#afos

[cigarettesandsneax]

#cigarettes #smoker #smoking #nike #afos

[perplexingluciddreams]

I have set new record for how many times walking!! 6 times!! I do it today AND yesterday 🙌🏻

We have open-plan downstairs, so from front window to back door of house, it is possible to walk through all the way.

When I do walking, I go all the way from front to back of house. Mum or Dad stand near back door and count a new number every time I go to them and do high five! So, one "lap" is actually two times of walk length of house!

I get better at tolerate the braces I think, even though it is still sore pressure in a few spots. (Especially left foot outside heel).

I also walk faster I think, and better rhythm of moving. Left leg always very tired afterwards!! (Because left side is weak side).

I am proud, I try so hard 😄

#words from my head #afos #ankle foot orthotics #leg braces #orthotics

[prettybracedgirlxo]

Cozy Wednesday night 🥰

#braced babe #neck brace #oxygen #wrist brace #soft collar #nasal cannula #brace aesthetic #medical aesthetic #med fet #compression socks #afos #knit socks

[artistfromouterspace]

Monster hunter commission! This took longer than you'd think.

#monster hunter #rathalos #galvanus #safi'jiiva #dragons #wyvern #art commisions #afos

[giraffe-showbiz]

My orthotist is amazing. While she was casting my legs she asked my questions about my hEDS journey and when I apologized for monologuing she said “no, I want to learn more about this”. Providers who seek to learn from patient experiences are invaluable and I feel so grateful to have been referred to her.

Our first try on of UCBL inserts and a thin carbon fiber AFO proved to not give me nearly enough ankle stability. She was immediately ready to scrap the old idea and come up with a new solution. You’re telling me this provider was willing to be wrong and listened to patient experiences?!?! I need to make sure that I file a star reward for her through the hospital system.

#hypermobile ehlers danlos #heds #afos #orthotics #orthotist

[homo-taylorsversion]

SMALL VENT

I have cerebral palsy. (And autism but that's unrelated right now.) And I'm in frequent pain. Literally, if one part of my body isn't hurting, another one is. I also struggle walking. Extremely clumsy and have a "limp" of sorts, always falling over. So, I've been thinking about something. I want to start using forearm crutches to help with that. So I can get around easier, especially on days where I'm in more pain. And/or AFO'S. (if you don't know what those are, their ankle foot orthoses. A brace that helps improve or correct lower limb issues by providing support to the limb, improving alignment, controlling motion, minimizing pain, and correcting or preventing the progression of deformities. 'boston orthotics and prosthetics')

But there's a few problems with this... I struggle with internalized ableism and self consciousness. But then there's the fact about doctors. I haven't been to a doctor's appointment for almost 6 years related to my cerebral palsy. (Though I'm supposed to too make sure it's not affecting anything else in my body). And on top of that, I'm in a completely new state so I'm not sure if they can get my records or how to ask the new one (once I actually see one) about it, because I've never asked for help about it before. I don't know how to bring up that I was forearm crutches and/or AFO's. That I know I need them.

#cerebral palsy #autism #autism spectrum disorder #cronic pain #physical pain #afos #forearm crutches #mobility aid #disabilties #living with disability #disabled #queer disabled #small rant #small ramble #movement disorder #small vent

[disabled-dragoon]

If I had the option I would totally go back to having cool patterns on my splints

Why do I have to have solid black just because I'm an adult

I'm the one who has to wear the plastic bastards. At least let me have some fun with it

#never offer me colours anymore and its criminal #used to have a dolphin pair and nothing will ever top them #if we have to wear mobility aids at least them be nice to look at #disability #disabled #hereditary spastic paraplegia #splints #afo splints #afos #mobility aids #physically disabled #swearing

[becauseicantthinkwritings]

me looking at everyone reading the new chapter of altar for our sins because i cant due to the awards season deciding they needed attention (my work is eating me alive, i hope you're doing well 🥹)

I don't know what's wrong with me but I read this in one continuous line and got so confused and my head feels packed with cotton. What are awards season?

I miss you and I need you though, you're one of my favourite readers 🥹

My work is also eating me alive, and I hate my boss.

#ask #an altar for our sins #afos

[bacteriaeatingmybrain]

I just got my new AFOs and OH MY GOD Not having to think about repositioning my feet to the proper position every 5 minutes has been amazing. Still getting used to them but ankle pain has improved so much already. I’m so happy. I’m still getting used to how to get around in them. Stairs are so hard now that I have like zero ankle movement, so scared I’ll fall down. But worth it.

#ankle brace #AFOs #chronic pain #disability

[perplexingluciddreams]

Appointment was fine, Mum says I did well and get gold star 😁.

New doctor was nice (and also loud, lucky for noise cancelling headphones!), he was efficient and it was a fast appointment.

