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#occipital neuralgia
catmat · 3 months ago
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When someone asks me how bad my headache is at its worse, I tell them that if someone offered me $1,000,000 to have this headache, even just for a few hours, I wouldn't take the money. That's how bad it is.
And they'll reply, "Oh, you're exaggerating. It can't be that bad."
Yes it can, and it is.
Believe people's pain.
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sleepy-spoonie · 3 months ago
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Today is Rare Disease Day! 🦓
A day to raise awareness of the 7000+ rare diseases that over 300 million people live with worldwide.
I've learned a lot from my rare diseases; self-love, advocacy, empathy. But I think the most important things I've learned, and what I hope everyone living with rare disease can learn is:
• You are not an inconvenience.
• It is okay to be angry with your body for betraying you.
• You don't have to be glad it isn't worse.
• You did not cause your illness(es).
• It is okay to admit you're struggling.
• You can be strong and scared at the same time.
• It is okay to rest!
Rare is Many. Rare is Strong. Rare is Proud.
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brightlotusmoon · 6 months ago
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Me, with a violently throbbing headache that's now lasted 24 hours:
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inpainbutvibing · a year ago
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being chronically ill be like: this is the worst pain ive ever experienced, no wait THIS is the worst pain ive ever experienced, no wait THIS is the worst pain ive ever experienced, no wait
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zyozaart · a month ago
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When you’re jealous of the baby penguin you just painted. Guess why :/
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myownjadedpieceofmind · 7 months ago
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*do not reblog this please*
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I'm no doctor...but... something makes me think that the radiologist that called my MRI "essentially normal" has a different idea of normal.
My cerebral tonsils are hanging out of my skull. My brainstem is in my neck. My odontoid bone is too long, and is tipped back, pressing into my brainstem, causing scar tissue build up.
I can't explain to you how terrifying it is to know that my community College education gave me more medical knowledge than the neurosurgeon and the radiologist that managed my images.
Don't reblog please.
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notjustanyannie · 3 months ago
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Yesterday my pain doctor diagnosed me with occipital neuralgia. He gave me nerve block shots where the muscles attach to my skull. I’ve had so much pain I couldn’t use any pillow unless it was 100% down. I can already feel so much difference. I can turn my head further than I could for years. He said it might improve more over next 8-10 days.
I love my pain doctor. He is always looking for new ways to help me manage pain. He has made such a huge difference in my life.
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godfamilyandcountry · 10 months ago
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mytasteinpancakesisyourface · 4 months ago
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got 8 nerve block injections yesterday (occipital) and 3 of which were in my face, needless to say ouch, but now I have the biggest migraine because my head is so sore ;-;
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hannahcrazyhawk · a year ago
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Please read, share, and donate (if you are able) to my new Go Fund Me. Thank you so much!
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scientistsloan · 5 months ago
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Time to have a fun MRI to see why I feel like I’m being electrocuted/am constantly in pain!
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catmat · 6 months ago
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I don't know how many days/weeks it's been now but I'm still in so much pain with my head. It just won't go away. It eases for a few hours and comes back with a vengeance and it's wearing me out.
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sleepy-spoonie · a month ago
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My favorite doctor stabbed me in the head a bunch of times with a needle this morning, and now I can breathe (nerve pain free) again.
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brightlotusmoon · 7 months ago
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This tension headache has been chasing its own tail around my skull for hours and I'm ready to knock myself out. I knew I should have gotten that rubber mallet and named it Harley.
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inpainbutvibing · a year ago
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hmmm how to tell my profs i cant turn in my assignments in time because my head feels like its exploding without them thinking im just lazy and/or overreacting because “everyone gets a migraine sometimes”
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howtobeapersonwithfibro · 10 months ago
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I am working with a legal aid organization on starting an appeal process for my nerve ablation denial and even though the help is so relieving and welcome, I still want to cry. 
I did my last insurance appeal process for nerve blocks basically alone, and it was months of stress, with denial after denial showing me just how little the bureaucracy cares for my quality of life. I just don’t know if I can emotionally handle this whole process again, even with more help this time. 
It will be a months-long, exhausting process and we won’t know until it’s over whether I’ll even get a win and be able to get my procedure. But it’s sort of the only option I have left for adequate pain management at the moment. 
I just feel like my emotional endurance tank is totally depleted by everything I’ve dealt with the last few years, and now that it’s appeal time again, it’s affecting my day-to-day mental health that I had just barely been managing to keep in a healthy place.
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juliannetoinette · a year ago
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Doctors and ice packs be like, don't use for more than 20 minutes and never on exposed skin. My chronic pain, however, says fuck that.
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ribbitflings · 2 years ago
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godfamilyandcountry · a year ago
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A perfect visual for TBI-induced chronic headaches
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theselfcaremaven · 8 months ago
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youtube
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