#chronic hypotension

[aelianated-star]

Nothing like almost passing out while peeing to humble you

#POTS #posturaltachycardiasyndrome #vasovagal syncope #ehlers danlos syndrome #syncope #dysautonomia #inappropriate sinus tachycardia #IST #OH #Orthostatic hypotension #chronic hypotension #disability #disabled #fainting disorder #fainting #neurocardiac #tachycardiac #arrythmia #pulmonary hypertension #flutters #heart disease

[over-the-edge-and-never-enough]

Especially the past couple of days. WTF body? Get with the program!

#fibromyalgia #chronic pain #spoonie problems #arthritis #chronic illness #chronic illnesses #fibro #chronically ill #orthostatic hypotension

[whatshouldwecallchronicillness]

When I meet someone with my condition who is stable and lives a mostly normal life...

#adrenal insufficiency #Chronic Illness #spoonie #chronic pain #chronic fatigue #Dysautonomia #POTS #postural orthostatic tachycardia syndrome #oi #orthostatic hypotension #syncope #neurocardiogenic syncope

[thebibliosphere]

Hey I was wondering, I have orthostatic hypotension and get the dizziness when i stand thing sometimes. I was wondering if you knew like, how dangerous that actually is? Obviously Ive spoken to a doctor about it and they aren't worried about my symptoms but it happens semi frequently and I have people asking me if its like, cutting off oxygen to my brain or something or if its just a weird feeling I get and I have no clue how to even look that up and was hoping you or one of your followers might know

I'm sorry your doctor is being dismissive. You don't list a cause, so I'm going to assume your OH is from dysautonomia and not something else. With that in mind, has anyone recommended increasing your fluid and salt intake? What about compression therapy? Those are the very basics of treating OH, so if they're not even recommending that to you, I'd start looking for another doctor.

The mayo has a fairly easy-to-digest article on it if you ever want to link someone to it. Checking out Dysautonomia International could also be helpful for you in finding research and community resources that might be useful to you.

To answer your question, no. It's not harming your brain--though some emerging studies have linked orthostatic hypotension and other types of dysautonomia with an increased risk of stroke and dementia in older patients.

The most significant risk factor from untreated orthostatic hypotension -- apart from how debilitating it can feel-- is that it can make you faint, leading to severe injury depending on how you fall.

My friend is in the hospital with a concussion because she forgot to take her meds, syncoped, and hit her head. Fortunately, she's recovering well, but for what it's worth, her OH is considered mild to moderate, and she's fully medicated and doing all kinds of treatments because her doctors want to improve the quality of her life.

You deserve the same. And I hope you can find a doctor willing to listen to you.

#chronic health tag #orthostatic hypotension #dysautonomia

[becauseanders]

i hate you ehlers-danlos syndrome i hate you pots i hate you chronic migraines i hate you brainstem auras i hate you central nervous system complications i hate you degenerative disc disease i hate you hypotension i hate you osteoarthritis i hate you fibromyalgia i hate you tmj disorder i hate you carpal tunnel i hate you mcas

#mood #sigh #i am having a day #disability #chronic illness #chronic pain #ehlers-danlos syndrome #dysautonomia #postural orthostatic tachycardia syndrome #migraines #chronic migraines #brainstem aura migraines #central nervous system #degenerative disc disease #hypotension #osteoarthritis #fibromyalgia #tmj disorder #carpal tunnel #mast cell activation syndrome #okay to reblog

[neuroticboyfriend]

shoutout to POTSies with orthostatic hypertension. we don't get as much attention as our hypotensive peers, and it's harder to know how to take care of and advocate for ourselves because of that.

remember to listen to your body. rest. hydrate. eat. stretch. stay within your limits and dont push it. you don't need to put yourself under more stress. you deal with enough.

