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#FROM SYMPTOMS NOT CAUSED BY MY BRAIN
mylittleredgirl · 2 months
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starting any new medication with intended or unintended mental effects is so weird. it’s not exactly like waking up with a whole new brain but it definitely feels like my mind got reformatted. this latest nervous system one is doing some what it’s supposed to physically (thank god) but it’s definitely doing… something to my thinking patterns and emotional responses. i’m not sure what. it has some overlap with the symptoms of an early manic upswing in the sense that the “regard for consequences” segment of my brain is sending an out-of-office message, so i thought it was that at first, but that’s definitely not it. but. something.
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lyfrassiredda · 22 days
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introducing the unwilling captain of the Dynamos, former Inspector Second Class Lyfrassir Edda! 
The AU where lyfrassir tries to hunt the prison mechs down with their shiny new eldritch powers (and a gun) for ditching them while their system was vored by a crusty imperialist’s eldritch sugar mommy.
Unfortunately, they’re not the only survivor of a Near Mechs Encounter interested in finding the crew of the starship Aurora— not by a long shot.
#lyfrassir#lyfrassir edda#the bifrost incident#the mechanisms#tbi#hey. you. yes you the one reading these tags. it’s me the ps5 inside your brain. come into my ask box and type#‘jester speaketh on the subject of new midgardian hair cartilage.’ i have so many thoughts about midgardian biology and how it interacted#with the bifrost#i also have a full crew roster for the dynamos au#and also to pique your interest further: the reason the crew finds dr. plichard is because lyfrassir starts displaying anemia symptoms#after they sleep with no discernible cause so they put cameras in Lyfs room and find dr. plichard dropping from the ceiling and doing#freestyle blooddrawing before spidering back up into the vents. this is how they discover daedalus is NOT doing his job as engineer because#dr. plichard has set up an entire condo in the vents. daedalus promised that he was done trying to stage a violent mutiny against lyf to#claim the title of captain. clearly he did not pinky promise because that bitch is a LIAR.#anyways. lyfs only captain because 1) no one else wanted the position and 2) no one wanted Former Tyrant Daedalus Of The Hephaestus Fame to#be in power#so unfortunately their options were ‘ex cop frothing at the mouth for immortal blood’ or ‘Hephaestus the Olympian’#anyways. if you’re wondering why the ps5 inside your brain came preloaded with mechanism au opinions and a tumblr blog.#well.#Don’t worry about it :)#come into my ask box. we’ll have pirate fun times in space!#also let me know what you think of this piece. i need to have positive affirmations read out to me by the tiktok voice over lady as asmr.#for my health#anyways oh yeah forgot that one tag#my art
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trans-axolotl · 11 months
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having a lot of thoughts about eating disorders + how some of us end up developing chronic illnesses directly because of the physical effects of our eating disorders and how Cruel doctors can be about that and just trying to untangle so much shame and blame from that experience rn
#personal#vent#eating disorder tw#disability#idk. i don't quite have the words for this right now but#had another meeting with my doctor where they said yeah its your fault that you are now physically disabled for life#(literally i was chronically ill and physically disabled before i even developed an eating disorder because of CAH and comorbidities but#(they love to ignore that !)#which is like. i do not tie any morality to health and it should just be#a completely neutral statement. that my eating disorder caused other physical complications#they said i'm going to have orthostatic problems the rest of my life.#'since your gastroparesis was caused by your eating disorder that means there is no point in treating it'#which is so funny bc literally every time i see her my dietitan wants me to get a feeding tube! lmfao!!!!#i am actually doing pretty well in recovery in terms of meeting my energy needs through food. but i stopped being able to orally supplement#so my dietitan wants a tube for ARFID nutrient reasons. supplemental nutrition etc etc. and she thinks it will help gastroparesis symptoms#they also think i have osteoporosis and want to test me for that#when i had to use forearm crutches/ wheelchair because of physical ed complications doctors were SO fucking rude even though they were#the ones PRESCRIBING IT!!! like!!! you all are the ones telling me i HAVE to do this!#idk i also have a friend with permanent brain damage. from seizures in the refeeding process#and her doctors are so fucking rude to her all the time.#it makes me so mad
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todayisafridaynight · 10 months
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I wanted to write in about my thoughts on Jo as a CSA survivor separately for a couple of reasons:
I already more or less have what I have to say on the topic in order thanks to talks with @starssystem and another friend [<3]
This is a massive tonal shift from anything else I could be discussing
This Is Massive In General For The Love Of God PLEASE Help Me
Obvious CSA CW for anyone else reading; I only discuss statistics, psychology, and the aftereffects seen in survivors here, but it's worth a warning.
