my top bit of advice going into the new year: compliment people. especially strangers. literally everyone you interact with if you can. when you buy coffee in the morning compliment the barista's tattoos. when you're chatting with a coworker tell them that by the way you like their outfit. always find something they've chosen to do on purpose. nail polish, jewellery, tattoos, hair colour/style, statement accessory, outfit, etc are all good bets. things people hope will be noticed. things that aren't too personal so it doesn't make them uncomfortable (eg probably not their physical features). i've gotten into the habit of scanning everyone i talk to for something about them that i think is cool so i can tell them. it's a great habit because it makes me notice people and realise just how many neat little details there are in people's presentation of themselves that might pass me by if i wasn't paying attention. and it brings out so much joy. you'd be surprised how much it disarms people to receive an unexpected compliment from someone they don't know. it is the most sincere smile you will see all day long. it feels nice to make people happy but it also means you win the social interaction. establish dominance by complimenting a stranger's earrings and disappearing into the fog
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pioneering something called "gritted teeth optimism" where everything is gonna turn out okay even if i have to bite and claw and gnash my way through it
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Pacific Rim is the best movie ever made for the same reason Sif is the best boss in Dark Souls. It's not bcs of quality or craftmanship or whatever it's bcs when I hear "giant robots fighting giant monsters with the power of love" and "huge wolf with a big fucking sword" I am overcome with the urge to scream "HELL FUCKING YEAH" at the top of my lungs before headbutting a wall so hard I leave a dent in the plaster.
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No one prepares you for how crippling grief is, last year my mom died of cancer. I watched her decline so rapidly that my brain couldn't understand who I was looking at by the time she passed. I couldn't understand who I was by the time she passed because I had to become a vessel who makes appointments, dresses, nurses, cooks and an entity who does not sleep. I did it all alone. The reality is that cancer eats away at everything, it lives on even after the patient dies. It ate away at every part of me, I couldn't get out of bed, I had sleep paralysis, I couldn't stop seeing her... like that. They asked me if she's my grandmother when they carried her out of the house. She was in her early 50s. Do you understand? In 3 months, she began to look like she was 80. Everyone wanted me to move on after a month, no one called anymore, not even a text. I thought I was alone when she was alive, but this was a new type of isolation. One that I barely survived. (thank you to my mutuals and tumblr for being an outlet)
It's been a year and 6 months, today I realized she's not the first thing I think of in the morning, or the last thing I think of before I fall asleep. I couldn't even call to do paperwork before, now I'm forgetting why it was even that difficult.
The sun's out, I think i'm going to get ice cream without feeling guilty that it's not something she can do anymore.
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