#as someone who lives with chronic pain

[naomiknight-17]

Saw an extremely good sign on the bus today

#as someone who lives with chronic pain #and is disabled #but you can't see it #this means a lot #disability #invisible disability #chronic pain #ttc

[froggiethelesbian]

There’s something so intimate with seeing another disabled person in public. I was walking down the street with a friend to a cafe, my red cane in hand. Coming down from the opposite street was a young women with her friend. I saw her bedazzled cane, covered in stickers and art then looked up to her eyes. She had been looking at my cane, covered head to toe in stickers, before looking up to me. We both smiled and kept walking.But with no words spoken there was a message.

“You’re just like me. We are both here, living our lives, walking with a friend like everyone else. We exist, not just online but here in person, we are not alone.”

#Idk it just warmed my heart #I know other disabled folks in person and several who use mobility aids like me #but it’s special to see a stranger #I didn’t seek her out #I didn’t reach across school or online to meet simply because we are both disabled #it just happened #she was just there and I was just there #it felt like ‘hey there are people out there doing the same isn’t that neat?’ #to see someone like me for no reason other than our lives happened to cross touched a part of me #disabled #disability #chronic pain #chronic illness #cane user

[frankiensteinsmonster]

This post is about being physically disabled. Do not derail.

#cpunk #cripple punk #chronic pain #chronic illness #cane user #mobility aid user #mobility aid #chronic fatigue #physical disability #disability pride #this post was created by someone who lives with both mental and physical disorders/illnesses/and/or disabilities #this is more of a joke post if anything-- poking fun at how members of members i am intersectionally a part of will harass me for speaking #about things that don't inherently include them-- despite each community deserving their own unique space for care and well.. community

[anyoldfandom]

The problem with starting to think about the Pack more is the fact that now I want to grab Skalamander the same way I grabbed Bobo like. My house now. I want to use your character potential.

#Generator rex #genrex #Just. Ough. OUGH. #Bobo was just a bad use of his potential but Skalamander is just a nothing use of his potential. Very little character there. #But looking at his design I just. Cannot get the question out of my head of 'Is it painful?' #Is he an EVO who lives in constant pain? We see that he can't stop drooling and is blind on one 'side' of his head. #And his tongue flops around when he has his mouth open. His skin stretches and sags in awkward places #It makes me think that he probably lives a pain-filled life and has probably got a wrecked mind bc of it. And then follows VK #Someone who looks at him and says You are not broken. I have use of you. I have salvation. #And with the disability symbolism with Genrex Skalamander also looks the most chronic pain having #Though granted most EVOs with significant body changes probably have chronic pain #I just. Head in hands. Fucked up lizard. How much of his mind is actually still there. #Do you think he has good days and bad days. Bad days where he can't move or days where his mind is more of a mess than usual. #He definitely has to struggle to eat and drink. With no other mouth. #Thinking also in context of Rex Pack AU of like. Skalamander having his bad days and having people who actually care about him #Doing the best they can to help. Bringing him food and water with specially designed straws and utensils #Sitting and talking to him on days his mind isn't fully there so at least he's not alone. Giving him space if he needs it #But making sure to keep a close eye on absolutely anything he needs. #Bc they're one big disabled family and they take care of each other

[kyouka-supremacy]

My Akutagawa toxic trait is that I'll die of pain before willingly taking a painkiller

#I don't know why I'm like this. Especially for someone who likely has some chronic migraine they never bothered to check up #And yet almost every day I'll be in excruciating pain and just be like :) #I won't take medicines because that would be admitting I'm too weak to handle the pain :) *dies out of how intensely it hurts* #Posted by: Someone who could have easily taken an aspirin this morning and lived life happily and at its fullest– #and yet spent an entire day with the feeling of their head exploding and eyes popping out and having their sight cluttered by black dots. #0/10 Would not recommend. #ryūnosuke akutagawa #← This is about Akutagawa though I shouldn't derail #bsd #bungou stray dogs #mine #q. #19/06/23

[captain-lovelace]

man the Dresden files kinda sucks but I think about this like a lot . A lot

#There’s something about this sentiment that I find actually somewhat comforting as someone who has developed chronic pain? #It’s obviously not something that will resonate with many people and that’s perfectly fair but #Idk. I spent a long time wishing I was dead to avoid phydicsl and emotional pain. #And when I came to the conclusion that I wanted to live it required me to accept the pain. Which was hard but necessary for me. #Life is not pain but pain is part of life. There is no such thing as a pure and painless existence. And coming to terms with that kept me #going. Keeps me alive. #Anyways.