#softspoonie #disabled #disability #chronic illness #chronically ill #pots #pots syndrome #postural orthostatic tachycardia syndrome #dysautonomia #orthostatic intolerance #orthostatic hypertension #orthostatic hypotension #physical disability #physically disabled #self care #spoonie

[disabledbutchblues]

so far in my journey to understand why i’m always in pain :

• people watched me cry from pain, not being able to keep my eyes open, sweat and hyperventilate after less than 10 minutes on a training bicycle thing, and decided that there was nothing wrong with me at all. even when it took me 15 minutes to be able to sit/stand afterwards because i was about to throw up or pass out

• at least there’s nothing wrong with my heart

• a lady let me talk about why i think i might have heds and why i think i should get tested for it but did not actually listen to anything, looked at some points of the diagnosis (but not everything !!), and decided i was not even hypermobile (i would love to trust her and she might be right but she didn’t do the stuff correctly lmao)

• one doctor says i have orthostatic hypotension. another says i don’t have it. a third says i don’t have it but my tension is naturally quite low (does that mean hypotension or not ??)

• current explanations for my chronic pain that makes me need a cane are : i’m too tense (bc my body is reacting to the pain !), i don’t move enough (bc pain stops me from moving !), it’s psychological, it’s normal pain (???)

• things i should apparently do if i want to get better : do sports, go on a walk every day, do things even if they hurt, not use the lift at uni, not rely too much on my cane, do breathing exercises

#i hate it here #disability vent #disability #physically disabled #chronic pain #cane user #heds #orthostatic hypotension #disabled

[echoes-in-the-multiverse]

Versión en español:

Resources used:

Web article

Youtube video

Made using Canva. Written by Oliver.

Colour palette chosen from Venngage, which provides accessible colour palettes allowing for the inclusion of colour blind users. I hope that the front is also accessible for anyone who comes across it.

#pots #postural orthostatic tachycardia syndrome #pots syndrome #chronic illness #chronically ill #chronic pain #spanish #mobility aid #disability #did alter #dissociative system #endos dni #Síndrome deTaquicardia postural ortostática #complex dissociative disorder #actually dissociative #dissociative identity disorder #actually system #actually did #traumagenic did #did system #tachycardiac #orthostatic intolerance #orthostatic hypotension #disabilties #disabled #disability aids

[queerpossums]

there are so many books about low sodium cooking. where are the high sodium cookbooks?? i need recipes that improve my symptoms and don’t taste like licking the bottom of an over-chlorinated pool.

#cw diets #tw diet #cw food #low sodium diet #high sodium diet #dash diet #pots syndrome #pots #dysautonomia #orthostatic hypotension #orthostatic intolerance #postural orthostatic tachycardia syndrome #potsawareness #potsie #chronic illness

[aelianated-star]

After a few very mild dysautonomia days, I can easily say today was *not* a good day. My resting heart rate was 160, and I don’t even want to talk about my standing 💀

I love genuinely feeling like I’m dying! Send spoons and a shit ton of 🧂

#Spotify #potsawareness #IST #inappropriate sinus tachycardia #postural orthostatic tachycardia syndrome #disability #fainting #fainting disorder #orthostatic hypotension #chronic disability #chronic hypotension #heart disease #i am salty #shoveling vitassium currently #presyncope #vasovagal syncope #neurocardiac #chronically ill #chronic illness #you know it’s bad when you’ve worried your firefighter #medication #medically complex #like medically #heartcore

[autisticmuppeteer]

I’m talking to this girl and we were hanging out the other day and I wasn’t feeling ~great~ physically cause of my chronic illness and she checked in on how I was doing and we ended up talking about my health and she was asking questions about how she could support me if I fainted or was having a flare or something

And like oh my god there has never been something so attractive as someone being respectful and genuinely caring and still showing interest in me and wanting to support me through my disability

#chronic illness #disabled #dysautonomia #disabilty #autonomic dysfunction #orthostatic hypotension #pots #potsie #chronic pain #lesbian #happy pride 🌈 #my pronouns are they/them

[arctic-hands]

Remember when that post went around by that user who had issues with feeling sick when their blood sodium was low and they felt physically ill from it so they would just sprinkle salt into their hand and lick it until they feel better? And it was reblogged by chronic illness/disability circles until it was picked up by nominally healthy people who were commenting that wow this made me feel so much better after feeling like shit constantly, which PROLLY meant they also had low sodium issues. But then health freaks and normies got ahold of it and were reblogging in embiggened letters "NO NO NO! THIS WILL LITERALLY KILL PEOPLE! AMERICA HAS AN EPIDEMIC OF HYPERTENSION DO NOT LISTEN TO OP THEY ARE SO STUPID"?

