#mobility aid user | Explore Tumblr Posts and Blogs

cripplemetal · 3 days

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but seriously, i can't believe how far i've gone. and how i should be really proud of myself.

11 years of never-ending pain, of learning how to ignore and endure it, how to look and act "normal".

then my first shitty canes (they're pretty but completely unusable). first steps. first shame. how i was afraid to show up at work with it.

after that, i ordered a custom cane. and then another one. i decorated them. made them vibing. i started taking it to work, still afraid to use it around my colleagues.

then i got three house canes (first and second ones got chewed by my beloved dog lol) and started using it at home as well.

and now i use it everywhere i go. when i walk my dog, when i go to my lunch break on work, when i get around my apartment.

i got forearm crutches and learned how to use them. i decorated them too! they're yellow, covered in flowers stickers.

today i started saving up for my future rollator. i believe i'll be able to actually order it by june.

it all happened too fast, i still have impostor syndrome, i still feel self-conscious, like i'm not actually disabled and don't belong to cpunk communtiy and i'm a faker etc etc etc... but one thing happened: i improved my life. (even if i'm a faker lol) i got less pain every day, less fatigue, i stopped being ashamed at least of my canes.

my best friend was a big part of this journey, without her support i'd never get here. love her so much.

#chronic pain #mobility aid #cripple punk #disabled #cane user #physical disability #chronically ill #c punk #cpunk #using a cane #mobility aids #mobility aid user #rollator #forearm crutches #disabilties

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defiantcripple · 2 days

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A guy with a giant suitcase boarded the bus today without waiting for me to get off (the front is the only accessible exit), and tried to shove his way past me to get on.

I literally blocked his way, looked at him, and went "I need to get off." I made his ass back all the way back off the bus to let me out.

I do not care how able-bodied you are or how authoritatively you try to move. I need this exit, and I'm going to use it. The bus will still be here after I do, I promise.

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cr-pplepunx · 5 months

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if youre considering using a mobility aid, youre probably thinking about getting a cane. even if it seems like youre issues arent bad enough, you should probably still consider other mobility aids. please look into the pros and cons of several different mobility aids, especially in conjunction with your specific disability/diagnosis/needs.

i got a cane at first because i thought my issues were "mild" and therefore i needed a "mild" mobility aid. but canes are moreso for stability than support. i damaged my wrist and worsened my scoliosis by deciding to use a cane without an educated opinion.

i now use forearm crutches primarily, a rollator for longer outings, and a wheelchair for worse days and longer events. dont make the same mistake as 16-year-old me. dont choose your mobility aid based on palatability, consider your needs and address your internalized ableism if need be.

#cripplepunk #mobility aid user #cane user #crutch user #mobility aids #rollator user #wheelchair user #ambulatory wheelchair user #physically disabled #actually disabled #chronic illness #chronic pain #chronic fatigue #spoonie #:P

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jemineye · 1 year

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i cant stress this enough, disabled people know their own limits. i fucking promise you. we are not being lazy or jerks because we won't do something YOU want us to do or something YOU THINK will make us feel better. it wont. stop.

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spooniestrong · 1 year

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#spooniestrong #spoonie #disability #chronic illness #chronic pain #mobility aid user

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frankiensteinsmonster · 3 months

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❗CRIPPLE TIPS❗

✨ Able bodied friends edition ✨

If you are in a group that includes anybody who is using a mobility aid, if you are out and about and a Stairs Situation arises, either ask them which they'd prefer, or opt for the elevator (given your group is small enough. If not, have a couple friends use the elevator with your disabled friend, after asking if this is what they prefer (they may enjoy a moment alone, everybody is an individual with their own preferences). This means they don't lose the emotional "high" of being part of a group, conversation can continue so they won't suddenly feel lonely and excluded on the solo elevator ride, which can creep in and ruin their mood especially if they're new to their disability, and there's less of a chance of confusion once you're at your destination. Nobody likes being lost, but the inherent exhaustion and physical exertion that comes with using and mobility aid is incredibly... Unfun. And distressing! This can be easily avoided and you have the chance to be an Excellent friend! We notice these things!

This post is about being Physically Disabled, Able bodied people are encouraged to reblog, but Do Not Derail-- make your own post if you need to say something not related to being physically disabled.

#cripplepunk #cripple tips #cpunk #cripple punk #chronic pain #chronic illness #cane user #chronic fatigue #mobility aid user #mobility aid #ambulatory wheelchair user #wheelchair user #physically disabled #physical disability #disability pride #disability awareness

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talkingattumble · 7 months

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Hi guys! Here’s some advice from a cane user on how to spot a fake cane user/disability faker!

YOU CANT

You can not spot a “fake disabled” cane user. You can not know if someone’s “really disabled”, much less by just looking at them. Here are some common misconceptions.

