren’t all of my challenges, and not everyone with these symptoms is autistic, it’s definitely something to look into if you present with all of these things at once.
So why did it take me so long to get diagnosed? The same bias that exists in media threads through the medical community as well, and because I'm a woman who can discuss the weather while smiling on cue, few people thought I was worth looking into. Even after I was fairly certain I was autistic, receiving an official diagnosis in the US is unnecessarily difficult and expensive, and in my case, completely uncovered by my insurance. It cost me over $4000, and I could only afford it because my husband makes more money than I do as a freelance illustrator — a job I fell into largely because it didn’t require in-person work; like many autists, I have been chronically underemployed and underpaid, in part due to physical illness in my twenties, which is a topic for another day. But it shouldn’t be like this. It shouldn’t be so hard for adults to receive diagnoses and it shouldn’t be so hard for people to see themselves in this condition to begin with due to misinformation and stereotypes. Like many issues in America, these barriers are even higher for marginalized groups with multiple intersectionalities.
It’s commonly said that if you’ve met one autistic person, you’ve met one autistic person. This is why it’s called a spectrum, not because there’s a linear progression of severity (someone who appears to have low support needs like myself might need more than it seems, and vice versa), but because every autistic person has their own strengths and weaknesses, challenges and experiences, opinions and needs. No two people on the spectrum present in the same way. And that’s a good thing! No way of being autistic is inherently any better than any other, and even if someone on the spectrum struggles with things I don’t — or can do things I can’t — doesn’t make them more or less deserving of respect and human dignity.
But speaking solely for myself, the more I learn about autism, the happier I am to be autistic. I struggle to find words and exert fine motor control, but my deep passion and fixation has made me good at art and storytelling anyway. I find more joy watching dogs and studying leaf shapes on my walks than most people do in an entire day. More often than not, the barriers I’ve faced weren’t due to my autism directly, but due to society being overly rigid about what it considers a valid way of existing. My hope in writing this today is that maybe one person will realize that autism isn’t what they thought — and that being different is not the same as being less than. My hope with my fiction is to give autistic children mirrors with which to see themselves, and everyone else windows through which to see us as we actually are.
If you’re interested in learning more about autism or think you might be autistic, too, I recommend the Autism Self Advocacy Network autisticadvocacy.org and the following books:
What I Mean When I Say I’m Autistic by Annie Kotowicz
We're Not Broken by Eric Garcia
Knowing Why edited by Elizabeth Bartmess
Unmasking Autism by Devon Price, PhD
Loud Hands edited by Julia Bascom
Neurotribes by Steve Silberman
(trigger warning: the last two contain quite a lot of upsetting material involving institutionalized child abuse, but I think it’s important for people to know how often autistic children were — and are — abused simply for being neurodivergent).
Thanks for reading 💛
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in sickness and in health
author’s note: please take care of yourselves everyone! being sick is not fun. dedicating this to my dear @babyleostuff <3
synopsis: when you get food poisoning cheol is ready to sacrifice his night to take care of you.
word count: 1.0k | genre: fluff, comfort | pairing: cheol x gn! reader | warnings: mentions of throwing up, being sick, fever, exhaustion, bad mental health
it was around 12am when you realised something was wrong; you never really got sick, but you could feel it coming before it even happened; head pounding and shivers crawling up and down your spine, making you anxious. after a bit of panicking about why you felt this bad you calmed yourself down and went back to scrolling through social media on your phone, scared of waking and troubling the man next to you. seungcheol was already asleep by that time, being extremely tired from working since 3am, having been to several music show recordings and dance practices. you found him so peaceful as he slept and you were so glad to see him rest after many days of hard work. however as the minutes went by while looking at your phone you could sense an increasing nauseating feeling in your stomach, not being able to focus on the blogpost you were reading anymore, being too occupied with trying to make it stop and squirming under the blankets of your cozy king sized bed to make it more bearable. as if on cue to the peak of your struggles cheol stirred in his sleep next to your helpessly thrashing form, turning to you, his sleepy frame trying to process the cause of your distress. “what’s wrong, my love?” he asked, voice barely above a whisper. “don’t worry, nothing. go back to sleep.” you tried to sound as convincing as you could. he didn’t buy it. “love, i know something is up. tell me, please?” he begged, more alert when he saw how your protests were interrupted by a weak sob. “i think i am gonna throw up cheol.” you mumbled with a terrified look on your face, trying to stay perfectly still so your upset stomach could get some relief. seungcheol first thought that you were trying to pull a prank on him since you never got sick, but when he looked at your features closer he realised how pale you looked, and how sweat was glistening on your skin. “you sure? like right now?” he sat up in no time as the question left his mouth, ready to take you to the bathroom to let out whatever was making you feel so miserable. you didn’t have time to answer him whatsoever as you bolted towards the mentioned room, getting to the toilet just in time for the agonising pain and suffering of the next few hours to begin. in your hurry you had a hopeless attempt to lock the door in order to shut cheol out; you hated if he saw you in any other state than your most perfect one, if he saw your imperfections, how you felt unwell sometimes or how you struggled with life from time to time. he always scolded you for thinking this way, but you couldn’t stop it; you wanted to be his strong partner, someone who he could rely on whenever he needed to. “i am coming in.” you heard him say and suddenly you felt a warm hand on your back and another one taking your hair out of your sweaty face, snapping you out of your feverish daze. “i am here, you are okay, love. breathe for me please. that’s it, good. let it all out. don’t worry i am here.” you could hear cheol’s voice through your eardums, blood pumping in your veins with much more speed than ever. seungcheol held you close to him as you spat in the bowl one last time, making sure you were really done before placing you on his lap, your knees no longer hitting the cold tiles of the bathroom, only feeling his warmth surrounding you. “my poor baby.” his voice was low and hurt while he kissed your forehead, frowning upon sensing how your skin burned under his touch. “you are burning up. you definitely have a fever my dear.“ he announced, but you could barely register his voice and words; you were utterly drained, barely able to keep your head up straight.
cheol of course took note of this, gently guiding you to lean into him even more while he got comfortable on the floor, cradling you into his chest. “i know you don’t feel good my love. do you know how did this happen?” he wondered with concern laced in his words. you slightly shifted in his arms, looking up at him. “i think i might have food poisoning, cheol.” he cooed at you, kissing the top of your head, rocking you from side to side as you whimpered in pain. “it’s okay love. it will be over soon i promise.” he chanted softly in an attempt to calm you down as exhaustion took over you, the high temperature making you shake with chills no matter how close seungcheol kept your body to his. “love, you with me?” he questioned after a few minutes of silence, but didn’t get a reply; you fell asleep fast, totally knocked out from the sudden wave of late night sickness. he was relieved to see that your immune system was trying to get that much needed sleep to heal, although he was concerned about the effects of not taking medication before your slumber; he didn’t have the heart to wake you so he let you rest anyways.
he never stopped holding you through the night, not even when he moved you to the bedroom and got a cold towel to put on your head, moving a trash can beside your bed just in case, or when he stayed up all night to watch over your distressed form, wishing that you would get better by the morning, kissing your cheek from time to time to let you know that he was there, that he was gonna take care of you no matter what.
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