With the disclaimers out of the way… I'd mentioned before I've only ever added one thing to Jo's background, and you were right: this is it! To me, there's so much thematic overlap in Jo's narrative with the experience of surviving CSA it's worth it to examine his character through the lens of that being the case. Of course, there are clearly-stated reasons for it all that Aren't That, but…
It's the pervasive guilt and shame, the lifelong secret that becomes too unbearable not to tell, the faulty coping mechanisms aimed at burying the trauma without having to face it, the reluctance to be sincere [vulnerable] and the lies and half-truths used to maintain the facade of invulnerability, the pursuit of power and control and the knee-jerk anger response when it's threatened, the pursuit of mastery over his body and the indifference to what happens to it. And the way a lot of it really does stem from a deeply traumatic childhood sexual experience from before either he or Ikumi understood what they were getting into, from before they could give informed consent.
Statistically, the further below the average age someone is for their first time, the likelihood of [at best] having been introduced to sex inappropriately and [at worst] having been abused at the time or earlier rises exponentially. Jo was 15 when Masato was conceived--possibly 14, since he was saying he "met" Arakawa at 15, and by then Masato was already born. To put this into perspective, since what ages register as concerning is largely cultural, the average age in the US and UK is 16-18. But in Japan, it's over 19.
To a Westerner [or even a heavily Westernized non-Westerner], having a kid at 15 is unfortunate, but not untenable; you've seen it on TV, you might know people like that, you might even be that kid or that parent. But in Jo's case, with him being 4 or 5 years younger than average, it's like if someone told you they had their first time--had a /kid/--at 13 or under. That's the equivalent discrepancy. That /is/ concerning, to me.
It's also something that's linked to negative outcomes in adulthood, partly because of the likelihood of forming bonds with poorly-adjusted peers. Jo specifically states he and Ikumi were only together because others who came from backgrounds like his own were all he had back then. [As an aside, it's interesting to see him instinctively seek out a relationship where his pain would be understood without having to say anything--or one where he could assume it would, at any rate.]
When it comes to his relationship with Ikumi, I've always felt there was this "adult dynamic" between them--in the sense it feels like one that'd be more fitting for adults to get into than a couple of teens. It was, based on his wording, a primarily physical relationship neither of them expected to last even if they were living together. To me, it's one thing if you're fully convinced you're in love or you're experimenting or whatever and that results in an unplanned pregnancy, but it's another thing entirely to have such a bleak yet objective outlook on your relationship so young.
And it didn't have to be that way. He could've been just like Arakawa, head-over-heels in love with this girl who was The Only Good Thing He Had Going, or something like that. But the sheer contrast between how Arakawa was crazy about Akane and never forgot about her for the rest of his life, while Jo more-or-less-clearly didn't have feelings for Ikumi and can't bring himself to remember her name after living with her for at least a year and experiencing life-changing events with her…
It's notable to me that Arakawa maintains an interest in women while nearly every in-character interpretation I've seen makes Jo averse to women. Obviously, we don't really know that; it's probably just based on his general attitudes, his contrast with Arakawa, and maybe his immunity to Charm. But I think there's a reason a lot of people pick up on it and tie it to trauma rather than/in addition to a lack of interest in women.
I've talked about this through the lens of comphet already [and Jo being gay or ace or both would present other difficulties], but I can't overstate how notable it is on its own. We see Jo's response to traumatic events, and it's to become preoccupied with them, to investigate further if he has any leads. That's why he remembers every minute detail of the night Masato was born and the time he saw Arakawa attempt to comfort Masato when he was crying and hitting himself. I think it's also why he gets as far as he does when looking into Arakawa's death, and why he entrusts the search to Ichi. He never seems to manage to block them out, even if that's what he'd rather do--even if that's what he thinks he's doing.
So if he "[doesn't] even remember" the name of the mother of his child, I get the feeling there's something more going on. Like I've [probably] said in the past, Jo genuinely sounds traumatized by the relationship as a whole. More than anything else he's been through, and he's been through a lot. It's often the case that CSA survivors who are also survivors of other trauma view it as worse than anything else that happened to them.
And that's not to implicate Ikumi at all, I don't think it's a case of COCSA--everything I've said holds just as true for her, and she had to suffer the additional trauma of an unwanted pregnancy and childbirth, at that. Rather, I think it would make sense for something like CSA, which often incontrovertibly reconfigures one's relationship with sex and love, to be a factor in why they rushed into a something physical before they were mature enough to handle it.
Some victims end up having perfectly healthy experiences, some victims end up avoiding them, some victims end up re-victimized, and some victims end up with a mixed bag--there's a lot of variation. But some victims do end up having relationships like this and making mistakes like this, because that's all they know, or because they want to heal but don't [or don't know how to] go about it in a healthy way, at a healthy pace. And I definitely think if you recognize that's what the basis of your relationship was, that it all comes back to something you'd rather forget, it'd make sense to want to forget the relationship as a whole.
