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#‘have you tried yoga?’
thebibliosphere · 2 years
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My inbox is full of unsolicited medical advice ranging from well-meaning but unhelpful for my other conditions, possibly helpful if I can get a doctor to listen and stop being afraid of my MCAS, to outright “have you tried Tylenol/Yoga.”
And to those last people:
I’ve had migraines for over 20. Yes I’ve tried yoga. I used to be qualified to fucking teach yoga.
So suck on the ableist idea that somehow I’m not doing the right things to mediate my debilitating pain.
I’m not complaining for fun because I enjoy it and have tried nothing. I’m complaining because I’m at the end of a very long tether, and my doctors don’t know how to help me because I have so many other major conflicting health issues that put my life at risk.
Yoga helped you? Good! I’m so glad endorphins from exercise and keeping your back and neck muscles in good shape helped you! In an ideal world, it’d benefit everyone.
Meanwhile, I and my multiple fused spinal fractures, connective tissue disorder, and several neurological disorders are going to be over here, waiting for medical science to get to a point where they can upload my consciousness into a machine. At this point, I’d even accept Windows Vista. It might actually be more stable.
I understand you think you are being kind, but please stop and consider that people with chronic, lifelong conditions have at least tried the basics. And especially assume that the person who has “chronic illness and disability advocate” in their bio has at least tried tylenol.
Please, you’re not being kind. You’re just being patronizing.
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leseratte97 · 3 months
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aro-culture-is · 11 months
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quick note - this blog is gonna be sparse again for at least this week. trying new medications and tbh initial side effects are not super pleasant + actual effects build up. as a result: currently as if unmedicated for mental health, with anxiety+ side effect, extra fatigue, dizziness, and fatigue. it's uh, sure something.
totally recognize that most of y'all know we're absent at times due to health things, just wanted to give a heads up that this one is at least anticipated.
#fun fact sometimes condensing meds just means poorer treatment of some conditions#this is a re-expansion + new thing#so that instead of poorly treating my mental health and using an unusually high dose SNRI for another (physical) condition#i will hopefully both be in less pain AND not depressed af AND also have an appetite again#i doubt i will be lucky and not have a fucked stomach due to meds but one can hope that an appetite will allow me to eat foods that upset#my stomach a lot less#my health is forever a massive balancing act#every time a medical thing is like 'so what meds do u take' i'm like here i wrote it down for u#and they're like 'oh. ooookay. let me just...' *five minutes of typing and clicking later*#'so! what did you come in for again? uhuh. you said you experience pain daily? with your chronic pain thing? hm. have you tried yoga?'#/gen#like. straight up every time i say 'i am in pain all the time due to fibromyalgia' they are like 'ooh studies say regular exercise helps'#and like. theoretically yes! but also. i would be lying if i said the fibromyalgia studies i've skimmed don't set off general 'bad science'#alarm bells in my brain#like... cool you performed a fibromyalgia study with... all male lab rats? mhmm? so are you aware fibromyalgia appears to occur#overwhelmingly in women? like. data seems to suggest between 70-85%?#(not that the data can't still indicate things but it certainly makes male rats a poor choice of model for tests on it)#also just... idk i've looked at some metaanalysis and been like 'okay cool theory and for all i know about human bio or bio in general that#sounds more or less correct BUT. you never discussed that one study on this subject that did NOT support your conclusion.#and that's 1) interesting when it was the most diverse group of subjects and the exceptions often teach just as much as the 'rule'#2) just shitty science. tell me how your theory is still credible when some evidence doesn't fit the model.#like... 'given that all other studies were primarily conducted on white american women in their 30s to 40s it is possible that this model#only explains (the early effects of fibro since that's a typical onset period) / (a possible genetic link primarily found in white women) /#(a possible sign of bias in diagnosis that demonstrates the possibility that there are different causes) / combinations of all of those#like... idk a paper that just throws out things that don't support it is a pretty big red flag#it doesn't mean the conclusion is entirely incorrect but it is often important to understand the context in which it applies#like... it's very easy to jump to an incorrect conclusion if you used something in the wrong context#ie: thumbs up is a good job / positive thing in a lot of western civilizations. teenage kee once went to china and discovered it to be#neutral to offensive in many areas outside of major tourist locations that were used to it#anyways i gotta sleep
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brightlotusmoon · 1 year
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One thing I still need to figure out is my disabled guilt complex about current articles suggesting exercise routines that might work for me.
