#hashimoto thyroiditis

[mandana-the-service-pup]

My Rheumatology appointment was great. The dramatic improvement on Methotrexate was the final piece of the puzzle. My Rheumatologist was able to confirm a Spondyloarthritis diagnosis based on my improvement and the X-rays, blood tests, etc. She said my presentation is not typical (probably bc of the EDS & dysautonomia) so Lupus will always need to be on the table and I’m supposed to inform doctors of my increased risk for drug-induced Lupus.

Methotrexate has improved 4-5 years of symptom development but it’s not enough on its own. Hydroxychloroquine and Methotrexate are both dosed based on weight so they can’t be increased. I’m supposed to stay on both medications and use steroids for acute flares (2 pills in the morning every day for a week) If the steroids don’t help then we might move on from Methotrexate to the next DMARD.

I’m so incredibly grateful to finally have a diagnosis that can be treated effectively. I’ve had symptoms my whole life, disabled for the last ten years and have had red flag symptoms for the last several years. To finally have treatment options is such a relief. My Cardiologist follow-up is next week and I can’t wait to finally quell their doubts in me.

#new diagnosis #spondyloarthritis #inflammatory polyarthritis #dysautonomia #orthostatic hypotension #postural orthostatic tachycardia syndrome #gastroparesis #hashimoto thyroiditis #service dogblr #medical alert service dog #health update #rheumatologist #3 years

[ajgrey9647]

True story!

#hashimoto thyroiditis #vitiligo #hypothyroidism #thyroid #struggle bus

[moonlight-at-dawn]

A collection of some of the unhinged "solutions" I've stated for various health/pain issues. Anyone else talk like this about things? I'm curious if so~

"I want to crack open my bunion like a geode."

"Can I just cut open my heel and use an emery board on my heel spur?"

"I want my pelvic bone spatch-cocked like a chicken"

"Crack my tailbone like a glowstick."

"Can I tap my skull like a sugar maple to relieve the pressure?" (yes I know trepanning and spinal taps are things but this is different in my head)

"I want to go to (Mortal Kombat) Sub-Zero Chiropractic, he could fix me." (this is a joke I've seen before but it has never left my head)

"I want to butterfly my plantar fascii/hip flexor like a chicken breast to release the tension"

"If I chop off my leg, it can't hurt me anymore"

"Clear out my hip with an ice cream scoop"

"I want to get rid of my thyroid. I know it won't fix anything, but fuck that traitorous bastard."

#chronic illness #chronic pain #spoonie #fibromyalgia #invisible illness #hashimotos thyroiditis #autoimmune hypothyroidism

[oscarisaacasimov]

reposting now that I've fixed privacy settings

#thyroid #hyperthyroidism #hypothyroidism #graves disease #hashimotos thyroiditis #autoimmune #endocrine #endocrine diseases #endocrine disorder #chronic illness

[cyber-therian]

i love to eat dried seaweed … i have hashimoto’s thyroiditis and the iodine in seaweed helps calm some of the symptoms (alongside my meds ofc) and the umami of seaweed also helps with meat cravings since i dont eat meat :3 plussss the salt content helps increase my blood pressure

not to mention makes me feel like a lil fox who just found the most awesomest snack ever by the ocean mmmmm

#otherkin #therian #alterhuman #therianthropy #canine therian #canine kin #caninekin #hashimotos thyroiditis #hashimotos #thyroid problems #hypothyroidism #low blood pressure #vegetarian #food #therian food #fox theriotype #red fox therian #silver fox therian #fox therian #fox kin #foxkin

[beanskelly]

Happy disability pride to those with thyroid conditions, whether it’s hypothyroid or hyperthyroidism. Thyroid issues suck!! If you are struggling with your thyroid issues, know you’re not alone

#disability pride month #thyroid health #hypothyroidism #hyperthyroidism #hashimotos thyroiditis

[survivingfmandcfs]

Hey sorry I can't come out tonight after all. Yeah I accidentally ate some sweetened yogurt and now I have to spend at least the next twelve hours lying in bed because I'm shaking too hard to stand up.

