#tachycardiac | Explore Tumblr Posts and Blogs

melodymorningdew · 1 month

Text

Imposter syndrome is a bench

Image description: drawing of a nondescript person with a tired/unimpressed expression on their face right next to a drawing of someone vibrating with excitement

Caption:

Me: "I must be faking my illness. I went on a walk yesterday."

Also me: "MY WALKER AND SHOWER CHAIR ARE ON THEIR WAY"

454 notes · View notes

bold-tachycardic-baby · 5 months

Text

Why can’t people understand my anger at medical professionals? I logically know it’s because they’re able bodied and have likely never had a bad experience. But why can’t they use a bit of compassion to see the problems with healthcare? Let me be angry at being treated poorly. Let me be angry about the state of our healthcare system. Let me be angry.

#chronic pain #hypermobile ehlers danlos #chronic illness #ehlers danlos syndrome #chronically ill #cripple punk #angry cripple #crip punk #cripple posting #hypermobile eds #ehlers danlos zebra #ehlers danlos problems #tachycardiac #postural orthostatic tachycardia syndrome #potsie

476 notes · View notes

heartbeat-eras · 3 months

Text

Just a little exercise.. right?

TLDR - I’m newly on meds and my heart. Well she doesn’t seem to like them. I did three rounds of 20 squats. After trying to get her to calm down (spoliers she didn’t) I laid down. This caused an immediate extreme drop. I then did a push which brought her into the 60s. I don’t think she threw any pvcs but you be the judge.

————————

If you saw my intro post you would know that I’ve recently been prescribed dexadrine. Dexadrine is an amphetamine that can raise blood pressure and heart rate. In my other post I thought it was high time I tested my Heart’s response to these meds. I know she’s been a lot more poundy and faster than normal but.. I thought I would do some of my own tests.

Firstly was tracking her all night with a chest strap monitor. I followed this up with taking my meds before getting out of bed and waiting for them to kick in. The result was exactly in the small range they said it should be. So my faster rate is clearly the meds and my heart working against gravity.

I’ve been looking into if exercising on meds is safe. There are split opinions if you should do it after / before or if you can do it while medication is in your system. I decided to try a small run. Let me preface this with a couple of years ago I was a runner. My heart always was reactive and fast to exercise but not like what happened here.

So imagine. I’ve put on my workout gear. Taped my Stemoscope to the loudest part of chest and go into the room with the treadmill. I set up my chest strap monitor with the treadmill. Perfect.. she’s beating at 142 and I haven’t done anything. I start the Stemoscope recording. 2 mins standing with her pounding away - not yet exercising. Ok this is gonna be fun. At 2 mins jump on at a brisk walk. She immediately drops to 113 - no there’s not wrong with the monitor. I can hear her. Then she slowly climbs. 117, 124, 131 and back to 142 and beyond. Within 1 1/2 mins we’re at 156. I’m not tired or out of breath but I also know I probably shouldn’t do this for long so I think- ok let’s try max her out. I break into a jog. Nothing like I used to, but a slow recovery run. She’s climbing and fast. Within a short space of time she’s now in the beating at 182 - I usually couldn’t feel beats like this before but I can feel her rocking my chest. I’m oddly out of breath for something I used to be able to sustain for over an hour. I jump off and bend over, trying to catch my breath. My heart thrashing in both my chest and my ears. My head spinning as I try to get her oxygen. I’m watching the number on the treadmill with the little heart next it. It’s not going down. It’s going up. At 187 she peaks and is pounding away. This is 2 mins after ceasing activity. She drop quite quickly.. not this time I guess.

I grab my gear and go back to my room. She’s settled a little bit. She keeps calming down then speeding back up. Down to 151 then up to 176. She’s all over the place like she doesn’t know what she’s meant to do.

Well that’s enough. I need to take some stress off her. I lay down, resulting in an immediate drastic drop to around 100. Finally. The break she needed. I go back to the recording… and we’ll I deleted in my zoned out state.

So this time I’ve recorded some squats. I was only able to get her into the 170s but you can hear just how unconditioned she sounds. This was not what she like pre meds and I will be asking my doctor about this when I see him next (well maybe leave out the constant stething). A part of me is slightly worried about this, whereas another part of me is like…. Oooo well. That’s a fun sound . Damn cardiophile thoughts right?

I hope you enjoy her first try (tech second) at exercise. She would love to hear your thoughts and support. She’s literally pounding in my ears as I share her with you.

#irregular heartbeat #cardiophilia #pounding heart #cardiophile #heartbeat #female heartbeat #exercise heartbeat #tachycardiac #cardio workout

163 notes · View notes

echoes-in-the-multiverse · 6 days

Text

Versión en español:

Resources used:

Web article

Youtube video

Made using Canva. Written by Oliver.

Colour palette chosen from Venngage, which provides accessible colour palettes allowing for the inclusion of colour blind users. I hope that the front is also accessible for anyone who comes across it.

18 notes · View notes

sshonuu · 3 days

Text

why does nobody represent physical illnesses?? I mean... Most people don't know what cerebral paralysis, epilepsy, etc are, and in the end laughing at it, or saying stupid and disrespectful things about it. I think we should spread awareness about physical illnesses, because they're hard to deal with alone, and also could lead to a mental illness. Please, someone, spread awareness about physical health...

10 notes · View notes

chaos-and-ink · 13 days

Text

POTS really is like

Resting heart rate: 55-60bpm -I am happy. I love this. Feel great.

