My inbox is full of unsolicited medical advice ranging from well-meaning but unhelpful for my other conditions, possibly helpful if I can get a doctor to listen and stop being afraid of my MCAS, to outright “have you tried Tylenol/Yoga.”
And to those last people:
I’ve had migraines for over 20. Yes I’ve tried yoga. I used to be qualified to fucking teach yoga.
So suck on the ableist idea that somehow I’m not doing the right things to mediate my debilitating pain.
I’m not complaining for fun because I enjoy it and have tried nothing. I’m complaining because I’m at the end of a very long tether, and my doctors don’t know how to help me because I have so many other major conflicting health issues that put my life at risk.
Yoga helped you? Good! I’m so glad endorphins from exercise and keeping your back and neck muscles in good shape helped you! In an ideal world, it’d benefit everyone.
Meanwhile, I and my multiple fused spinal fractures, connective tissue disorder, and several neurological disorders are going to be over here, waiting for medical science to get to a point where they can upload my consciousness into a machine. At this point, I’d even accept Windows Vista. It might actually be more stable.
I understand you think you are being kind, but please stop and consider that people with chronic, lifelong conditions have at least tried the basics. And especially assume that the person who has “chronic illness and disability advocate” in their bio has at least tried tylenol.
Please, you’re not being kind. You’re just being patronizing.
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One thing I still need to figure out is my disabled guilt complex about current articles suggesting exercise routines that might work for me.
Moving hurts. Stretching hurts. If I don't move and stretch it hurts. Which pain is less satisfactory today? How deeply do I exercise before the inevitable wall? Why do I listen to the voices that insist I give up? Ahhhh, psychology.
I hate yoga culture in this country. I hate that throughout my entire life I was told "you should try yoga!" like it could heal cerebral palsy.
I hate that restorative yoga done properly might actually help me and I am buried under three decades of "but have you tried yoga it's just like physical therapy yoga can heal so many problems and if you have palsy I am sure you will find a yoga that works for you"
My mom, in her 70s, teaches basic restorative yoga to other seniors. She really thinks it could help me - after all, she advocated for my therapies. She keeps reminding me to play Science Anthropology Researcher, which is how she has approached everything since the freaking 1960s.
But it hurts. So.
Maybe I just need to get very high on a good sativa hybrid before I Try Yoga.
I really need to stop imagining a bunch of cult members in leggings banging their fists on a table chanting yoga yoga yoga yoga until their eyes glaze over. I once pissed off a yoga instructor on Facebook because I gave so many reasons I couldn't do yoga.
Besides, I was diagnosed with EDS3 and told to be very very careful with yoga.
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IMPORTANT PSA FOR TUMBLR USERS
If you see a post that recommends something that you just plain can't do, be it for lack of money, lack of access, or often even disability:
Did you know?
That's right! You're not the target audience! You can just scroll on by! The OP won't be offended that every single man, woman, nonbinary adult, and child isn't immediately running out to follow their universal edict and you and others with your restriction alone are not! You don't need to reblog with a bitter retort about how you can't do that!
Shocking, right? That's okay, take your time.
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I really want to play a redeemed!Durge again for the drama who really leans into the sadness of the narrative to throw either at Lae'zel or Shadowheart BUT now I keep thinking that a monk!Durge with Gale would be so fucking funny. Gale is SO out of his depth but so is this other old man being like "I JUST NEED TO FOCUS HARDER. EAT PRAY LOVE. LET'S DOWNLOAD HEADSPACE"
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*jigsaw voice* hello, doctor. In front of you is a patient who came to you because their symptoms made it impossible for them to do things they enjoy, including their favourite sport. You have the length of an average appointment, which is 15 minutes, to find a way for this patient to keep doing their favourite exercise. If you answer "you need to get more exercise" the patient will shoot you.
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I don't know if I'm like... different or something, but I just do not get anything out of therapy. A friend once said that it generally isn't helpful if you're still in the traumatising situation as opposed to healing from it and, you know, fair. But also like... they ask you what you're thinking and feeling and I tell them, prefacing it very carefully with the fact that I know these things aren't true and that they are, in fact, irrational and untrue but then the fuckers will still turn around and look at me like I'm five and be like "But that's irrational! It's not true!" I KNOW! It's just frustrating to me, Idk.
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This is not to detract from any case of Long COVID, but I think there’s a serious problem that most people perceive LC as something where you’re run down for 3 months, you eat some radishes and do some yoga and you’re good to go.
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You know that feeling when you stretch your arm out and your elbow suddenly feels like a weak rubber band, and it feels like if you keep stretching, your elbow will just yeet your forearm and it'll be dislocated and sad?
Stretching is painful.
I don't want to Do Yoga, it sounds cultish at this point.
I do, however, want to stretch the right way. My mom teaches restorative yoga to fellow seniors, and we have this talk at least twice a month. I don't have to call it a yoga pose but those names are really useful. Child Pose, Cat Cow, Warrior. I know, I know, no matter what you call it, it's stretching. Penn And Teller did a whole Bullshit episode on it. My physiotherapist said yoga was mostly to keep a yogi limber enough to maintain a meditation pose for hours and hours.
I don't have to call it yoga. I don't have to listen to that yoga teacher who kept bullying me for "disparaging yoga" which is untrue, I was kvetching mightily but I was not disparaging. It's fine.
A while back, someone in the cerebral palsy support group posted a video of two carers helping her move into a cat cow pose. It reminded me of how we absolutely do have limits, and sometimes the best way to push those limits is with other people literally helping you move.
There is no shame in that. It is not a weakness. It is power.
Yoga is great. It's not something I enjoy. Get used to me kvetching while stretching and satirizing.
I'm going back to sleep. My brain keeps waking me up wanting to Say Things To Tumblr.
(Mom, if you read this, I promise I'm working on my erratic sleep schedule. Insomnia is a hell of a
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I have got to figure out why my muscles refuse to let me exercise properly this is actually driving me nutz. Like I would love doing daily exercises but when my joints and muscles hurt for 2-3 days after low/medium impact stretches it really makes me wonder wtf is going on.
Like I know I'm not gonna get fit overnight but I've been trying to do this for months now and everything hurts? Even with my meds???
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