ONE. MILLION. DOLLARS!!!!!
LETSGO IM SO PROUD OF MY BOYS!!
I'M SO PROUD OF EVERYONE WHO DONATED AND WATCHED AND SENT DAD JOKES! WHAT AN AMAZING JOURNEY 🥹🥹🥹
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Excerpt: My rheumatologist recommended that I wait to shop in person and eat outdoors at restaurants until the positivity rate for my area was below 10%, preferably below 8%. It is incredibly hard for me to find that data now.
It's difficult but not impossible; as always, ask your doctor's office or county health office if you cannot find verified medical information re: Covid-19.
Ignore those who downplay the issue - they are not you, not living with a condition that requires extra care be taken, and simply cannot understand, or worse - they don't care. Do what you need to feel well and maintain your health as best you can.
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i’ll never forgive them for the fact that they stopped making Ernest & Rebecca books
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They should invent an immune system that helps the body fight infections and other diseases.
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Not current- thankfully.
This is back in July 2023. I ended up having a 2.5 week long Crohns flare. I also had some sort of upper respiratory infection. I had been given antibiotics for it, which ultimately kicked my flare into high gear. I went into the hospital at 125 lbs and left at 109 lbs. 5 days of utter hell. Hospitalization isn't for the weak.
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Badlands Texture
📷 Mamiya C330 with 135mm lens
🎞 Kodak TriX
🧪 Xtol Stock 6:45 minutes
Badlands, South Dakota
June 2022
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Ya'll have no idea how productive I'd be if I didn't have such a shit immune system istg I'd be top of my grade if i could
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I was gonna say ‘shout out to all the people with ‘gross’ chronic health problems who are never going to see themselves in fiction in a positive light because there’s no way to make sitting on the loo for four hours glamorous’ and then realised I’m an author and not a coward so
Which of my beloved OCs should receive my debilitating digestive problems?
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🥳🥳
I'm really happy.. feels like an understatement I have been heard And we are investigating my shit immune system!!
🥳🥳
😅For those that want the deets😅
I met with my new Hematologist.
He wanted to go over my ITP history FROM THE BEGINNING! He was shocked how much I had in my head without notes.
I told him what treatments have yielded no platlet responses over the years and how most my drops since 2013 have been immune system triggered or medication triggers (like vaccinations)
He wanted me to take a daily med that stimulates the bone marrow to produce more platlets but these meds have only been out 10 years and were approved as orphan drugs. I have followed these meds the last ten years. I'm not on board with these. MORE SO, I DO NOT have Chronically low numbers. Mine are event drops.
This HOUR long, one on one appointment with him ended with him agreeing that
* I am on top of this
*I manage this condition well
*I can have IVIG infusions when i drop below 20
AND! AND!
since it's tied so to my immune system,
My severe infection history & routine home mitigation, & I respond SO WELL to IVIG w/o roids I am being sent to the immunology department to be checked for IgG Deficiency, CVID & other autoimmune issues. They will follow up with rheumatology should they find anything but both referral sent.
I already have intake appointment with them! I know this isn't likely going to be a fast thing but the possibility of some answers and maybe not end up in the hospital when I get sinus infection or UTI would be really nice.
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It is really stupid how within the span of a single week I can have a major depressive episode, the biggest anxiety attack I’ve had in the last 2 years, have some of the worst writer’s block I’ve ever experienced, and then immediately turn around in a single day and hand write four pages of detailed chapter outline. Madness
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Until this past weekend I hadn't had a severe flare up in more than a month, I was opioid free for most of that time, and my mental health was steadily improving. I know the past few days of hell will pass, eventually. I know even with backsiding I can still go back to eliminating my pain meds, eventually. I know the psychological hit that this has caused is temporary and will pass, eventually.
I fucking hate the word eventually.
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