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#something ive been thinking about is disability
m00ngbin · 4 months
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Uh warning this whole thing is me complaining about my bones and pain and stuff so if you're sick of hearing about that you should probably ignore this
Whatever's wrong with my knee spread to my hip so I think that maybe I WILL be needing a cane or something soon and it's not just a joke I was making cause I had to keep sitting down in random places
Joke might be the wrong word because it wasn't really a joke and it wasn't funny, I was just trying to be lighthearted and it didn't seem like it was really happening or that it was probable
#sorry if we're ever in a public place and i suddenly make us stop so i can sit down for a few seconds#its not because im lazy or im trying to be annoying i swear#something ive been thinking about is disability#i don't think im disabled because i can still get around and do things but sometimes it is a little difficult and im worried that#in the future I'll have a really hard time walking without pain and ill have to depend on someone more than i already do#im already going to need to live with someone for the rest of my life anyway because of mental health stuff and i really dont want to have#to give up what freedom i have left#i read somewhere that disability forces you to rely on people and it takes away your independence and totally overhauls your life#and that disability really destroys your walls surrounding asking others for help/support#being independent and being self sufficient#i pride myself on my independence and self sufficiency and seeing that slowly start trickling away while theres nothing i can do about it#and nobody knows what to do to stop it is really painful#maybe it wont get so bad that ill be fully reliant but the possibility is there and not knowing is really scary#my choice and my autonomy are being ripped away and it not a person thats doing it its my own body#im not in control of my own body anymore#maybe im being dramatic but it really doesnt feel like it#because i am slowly watching my joints get worse and i am completely helpless. i cant do anything. im watching whatever this is spread and#not a single person can tell me what it is or why its happening
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nascenticity · 6 months
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i have seen a lot of headcanons (& fics!) about bucky doing crochet or knitting that i LOVE but i also need everyone to consider --
steve watching his mother doing irish crochet; maybe she even teaches him some simple things when he's sick and needs something to occupy him so he'll sit still and rest; its a creative outlet for sarah and that artistic streak is something she and steve share almost a century later, crochet comes back into fashion with millennials and gen-z, and steve looks up a youtube tutorial. he doesn't have many physical things left from his mom; but he can make some stuff that she would have loved and it helps him feel close to her.
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opens-up-4-nobody · 21 days
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#it's an old frustration. an old pattern of thought.#i just feel that i have a brain that doesn't hold information. that lacks the discipline to gain knowledge. that is incapable of deeper#thought. and i cant teel you how maddening that is. to sit in a room and listen to other people discuss a paper you read in depth 5 times#like it's the 1st time you ever heard anything about it. how is that possible? how do i work with that? i read and nothing sticks.#nothing stays with me. how??? i was talking to a prof recently who ive heard is hard on her students with disability accommodation. and she#was saying how she doesnt see these things as a disability. how we're just different not disabled. ive heard the phrase differently abled#a lot of times. and i get what she's saying. i do. ad i get why she's hard on them. she wants to push them. but there comes a point where#you are quote unquote differently abled and you run into a wall that other people dont have. then what are you supposed to do? work harder?#but what if that doesn't help? what if that just compounds the hurt that's always been there? what if that leaches away all the wonder? what#then? at what point does a thing become too much of a barrier? i think there's a reason i dont run into many other dyslexic grad student.#everyone has adhd. it's a place where those with adhd prosper. but dyslexia not so much. at least not with the level of hanicap i have#and everyone's really nice. they want to help. but there's nothing anyone can do for me at this stage. it's up to me to compensate for my#leaky head. and i kno im not stupid. ive got a piece of paper stating my iq is above average after correcting for uneven intelligence. but#i dont feel very smart most of the time. i feel more like my uncorrected iq score that comes out at just below average even with me trying#my very best. iq is bullshit but there's something to be said for that gap. im smart if unconstrained by language and time. but were bound#by language and we're bound by time so what am i supposed to do? is there anything i can do? im stuck with this forever. theres no getting#better or making it easier. my brain is wired in a way that gives me the reading skills of a child. forever. and i just have to accept that#and im trying to swallow around that idea easier because the only other option is to choke on it. but maybe i chose the wrong career path.#one of my lab mates said she wants challenges all the time and ive chosen a path that's challenges all the time but im jsut trying to do#what everyone else can without a second thought. it's deeply demoralizing. yet here i am. trying to be easier abt it.#maybe im just nit cut out for this. doing a job im not built for.#unrelated
