#disability life

[fallenstarcat]

sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?

accessibility to wheelchairs is more than just a ramp.

#disability #disabled #wheelchair #wheelchair user #wheelchair problems #accessibility #wheelchair accessible #cripplepunk #cripple punk #cpunk #disabled life #disabled struggles #disabled problems #disability life #disability struggles

[wonder-cripple]

Life with chronic pain is like "my body is on fire but I guess I'll function anyway"

#disability #disabilities #chronic community #actually disabled #chronic illness #cripple punk #chronic pain #disability problems #disability life

[capricorn-0mnikorn]

Hey, fellow full-time Wheelchair Users,

I'm thinking of a state of mind that's a cousin(?) to "hangry," especially if your chair is not a perfect fit for your body (or not a good fit, at all). It might even have been custom-made for you when you first got it, but your body has changed in the meantime (or the chair's gone out of alignment in the meantime), and it'll be a while before Medicare/Insurance will help pay for a new one.

So at the start of the day, the miss fit is uncomfortable/annoying. But you take it...

At the end of the day, do you find yourself getting more frustrated/angrier than you would at the start of the day?

Especially in response to a normate person being hlepful... Or is that just me?

Can we coin a word for this?

#disability life #hlep #wheelchairs #ableism

[thebitchwitheface]

We as a society need an autism health and fitness guide. I have really strong ARFID and disabilities that are more common when you are also autistic. Having better advice and tips that aren't just "meal prep the fuck outta your life" or "starve" would be nice.

#autism #actually autistic #autistic things #autistic adult #autistic experiences #arfid #actually arfid #arfid struggles #arfid problems #disability #disabilties #disability awareness #disability advocacy #disability support #disability stuff #disability help #disability life #arfid tag #autism awareness #autism life

[abtoddler]

The briefs are working good to cut down stains in the diaper and make clean up easier def recommend with cloth diapers

#incontinent #autism #wet #mess #disability life

[chicleeblair]

Update:

I’m still around, y’all! My eye is doing better. The “defect” aka tear is gone, but the infection is still clearing out. Once the infiltrate is gone, I’ll get to put my contact back in. Not sure if there will be any permanent issues. My vision is still foggy—I have my phone on dark mode because black against white isn’t great and uh that’s books. But it does seem to be slowly improving. When they were worried enough to be using the term “cornea transplant” last month I’ll take that. Also it could be the drops I’m on. They’reqw intense. And liquid gold apparently. Shortage. Broken system. ‘Merica.

They do want me to have some minor surgery done to my lids, but it should be outpatient, local anesthesia.

Hopefully, the Lexie Lives fic will be ready to start going up as my life returns to normal. I’m close to done with the main revision.

As for the DRoG companion…. Christmas in July, anyone?

#anatomy belonging to a grey #grey's anatomy #fanfic #fanfiction #cornea abrasion #disability life #monocular life

[tumble-tv]

I packed myself a hot lunch instead of my usual collection of little snack foods, forgetting that I pack a collection of little snack foods because I can't eat large portions without getting nauseous and a spike in my heart rate and I am going to suffer for the next three hours

#chronic illness #chronic disability #chronicpain #disabled #other chronic illness bs #chronic disease #fibromyalgia #chronically ill #disablity #undiagnosed chronic illness #chronically disabled #disability #disabilties #disability life #i just wanted to eat my rice and meatloaf

[abilitysstuff]

Billy Footwear

Billy Footwear is adaptable shoes that actually look good. They come in all sizes for everyone. They are not made to fit over braces, but a lot of people with AFOs use them.

They didn't work out for me, but they may help you.

