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#bad doctors
spacedocmom · 1 month
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Doctor Beverly Crusher @SpaceDocMom I truly do not understand why so many doctors in your era seem to hate chronically ill patients so much, enough to body-shame them and/or refuse to diagnose them properly and/or treat them with any degree of consistent care. Why become a doctor only to not care? emojis: black heart, blue heart, masked 2:24 PM · Mar 15, 2024
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ink-asunder · 1 month
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Sometimes being disabled is metaphorical tunnel vision. For every small action, there's pain and fatigue on the other side, so you overthink and procrastinate every move you make. You put on real shoes instead of slippers for the first time in 6 months and wonder if it was always this hard to tie your shoes? You're not sure exactly what's different, but you just remember it being... easier.
At a routine appointment, your doctor lectures you about deconditioning instead of ordering physical therapy or diagnostics for your worsening neck pain. You can try again in 4 months.
You look up deconditioning later, but all you can do is wonder why they haven't come up with a term for a disabled person acclimating to their severe pain and limitations to the degree that they can't even tell exactly in what ways their disability affects them anymore.
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flyingdorito · 1 year
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Okay, guys, here me out. Just a friendly reminder that no doctor, nurse, or therapist knows your struggle better than you. None of them can force you to go under some therapy. None of them should decide if you're disabled enough to get help, and none of them has any right over your body.
Refusing a treatment does not mean you don't want to get better. Sometime the treatment can make things worse, and no doctor cares about that. So please, to all the disabled folks around here, don't let anybody try to force something on you. You know your disability more than anybody else
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perplexingluciddreams · 11 months
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well.
the appointment with the CMH (community mental health) doctor was really really shit. to put it lightly.
she said lots of bad and wrong things like saying that i have no sign of infection so i don't have ME/CFS (which is just not how that works).
she also made a bunch of assumptions about my life and experiences based from very scattered (and often inaccurate or just unrelated) medical notes. and tried to tell me my life story and how my FND is caused based from that which was all just completely wrong.
she also said that because i have FND "there is no reason you are not talking and walking". which was what made me so upset that i ran (/crawled fast) upstairs and had a meltdown crying and hit the floor really really hard (hand still hurts ouch).
me not talking is NOT from FND. it's from autism (plus regression, which is still a part of my autism for me). life long experience of communication struggle and language issue and body not in my fucking control. and she completely disregarded my autism basically and saying i have no communicating problems even though that is such a HUGE HUGE part of my life.
also she said that i am "medicalised" and don't really need bath lift or stair lift or medical equipment (EVEN THOUGH i am have low mobility and CAN'T have a bath or go up down stairs without it AT ALL).
i don't know what else she said because of the running upstairs and meltdown but mum had some more talking with her and then she left. then i had a lie down in mum's bed and she did nice stroking on my back and i calmed down a bit.
still very upset. today was supposed to be good because new AAC but now it just is ruined.
and this was me trying really hard to give a second chance because she was horrible the last time too but i was being good and really trying to stay and listen but it was just horrible.
and she had awful strong perfume and the house still smells like it. making me feel sick.
sad angry frustrated.
((ask if need more tags on here i don't know what ones is right to put)).
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disagigglebilities · 3 months
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Smfh my doctor still hasn't fucking finished my housing paperwork. I'm homeless you fucker. Just sign the damn thing. You literally prescribed me crunches because of my mobility issues, I obviously qualify.
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GUESS WHOSE THYROID IS SO MUCH BIGGER THAN THE SIZE IT SHOULD BE
GUESS WHOSE S NEW ENDO SAID THEIR OLD ENDO SHOULD N O T HAVE IGNORED IT THAT LONG
GUESS WHOSE S NEW ENDO SAID THEIR THYROID IS ONE OF THE BIGGEST THYROIDS THEYVE EVER SEEN
GUESS WHO NOW HAS TO POSSIBLY HAVE SURGERY TO REMOVE THEIR THYROID
GUESS WHOSE OLD ENDO CONTINUOUSLY IGNORED THEIR CONCERNS AND BLAMED IT ON THEIR WEIGHT OR ANXIETY DIAGNOSIS AND TOLD THEM TO TALK TO THEIR PSYCHIATRIST FOR YEARS
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spoonful116 · 8 months
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TW: Ableism, gaslighting by healthcare providers
A doctor noted in my chart that I was non-compliant, manipulative, and trying to direct my care. Some of his reasoning:
Refused to take the extended release capsules of the medication prescribed. Also noted that I have dysphagia and a PEG tube
Told him that I needed to address the chronic UTIs before I considered overactive bladder treatments
Became concerned that I had an underlying genetic condition that was causing my issues. A lot of tests were coming back normal, but everything was very abnormal. I do have a genetic condition.