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moodr1ng · 2 months
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heres the real truth i never wanna admit to anyone ok: the real reason im so afraid all the time is i know i will never ever manage to hold down a normal job. i know im too disabled for it. and i dont want to. and i want to stay like this forever. i dont want more. i want to remain in this apartment and get my disability checks and do a little art and a little writing and have time to hang out with friends. i want that for the rest of my life. if that was ok then i would be ok. but i can never admit that because if i say that then i will be taken off disability and labelled a faker. because everyone thinks i can get better or its not that bad. even my doctor. but it is that bad. im never getting out of this, im never going to be functional like other people are. every time im good enough to have a job, i will have another depressive episodes for months or a year and everything will fall apart. its hardwired in me. if i could just be on disability for the rest of my life then id be fine. i would just live my life like i do now and i dont need more than what i have now. but im not allowed to want that. im supposed to want to "get better" and "be healed", even though its not possible, and im supposed to want to get off disability and have a "normal life". but i know i cant have that. so i just want to be on disability for the rest of my life and be allowed to glean what little happiness i can still get from the sort of life ive been handed. but im not allowed to want that. if i was honest and said this to my doctor he would never renew my disability benefits bc hed think i was faking it. so im always scared and always ashamed. so there it is.
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disabledidols · 5 months
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perenlop · 1 year
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OWO OWO OWO felicity in anterrogade
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Get Our Word Out (You Know Nothing About Us)
Get Stronger For Us (You're Not Strong Enough)
Don't Let Us Die In Vain (You're Letting Us Die Out)
Don't Fail Us (You're Failing Us)
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officiallralsei · 1 year
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you've mentioned that you've been thinking about a specific au lately on the blog 👀 whats the deal there
well me and @gasterofficial were talking about what would happen if gaster's version of ralsei WASN'T successfully made to be able to handle eldritch knowledge. I've discussed it before on the blog, but I have the headcanon that the light can literally burn darkners who aren't prepared for it. (this comes from spamton having quite a bit of dialogue implying that he was burned/changed in some way by the knowledge he gained.) in blogverse canon, ralsei's got very sensitive eyes because he's still recovering from his initial exposure to that knowledge.
so if he wasn't successfully built to handle more Light Exposure than your average darkner... the logical conclusion is that gaining too much knowledge would blind him. after researching, i don't think it would be full blindness as that's kind of rare, but it would impair him badly enough that he would have trouble navigating on his own.
this is a problem for gaster. he needs to have a darkner guide, and now he's got EIGHT busted little guys. ralsei's certainly clever and adaptable, but he is NOT used to functioning blind just yet and there's not much time left before the game absolutely needs to start. a functional guide is a critical necessity to save the world of deltarune. and gaster just does not have the resources to try again.
so, out of luck and out of options, gaster becomes the worlds worst Ghost Guide to assist ralsei in his Actual Guide duties. guy who tells ralsei about his surroundings and also never shuts the fuck up. and is also his ghost dad who can't be perceived by others unless they're in a truly liminal space.
so what arises is a truly dysfunctional and codependent parent-child dynamic between these two. gaster likes ralsei but like... never really gives him room to make decisions on his own since hes constantly telling him what to do. ultimately he believes ralsei just kind of has to be a means to an end, no matter how much personal affection gaster has for him, due to the nature of ralsei being Born To Save The World, and that makes their relationship deeply unhealthy. meanwhile ralsei, who is a bit traumatized from being Literally Scorched By Horrible Knowledge in the first minute of his existence, is pretty happy to just let himself be directed constantly by someone who is kind to him and appears to have his best interests at heart. he ends up being quite sheltered due to all this. plus gaster also keeps telling him constantly Not To Think Too Much About The Fucked Up Things so he's gotten good at that.
