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#disabled isn't a bad word
defectivegembrain · 2 years
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Anyway autism is a disability and insisting that it's not has some really harmful effects:
It trivialises our impairments and needs, making it harder for us to get services and accommodations
It denies us specific and accurate language that holds social and legal power to address our needs and protect us from discrimination
It alienates us from the larger disabled community, which includes many people with similar experiences and shared histories and political causes
It further stigmatises some of the most vulnerable of us, such as nonverbal people, those who need carers or special education, etc.
It's often insulting to people with other disabilities, implying that we're better than them or that disability is a bad thing to be associated with
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crazycatsiren · 11 months
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"You are not 'disabled' you are" I'm about to be she who throws you into a well.
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atlasly-disabled · 2 years
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I don't know who else struggles with this but someone out there probably does, so here's an affirmation to help combat internalized ableism:
My braces and mobility aids don't ruin my outfit.
My safety and comfort are more important than an outfit.
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⚠️ TRIGGER WARNING: disability hardships, death, fire ⚠️
..
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One of the hardest things for me to learn as a disabled person is that there are limits to what you can do and it usually doesn’t align with your intentions.
It doesn’t matter how badly you want to do a particular activity or intervene in an urgent situation. Depending on your physically/mental disabilities sometimes it’s legitimately not possible. Humans can do amazing things but there are still people who die in fires because they are too disabled to leave their homes and no amount of inspiration porn can change that.
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lifeonkylesfarm · 2 years
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If abled people suddenly felt what it was like to be disabled they'd just be like
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crippledpunks · 2 years
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here's to the "treatment resistant" folks: here's to people who have white coat syndrome or have significant medical trauma that leads them to be highly fearful of doctors and seeking treatment, here's to the people who are psychotic and struggle with paranoid & persecutory delusions of doctors & medical professionals wishing to seek you harm, here's to people who believe nothing medical is wrong with them and do not wish to be forced into medical treatments, here's to people who have their own coping skills and forms of therapy and prefer to stick to what they know is safe for them, here's to everyone who feels condescended to in therapy and refuses to do breathing exercises, or sit around in groups and talk, here's to people who hate taking medications or are traumatized by regularly taking medications and refuse to do so.
i'm not saying these treatments are inherently bad and that no one should seek them out, but people who don't wish to ascribe to them don't deserve to be labeled as bad or shitty or lazy, or be told they don't want to get better or that they're "getting worse" because they're seeking alternative treatments. everyone is built different. if you don't like typically prescribed medical treatments or they literally don't work for you and you're tired of trying them, that's fine. here's to you.
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sicksadstar · 1 year
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disabled things 1
wanting others to know disabled isn't a bad word.
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This week I walked a forest path using a mobility aid, and for the first time in years I was able to make it the whole way without my hip or knee giving out.
Similarly this past month when the hall bathtub needed to be replaced the spouse suggested that we get a walk in tub. It’s been installed now and I can’t believe how easy it is for me to take a proper bath without getting stuck.
The moral of the story is: use the mobility aid, turn on the captions, buy the wheelchair, sit to cook, wear compression gloves, whatever will make your life easier. You deserve a life with all the ease and comfort of an able person and whatever you need to give you a piece of that is good. It is right. It is important. Take care of yourself, you deserve it. I promise you won’t regret it.
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tekra-brings-the-rain · 10 months
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I made a sunflower (invisible disability flower) with the disability pride flag colors. Happy pride to people with disabilities that are invisible and everyone else!
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defectivegembrain · 2 years
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You know, if you truly believe that your autism isn't a disability, you need to acknowledge that that's a very privileged position to be in, and that by denying the disability status of people who struggle more than you, you're talking over a marginalised group that, by your logic, you don't belong to. And if you actually find that you face the same problems as us and need accommodations that are usually supposed to be for disabled people, maybe you should have a think about why exactly that word makes you so uncomfortable.
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ginxedjoints · 2 years
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So remember my little nurodivergent ben hc where he has post concussion syndrome/ brain damage.
I'm not on those spefic meds anymore than made caused me to rival ben in smoothie consumption but I wanted to write the fic anyway.
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How I prepare for a doctors appointment with a service dog.
Service dog checklist:
Call the office to notify them ahead of time that I will be bringing my service dog and make sure she can accompany me during the medical tests. (This is not legally required in the US but it’s good practice and makes for a smooth appointment)
Make sure her exercise & decompression needs are met in the week leading up to the appointment and use the day before to rest.
Check her over for any subtle signs of injury (especially with the paws) or sickness (especially tummy problems)
Brush thoroughly the day before or that morning to limit shedding at the hospital (We bathe once a week so she should be pretty clean already)
Prep treat allowance for the appointment (plus extra jackpots for unforeseen issues) and make sure there’s time for Mandana to have a regular meal before we leave. I personally don’t feel comfortable working her on an empty stomach.
Fill water bottles and make sure I have extra bowls in the car. It’s good to have a backup plan incase you forget to bring water (like I frequently do 😅)
Decide ahead of time what gear I’m going to use. This really depends on weather, how long the appointment will be, what tasks I expect her to do and how she is feeling. I usually use: Martingale collar, hands-free leash, HC pet boots or GripTrex, medical alert bringsel, a lightweight SD harness. If I bring my rollator then I might also bring: her travel mat, wipes, small hand towel, water bottle & bowl. Otherwise those things usually stay in the car.
Have a plan with my caretaker on what will happen after the appointment and make sure we are on the same page. I expect to be exhausted and probably starting to flare. He usually takes over but I may need to push myself extra if he won’t be home when I’m done with my appointment. I also prep frozen lick-mat or similar enrichment to help Mandana decompress after the long day (I usually expect to spend 4-5 hours out of the house per appointment)
My checklist:
Fill out paperwork, check-in online, make sure previous balances at this hospital are paid or are on a payment plan and make sure I will have my ID & Insurance card with me.
Make a reference sheet for myself: medical history timeline, current symptoms listed in order of priority and the top questions/concerns I want to address at this appointment.
Try to be as well-groomed as possible (depending on how much energy I have) Decide what clothes I’m going to wear and make sure they are clean and ready to go.
Find out exactly where the office is and how to get there. Calculate how long it will take to arrive 15 minutes early to check-in and then add 30 minutes to accommodate issues with traffic/puppy potty/etc.
Be prepared to either cancel the appointment or leave the service dog behind if something goes wrong. It’s unethical to work a sick/injured service dog and they can have bad days too.
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Disabled isn't a dirty word and if you think it is your personality is akin to that of a cray-z-art crayon you crumbly little fool.
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lifeonkylesfarm · 2 years
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Things people have blamed my pain on (rather than my disabilities)
my mattress
not being flexible enough
anxiety
"sleeping in a bad position"
using a computer
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wheelydivergent · 2 years
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I always find it jarring when someone doubles down on their ableism. They’d rather blame disabled people for their disabilities, as if we’re being punished for something, than accept the world was not designed with us in mind. That is is in fact what disabled us.
FYI it’s not my body which prevents my access to many places, it’s the fact there are steps on the entrance so my wheelchair can’t roll in. 🤦🏻
Sometimes it really feels like I’m screaming into the void.
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