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#autoimmune diseases
spookysalem13 · 7 months
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I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.
This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.
I don't get to live my life, I'm surviving not thriving.
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spooniestrong · 3 months
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I want to clarify that my intention is not to be unkind or instruct you on how to handle your emotions. However, discussing self-harm in the manner you do can be highly distressing, and using threats of self-harm to manipulate others, even if it feels valid at the moment, is a concerning and manipulative behavior. Please seek help.
Trigger warnings for body horror, death, illnesd and blood and gore.
Okay this has been sitting in my box for a bit and I was very concerned with just what the unholy hell you were talking about but then I realized what "bleed to death if they're mean to me" must sound like outside of my own head.
In a very abstract way, you're right. It is self harm but it's an autoimmune disorder. It's my immune system misfiring and hurting me, not a mental illness manifestation. Think of it as a friendly fire incident. The body mistakes friendly cells for for bacteria and attacks them. For me, this is hemolytic anemia. Hemolytic anemia isn't common, only making up about 5% of all anemias diagnosed, but considering how misdiagnosed it is and how common anemia is, it's something that should be talked about more.
So hemolytic anemia as a bodily process is somewhat common but mine as originates from a specific genetic pattern I inherited from my French Canadian parent is pretty rare and dramatic. But the general gist is that red bloodcells carry oxygen and white blood cells are your immune system so when I'm ill or stressed (hence the being mean to me part lol) my body copes by firing off white bloodcells to destroy my red blood cells. And without the oxygen carrying cells, oxygen can't be delivered. It can be much like normal anemia where a heavy period hinders your bloods ability to deliver oxygen and makes you tired and cold and ill.
That part you can get used too. In me however, having that rare sort and being very young and until recently an unencumbered immune system, I have gone from fine to, and I mean this in the most frank of ways, bleeding to death without opening a vein in less than an hour. I can destroy blood so fast they've rigged me up to two bags of blood at once to compensate. Not quite as fast as say, opening up a wrist in the bathtub, but considering I don't choose when it happens, it's not what anyone would consider ideal conditions to finish a degree under.
So yeah, if you're depressed, get your mental and physical health checked out! Your mental health is important! If you're feeling ill and weak and cold, see a doctor. If your piss suddenly turns black, your fingernails and lips go blue and your eyes or skin turn yellow, take your ass to the ER. This has been a PSA from your local blood sucker. Cheers!
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autoimmune culture is having family constantly asking you if "you're getting better yet" and then "why not?" when you say no, i'm not.
and then getting irritated because it literally says chronic in the disease name
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riotclitshave · 4 months
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gypsy-that-i-was · 11 months
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Chronic pain is life changing…
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sommesick · 8 months
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Autoimmune Registry adds Long COVID to its List of Diseases
The Autoimmune Registry has determined that biomarkers of immune system activity similar to those seen in many autoimmune and autoinflammatory diseases justify the inclusion of Long COVID on its list of diseases.
High levels of antibodies to the immune-system proteins called type I interferons (IFNs) have been associated with severe COVID-19.   Other studies have shown that severely ill patients tend to have a high concentration of pro-inflammatory cytokines, such as interleukin (IL)-6, compared to those who are moderately ill.
The Autoimmune Registry has decided to include Long COVID in its list of autoimmune diseases to support research into this emerging chronic condition.
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healthcareporium · 5 months
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Immunomodulators' Power: Widening Applications and Medical Impact
Immunomodulators have emerged as crucial components in the field of medicine, gaining increasing attention for their ability to regulate and modify the immune system’s responses. These agents play a pivotal role in treating a diverse range of conditions, from autoimmune diseases and cancer to infectious diseases and organ transplants. By modulating immune responses, immunomodulators offer…
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commonknits · 9 months
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Hey I’ve just been diagnosed with two different autoimmune diseases, hypothyroidism and e.o.e., so now on top of my severe egg allergy I have to cut out a ton of other foods. So if anyone has any recipes or ideas for quick snacks I’d appreciate it. I’m down to really only eating ground beef, chicken, veggies, and fruit.
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spookysalem13 · 10 months
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I felt this in my bones... it hurt 😆😅
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ruthfeiertag · 7 months
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https://www.washingtonpost.com/health/2023/09/17/fatigue-cfs-longcovid-mitochondria/
Here’s an article about Amanda Twinam’s search for answers to her problems with fatigue, a search that someday may lead to a fuller understanding of ME/CFS, similar diseases, and to treatments. For many of us, these ameliorations or cures will come too late for us to recover our health or for us to recover any semblance of the lives we should have had, but perhaps it will give all the young(er) people with ME, Long-Covid, etc., hope.
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dangerdust · 1 year
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Workplace regulators in California are drafting an emergency rule to address an epidemic of silicosis — a deadly, preventable lung disease — among fabricators of artificial-stone countertops.
One of the men featured in the stories, Juan Gonzalez Morin, died last month. He had just turned 37.
Since 2019, the California Department of Public Health has identified 69 cases of silicosis among fabrication workers — “likely an underestimate,”
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creativitytoexplore · 2 years
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A Common Stomach Bug May Help Cause Crohn's Disease, Study Suggests
A Common Stomach Bug May Help Cause Crohn’s Disease, Study Suggests
An illustration of norovirus particles. Illustration: Shutterstock (Shutterstock) A nasty but short-lasting stomach bug may have lingering consequences for an unlucky few. Researchers have found evidence in mice and human cells that norovirus infection can trigger Crohn’s disease in people already genetically predisposed to it. The findings may also help scientists one day find better treatments…
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autoimmune-culture-is · 5 months
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autoimmune culture is (fellow crmo haver here) having pain feel like having the constant shock of someone firing a gun right next to your ear, like the pain is so loud and ringing all the time and you can't ignore it no matter how hard you try to
yep, that's exactly it
i've been walking around feeling like that all week, the way my chest has been so sore
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boddee · 2 years
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curses manifesting as addiction, allergies, IBS
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spooniestrong · 7 months
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