thematically, the entire thing, at least for me, is another lens through which to look at deltarune's themes of agency and personhood. children, particularly disabled children, frequently have their personhood and agency denied to them because of the idea that they aren't capable of handling themselves. that's not to say that children and disabled people don't need SUPPORT, of course, but that support should be enabling them to make decisions for themselves when possible and appropriate, rather than denying them opportunities for agency. adding those particular lenses onto ralsei's canonical status as a darkner (which is a category of Unperson within the narrative) provides a lot of interesting ground with which to explore his emerging independence and self-actualization. also I just think its rad to think about weird Fucked Up Ghost Dad shenanigans
tldr:
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thisisnotjuli · 7 months
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sometimes you read a post and you think to yourself holy fucking shit do usamericans really live like this????????? honestly the insane behaviours I learn from posts saying stuff like "this [thing] [that the post talks about like it's normalized/common] is fucked up" is absolutely nuts
#i am obviously not going to mention this in the original post in any way. but this is because#i just read that post about how 'peoples reaction to seeing a person walking with a white cane is either fearful or agressive'#and obviously i am noone to say anything about the topic. seeing as i dont use nor am close to anyone who uses a white cane.#but. i have seen plenty of people using white canes out in the streets in my life. and a few i see/saw quite frequently#like both of us walking on the same street regularly for a while#which of course doesnt make me anyone with enough information to have an opinion about that post i read#but never in ky fucking life have i seen *anyone* react the way that post described to someone walking with a white cane#and i seriously think its just because usa is so fucked up and usamericans have so many hang ups about people with disabilities#the whole 'but are you REALLY disabled or are you just faking it' bullshit theyre obsessed with#but seriously. people here see someone walking down the street with a white cane and they just. move out of the way#theyre not 'eithr scared or agressive'#ive seen people who're in a hurry get impatient‚ hell im pretty sure ive been that person once. but they just fucking wait#or find a way to walk around them. or something.#ive seen kids get curious about it qnd i remember when I was a kid and cueious the first time i saw someone w a white cane#walking to school and i asked my dad about it. i also remember being a kid and not getting out of the way fast enough and#lightly bumping into a person w a white cane#anyways my point is. im not saying theres no people who're shitty about it here i al sure there are#and i know for a fact that blind people do suffer from discrimination here and ut fucking sucks#but. nothing at all like that post describes. im pretty sure thats just. usamerican bs. or not bs but. sucking really bad. or smth#mine#me#personal
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aro-ortega · 11 months
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i have decided to remove one of otso's arms, hes an amputee now
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milkweedman · 2 years
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Eugh
#think im in a flare up and it just decided to start with my hands this time#was watering the garden earlier and my knees were burning n when i squatted to get at the water spigot my hip nudged itself out#everything is falling apart again (by everything i mean this stupid meat suit)#but also working on my resume like this sure is something#like. 'please hire me i cant do anything 30% of the time and i have constant near impenetrable brain fog#and i will injure myself multiple times a day just doing basic tasks'#and like. i dont want to work. it always results in me pushing myself way past what i can do safely just to keep up with the bare minimum#and it leaves me so exhausted and in pain that i cant do anything else with my tims because im just trying to recover#but also not working means someone else has to pick up my slack and i fucking hate that#ive been thinking about trying to go on disability#i mean i kind of doubt id qualify. and i know its a LONG process. and also im planning on getting married in the next year or two#and im pretty sure that would throw a wrench in it#i dont know... its awful trying to keep up with everyone. i cant do it physically or mentally. but i dont really have a choice but to try ?#at the moment almost all my time and energy is being taken up by being in pain and the rest it is just.#basic maintenance. which i only barely manage to do sometimes#idk !!#chronic illness#my next appointment with pain management isnt for more than a month#gonna ask for something for the joint pain if i can#since nobody can tell whats actually fucking wrong with them the least they could do is just medicate me for it...