To that end, it's possible to come away from a relationship traumatized even if no one did anything wrong. I've [probably] talked about how the way Jo comforts her at the station feels like he's doing it for her sake and pushing his own feelings down, but neither of them is really buying it. If that's a pattern in their relationship, perhaps he wouldn't have been able to communicate if maybe what they were doing was dredging up bad memories, if he wanted to stop but didn't think she did. So to go through with it, then get the news months later…
Either way, the fact Ikumi couldn't bring herself to tell him she was pregnant until nothing could be done would, for Jo, invariably cement the feeling he has no control over what happens around him. I think the sense of powerlessness he felt is why he blew up at her when she told him, because it's really the only time we see him lash out like that at her. At the park, he objects to going back for Masato, sure, but he's passive. And I think that unbroken pattern of powerlessness in his life [which CSA would only compound on] is why he's so reactionary, why he's so emotionally dysregulated, why he expresses his rage through what basically amounts to power-tripping.
But I do think Jo does have a great deal of awareness. A lot of his wording when he's telling Ichi about it borders on poetic, or at the very least candid and effective. That requires both prior reflection and a command of language. I think there's a lot he understands deep down, at least after sitting with it for long enough, but he isn't capable of voicing--or doesn't know how to voice--what's on his mind, most of the time.
So when he joins the Arakawa Family, when he rises the ranks and has that control back, his control has to be near-absolute. If it's undermined in any way--such as, for example, a certain someone failing to answer a call within two rings--he loses it. On the other side of the coin, I do feel a lot of why his devotion and gratitude towards Arakawa goes to the extent it does, why he's so comfortable with him, is because Arakawa gave him the safety of the Arakawa Family, gave him back his autonomy, gave him the environment--and treated him with enough humanity to give him the reason--to learn to regulate himself, to better himself.
And Arakawa /gets/ trauma. He really does. Aside from his own abusive background, literally the only time the word trauma comes out of any character's mouth in this series, it's Arakawa's. It comes back to Jo saying others who came from backgrounds like his own were all he had; that never changed, did it?
Lastly, For Funsies [<- LIE. COMPLETE LIE. TURN BACK NOW] I wanted to go through the items on this [CSA] Survivors' Aftereffects Checklist I could check off with near-certainty. 19/34, by the way, give or take. Now, as I said at the beginning, there are existing concrete reasons for why he has many of these experiences… but it's like the trans allegory with Masato, To Me… If I can check off over half the list based on a very limited backstory and an hour of screen time total, that's indicative of a notable overlap… TO ME…
Note that the book this list is from was published in 1990 and focuses on women's experiences. It was a huge step forward in giving survivors a voice back when a lot of existing research indicated CSA had neutral or even positive effects on children, but it's definitely a product of its time. With that out of the way…
Wearing a lot of clothing, even in summer […]
To be fair, most male characters in RGG are fully-covered and have near-unchanging designs, and it's winter in both 2000/2001 and presumably 2019, but… when it comes to Jo, it feels a little different.
He does have Some Heavage in his twenties [although the necklace takes the attention off of his actual chest], but as time goes on, he shows less and less skin and adds more and more layers. When he has the gloves on, it leaves no skin exposed at all, and there's this direct symbolic correlation with secrecy that isn't there for other characters. And if you're wearing three layers of leather [or even one], you can neither feel what you're touching nor feel anything touch you.
Pure Speculation, but I just can't really see him underdressed for any occasion… That's why his fit in Day with the Sun is funny as hell but also… yeah…
As a behavior, if it's rooted in anything, it's probably rooted in having to hide signs of physical abuse, of course--but then he kind of already had an excuse, with how he was constantly getting into fights. I guess it depends on the specifics, but I think it's interesting to consider this as one way CSA victims attempt to regain control of their bodies, avoiding emotional discomfort at the cost of physical discomfort.
Self-destructiveness
It's nothing super overt, but I see this most clearly represented in his second boss fight in particular; his willingness to wield a blade bare-handed while using enough force he could very well render his hand useless. I think it's potentially also evident in how he has severe cataracts he chooses to ignore and allow to worsen, despite having the reasons and resources to undergo surgery to restore his vision. In doing so, he literally and figuratively blinds himself to so much.
I also kind of think the assassination of Hoshino/the anonymous call and The Eye Scene are examples of self-sabotage. I mean, he literally was sabotaging himself in the former, but it's also the specific way he feels the need to be physically taken down in order to be stopped--possibly a holdover from RGGJo, who's only too happy to be beaten into a coma.
I don't know… It's hard to pinpoint, but I feel like he would be averse to most of the more "obvious" self-destructive behaviors--especially when he has people in his life who might notice and worry, like Ikumi and Arakawa. That and because many of them are addictive. He's seen what that's done to his father, and he's also developed this incredibly rigid sense of discipline he can't maintain if he doesn't have a clear head.