Moving hurts. Stretching hurts. If I don't move and stretch it hurts. Which pain is less satisfactory today? How deeply do I exercise before the inevitable wall? Why do I listen to the voices that insist I give up? Ahhhh, psychology.
I hate yoga culture in this country. I hate that throughout my entire life I was told "you should try yoga!" like it could heal cerebral palsy.
I hate that restorative yoga done properly might actually help me and I am buried under three decades of "but have you tried yoga it's just like physical therapy yoga can heal so many problems and if you have palsy I am sure you will find a yoga that works for you"
My mom, in her 70s, teaches basic restorative yoga to other seniors. She really thinks it could help me - after all, she advocated for my therapies. She keeps reminding me to play Science Anthropology Researcher, which is how she has approached everything since the freaking 1960s.
But it hurts. So.
Maybe I just need to get very high on a good sativa hybrid before I Try Yoga.
I really need to stop imagining a bunch of cult members in leggings banging their fists on a table chanting yoga yoga yoga yoga until their eyes glaze over. I once pissed off a yoga instructor on Facebook because I gave so many reasons I couldn't do yoga.
Besides, I was diagnosed with EDS3 and told to be very very careful with yoga.
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astraltrickster · 11 months
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IMPORTANT PSA FOR TUMBLR USERS
If you see a post that recommends something that you just plain can't do, be it for lack of money, lack of access, or often even disability:
Did you know?
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That's right! You're not the target audience! You can just scroll on by! The OP won't be offended that every single man, woman, nonbinary adult, and child isn't immediately running out to follow their universal edict and you and others with your restriction alone are not! You don't need to reblog with a bitter retort about how you can't do that!
Shocking, right? That's okay, take your time.
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antiqua-lugar · 6 days
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I really want to play a redeemed!Durge again for the drama who really leans into the sadness of the narrative to throw either at Lae'zel or Shadowheart BUT now I keep thinking that a monk!Durge with Gale would be so fucking funny. Gale is SO out of his depth but so is this other old man being like "I JUST NEED TO FOCUS HARDER. EAT PRAY LOVE. LET'S DOWNLOAD HEADSPACE"
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hafwen · 5 months
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Its so fucking annoying to tell people you have chronic pain and the first thing they ask is if you’ve tried weed
Fuck maybe just some sympathy, not a suggestion to fix it.
Don’t you think I fucking tried to fix it?
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letthebookbegin · 11 months
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#nothing like being in varying states of pain for a few years - sometimes less#sometimes more but always there - and being too exhausted to go to a doctor about it bc everyone around you says you just need to do yoga &#the only way ur job will accommodate is by giving u the less staffed late shift so u can go in the morning and ur so exhausted youd rather#just deal eith the pain like u already have been doing for years#to moving to a job that actually allows u to leave early for medical reasons if you can get the essentials done#then phoning the gp with hope & motivation for the first time in a long time#and being told lol no appointments left until july#i had hope for once i really did 🥲 my friend is a pt & said i might have fibromyalgia and i really really dont want it to be that bc that#means i have a chronic illness with no cure but i looked it up and just. every single symptom was a check for me#and i started thinking if i do have it ill have it whether im diagnosed or not & if i dont then thats good to know too? & psyched myself up#for the phone call and. ugh it really hit me#she said to do their online service. tried and it said no appointments available. tried nhs online. it said make an appointment with ur gp#within the next few days 🥲 back to giving up and just bearing the pain and never mentioning it bc i'll just get told it's my own fault bc#i didnt go yoga ig#just needed to rant into the void for a bit sigh#time to go back into work i guess#*#UGH I JUST GOT MY PERIOD TOO#also like. this isn't to say i do have chronic pain it could be something easily solved#and id be delighted if it was#but i hate how the people around me trivialise it like. it's not normal to have intense pain and stiffness from sitting down/standing for#the duration of one train stop ok it's not. it's not normal to feel sharp jolts of pain through my body every time i cough or sneeze.#every part of my body aches! literally from my head to my toes! they dont do toe yoga!#okay enough back into the fray
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detentiontrack · 2 months
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Not to be THAT person but yoga has helped with my chronic pain so much
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halipula-aika · 3 months
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*jigsaw voice* hello, doctor. In front of you is a patient who came to you because their symptoms made it impossible for them to do things they enjoy, including their favourite sport. You have the length of an average appointment, which is 15 minutes, to find a way for this patient to keep doing their favourite exercise. If you answer "you need to get more exercise" the patient will shoot you.