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validark · 1 year
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am having a moment
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aceyanaheim · 2 years
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Me: I have technically reason to ask for accomodations but like I feel like I'm asking for too much sometimes do I really Struggle with my disability
Me after a day of doing Absolutely Nothing bc my rooms too cold and also Executive Dysfunction: okay well...so that's a yes
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trans-p03g · 2 years
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Cute triplet names 😍
Thomas + Richard + Harrison
Huey + Dewey + Louie
Ruby + Sapphire + Emerald
Peanut + Butter + Jelly
Salt + Pepper + Cinnamon
(as for serious suggestions, maybe after some authors or book characters? Or some names from western cowboy films?)
LOSING IT
I can absolutely imagine P03 proposing these names. Jokingly, obviously...at least Mora hopes so
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perenlop · 5 months
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i need to make frost more of a freak right now
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do-rey-me · 5 months
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sure im going to dinner with my brother for his birthday but whats clearly WAY more important is that afterwards im going home with my mom and shes gonna teach me how to make kolache
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wishful-seeker · 8 months
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Tips on how to avoid being unintentionally ableist
1. When a disabled person says they cannot do something, and you wish to offer solutions, do not make a solution that involves them powering through pain, or something thats not accessible to the disabled.
Example:
Disabled person: "washing dishes hurts too much and i cannot do it."
Abled person: "what if you did one dish at a time throughout the day?"
This statement is not respecting that this disabled person just said they "can't". Always respect that. No matter how simple the task would be for you.
Disabled person:" i think ill use plastic silverware so i don't make dishes."
Abled person: "plastic is bad for the environment!"
This statement shuts down the most accessible and disabled friendly option that this disabled person can actually do because of the abled persons personal beliefs. This is not helpful, and ableist.
Better yet, instead of offering solutions, ask them directly "is there anything you need that you do not have that would help you do this?" This allows the disabled person to think about what would work, and they will always have a better idea of what would work than you do.
To add on to this, when we say we have no more energy to solve a problem or do a task, or change our lifestyle, we mean it.
2. If you feel discomfort when a disabled person is talking about their health, good and bad, that is ableist. Your discomfort is coming from a place that deams disabled peoples very existence as a bad thing and you need to fix that.
For example:
Disabled person:" this week has been rough pain wise, ive been through a lot, felt like my body was on fire. Lucky i got new meds though and i think they're helping!"
Abled person: "can we talk about something else, this is a bummer."
Disabled people should be able to exist freely without worrying about your personal comfort. Do you really think its appropriate to tell someone in constant pain that their life is making YOU uncomfortable?
3. Do not treat disabled people as tragedies, do not romanticize their old life or put their current one down.
For example:
Disabled person: "yeah my life is pretty difficult sometimes, ive lost a lot but i still have happy moments."
Abled person: "it makes me so sad to see what disabled people go through :(. You used to love rock climbing and running, i would love to see you move around more again."
This statement is putting more value on the disabled persons abled past, and ignoring their life as a whole.
4. Do not avoid speaking to disabled people because it hurts to see your loved one disabled.
For example: my grandmother avoids conversations with me because it hurts her to see me in pain. While she has good intentions it leaves me being unable to be close to her. This is very isolating to the disabled.
5. Do not stop inviting your disabled friend/loved one out even if they are never well enough to attend. Unless we specifically ask you to stop asking if we can go out, good chances are we want to know you still care because again, disability is very isolating.
6. When a disabled person says certain things in their health have gotten better or worse, do not challenge this because you don't see a difference.
For example:
Disabled person: "yeah things are getting a little better"
Abled person sees disabled person using their wheelchair like usual: "i thought you said you were getting better?"
Better and worse are usually small changes only the disabled experience, its not like abled people healing from a broken arm. Better to a disabled person could mean they can stand for 10 more minutes.
7. Do not expect disabled people to ever be abled again, and again, do not put more value on an abled life.
For example:
Disabled person:"I have been using a wheelchair for 2 years."
Abled person: "oh you're young, im sure you'll be walking around in no time!"
This statement invalidates and ignores the disabled persons current life by hoping they get a more abled bodied life. Its fine to hope disabled people get better, but you don't get to decide what better looks like.
Hope this helps, stay punk.
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