From how he talks about himself [as having lost his humanity and lived a half-assed life], I definitely think he's at the very least unkind to himself, but I also think he does externalize it by provoking others to harm him [in the case of physical fights] and reject him. Like he needs some kind of proxy perpetrator. For some abuse victims, this specific manifestation of self-destructive behavior is a way to regain control--whether or not you "deserved it" back then, you do now, as a direct, logical result of your actions.
Need to be invisible, perfect, or perfectly bad
I think each of these needs manifests in different ways for Jo. The need to be invisible can be seen with authority figures (mainly Aoki, but also Arakawa in The Yubitsume Scene, a little; how drastically he pulls back and tries to act "normal")--this relates to what you were talking about with being reluctant to intrude or take up space. If you fall under the radar, maybe you won't get hurt.
The need to be perfect can be seen in his seemingly "impossible" standards, I would say. Of course, because we see things from Ichiban's perspective, we tend to see them as unfair and often arbitrary demands. But they aren't arbitrary to Jo, are they? They're standards he holds himself to through and through. If you're good, maybe you won't get hurt.
The need to be perfectly bad can be seen in and relates to much of what I discussed under self-destructiveness [The Eye Scene and the way he antagonizes Ichiban specifically by making himself out to be worse than he is]. If you must get hurt, it can at least "make sense"--be "deserved."
Suicidal thoughts, attempts, obsession (including "passive suicide")
Obviously he's not like… Mine Levels Of Overtly And Consistently Suicidal, and he doesn't attempt suicide himself, but at the same time, I have to note his total ambivalence towards Aoki seeing him as a "bullet" (a kind of hitman sent on suicide missions). He agreed to what he himself viewed as a suicide mission and he didn't care what would happen to him afterward, as he says to Joon-gi, Zhao, and Adachi.
Aside from that, I certainly feel he's at least had passive thoughts like wanting to disappear or wishing he'd never been born. Y'know. Nothing concrete, but reflective of his mental state, and just as detrimental to dwell on long-term.
I think there's a sort of childishness [for lack of a better word] to thoughts like these [in that they're impossible], but also a level of maturity in that it probably doesn't escalate to something more actionable because he understands he has responsibilities he can't abandon. I think if he was ever seriously suicidal, it would be at the points of his life where he really didn't have any responsibility to anyone, like between Ikumi leaving and him joining the family, or after he was arrested.
Depression (sometimes paralyzing) […]
I'm trying not to over explain going forward because I Have BEEN Overexplaining It Is SUCH A Disaster… he's depressed If You Have Eyes And/Or Ears… I'll leave it at that…
Anger issues; inability to recognize, own, or express anger; constant anger […]
Lol
Rigid control of one's thought process; humorlessness or extreme solemnity
Relates back to what I was saying about how disciplined he is [and expects everyone else to be], but in general, he's incredibly, incredibly serious and focused. I don't think he's /entirely/ humorless [but then again, very few people are]; I just think his specific sense of humor is. Like. What Is Your Problem [I Know What Your Problem Is I Have Been Discussing It In EXCRUCIATING Detail But What The Fuck Is Your Problem]
Trust issues; inability to trust (trust is not safe); total trust; trusting indiscriminately
That's why he was planning on taking his secret to the grave, isn't it? It was only when faced with the realization it would soon be too late to say anything that he was able to tell Ichiban. He could've trusted Arakawa, should've been able to, but… in his mind he never could.
This book [and this checklist] is about "incest" actually, but it redefines "incest" to mean any instance of CSA perpetrated by any individual the victim trusts or has an expectation of being able to implicitly trust. Which… is most CSA as we understand it today, so I've edited some parts to just say that.
Anyway, I've never given much thought to the specifics of what Jo might've experienced--who did it, what happened, how long it went on, etc.--so there's no conclusion I can draw here [and elsewhere, I'm sure]… but even without that, to grow up unable to trust the one person who should be in his corner, his father, and to have his trust betrayed by Ikumi, it's no surprise Jo ended up like this either way. So… I'm happy he had the courage to tell Ichi, in the end.
High risk taking ("daring the fates"); inability to take risks
I think these are supposed to be mutually exclusive, but to me, Hoshino's assassination and Arakawa's assassination represent both sides of the coin, although they're not the only examples. There are risks Jo won't think twice about taking and risks that paralyze him.