#fibromyalgia #me/cfs #pots #hashimoto's thyroiditis #chronic fatigue #chronic illness #chronic pain

[danny-ric]

"Hashimoto's/hypothyroidism isn't a real disability. You're just being dramatic."

#kill stab murders you #personal #disabled #disability #hashimoto's thyroiditis #hypothyroidism #thyroid disorder #autoimmune disorder

[1863-project]

This is a really difficult time of year for me now. It's been this way ever since I got sick.

Hashimoto's thyroiditis, the autoimmune thyroid disorder I have, causes both weight gain and weight loss resistance. At this time of year, everyone is bombarded with things about weight loss and exercise and all of that stuff, and it's really difficult when your body isn't capable of it. Exercise is difficult when your thyroid pushes on your trachea and makes it harder to breathe, and you can't do it very long anyway since the same issue has caused you muscle weakness. You have to take everything slower.

I used to enjoy hiking. I can't walk uphill now without being short of breath almost immediately because of the pressure going at that angle puts on my trachea.

It hurts to see all these people talking about how they're going to "improve" their bodies and become rail thin and lose weight and knowing that they think your body is unacceptable because you're sick and it won't change the way theirs will. Diet and exercise can't really do much when you have an autoimmune disorder, and when you try to find out more you find all these quack products and solutions that clearly don't work.

My weight's plateaued at the point it's been at for a few years now. I'm not really getting any bigger anymore, and most people don't even notice it even though I feel like I'm distended. It's dysmorphia on my end - I never look the way I do in my mind - but since I'm not completely flat with no body fat the people in the commercials and ads and medical professionals are all going to just keep trying to "fix" something that can't be fixed because I have an autoimmune disorder.

I want so badly to feel comfortable in this body, but it isn't considered attractive or beautiful or even acceptable by society at large, so it makes it so difficult to really be okay with it.

I'm dysmorphic. This is what I look like in reality.

Even looking like this, doctors like to focus on my weight, so you can imagine what people far bigger than me have to deal with.

I wish we could just move on from this, but it doesn't look like we will anytime soon.

#Hashimoto's #hypothyroidism #tw: weight discussion #Hashimoto's thyroiditis

[blackholemojis]

can you make a few wordmojis for hashimoto’s disease? like “hashimoti’s disease,” “i have HT,” and “thyroid flare” pls and thank you!! :)

Yep!

[ID: purple light mode emojis reading:

Hashimoto’s disease

I have HT

thyroid flare

/End ID]

[ID: purple dark mode emojis reading:

Hashimoto’s disease

I have HT

thyroid flare

/End ID]

#Hashimoto’s disease #HT #thyroid #body & brain emojis #Trying out a new image description format - let me know whether it’s better or worse

[aroaceconfessions]

Small vent, because recently I learned that I have Hashimoto's disease and that does explain a lot since it can cause a lot of different problems, but one of them is lack of libido.

I've identified as an asexual since I've been 14 years old, and over the years I've come to terms with it and became comfortable, even happy, by identifying as ace. I like not having any sexual attractions- but what if it's caused by this illness? It's not that I would feel like an impostor in ace community, but what if I'll get my treatment, and suddenly I'll just feel the attraction, because it wasn't there for the lack of my libido? I would have to accept that the label I was comfortable, that I grew up with, is suddenly not me? I'm suddenly really scared of the treatment even though I really want it, because I feel horrible in my body and this will help to change it, but yeah. I also have my concerns

Submitted May 4, 2023

#asexual #ace #aspec #acespec #hashimoto's disease #hashimoto's #Hashimoto's thyroiditis #impostor syndrome

[mandana-the-service-pup]

It’s been three days since my second Methotrexate injection and for the first time in way too long I was able to go without ibuprofen. Still feeling sore but I was averaging a 7-7.5 on a 1-10 scale and now I’m sitting at a cozy 6. Being able to come down a full step on my pain scale after only two doses is amazing and I’m sooo looking forward to 2024.