[ojirocardigansniper]

ouguhhh just read the summary and article from this post about alexandre baril's work on suicidism (oppression of the suicidal) and the opening paragraph of the conclusion in the full article. thoughts. rotating

i was thinking about the. thick white gloves. while reading. remembered that one post about how csa being horrifically taboo to talk about compounds survivors' trauma and shame and went Maybe something similar re: suicidality and suicide... the suffering multiplied by the silence, the risk of dismissal or instant change in perception in anyone you tell... and even in 'mental health' spaces the perception that suicide as a topic is dangerous to talk about- that it could be triggering instantly and automatically- is like. i think there's some paternalism there and there's some shamefear and there's some oversimplification and there's the fact that it plays well into the existing well-taught impulse to avoid the discomforting. but like. this post also about how getting through suicidality is maybe only possible by considering the option thoroughly. i am just thinking. idk. yall know me yall know i think about this topic a lot

#chat #as someone who HAS mostly recovered from passive suicidality- mostly recognizes its suicidal intrusive thoughts as demands for life change- #im def one of the people who can be susceptible to recovery-only mindsets when like assisting or relating to suicidal people. so i need thi #me and one of our stranger sysmates (maze-body) were reading the article together and it kept standing against my reflexive questions + #discomforts because it understands suicidality as both an experiencer (in a weird way) and an already-dead thing; it could confidently- #dismiss my concerns as both fixable and less relevant than the experience and autonomy of the suicidal party. #its whole thing is being- not anti-recovery but like. unrecovered and incurable. which is a perspective we need to remember and have spoken #no matter how much harm reduction + barrier lowering + healing we go through. it as a frank eternality will still remain+need recognition. #its a weirdass way of coping with the inevitability of pain and suffering while not giving up on our locus of control but we're doing it ig #and i think theres a lot there you can relate 2 chronic/passive suicidality- just a companion no matter how much you make life worth living #whatever. anyway #suicide / #in case anyone has. tag blocking but not content blocking fsr

[grymmdark]

eaaughhhhh siblings are so hard to have sometimes.....

#grymms spectacular fucking posts #my sister is an incredibly frustrating person to live with #she spends all day either at her computer playing games or in her bed #she has back and knee pain that makes it so she cant bend over plus general chronic pain so she doesn't do a whole lotta chores. which i get #but she also complains about our parents not doing enough to take care of the house. like they both have fulltime jobs and have to take care #of 2 disabled kids. it's not fair to expect that they can also regularly do chores ontop of that #and if she spent her time putting in a bit more of her fair share of housework then I'd be a bitmore understanding but she doesn't do that #much. like i have chronic pain and i go to school 5 days a week and i do more chores than her #and she's an incredibly stubborn and emotional person who will flip out at anything and so i feel like im walking in eggshells talking to he #r #one time i was upset and said that if our parents went to jail for me skipping school I'd just dumpstedive for food and she said she didnt #wanna do that and i said she didnt have to. and she took me saying that as saying i wanted her to starve and didnt talk to me for a month #like if i cant even say something small and stupid when im upset and she's the one whose egging me on by saying stuff while im upset then #what can i even say around her aughhhh #anyways i know that shit like this is why i have a therapist but there's genuinely nothing i can do about this because she is the problem #and she's the one who isn't doing anything and aughhhhhh she makes my life so much harder just by being around #and i love her i want her to get better and move out for her own good but it's so hard to love someone who is nothing but a burden who #refuses to be responsible

[sullina]

If you ever feel bad about needing any sort of medication/drug/anything of the sort, i want you to remember that caffeine dependency is such a widespread thing that it's worth capitalising on and it's treated as no less casual than needing food to eat or water to drink.