Boundary issues; control, power, territoriality issues; fear of losing control; obsessive/compulsive behaviors (attempts to control things that don't matter, just to control something)
Lol…
Guilt, shame; low self-esteem, feeling worthless; high appreciation of small favors by others
Lmao Even…
Feeling demand to "produce and be loved"; instinctively knowing and doing what the other person needs or wants; relationships mean big tradeoffs (love was taken, not given)
I actually think this encapsulates a lot of what I've been saying about his work ethic, his ideas of discipline, and his relationship with Ikumi, but I also think it's why Masato took a liking to him. His attentiveness. It ties back into wanting to be perfect; when you're abused--especially long-term--you become attuned to observing and responding to any shifts in mood or tone. This is another area where I can't draw any conclusions relevant to my point, but it does certainly relate to his father's abuse, at any rate.
Abandonment issues
Kind of contentious… The anticipation of being abandoned by or losing someone he cares about appears to be worse than the actual experience. He's fine with Ikumi leaving him, and he's… not Fine With, but able to come to terms with Arakawa's death and Aoki's abandonment of him. At the same time, he really does try to make Ikumi's stay in his life comfortable, and he spends almost forty years doing his damnedest to keep his family together, whatever the cost. If I were to extrapolate from RGGJo, though, /he/ does have an obsessive, unhealthy attachment to Arakawa.
Blocking out some period of early years (especially 1–12); or a specific person or place
Ikumiiiiii that's what I'm SAYINGGGG
Feeling of carrying an awful secret; urge to tell, fear of its being revealed; certainty no one will listen; being generally secretive […]
Rofl Perhaps…
Denial; […] repression of memories; pretending; minimizing ("it wasn't that bad") […]
He admits to it himself. Not much else to say. Though I don't think he necessarily minimizes what he's been through by dismissing how bad it was; rather, he tends to overestimate his ability to move past it.
Pattern of ambivalent or intensely conflictive relationships (intimacy is a problem; also focus shifted from [CSA] issues)
Also kind of contentious… we don't see a pattern of romantic relationships, as I assume the author meant here, but at the same time, the romantic relationship and non-romantic relationships we do see fit this pattern. I guess I'd say I definitely think intimacy /would/ be a problem, and he /wouldn't/ be ready to address his issues.
Limited tolerance for happiness; active withdrawal from happiness, reluctance to trust happiness ("ice=thin")
The quote that prompted this ask in the first place. It's sort of connected to the point about humorlessness and extreme solemnity; if that was the "what," this is the "why." He doesn't know how to relax ["holidays don't exist" and all], he doesn't have much to be happy about, but even rarer is the occasion where he doesn't feel too conflicted in the moment to be able to enjoy himself. That's just how I see him.
[…] verbal hypervigilance (careful monitoring of one's words); quiet-voiced, especially when needing to be heard
EXACTLY what I was talking about in this ask, so I'm leaving that one up to past me…
......
... That's It That's The Essay I'm going to hibernate until Infinite Wealth comes out and somehow refutes my points but UNTIL THEN. Farewell, take care, and once more, don't worry too much about matching my energy… Like I Said if I were the one receiving this ask I'd just delete my blog, so… I'll just be happy to know you read it :] If That lmao
ok i read it :) 👁️👁️ READMYTAGSTHERESMORETHEREIPROMISE
#long post#cw csa#doublin up to add cw warnins in the tags just in case <3 lemme know if i should throw more tags down here..... im bad at cw tags....#i forget my bookmark tag for asks from you i stg if i cant find this ask in the future im kmsing (in minecraft) immediately#snap chats#THE SNORT I MADE AT THE DEADPAN 'LOL'☠️ maybe i SHOULDVE put text In The Main Text i have A Lot of Thoughts..#im leavin the main text empty since. ngl i was just gonna compare/contrast to myself again... and say a lot of what weve said b4..#UNFORTUNATELY a lot of the things listed here uhmmmm Hm <3 Uh Oh <3 i do understand. Dare I Say personally. just a bit#I DO HAVE TO DISCLAIM ive never been a survivor of THOSE circumstances or really. any abuse tbh- brain just sucks and im a baby#and i cant say no BUT ANYWAY I HAVE REASONS FOR BEIN AN EGOTIST I SWEAR its cause I Somewhat had those exps/i understand them#i can REAAAALLLYY easily see where your points are coming from.... very easily even... like very in-depth..