(She’s not missing any teeth. Her two front ones are just super tiny! I had to check 😅)

#health update #good health day #methotrexate #disability blog #inflammatory polyarthritis #postural orthostatic tachycardia syndrome #gastroparesis #ehlers danlos syndrome #hashimoto thyroiditis #rheumatologist #new year #2024

[delusional-delirium]

GUESS WHOSE THYROID IS SO MUCH BIGGER THAN THE SIZE IT SHOULD BE

GUESS WHOSE S NEW ENDO SAID THEIR OLD ENDO SHOULD N O T HAVE IGNORED IT THAT LONG

GUESS WHOSE S NEW ENDO SAID THEIR THYROID IS ONE OF THE BIGGEST THYROIDS THEYVE EVER SEEN

GUESS WHO NOW HAS TO POSSIBLY HAVE SURGERY TO REMOVE THEIR THYROID

GUESS WHOSE OLD ENDO CONTINUOUSLY IGNORED THEIR CONCERNS AND BLAMED IT ON THEIR WEIGHT OR ANXIETY DIAGNOSIS AND TOLD THEM TO TALK TO THEIR PSYCHIATRIST FOR YEARS

#I HATE HIM I HATE HIM #medical malpractice #medical neglect #bad doctors #good doctor #the new one is the good one #endocrinologist #endocrinology #hashimotos #hashimoto's thyroiditis #hypothyroidism #thyroid #medical problems #personal health #life update

[weirdsociology]

lying to doctors is like the #1 skill in receiving the actually correct care

#no i don’t have a family history of hashimoto’s that i know of #but if i don’t say i do you won’t check #and i’d like to make sure it’s not my thyroid before i get a different organ entirely ripped put

[x22817]

Hek and I have done more in the last week than we have in the last year. We had way too much fun! Hek was showered with well-deserved compliments everywhere we went.

This is her watching me eat under the table at a very busy restaurant. Some may see it as a Bean begging to be shared with, but it's really her doing her job. I encourage her to watch me, especially when I'm eating, because a lot of her alerts/interruptions are visual. This meal was a fast food restaurant that I particularly struggled with. Hek ended up just laying her head on the bench so she could watch my hands continuously, and I could easily switch from harming myself to petting her.

Drug and health update below

Now that my parents are gone, I'm changing all the drug stuff. It's time to once again drop on my prednisone dose. The Fludrocortisone probably needs to be increased, but I can't do anything about that rn. I'm also changing the times I'm taking everything in hopes it will ease the tapering experience.

Current schedule:

12:00 - 5mg Pred

4:00 - 100mcg Levothyroxine

7:00 - 10mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

22:00 - 2.5mg Pred

New schedule:

11:00 - 5mg Pred

5:00 - 100mcg Levo + 7.5mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

Straight up, I'm not excited to transition from the immuno suppressive level to the adrenal support level. Pain and energy levels are meh at best. My joints are already becoming problematic again, especially my fingers and toes. I'm struggling with sleeping in every way, which baffles my endo, but idk what to tell her. Mostly, it's the salt cravings that have skyrocketed in the last two months that are driving me crazy. The weight problem is just something I'm learning to live with at this point. It's all water retention and gaining the weight I couldn't keep on before the cortisol.

#beans beans the magickal fruit #service dog #dogblr #autoimmune #spoonie #hashimoto's thyroiditis #addison's disease #chronic illness #chronic pain #disability #hypothyroidism

[cyber-therian]

its kinda upsetting that i look forward to the spring/summer from January—whenever it gets warm & then I remember that the sun makes me incredibly sickly for no reason.

Light sensitivity? POW! Nausea? POW! Inability to regulate heightened body temperature? POW! Sun sickness after 20 minutes? POW!

luckily i dont usually stay out long enough to burn, but man its so frustrating. at least i can enjoy rainy days more than the average human

#illness #sun allergy #? #nausea mention #hashimotos thyroiditis #🐾.txt