Just because some substances aren't as accepted as others are doesn't mean you're any less capable for needing them.

#medication #this goes for all meds btw #be it meds to treat something like adhd or pain meds or meds to treat a chronic illness #they're all the same in the end in the sense that they help someone function #the same way that the majority of the population seems to need coffee in the morning #chronic illness #the background is that i got an official diagnosis last week and finally got meds to treat my adhd #@ everyone who needs to take less accepted meds every day for the rest of your lives #i am giving you a genuine and heartfelt hug full of love #disability

[calmmyfears]

the one constant thought that I have is PAIN

#and then someone comes along #who says I simply need to find some distraction #so I don't think about being in pain all the time #I like to see you live in this body for 1 hour and try it #chronic pain #i hate everything

[sapphic-schizo]

really annoyed lately at the idea that "normal" people go through life with no baseline level of anxiety, pain, or fatigue. there's no group of "normal" people who are happy healthy and full of energy 100% of the time. in fact i would say most average people are one or two adverse events away from being overwhelmed with stress and anxiety. and whether or not you have any sort of diagnosed disorder you're shooting yourself in the foot by thinking that other people just naturally have access to some "normal" level of functioning that you can't begin to grasp.

i started thinking about this cause i saw some chart about different levels of fatigue/tiredness and someone commented that most people are at 0, meaning "not tired at all." just like...how does that make sense? most people are never tired?? isn't this the same website that loves to point out that capitalism is draining the life from everyone? no one can find jobs, no one can afford a one-bedroom apartment, we experienced/are experiencing a global pandemic that shook up millions of people's lives, but you're believing that "most people are never tired?" make it make sense....

#idk if this makes sense to anyone #like i just notice some people on tumblr at least talk like there's a distinct line between people who are healthy and people who aren't #and sometimes they'll say things like ''just cause you don't think your pain is that bad #''it could be waaay worse than what a normal person would experience!!'' #like i am a ''normal'' person...like i have several chronic health issues but life just goes on #still gotta work still gotta live life pay bills etc etc #i think that sort of way of just pushing through and functioning anyways as best you can #is much more common than someone who never experiences any chronic pain or exhaustion and is just the picture of health 24/7

[grayeyedandroid]

really dont enjoy where they went with the leo leg injury arc :/

#its probably just bc i related so much as someone who does have chronic pain #i just. do not enjoy the 'actually the pain is all in your head so its really your fault that youre struggling' message #i know thats like. the worst faith reading of it #its just trying to do the "ouaghgah you just gotta. overcome the challenge with your mind' #but i just . hate it so much #i wish they went more with learning how to live with it #get him a leg brace or something idk #tmnt #tmnt 2012 #leonardo

[retrogradedreaming]

Maybe an unpopular opinion, but if I tell you I have to cancel plans because of my chronic illness, I do not want to hear that you’re frustrated or upset by it. I promise you that I am more frustrated and upset by having a body that won’t let me follow through with those plans.

You can BE frustrated and upset. Those are normal and valid feelings. But if someone says they can’t do something because of their illness and you center your own feelings by telling them how frustrated you are about it, you’re being insensitive and you need to grow some empathy.

#just saying the people who live with chronic illness will almost ALWAYS be more upset about canceling plans for it than you #i just think it’s a dick move to respond to someone like this #i just fucking do not give a shit anymore #yes even as a chronically ill person I have been frustrated by having plans canceled by others on my good days #but I make a point to avoid telling people I’m frustrated or upset #especially if they’re sick #for any reason #people do not need to worry about YOUR feelings when they’re dealing with an illness of any kind that causes them to miss things #go vent to someone else about it I do not fucking care #like I fully do not mind if someone tells me it’s okay and then tells another friend they’re upset about me having to cancel #the only exception I have to this is if someone is like ‘I’m sad we can’t enjoy this together’ #to the tune of ‘I don’t hold it against you at all’ #brought to you by my friend being passive aggressive that I had to cancel plans to hang out and literally watch tv #because I have a migraine that I KNOW will turn into days of pain if I push it #this is eli

