#occipital neuralgia

[catmat]

When someone asks me how bad my headache is at its worse, I tell them that if someone offered me $1,000,000 to have this headache, even just for a few hours, I wouldn't take the money. That's how bad it is.

And they'll reply, "Oh, you're exaggerating. It can't be that bad."

Yes it can, and it is.

Believe people's pain.

#i wouldn't wish these headaches on my worst enemy #i cant take meds for it because they cause adverse reactions for me #so i have to endure sever pain for a few days and just ride it out #it is really unbearable #i once saw a documentary on brain injuries #and a woman said i dont fear death but i fear the headaches #and i totally relate to that which is sad #chronic pain #brain injury #disability #post concussion syndrome #disabled #concussion #tbi #traumatic brain injury. #occipital neuralgia

[sleepy-spoonie]

Today is Rare Disease Day! 🦓

A day to raise awareness of the 7000+ rare diseases that over 300 million people live with worldwide.

I've learned a lot from my rare diseases; self-love, advocacy, empathy. But I think the most important things I've learned, and what I hope everyone living with rare disease can learn is:

• You are not an inconvenience.

• It is okay to be angry with your body for betraying you.

• You don't have to be glad it isn't worse.

• You did not cause your illness(es).

• It is okay to admit you're struggling.

• You can be strong and scared at the same time.

• It is okay to rest!

Rare is Many. Rare is Strong. Rare is Proud.

#rare disease day #rare disease #rare disease awareness #chronic illness #invisible illness #spoonie #invisible disability #narcolepsy #intracranial hypertension #occipital neuralgia #chiari malformation

[brightlotusmoon]

Me, with a violently throbbing headache that's now lasted 24 hours:

#migraine #occipital neuralgia #my head huuuurts

[inpainbutvibing]

being chronically ill be like: this is the worst pain ive ever experienced, no wait THIS is the worst pain ive ever experienced, no wait THIS is the worst pain ive ever experienced, no wait

#at this point im just in a huge amount of pain and i dont know if its getting better or worse #chronic headaches #chronic illness #chronic migraine #occipital neuralgia #chronic pain #spoonie #text post

[zyozaart]

When you’re jealous of the baby penguin you just painted. Guess why :/

#aurora #aurora borealis #emperor penguin #starry night #baby penguin #penguin fanart #snowscape #night sky #twilight #jealous of the birds #where am i #trigeminal neuralgia #occipital neuralgia #neuralgia #art

[myownjadedpieceofmind]

*do not reblog this please*

I'm no doctor...but... something makes me think that the radiologist that called my MRI "essentially normal" has a different idea of normal.

My cerebral tonsils are hanging out of my skull. My brainstem is in my neck. My odontoid bone is too long, and is tipped back, pressing into my brainstem, causing scar tissue build up.

I can't explain to you how terrifying it is to know that my community College education gave me more medical knowledge than the neurosurgeon and the radiologist that managed my images.

Don't reblog please.

#dont reblg this #personal #my brain #chiari malformation #occipital neuralgia

[notjustanyannie]

Yesterday my pain doctor diagnosed me with occipital neuralgia. He gave me nerve block shots where the muscles attach to my skull. I’ve had so much pain I couldn’t use any pillow unless it was 100% down. I can already feel so much difference. I can turn my head further than I could for years. He said it might improve more over next 8-10 days.

I love my pain doctor. He is always looking for new ways to help me manage pain. He has made such a huge difference in my life.

#occipital neuralgia #chronic pain #nerve block

[godfamilyandcountry]

#chronic pain #occipital neuralgia #child loss #pet loss #loss

[mytasteinpancakesisyourface]

got 8 nerve block injections yesterday (occipital) and 3 of which were in my face, needless to say ouch, but now I have the biggest migraine because my head is so sore ;-;

#its just never ending #hope it helps tho last time i got 6 #the lady that does it is so fuckin nice tho #got myself some rocks as a little treat #this life is so difficult and i am very tired of it #nerve block #occipital nerve block #occipital neuralgia #chronic migraines #chronic pain #chronic illness #chronic headache #spoonie #vent

[hannahcrazyhawk]

Please read, share, and donate (if you are able) to my new Go Fund Me. Thank you so much!