No big problem I think. I didn't really know what is going on, I just follow instructions to move certain position so he can examine me. And coped well with the touching.

I didn't really process what he said, but it doesn't seem bad. Luckily the discomfort I had with it seems to calm down a bit now, so less upset about it. (Not want to explain details for this one, it is just random small thing mostly unrelated to any other health/disability stuff).

I am tired now but I coped well and I am not back in crash again I think! So that is good, lucky for appointment so quick and small wait time. I rest in bed now.

I got chocolate 😄 (Ask Dad for it and he make a joke about who gets the chocolate. He always jokes about eating my chocolate or sweets every time I get some, even mimes stealing it 😂 makes me laugh!).

I did walking the whole time (obviously sit down breaks in between for in car and waiting room and chair in appointment room, but walked between, hold Mum's hand 😊). I am proud.

Even if walking hurts knees a lot because bad joint alignment because can't wear AFOs because pressure-pain. But appointment on Wednesday is for orthotics so we will see what they say. Don't know if they can really do anything to help or give me what I need for my AFOs... I have doubt about that. (Especially because this is already second pair I have from them and still not able tolerate). But wait and see. 🤷🏻‍♂️

#words from my head #afos #ankle foot orthotics #leg braces #medical appointments

[prettybracedgirlxo]

Freshly emptied // how long will it take to fill back up 🤔

#braced babe #med fet #brace aesthetic #medical aesthetic #catheter #leg bag #afos #compression socks #ankle brace #braced and tubed

[artistfromouterspace]

I do wanna turn him into a sticker at some point but for now here's the big sweet mans in all his glory

#critical role fanart #critical role #caduceus clay #mighty nein #cr campaign two #afos

[randygearforever]

#nike #afos #af1 #nike af1 #hoody #crazy jeans #cute lad

[cupcakes-n-rainbows]

My orthotist is great. She's the first one I've had who actually knows about EDS (Ehlers-Danlos syndrome). I went to her to get my AFOs (leg braces) adjusted and I was making a point about having unstable joints and lax ligaments. In response, she muttered, "Y'all basically don't have ligaments." So funny to me, very true.

#ehlers danlos syndrome #ehlers danlos #disability #EDS #ankle foot orthosis #AFO #AFOs #disabled #actually disabled

[heavenlyhopeful0]

Sorry for the late update. Life has once again gotten away from me. Clearly, I need to work on my routines. 😅

As far as updates go, I’m still undiagnosed, still waiting on a miracle.

I will be getting new AFOs (ankle foot orthotics) on Friday.

I’m looking forward to those.

They are the ones that another one of Nancy’s patients has that I tried at the clinic about a month ago.

Aaron, the AFO guy, said he could make me AFOs made specifically for me, but they would be made out of plastic, not as bulky as my first ones but I’m still hesitant.

I’ve come to really like the carbon fiber ones I’ve tried.

In other news, I’ve started a 6 month challenge, if you will, to focus. Focus on myself and the aspects of my life that need a little tweaking.

It’s a lot but its also over 6 months.

In no particular order,

1) I’m taking a hiatus from men and dating.

That’s a whole other story, nobody got time for that 😅

I still strongly desire a husband but I’ve come to realize maybe these next six months are just what I neeed to prepare myself for my future for what and who I want to enter my life.

2) I’m going to spend this time growing in my relationship with God.

I desire to become the woman that the Bible talks about. Ruth and Esther are good examples. I also want to become a godly wife for my future husband.

3) I’m going to be fighting like hell to get my body back, as much as will be possible with my condition.

I know I need to work a whole lot harder on keeping active and doing more to get more out of the physical aspects.

4) I’m going to continue working on my mental health in every way that I can.

I’m becoming more into self help books and podcasts. I’m currently listening to Hardcore Self Help: F**k Depression on audio book. I recently bought a couple books off Amazon; You are a Badass and UnF*ck Your Brain. I’m shooting to read a book every month for this challenge.

5) I’m going to hone in on my routines and habits.

Lord knows I can always work on my morning and night routines. Water consumption could also be better. And getting on a better laundry schedule is needed

6) I’m going to get organized and get my environments in ship shape.

My room definitely needs a lot of attention. I desire to live in a state of peace not the unorganized chaos.

I have a lot to look forward to these next 6 months, all that I can say is God, lead me where you want me to go!

#AFOs #6months #focuschallenge

[periodictableofsynthpop]

A Flock of Seagulls . . . #afos #aflockofseagulls #newwave #synthpop #80s #80smusic #1980s #1980smusic #ptos https://www.instagram.com/p/CmeP-BnuW7g/?igshid=NGJjMDIxMWI=

#afos #aflockofseagulls #newwave #synthpop #80s #80smusic #1980s #1980smusic #ptos