Sits: 80-100 -This is okay, lil silly but okay.

Stands: 120-160bpm -I feel a lil bad and out of breath and if I stand for too long it's horrible but whatever, I'll force it.

Goes up stairs: 140-180bpm -I cannot breathe and I need to sit down now.

Light exercise like jogging, going up a few flights of stairs, cleaning my room, etc: 160-200bpm -I'm going to throw up or fall over, I cannot see at all and I can't hear anything.

And then it'll randomly drop to 35bpm and im like yup there goes my consciousness.

#its honestly crazy how I manage to survive when my HR constantly wants me to die lmao #pots #postural orthostatic tachycardia syndrome #pots syndrome #potsie #tachycardiac #orthostatic intolerance #chronically ill #chaos

12 notes · View notes

aelianated-star · 11 months

Text

Nothing like almost passing out while peeing to humble you

36 notes · View notes

painted-time · 5 months

Text

Oh em gee babe stop you’re gonna give me heart palpitations and I’ll have to press the button on my zio patch

#heart palpitations #heart problems #tachycardiac #postural orthostatic tachycardia syndrome #supraventricular tachycardia #heart monitor

8 notes · View notes

melodymorningdew · 1 month

Text

Me: Oh yeah I haven't had too many bad headaches recently

Literally the next day: *wakes up with migraine* 🙃

23 notes · View notes

bold-tachycardic-baby · 5 months

Text

I’m so exhausted because my disability is causing me to lose sleep from my pain. I need to rest because my disability makes things harder making me tired faster, but I can’t sleep because of my disability getting in the way. What poetic irony we have here

#chronic pain #hypermobile ehlers danlos #chronic illness #ehlers danlos syndrome #chronically ill #chronic fatigue #disability #hypermobile eds #hypermobility #ehlers danlos zebra #tachycardiac #postural orthostatic tachycardia syndrome #potsie

248 notes · View notes

beatxme · 6 months

Text

So Irregular

I'm a bit lost. I leave you an old video, one of my favorites.

My heart shaking and losing control while I squeeze it and force it to beat

At one point I could hear the blood passing through the chambers of my heart and through my veins. In the end each beat was a jolt inside my chest and my heart couldn't take it anymore and started racing...

379 notes · View notes

hi-its-meg · 7 months

Text

I realized I haven’t done a health update for a minute. I’ve been diagnosed with POTs (Postural Orthostatic Tachycardia Syndrome) and IST (Inappropriate Sinus Tachycardia), and I’m being referred out to a big city hospital to see if I have Ehlers-Danlos Syndrome.

I’m on some new medication and I think it’s helping a bit. I think I’m going to have to increase the dosage but it’s been a good start at least. The first couple of weeks were rough as my body adjusted- it made my already low blood pressure even lower- but now I’m feeling quite a bit better!

We are still investigating a couple other things but it’s nice that I’ve started to get some answers and it’s starting to look like a lot of my problems all have the same root issue.

#me #update #health #health update #potsawareness #inappropriate sinus tachycardia #tachycardiac #postural orthostatic tachycardia syndrome #hypermobile ehlers danlos #ehlers danlos awareness #ehlers danlos syndrome

19 notes · View notes

chemically-unbalanced-angel · 9 months

Text

i might be getting a wheelchair and im so excited, it will allow me to do so much i cant do anymore

#chronic illness #chronic pain #cass speaks #tachycardiac #hypermobilty syndrome #tachycardia

9 notes · View notes

heartbeathearer · 2 years

Audio

TW: racing heart

Hey there, last night I caught a suddenly tachycardiac episode. At the start from this recording everything seems pretty normal. BUT in minute 3 it starts to change. My heartbeat kept getting faster. Don’t know why it came to this “accident”. This was at 2 a.m. in the night. And lasted till 6 a.m. Not constantly racing, but never got under 90 and then again to over 100. My highest record of my smartwatch said 125 BPM (later that night) but it’s not very accurate. Often my HR is way more higher than my smartwatch noticed. I had no anxiety, no panic / panic attack, was very calm, breathed slowly all the time, tried ro rest / sleep but couldn’t. With this HR it was completely over. No sleep possible.

Question: What do you think was happening? Someone to count me out?

120 notes · View notes

who-needs-sleep7 · 10 months

Text

happy disability pride month !!

recently came to terms with the fact that i am disabled enough by my joint and heart problems to call myself disabled yay for me !

#he/they #disability pride month #autism #autistic #disabled #disability #invisible disability #disability pride #tachycardiac #probably POTS #hypermobile joints #joint problems #possible Heds #possible fibromyalgia #blame my rheumatologist for me not knowing which one #my post

14 notes · View notes

sadgirlbadpoems · 3 months

Text

I can no longer dance. When lyrics transport me to a different plane and melodies charm my limbs to sway...

I remain seated, my smile unwavering as children bounce around me, free as the bluebirds overhead.

I am a canary, my body is my cage. Young joints turned old and blood turned against my very heart.

I feel myself deteriorating and yet I press on. What else is there to do? my hand shake as I cook, my vision swims as a bathe, but I persist.

I survive on love and modern medicine. I am whole even if my body is not.

I am not yet twenty and I live as though every breath is my last. Surrounded by family, left behind by peers I soldier on.

#writeblr #original poem #writers and poets #girlhood #poetry #sad poem #disability #disabled #neurocardiogenic syncope #tachycardiac #ambulatory wheelchair user #cw medical

6 notes · View notes