Anyway my Crohnsy, vasovagal syncopeic, hypotensive ass is out of Lays ☹️

#just chronic illness things #Crohn's disease #vasovagal syncope #pots #MAYBE i MIGHT be misdiagnosed and the VVS is actually POTS #hypotension #blood pressure #salt blessed salt #sodium #ableism #health freaks shut the fuck up forever and leave chronically ill and disabled people alone challenge #praise Lord and pass the salt 🙏 #whatever happened to that op anyway i don't remember who they were. really hoping they weren't chased off the site BECAUSE THEY WERE RIGHT #salt #edit: lol it's not even my Crohn's this time lol it's some mystery illness in my duodenum #either way 🚽

[whatshouldwecallchronicillness]

The second the temp is above 65...

#Dysautonomia #POTS #postural orthostatic tachycardia syndrome #oi #orthostatic hypotension #syncope #neurocardiogenic syncope #Chronic Illness #spoonie #chronic pain #chronic fatigue

[themogaidragon]

Chronic Daily Headches Pride Flag

Chronic daily headache (CDH): experiencing fifteen or more days with a headache per month. Chronic daily headaches is an umbrella term which consist of different sub-groups, primarily categorized as chronic tension-type headaches and chronic migraine headaches.

The flag is inspired by this chronic migraine flag, this chronic tension type headaches flag and this chronic pain flag.

Flag meanings:

Dark teal: migraine and headaches

Muted teal: all the types of CDH (cluster, hemicrania continua, idiopathic intracranial hypotension, migraine, tension-type, mixture of types, etc)

Greyish teal: other chronic pains and disabilities

Red/Maroon: chronic head pain

Muted purple: sleep problems and fatigue

Lavender: varying levels and types of pain

Purple: chronic pain

[Image ID: A flag with seven horizontal lines of the same size. Their colors are, from top to bottom, dark teal, muted teal, greyish teal, red, muted purple, lavender and dark purple. END ID]

#cdh #chronic pain #chronic daily headaches #chronic migraine #chronic headaches #chronic tension type headaches #chronic tension headaches #hemicrania continua #idiopathic intracranial hypotension #migraine

[artifactseeker-myr99]

Uh, so I kinda hope this reaches the POTS community and other people who might be able to give me tips.

Call-out to all the POTS/ CFS goths, I suppose

So I’m early 20’s, moved away for college, blah. I have been alternative and punk-ish for years but stuck with bright colours and pastels. But I never got to have my “emo-phase” while stuck with my parents. Friends have been encouraging me to finally “dress the part”.

And I did a shopping haul and got myself a completely black selection of shirts to add to my otherwise bright and colourful wardrobe.

The thing is, today was the first sunny day of this year and I was sweating not even halfway through my errand. I am still dressed in brights and coloreds. (Needed my sunglasses a few times already because light sensitivity (AuDHD), migraines and bright pavement are a great combo /s)

So how to I mesh dark clothes (punk/ goth/ alternative) with my cardiovascular weakness/ orthostatic hypotension?

The POTS community and CFS community on here have helped me before and I would like some tips what I need to pay attention to in terms of managing symptoms when I actually pull through with dressing mostly black throughout the summer.

I’m definitely stocking up on electrolyte drinks and mineral supplements again. But I figured summer as well as black clothes require some more precautions so I don’t keel over leaving a lecture hall.

#potsie #pots syndrome #me cfs #invisible disability #cardiovascular restrictions #light sensitivity #lightheaded #brain fog #chronically fatigued #posturaltachycardiasyndrome #postural orthostatic tachycardia syndrome #chronic fatigue #chronic illness #disability punk #disabled punk #postural hypotension #orthostatic hypotension #dysautomnia

[purposeless-goner]

Fellows with low blood pressure/hypotension do you recommend isotonic drinks for days were you feel more off kilter (?)

#orthostatic hypotension #hypotension #blood pressure #low blood pressure #pots syndrome #pots #chronic illness #chronic issues #trans