#even if i didnt cry bout spilled milk every other day it IS clear to see the signs of abuse in sawashiro once you know them#i've def talked bout those aspects of him whether in tag rambles or in streams or have Attempted to express it via fics#so really the bits to chew on for me esp this time round is the more CSA aspects#tbh when it comes to bein unable to see him intimate or 'underdressed' i agree: incredibly hard for me to imagine#the thing with 'symptoms' of abuse is that they kinda overlap i guess ??#in that regard it can either be a need to impress or protect himself/needing to be seen less#when it comes to doing certain things because of CSA i could see it as a result of another abuse too. if that makes sense#THOUGH THAT ISNT TO DISCREDIT THE IDEA nono cause there still exists the Now That I Think About It circumstances of masato#even if we look at it through Western Norms(TM) two- essentially homeless- kids having. A Kid is still bizarre#cause again teen pregnancies generally happen as a result of Bein Irresponsible With A Schoolmate- not that other situations cant exist#but thats the most common innit so. def an aspect to consider. All Things Considered. esp jo's self-separation from ikumi#BUT YEAH i feel like if i try to respond im just gonna end up typing up a textbook bout abuse since. UNFORTUNATELY#childhood psychology is my field of interest. and aint no one readin THAT phat thing. esp when ill prob repeat myself or you ☠️#tbh remindin meself of when i said id write psyche papers on mine and/or jo.... oops 👀💋👀 savin this to steal notes from LOL#i hope yo know i WAS thoroughly intrigued reading this. As Ive Said childhood psyche is Literally My Field and this is v thorough and good#so im always interested in readin bout How X Caused Y in Z... very interesting many MANY things to think about.. ty...#forever cursed to be an idiot cause i really wish i could talk better and say somethin of substance.. ik you said its fine but still..#im always open to chat bout this more if youd like PLEASE dont think my lack of Main Text is disinterest Im Just Stupid. But We Know That
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reginaofdoctorwho · 2 months
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had another cardiologist appointment this past monday (actual cardiologist this time not np/pa) went as follows:
acknowledged that the meds are helping me a lot
said "no, nausea's not part of POTS. you have to talk to your primary care physician about that because that could be something else". 1, it is a symptom of POTS, and 2, it's listed as a symptom of POTS on the information YOUR OFFICE SENT ME
he acknowledged the meds are helping me and wants me off them in 6 months, or at least decreased
he said that there was a mayoclinic study where the majority of POTS patients grew out of that. 1, that was pediatric diagnosed POTS, 2 they had been treated for 5 prior to the data collection, and 3 only 18.2% actually "grew out of it" and fully recovered. 50-ish% percent did have better health/fewer symptoms but they still had pots. and that still leaves about 30% unaccounted for who either dropped out of the study, stayed the same, or got worse
said he tries to lower meds for his other POTS patients and it usually doesn't work. i can't even say i asked him that he just straight up volunteered it
i had an ecg at this appointment :) he came in to talk to me after and had it pulled up on his screen :)) days later it's available on the website and gives the time of him interpreting and signing it as after my appointment time. admittedly i would not give a shit about this but i was normal sinus rhythm on other ecg's in the past and now have "incomplete right bundle branch block". this was not mentioned to ME. we even had to call the office after to get my meds refilled because forgot to at the appointment and it wasn't mentioned. the FUCK does that mean for me???? internet says either not dangerous or sign of dangerous "depending on signs of presyncope and chest pain" which i already get with my POTS
listened to my heart over my sweater even though i had a tank top on underneath and said as much. the FUCK do you plan to hear that way, jackshit??
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sunkern-plus · 4 months
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controversial psych critical opinion because few psych critical people agree with me on this but I DO believe BPD describes a real...not necessarily disorder but cluster of symptoms that occur from (usually) attachment trauma that very well deserves to be in the dsm because people with that cluster of symptoms need treatment, but I think generalized anxiety and other disorders where it's basically "youre anxious/depressed/reacting this way for no reason and it's because you have a problem and you're crazy and it's your fault" shouldn't materially exist.