#ankle support #ability not disability #disability #disabilty life #afo #disability inclusion #the barriers we face #wheelchair life #wheelchair user #inclusion matters #friedreich's ataxia #disability pride #disability support #disabilties #disability life #adaptable clothing #ankle brace #billy footwear

[fallenstarcat]

“well it’s good your tests came back normal!”

no. it’s not.

a normal test result doesn’t mean i don’t have symptoms anymore. it just means we’re no closer to an explanation.

i’m still struggling. my symptoms are still getting worse. we just don’t know why, also meaning they don’t take me seriously.

a normal test result is not a a happy thing when disabled.

#disability #disabled #disability struggles #disabled life #physically disabled #actually disabled #disability life #chronic illlness #chronically ill #chronic pain #chronic illness life #tw medical #chronic pain struggles #chronic pain life

[wonder-cripple]

This is your semi regular reminder that disability doesn’t always look like someone sitting in a wheelchair. That’s an ableist and harmful angle to take.

#disability #disabilities #actually disabled #chronic community #chronic illness #cripple punk #disability life #chronic pain #disability problems #mental health

[ebonyheartnet]

Why the fuck do I suddenly suck when playing electric guitar? I’m actually pretty good on acoustic!

-30 seconds on Google-

You mean my overcooked spaghetti hands would have had an easier time learning on electric because it takes less pressure?!

Edit: oh right, the rest of me

#ehlers danlos problems #disability life #learning guitar #ebony sings the thing #< close enough #this thing is heavy enough to go from battery to battery w/ a deadly weapon if I swing. and yet it takes baby grip strength to operate??? #THE FUCK #edit 1: #it’s been 30 minutes of playing with a strap— #do not. <- you know who you are #—and my neck. my back. my tailbone and abdominal muscles are suing for punitive damages. #will that stop me? no #will it make me take steps to protect & rehabilitate myself. lest my body decide to repo sitting privileges? yeah ok das fair. #… I already know my lungs and ribs will file a restraining order if I try to play laying down.

[carving-the-running-path]

A little life update to explain my continued absence. This is kind of a writing post, mostly a life update.

Tw: hospitalization, psychiatric care, mental health issues

Cw: romantic relationships (sometimes happy things need content warnings, even if they’re not what’s typically considered triggers), new jobs, job searching

In the past half a year:

—I’ve started a serious relationship with someone I intend to marry

—I’ve been hospitalized for my mental health struggles

—I’ve had manic, depressive, and mixed episodes, all rapid cycling

—two fibromyalgia flares

—new medication cocktails

—therapy twice a week

—planning a wedding for a family member

—starting a new job (which I already hate) and looking for different jobs

—health anxiety

So… yeah, I kinda haven’t written in a while. I’m getting better, so please don’t worry, but this has been what I’ve been carrying. That said, I’m planning on picking Carving the Running Path up again sometime this week, because content creation is important and I miss it deeply.

#fanfiction #carving the running path #mentally unstable #mentalheathawareness #mental illness #life update #disability life

[starkidmack]

Hi fat and disabled friends! I’ve been thinking of getting a walker or rollator for when I take long walking trips (like the zoo or a walking tour) and I’d love some input! I’m looking for something that can stand 300+ lbs, is foldable/easily transportable, has a seat, and is relatively affordable. Let me know your opinions!!

#fat #fat liberation #disability life #mobility aid

[chokecherrylore]

Just in case anyone was under the false idea that it's "easy" to live off of government assistance, in my case disability...

My "benefits" were frozen, because they wanted me to complete a budgeting course, I've already taken and had provided the certificates for. AND they want REASSESSMENTS of my chronic pain and mental health diagnosis, which fine i guess? But feel it's non compliant that it takes MONTHS to get appointments with specialists for these reassessments. And now, won't release my benefits after I've provided updated information and redone the budgeting course and provided NEW certificates, BECAUSE I don't have a working phone. Because my benefits were frozen and I couldn't pay my phone bill. And I can't get my benefits back until I can do that????? Cause that makes sense right????

It is exhausting being disabled.

#cherry tinted rage #disability life #why its impossible to live on disability #how we are systematically being killed for being disabled and on assistance.