[sunflowerseraph]

Gosh i keep thinking abt this post i saw about How To Tell If Ur Addicted and the more i think abt it the more annoyed i get sometimes 🫶🫶

#it felt weird to me that they like. kinda just went ohhhh addiction and addicts scary and negative ! like ok. i get it. but also #i feel like the topic is more nuanced.... #especially if u take into consideration cultural or religious practices including for example Flower you burn or use #and like....idk theres so many other reasons someone would smoke daily. esp with weed #chronic pain. chemo. nausea. nerve damage. etc #idk i just feel like the post sounded like it was end all or whatever #and had the Criteria to say yep you have a problem!!@ #when the topic is more complicated than that.. #but then i say all this n someones gonna be like SEE !11@ UR MAKING EXCUSES !!!1 YOU *ARE* ADDICTED! #fuck off idk 😭😭 #edit: this is all from someone who has addict genes-whos lived around addicts my whole life. like #i think i know....what i am talking about maybee...

[theygender]

I'm doing it. I'm gonna get a fucking hysterectomy

#its something ive talked about half jokingly for years bc the idea of ever being pregnant or giving birth makes me INCREDIBLY dysphoric #so it seems completely fucking pointless to have to go through so much pain and sickness every month for absolutely no reason #this past month where i couldnt get my medication already had me seriously thinking about it tho #bc even if im managing my endometriosis okay with BC i dont want to have to worry about going through hell if i cant fill my prescription #i was looking into the side effects and etc bc i was thinking about asking my doctor about it next time i went in #and the only thing that had me concerned was that a full hysterectomy or oophorectomy sends you into menopause which seems like itd suck #(but smaller surgeries like tube ligations dont actually stop you from having periods) #BUT i was complaining about this at work and one of my coworkers told me she had a hysterectomy for endometriosis #and her doctor gave her a partial hysterectomy so it stops periods and prevents pregnancy but doesnt send you into menopause #and that sounds fucking GREAT honestly so i wanted to ask my doctor about it even more #but now that roe v wade has been overturned? the deal is sealed im getting this hell machine out of me one way or another #im hoping that my doctor will be understanding as a woman herself but if not my coworker said she'll give me her doctors info #and if THAT doesnt work. i just checked out r/childfree and theyve got a list of doctors in my area who are willing to help #i dont want to keep suffering through chronic illness symptoms every month for absolutely no reason #i dont want to run the risk of getting pregnant and having to live through my worst nightmare as someone with dysphoria #AND like my gf just pointed out to me. ive got other health issues that im trying to get sorted out #im chronically underweight and i either have pots or some kind of hypertension. plus a low immune system and etc etc etc #being forced to carry a pregnancy could fucking kill me for all i know. AND i would have to go off of a lot of my meds?? #all this thing does is cause me chronic pain and put my already precarious physical and mental health at risk #im GETTING it fucking taken out #rambling #ive got an appointment with my therapist on tuesday and i think im gonna ask about getting an official diagnosis of gender dysphoria #and im already in the process of getting tested for pots with my primary care doctor #so hopefully those diagnoses combined with my endometriosis will help speed it along... 🙏

[waitingforminjae]

it rlly was absolutely insane how the male lead tricked eultae and stole his soul then fucked off and played hackey-sack with it with the female lead for the next thousand years while eultae suffered in perpetual agony and then the writing did absolutely nothing with that

#like NO commentary on how who's the protag and antag is just a matter of perspective. no commentary on how ppl are complex #and might be a hero to one person a victim to another and a villain to a third #NO commentary on how living with chronic pain effects a person - how living as a ~monster~ aka a marginalized person effects someone #just like. they had this incredibly moving complex story and just. never quite got there and it ended up being so boring #f: bulgasal