like yes, if you fall under the label of generalized anxiety disorder your suffering is real and valid, but realize that your diagnostic label as it exists is BASICALLY "we think you blow your anxieties over things that might be very real to you out of proportion and also you're hysterical and possibly have munchausen's syndrome"
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mythicalcoolkid · 1 year
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After too many years here I've final what hornets' nests I am not brave enough to kick
#m/cc#thought about making a certain post and decided... no... I would rather not#I am not prepared for responses to that. it might actually kill me#specifically it was:#'going gluten/dairy/food dye-free CAN improve certain neurodevelopmental things but it cannot 'cure' autism/ADHD/Tourette's'#I already know I'd get vitriol both from people claiming I think autism comes from gluten or 'needs cured' because they can't read the post#and that I'm trying to trick everyone into going gluten-free because Toxins or something and lying about a connection#(even though (neuro)dev disorders can be made worse by flaring immune issues like - oh I don't know - undiagnosed gluten intolerance?#hypersensitivity to certain food dyes?#we already know autism and ADHD in particular have HUGE correlations with gastro and immune issues#which is why some mommy bloggers genuinely do see symptom improvement from diet changes)#and from people saying 'um actually no-gluten DID cure my nephew's ADHD?? the science is on our side/big gluten is covering up the research#and I don't know if I could handle dozens of people per day telling me I'm a science denier AND a eugenist from both sides#I am simply. ADHD. and autistic. and incredibly interested in the wild amount of comorbid physical disorders that correlate with these#autoimmune and gastro issues but also loose/hypermobile joints; epilepsy; delayed sleep phase disorder; COPD; skin conditions#it's so fascinating to me and provides a huge chunk of data to run with re: the gut-brain axis#whether [neurodev] causes [other]/[other] causes [neurodev] or an underlying thing causes both is unknown#but honestly with the huge interest in the gut-brain axis and microbiome in the past decade or so#I think we're going to see a lot more research in the next thirty or forty years examining physical comorbidities with neurodev stuff#I'm probably not gonna link to research because I don't wanna just start the war anyway and I'm too tired to go back and find the articles#but the TL;DR of the tags is neurodev stuff isn't caused by gluten intolerance but if you're unknowingly aggravating a gluten intolerance#you're probably not gonna feel great and it's gonna make your symptoms worse because of the effect it has on your body#it's like a very mild long-term allergic reaction and yeah if you get rid of that it'll improve other areas (e.g. sleep cycle; irritability#so of Course it's gonna improve a bunch of things-that-get-worse-with-poor-sleep/decreased-stress-tolerance#if you were always sitting on a slightly uncomfortable chair you'd probably do a lot better if I switched the chair#just because you can focus better or you didn't know the chair was uncomfortable doesn't mean it caused your ADHD#also in this case the chair affects your hormone levels and immune response and what chemicals accidentally leak into your bloodstream#if you're interested look it up there's been a Ton of research on correlations of specific physical issues with neurodev in recent years
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raystie · 1 year
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wow my last post was in Feb so despite not really having a following here I still feel obligated to say I'm going through a Bad Time both mentally and physically rn I can't even be bothered to think about or play Yakuza or do anything really. not dead but I sure feel like I'm on the way there rn. won't be here for a while take care everyone
#ray txt#well if you really wanna know the tmi details I'm putting it in the tags because I love overshsring#short version is entered depressive episode couldn't regulate my emotions constant crying and racing thoughts and mood swings#eventually psychosomatic symptoms caused by anxiety gets bad enough I start also having health anxiety and freaking out that I had some#disease or illness and that I was gonna die#if you've ever had your body feel like it's dying because of anxiety it's the typical shit#chest feels tight and like it's being crushed and like I can't breathe#random pains all over sometimes muscles or stabbing pains across torso#random nausea sweating and constant loss of appetite but maybe that was the depression#anyway after multiple crying sessions and nights where I couldn't sleep until like 8am and my parents considering putting me in#psych rehab (idea got scrapped) I go see some specialists#they check my blood piss uterus (irregular cycles I only get it every 2-4 months for years now)#and x-rays and they tell me actually everything looks fine physically! there's nothing wrong anywhere they can see and all my Levels are#perfectly Normal and Average I don't have a disease or illness or deficit#so all those pains and suffering really was just psychologically manifested and my brain made it up#andi know it's true because after that visit the chest pain was a lot less Andi can breathe better now#wait but that's not the end of it!#the gyne thinks I could have PCOS but can't confirm so I get my hormones tested and turns out I have more prolactin than normal#that fool made it sound like I Needed to get a MRI scan to check the gland that produces it in my brain or whatever#i go see an endocrinologist who says oh actually the extra prolactin is most likely just from your psychiatric medications#turns out if you take those it's commonly seen to go up so I didn't have to get scanned#this was optional but he suggested I take cabergoline to lower it and also get my menstruation regular again#and that's what I'm doing now but I feel like I had forgotten what having a period is like after always going for months without it#Oh and then I saw a new psychiatrist. because I had serotonin syndrome before and my body reacts badly to medications I've taken#he suggests a sensitivity blood test which I agreed to IMMEADIATELY because I've spent almost a whole decade taking all sorts of meds and#none of it working out#I haven't gotten the results back but he also said SSRIs are out of the question#although I've tried a bunch of antipsychotics and (prescribed) ADHD medications and they didn't work out#really want this fucking test because taking a med and then getting blasted with side effects makes me feel like a guinea pig being#experimented on
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milkweedman · 2 years
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so. almost done with the heel turn of the second sock (meaning just another hour at most of knitting left) and just realized that i knit the second sock with one stitch more per needle than i did the first. last pair of socks was 14 stitches per needle, this pair was supposed to be 13. the gauge is 7 stitches per inch (3 stitches per cm) so this is an extra half inch larger in circumference.