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I don't know if I'm like... different or something, but I just do not get anything out of therapy. A friend once said that it generally isn't helpful if you're still in the traumatising situation as opposed to healing from it and, you know, fair. But also like... they ask you what you're thinking and feeling and I tell them, prefacing it very carefully with the fact that I know these things aren't true and that they are, in fact, irrational and untrue but then the fuckers will still turn around and look at me like I'm five and be like "But that's irrational! It's not true!" I KNOW! It's just frustrating to me, Idk.
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aforeffortenjolras · 4 months
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shit dude it is unbelievable just how generally better I feel not being in school atm. i hope working full time doesn’t drain me as much as school does.
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finexbright · 2 years
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#i have few controversial™ thoughts#i honestly don't know what kind of a fuckall contract this is but it's very clear that holivia isn't a pr stunt and that she's a beard#and she's doing everything and more with that knowledge and lording it over him#i also have a feeling that most of these pap walks and her being around him were non negotiated in the sense that#she's literally just showing up every fucking where and making sure she's seen and so they're gonna have to get along with it#i also think that she (and her team) are looking into what the gp and the fandom thinks every minute of the day#because like. remember there was this thing where pregnancy rumours and next thing she was wearing baggy clothes?#and then like. she knows none of his songs are ablout her but she's trying so hard to make it about her#like. with the baggy clothes thing coming immediately after album release and little freak having the lyric#' you hide the body all that yoga gave you'#i feel like as a social experiment if you said something like ooh harry likes woman in bright yellow dresses#you'd see her in a bright yellow dress in the next few days#i hate to say this but she's extremely clever and she sees everything and tries to fit herself into the narrative#we talked about how uncomfortable he looks around her and how they're always ten feet apart and now we get kissing pics?#and yeah given the mp teaser release it kinda makes sense but doesn't mean any of this is right#she's a diabolical narcissistic who's riding on the 5 seconds of fame like it's her last breath on this planet#and i say this with no malice but she really needs to seek mental help at this point#like always wearing his merch. and like it's very proprietary in nature.#she's seriously showing stalker fan behaviour at this point and it's ridiculous#holivia#soni rambles
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pandemic-info · 8 months
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This is not to detract from any case of Long COVID, but I think there’s a serious problem that most people perceive LC as something where you’re run down for 3 months, you eat some radishes and do some yoga and you’re good to go.
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brightlotusmoon · 6 months
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You know that feeling when you stretch your arm out and your elbow suddenly feels like a weak rubber band, and it feels like if you keep stretching, your elbow will just yeet your forearm and it'll be dislocated and sad?
Stretching is painful.
I don't want to Do Yoga, it sounds cultish at this point.
I do, however, want to stretch the right way. My mom teaches restorative yoga to fellow seniors, and we have this talk at least twice a month. I don't have to call it a yoga pose but those names are really useful. Child Pose, Cat Cow, Warrior. I know, I know, no matter what you call it, it's stretching. Penn And Teller did a whole Bullshit episode on it. My physiotherapist said yoga was mostly to keep a yogi limber enough to maintain a meditation pose for hours and hours.
I don't have to call it yoga. I don't have to listen to that yoga teacher who kept bullying me for "disparaging yoga" which is untrue, I was kvetching mightily but I was not disparaging. It's fine.
A while back, someone in the cerebral palsy support group posted a video of two carers helping her move into a cat cow pose. It reminded me of how we absolutely do have limits, and sometimes the best way to push those limits is with other people literally helping you move.
There is no shame in that. It is not a weakness. It is power.
Yoga is great. It's not something I enjoy. Get used to me kvetching while stretching and satirizing.
I'm going back to sleep. My brain keeps waking me up wanting to Say Things To Tumblr.
(Mom, if you read this, I promise I'm working on my erratic sleep schedule. Insomnia is a hell of a
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0dotexe · 9 months
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I have got to figure out why my muscles refuse to let me exercise properly this is actually driving me nutz. Like I would love doing daily exercises but when my joints and muscles hurt for 2-3 days after low/medium impact stretches it really makes me wonder wtf is going on.
Like I know I'm not gonna get fit overnight but I've been trying to do this for months now and everything hurts? Even with my meds???
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