I have a lot of symptoms which match with lupus. I've had lots of infections this year...8 so far.
I found out yesterday that my mum had a positive ANA (anti-nuclear antibodies) blood test in the 1990s and again in early 2000s. Docs haven't really followed up on this though.
So today I've got put on my big girl pants and sent a message to my GP surgery with all of my symptoms and some pics of rashes and white fingers. I've done this in hope that I am not blown off and told I'm just stressed or anxious.
Like I am anxious about my health because I feel like shit and I've had 8 infections this year. EIGHT!
So I think my anxiety is founded and proportional to the issue.
If they don't offer me an ANA I'm going to pay for one next year. To rule out autoimmune issues if nothing else.
I just can't deal with more medical gaslighting. After being told last time I raised this it was all because I was stressed.
If anyone's interested here are my symptoms:
* Hair loss
* Fatigue (debilitating)
* headaches and migraines
* Joint pain and stiffness and inflammation
* hearing loss
* dry gritty, itchy eyes (in the middle) which water at the edges.
* rash on checks and nose and sometimes chin
* skin which goes red, then pink and then loses pigment although. Leaving white patches.
* Serum creatinine levels at the highest reference point or just over. Have been for over a year.
Lupus is a complicated autoimmune illness that can affect several organs in the body, including the skin, joints, kidneys, heart, and brain. It develops when the immune system erroneously targets healthy tissues, resulting in persistent inflammation and a variety of symptoms. Lupus is known as the "great imitator" because its symptoms might resemble those of other diseases. Common symptoms include weariness, joint pain, skin rashes, fever, and swollen glands. However, it is vital to recognize that lupus manifests differently in each individual, with some experiencing more severe symptoms than others.
Lupus's specific cause is unknown, however it is thought to be a combination of genetics and environmental factors. Lupus development or flare-ups have been associated to viral or bacterial infections, certain drugs, stress, and UV or sunlight exposure. Certain risk factors, such as being female, having a family history of lupus, and belonging to specific ethnic groups (African Americans, Hispanics, and Asians), can raise the risk of developing the disease.
12 Lupus Symptoms In Women That You Should Be Aware Of
It is crucial to learn how to identify lupus symptoms in women because the autoimmune illness primarily affects persons who are assigned female at birth. among reality, according to the Centers for Disease Control and Prevention (CDC), 9 out of 10 lupus diagnoses occur among individuals aged 15 to 44 who were given the gender “female” at birth.
Subscribe to our newsletter!
The U.S. National…
Everything You Need to Know About Lupus - Access Health Care Physicians, LLC
Access Health Care Physicians, LLC provides comprehensive information on Lupus, a chronic autoimmune condition. Learn about its symptoms, causes, and available treatments. Stay informed to better manage your health and seek expert care from our dedicated team of healthcare professionals. Your well-being is our priority
Our immune system is a remarkable defense mechanism, shielding us from harmful bacteria, viruses, and other intruders that can make us ill. However, in the case of lupus disease, our immune system mistakenly turns against our own body’s tissues, causing damage. These conditions are referred to as autoimmune diseases. Doctors have yet to uncover the exact cause of lupus, but they believe that…
this disability pride month i wanna give a shout out to the people who 100% KNOW theyre disabled but have to deal with going through the tedious process of getting a proper official diagnosis. especially if youre just barely on the cusp of not quite meeting the diagnostic criteria so they dont want to diagnose you just yet. the ones who have to monitor their symptoms for months, even years, but the symptoms have melded so much in your daily life that its hard to keep track of whats a symptom and whats 'normal'.
i see you. you are strong. you are not overreacting. you are not faking it. you will get through this. you are not alone.
you are your own best advocate and you deserve to be heard.
Lupus, a complex autoimmune condition, poses substantial risks if not treated, impacting various organs and systems in the body. Despite its widespread prevalence, lupus is a poorly understood disorder, usually misdiagnosed or ignored, resulting in delayed treatment and worsening symptoms. In this post, we will look at the risks of untreated lupus, including potential complications and long-term health repercussions for those who have this chronic illness. By shedding light on the consequences of inadequately managing lupus, we seek to raise awareness, encourage early detection, and emphasize the importance of comprehensive care in minimizing the detrimental effects of this deadly condition.
pursuing a lupus diagnosis is sometimes extremely funny. lately every doctor i go to is like "okay so this is. definitely lupus. with very specific complications. but i'm not putting that diagnosis on paper because lupus is a lazy diagnosis and it's never lupus. except in your case. in which it is lupus" i know the USUAL experience is people being disbelieved by doctors for Years when they try to tell them they likely have lupus & that WAS my experience three years back, but NOW i've had a lucky combo of well-timed test results and symptoms that have led to a general attitude of "okay i literally can't find any explanation OTHER than lupus with very specific complications. but i'd be more comfortable if you got diagnosed by a rheumatologist instead" and then the rheumatologist you're referred to literally never calls you back to schedule bc they're so overbooked due to consequences of the COVID pandemic so your normal doctor is stuck managing your constellation of technically-undiagnosed symptoms, that could technically be anything, except for how. they are lupus. with very specific complications.
I really, really hate this thing where I wake up and it's hard to focus my eyes, I feel off kilter and strange, the thought of food makes me want to die, but after I've run through all of the possible but unlikely scenarios I go "well I might as well make myself eat SOMETHING" and at first it's terrible and an awful idea, but slowly I start to feel like a person again and I'm SO MAD because I was never hungry! I very emphatically did not want food despite going 15 hours without it, but I wasn't exactly nauseous. I just felt detached and kind of light headed, no hanger or fatigue just. Something Is Wrong And My Hands Are Very Cold. Fucking bullshit.