:/
#was wondering why the heel turn numbers seemed a little off#but i was only working on this at work and its a lot more acceptable to be knitting than to be on my phone#so i never ended up checking my notes bc i kept forgetting to during breaks#also was not confident that i had actually taken any notes to begin with#or where i had put them if indeed they existed at all#im just gonna keep knitting it. id rather risk the last hour of knitting ending up with a still wearable pair of socks#because 8 more hours of work is just as annoying as 9 more hours of work#im also wondering if i can do some sewing to bunch up the top a little or maybe a crocheted cable#if that ends up drawing the sock in. will probably experiment#im not actually worried it wont fit me (i knit socks for myself with a lot of negative ease)#but im extremely sensitive to pressure on my feet and the lack of it from socks is very uncomfortable#so if one sock is looser than the other i will start to lose it#(like in the Fork Theory ? uneven socks is a hundred forks. my tolerance for anything else unpleasant becomes zero#so ! it might not be perceptible (these both have ribbing and that may distract from the size significantly#we will see.#always something these days.#i will admit most of those somethings are caused by my brains inability to hold a stable memory#everything is all blended together and i cannot remember when anything happened or the context of it#i wonder somewhat if its gabapentin symptoms. i was doing fine for a while but ive been taking more than the usual dose#to try and combat symptoms but like good god i feel like my brain has been stuffed full of wool#not even in a fun way#eesh. anyway i will continue to knit this sock i suppose#knitting#sock knitting#woes
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karmaphone · 1 year
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insane to me how 90% of therapy advice for singlets gets tossed out when you get to a system lmao
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localcryptideli · 2 years
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Just saw a post where one of the tags was "gluten free people are worse than vegans" and I am here blinking like... what's next, "people with peanut allergy are annoying"? Like sorry for not sucking it up and then going through physical and psychological discomfort by eating wheat because I get an autoimmune response, but I'd rather have people think I am annoying (which is big for me) than go through that again.
#and I am one of the lucky ones#my symptoms are all skin related with some mild brain stuff on the side#and I can eat spelt#and a tiny quantity of contamination will not give me a full episode#I read of people who got sick throwing up and with immense pain for a weel by being contaminated ONCE#gluten intolerance depending on how severe it is can wreck your intestines incredibly bad#like if you are gluten intolerant and keep having gluten apparently you are way more likely to get intestine cancer#like do you seriously think I would not choose to have pizza given the chance#I miss eating at a bakery holy shit but it's not worth it#I still have scarring from eating wheat because I didn't realize I developed an allergy#which by the way a lot of people develop in their late twenties/early thirties#also I WISH we were as vocal as vegans cause vegan products on the market started getting more numerous ever since they got more vocal#while I find wheat in rice and fish that wouldn't need any wheat#and gluten free products are triple the price for one third of the quantity and horrible quality - as in they are often stale#imagine paying eight euros for eight slices of toast and then the toast sucks#now imagine if you are minimum wage and have the stroke of luck of heing full celiac so you don't have an alternative option#you get the message that most food is not for you and society would rather see you starve than use corn starch as a thickener instead#i need to find a tag for personal updates
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ablednt · 1 year
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I'm going to be real that anti-intellectualism as a term reads like reverse oppression to me as a disabled person.
Like as a term it fucking tells you nothing because intellect, the concept of intelligence, isn't under fucking attack aside from people rightfully pointing out its roots in eugenics. No one is Oppressed for being well educated and there's not even really any measurable social consequences one that basis in specific.
The only times it's used in a way that isn't just blatant ableism is when it's critiquing willful ignorance but at the same time the term like.... doesn't at all express that? Just say that bigots are intentionally restricting information that could change their politics because they benefit from that bigotry, just say willful ignorance, intellectualism isn't under fucking attack when people are routinely denied basic freedoms and human rights based on their lack of intelligence.
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I do believe intrusive thoughts come in various genres and shades.
There's violent ones. There's taboo ones. There's impulsive ones (because yes, it has enough overlap with violent/dangerous thoughts to make those be potentially another, if milder, form of them. L'appel du vide IS still uncomfortable, even if you have full awareness of it happening.)
I think ITs can be associated with trauma - like flashbulbs of What Happened.
I think some ITs can be tinged by grief, too. Thoughts that don't help one be compassionate to oneself. The should/could/woulds that haunt and threaten to take away your joy and precious energy. Despite rationally knowing that what is done is done. You did the best you could with the information you had at the time. There's no use in excoriating yourself over it.
It's trite to tag this with Remus. But that last part kinda inspired me to write this and contemplate on the whole gamut of ITs Remus could produce. Just using the guy as a reflection/expression tool (like lots of SaSi fans already do.)
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succliberation · 2 years
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hey r ya doing alright?
Had congestion so bad that i could feel the fluids in my face every time i stood up or moved my head quickly lmao. had some slight brain fog too??? I'm mostly over it but haven't been using screens as much because too much light was giving me migraines, ive barely had any lights on and I've been sleeping a lot. I'll be back to normal posting in a day or so.
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vaniliens · 11 days
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Google whats an anxiety attack look like
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