“Cane users always need their canes. If they walk without it or put it away when it’s inconvenient, they’re faking”: WRONG! Many cane users are what we call “ambulatory” cane users. This means they don’t always need their canes to walk. I’m an ambulatory cane user, and I experience really horrible leg pain on the daily. However, I don’t always use my cane, and when I don’t need to walk or stand a lot in a certain place I don’t use it. And when I do use it, I may lift it off the ground or carry it in places that are sandy, gravelly, or otherwise hinder my cane.

“Cane users walk abnormally without their canes, someone who walks normally without their cane is faking”: WRONG! Many ambulatory cane users can walk in a way that seems “normal”. This doesn’t mean they’re not in pain, or not “really disabled”. This just means that their condition doesn’t cause a noticeable difference in walking, and likely manifests in a different way.

“Cane users always need their cane, someone who doesn’t use their cane at home is faking”: WRONG! Cane users may not use their canes at home, because at home they may be able to do things like sit down wherever and whenever, regain more spoons, and use other mobility aids. Additionally, some ambulatory cane users only need or use their canes when they are doing something physically taxing, like going on a hike or standing in a long line.

“My cane user friend told me this person looks like they’re faking, so it must be true”: WRONG! Being a cane user doesn’t immediately make you an expert on all different conditions and experiences. Your friend does not know the random cane user walking down the street, they are going off looks and stereotypes. Disabled people are not immune to being ableist.

“They enjoy their cane too much/they’re too happy/they decorate their cane, so they can’t actually be in enough pain to need a cane” WRONG! We’re people like everyone else, and we experience positive emotions too, even if we go through a lot of pain. To me, customizing my cane is like getting a tattoo or putting streaks in my hair, it’s a way of self expression. And we deserve to be able to talk openly about our full experience, which include the parts we’re neutral or happy about.

“They’re one of those cringey teenagers who name themselves arson and like dsmp, so they’re probably faking” WRONG! Do I even have to explain why saying someone isn’t disabled because of their name and interests is messed up and also stupid? Or did you already know that and just wanted to make fun of a disabled teenager?

“They’re too young to be using a cane, so they must be faking” WRONG! there are lots of disabilities or injuries that can cause young people to need a mobility aid. For example, I use a cane for my fibromyalgia.

“They only use it in private places, and never in places where people recognize them, so they must be faking” WRONG! In a world where anyone can just randomly take out their phone, take a picture of a cane user, and post them online to be made fun of, it can be stressful to use a cane in public areas. Also, they may not want people to ask questions, or they may feel embarrassed about it.

“I saw them switch hands, so they must be faking” WRONG! There are different reasons a cane used might do this, but I’m going to use my experience as an example. My fibromyalgia is not consistent. Sometimes one leg hurts more then the other. But as I said, fibromyalgia is inconsistent, and sometimes my other leg will start to hurt more or need more support, which is when I switch hands. And when both my legs hurt equally, I may switch my hand if it’s getting too sore.

“They told me they feel like they’re faking when they use their cane, doesn’t that mean they don’t really need it?” WRONG! Imposter syndrome is strong in a lot of disabled people, especially when for a lot of our lives we were told by doctors that we were fine and just being dramatic. Anxiety is also comorbid with a lot of physically disabilities, which only strengthens this. To add to this, something that I’ve felt and seen other disabled people talk about it, when their disability aid lessens the pain, they start thinking “well I’m not in that much pain so I don’t really need it” even though the reason they’re not in that much pain is because of the aid. I know it seems dumb, but imposter syndrome can be that strong and affects disabled people a lot.

“They don’t have a diagnosis, so they must be faking” WRONG! First of all, diagnoses are expensive. On their own they’re often already expensive, but counting the tons of tests you have to take to confirm the diagnosis? Absolutely ludicrous. Some may also choose not to get a diagnosis, so that they don’t have to deal with the prejudice and setbacks of being diagnosed. Also, some people use a cane for injuries, and for stress or fatigue related pains.

These are only a few of the things I commonly hear from fakeclaimers, and I wanted to just put out a reminder that fakeclaiming hurts the disabled community much, much more than it does ableists. Next time you see someone with a cane switch hands, or someone with a wheelchair stand up, or someone with crutches put them down, before you immediately call them out to a friend, take a picture, or write a post: does your fakeclaim rely on stereotypes? Are your reasons things that apply to ambulatory aid users?

If so, just stop. Be mindful. Please.