#gofundme #crowdfunding #fundraiser #payitforward #spoonielife #spooniestrong #spooniewarrior #spoonie #chronicillnesswarrior #chronicpain #chronicallyillstudent #chronicfatigue #trigeminalneuralgia #occipital neuralgia #brain tumor #help me soar #covidsucks #covid-19 #fibrowarrior #rheumatoidarthritis #superhero #chemotherapy #baldisbeautiful #signal boost #ehlers danlos problems #crps #autism #crohnsdisease #autoimmunefighter #please help

[scientistsloan]

Time to have a fun MRI to see why I feel like I’m being electrocuted/am constantly in pain!

#chronic pain #chronic illness #spoony #spoony squad #almost gone gang #occipital neuralgia #neuralgia #hypermobility #peripheral neuropathy #neuropathy

[catmat]

I don't know how many days/weeks it's been now but I'm still in so much pain with my head. It just won't go away. It eases for a few hours and comes back with a vengeance and it's wearing me out.

#just venting #no advice please #occipital neuralgia #chronic pain #brain injury #traumatic brain injury

[sleepy-spoonie]

My favorite doctor stabbed me in the head a bunch of times with a needle this morning, and now I can breathe (nerve pain free) again.

#chronic illness #chronic pain #occipital neuralgia #invisible illness #spoonie #chiari malformation

[brightlotusmoon]

This tension headache has been chasing its own tail around my skull for hours and I'm ready to knock myself out. I knew I should have gotten that rubber mallet and named it Harley.

#ow my everything #all two dozen disabilities #is it cerebral palsy or fibromyalgia #occipital neuralgia #trigeminal neuralgia

[inpainbutvibing]

hmmm how to tell my profs i cant turn in my assignments in time because my head feels like its exploding without them thinking im just lazy and/or overreacting because “everyone gets a migraine sometimes”

#no thoughts only pain #chronic headaches #chronic illness #chronic migraine #chronic migraines #occipital neuralgia #migraines #spoonie #spoonie thoughts #text post

[howtobeapersonwithfibro]

I am working with a legal aid organization on starting an appeal process for my nerve ablation denial and even though the help is so relieving and welcome, I still want to cry. 

I did my last insurance appeal process for nerve blocks basically alone, and it was months of stress, with denial after denial showing me just how little the bureaucracy cares for my quality of life. I just don’t know if I can emotionally handle this whole process again, even with more help this time. 

It will be a months-long, exhausting process and we won’t know until it’s over whether I’ll even get a win and be able to get my procedure. But it’s sort of the only option I have left for adequate pain management at the moment. 

I just feel like my emotional endurance tank is totally depleted by everything I’ve dealt with the last few years, and now that it’s appeal time again, it’s affecting my day-to-day mental health that I had just barely been managing to keep in a healthy place.

#my post #spoonie #fibro blog #blog #fibro #pain management #chronic illness #fibromyalgia #occipital neuralgia

[juliannetoinette]

Doctors and ice packs be like, don't use for more than 20 minutes and never on exposed skin. My chronic pain, however, says fuck that.

#chronic pain #chronic migraine #chiari warrior #occipital neuralgia #spoonie #julianne's day #neuropathy #allodynia

[ribbitflings]

#chronic illness #chronic pain #chronic migraine #chronically ill #chronic headaches #chronic illness memes #migraine #hemiplegic migraine #vestibular migraine #ocular migraine #spoonie memes #spoonie #trigeminal neuralgia #glossopharyngeal neuralgia #occipital neuralgia #cluster headaches #headaches #head pain #headache #brain pain

[godfamilyandcountry]

A perfect visual for TBI-induced chronic headaches

#occipital neuralgia #chronic pain #invisible illness #tbiawareness

[theselfcaremaven]

#mystoryisntoveryet #whyiwrite #thrivingsurvivor #comeoutofthedark #keepgoing #theselfcaremaven #spoonie #tmj #solfeggiofrequency #soundtherapy #katfantastique #iamtheplacebo #trigeminal neuralgia #thoracic outlet syndrome #occipital neuralgia #Youtube