#fuck fakeclaimers #fakeclaiming cw #anti fakeclaiming #disability #cane user #mobility aid #ableism mention #fibromyalgia #mobility aid user

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justabunny · 21 days

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disabled people don't owe you their medical history :)

#disability rights #disabled #chronic pain #forearm crutches #joint pain #mobility aid #young and disabled #mobility aid user #chronically ill #disability #disability advocacy #chronic fatigue syndrome

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drifting-bones · 5 months

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they should invent walking that doesn't make you feel like you're going to keel over and die

#disability #disabled #physically disabled #me/cfs #myalgic encephalomyelitis #joint pain #joint problems #cripple punk #physical disability #mobility aid #cane user #mobility aid user #ow my joints #chronic fatigue #chronic pain #chronic illness #chronically ill #chronic migraine #long covid

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crippledbanshee · 1 year

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I fucking hate it when people say I'm going to be dependent on my mobility aids. Like, hell yes, I am dependent on them because I'm disabled and their function is to help me live better, I need these aids, they are not just ornaments.

#chronically ill #disability #disabled #chronic fatigue #cripple life #cripple punk #ehlers danlos syndrome #chronic pain #disabled pride #mobility aid user #mobility aid #wheelchair user

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beansintrenchcoats · 28 days

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YOUR DAILY REMINDER: DO NOT TOUCH A DISABLED PERSON'S MOBILITY AIDS.

if you randomly push a disabled person's wheelchair. you are taking part of their autonomy.

if you knock away a disabled person's crutches. you are taking part of their autonomy.

if you grab a disabled person's cane. you are taking part of their autonomy.

if you move a disabled person's rollator/walker. you are taking part of their autonomy. I don't think people understand that our mobility aids are an extension of our bodies. You wouldn't kick an abled person in the shins or grab their arms and twist them just to see how they would react, or see if they'd be able to get around and function. You treat us like a joke. Our mobility aids aren't toys that you can play with and fidget with and god forbid potentially break. They're part of us. You have no right to touch them. If you take my fucking cane away from me, I can't walk properly.

If you touch my fucking mobility aid, you take away part of my autonomy.

#cpunk #c-punk #crip punk #cripplepunk #actually disabled #physically disabled #disabled #chronic pain is a bitch #chronic pain #cane user #mobility aid user #crutch user #don't touch my bloody mobility aids or i WILL hit you with them

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defiantcripple · 21 hours

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Bottom Tier Cripple Moment:

When your cane touches The Bad Texture and slips, and your entire life flashes before your eyes

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cosmiccripple · 9 months

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if there's one thing i ask all parents to do, it's to teach their children about disability from an early age. i cannot leave my house without every child i come across staring at me and/or my mobility aid. as much as i understand children are curious, it's extremely humiliating to feel as though i'm an exhibition for able-bodied people to gawk at.

#physical disability #actually disabled #babe with a mobility aid #disability #fibromyalgia #cpunk #crip punk #wheelchair #mobility aid user #cane user #forearm crutches #invisible disability #mobility aids #mobility aid #physically disabled #disability acceptance #disability pride month

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yrfemmehusband · 9 months

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something i don't see talked about much is how people treating disabled people like we are abled can actually be harmful.

i was leaving work and had my cane, i was very tired and in pain. people outside of my store advertising for the world wildlife fund tried to stop me to talk about the environment until they saw i worked there, which is nice, but you probably shouldn’t stop anyone with a mobility aid who is walking. please don’t guilt us into taking extra time to stand in a hot sun, we actually need to go sit down, or it takes us longer to get somewhere so we really don’t have the time to.

don’t infantilize me, but also acknowledge i need extra help or rest. why is that so hard?

#physically disabled #disability #chronic pain #disabled queer #disability awareness #cpunk #chronic illness #mobility aid user #cane user #babe with a mobility aid

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devilboydogman · 1 month

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Hey, I know chronic pain is absolute hell for physically disabled and chronically ill people, but can we also talk about the chronic discomfort symptoms?

Like, it doesn’t hurt per se, but it sucks ass.

Like involuntary movements, making it hard to move or function

Nausea, the absolute BITCH

confusion, brain fog, forgetfulness

Getting lightheaded or dizzy or problems with the vestibular senses

RESTLESSNESS

Numbness and tingling

Fucking fatigue. Like the kind that makes you feel like a rubber noodle that weighs 800 tons and you can hardly left an arm.

Weakness in general, like that’s annoying as hell. Why can I not open this bottle.

I haven’t experienced this, but I imagine full or partial paralysis is pretty sucky.

Trembling. Like, sometimes not even because something hurts. Your just shaking, vibrating, man. What.

So yeah. Complain about discomfort from your disabilities and illnesses, you deserve it.

#physically disabled #chronically ill #discomfort #symptoms #mobility aid user #vent post #cripple punk #lesser known symptoms

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melodymorningdew · 1 month

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Imposter syndrome is a bench

Image description: drawing of a nondescript person with a tired/unimpressed expression on their face right next to a drawing of someone vibrating with excitement

Caption:

Me: "I must be faking my illness. I went on a walk yesterday."

Also me: "MY WALKER AND SHOWER CHAIR ARE ON THEIR WAY"

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