Stopped seeing my first urologist and suggested that I change doctors when they don't do what I want. My first urologist let me have 1-2 UTIs a month and wasn't trying to find a cause
"Refused to give a urine sample at any appointment" when I had been fainting a lot during transfers and they didn't have any exam tables that were wheelchair user friendly.
Communicated with them often about questions or concerns
Didn't do my 24 hour urine collection with an indwelling catheter and thus accused me of not doing it correctly and not collecting all of it in order for my results to be worse
Lying about my water intake and how much I eat
I am truly amazed by this man and the level of fragility, ego, and privilege you must have in order to see those actions as negatives with ulterior motives.
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not-that-debonair · 4 months
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you know you hear people discussing the mean girl-to-nurse pipeline but I feel there is an equally if not more prevalent phenomenon of the egotistical boy-to-surgeon pipeline
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bajablasted69 · 1 month
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If you are in the Lexington Kentucky area and need top surgery, do not go to Dr. Drake out of Turfland. Especially if you weigh more than ten pounds soaking wet.
My disability was mocked and dismissed, I was told to eat less and to just "lose the weight", I was told I was being "uncooperative" for crying, and I was denied the revision. I'll have to go out of pocket if I want his mistakes fixed.
If you're not disabled you might not know, but being deemed as "uncooperative" is extremely dangerous. Do not go to this doctor.
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dinosaurswant2rule · 1 year
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A second entry for @macgyvercairo, look at me go :D
This is a possible bit in a story for @lailuhhh , although this could be seen a disturbing one shot/start new to a story as well
James MacGyver stood in a corner of the room. He was in a hazmat suit, Jack Dalton stood next to him covered in a similar outfit, blue and black with a see-through section for his face. They were a bizarre duo, the room itself was an odd place as well, it was white with strips of colour at the top of the walls. 
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spacedocmom · 1 month
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Doctor Beverly Crusher @SpaceDocMom You shouldn't have to be a living text book about all of your conditions and be up on the latest science. That's your doctor's job. I'm sorry for those of you who have to spend your limited spoons to stay informed because your doctor won't. emojis: black heart, blue heart, masked 3:09 PM · Mar 27, 2024
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ink-asunder · 26 days
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The worst thing about having to advocate for yourself at a doctor's office is that it literally never ends. Like, in my opinion, if I tell a doctor I need an accommodation and they agree, then that accommodation should be noted and I should get it from then on. But the reality is I'm having to petition for that same accommodation for identical reasons as if we're having this conversation anew just because one rule changed and laterally affected my access to care.
It's even worse when your doctor is indecisive and can't make up their mind as to whether you actually deserve accommodation or not. Like, my GI specialist forced me to go on bentyl daily as a shut up drug (she prescribed it to help me cope with my back pain, which is not what that drug is fucking for), and now she's wishy washy about filling it because she says I'm going through it too fast.
Bitch YOU hooked me on a drug and now you're refusing to fill it!! This isn't me being a drug seeking crazy. This is YOUR fucking fault!!
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ofdinosanddais1 · 3 months
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I get surveys after each visit for me to fill out and I filled it out with a description of the experience with that doctor. I can accept, after a thorough investigation, if it's just benign joint hypermobility. But that was NOT a thorough examination. I reject his deduction. He did not give me a thorough examination. He twisted my words. He ignored my pain. I know some people have more extreme problems than me. I can do things other people can't. But this is a fucking illness. This is not a "trait", it's an illness.
And to think the doctors were learning. To think I could finally get help.
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kid-az · 7 months
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Just something that happened an hour ago
Me, venting about how I have been suffering from depression and suicidal thoughts, how I feel so alone and abandoned and scared and wish I had genuine help and didn’t have to keep all my feelings to myself:
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My (Former) doctor, who is going to try and throw me into a mental hospital to be isolated in a room for half a day:
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autisticeducator · 2 years
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When doctors are too hyper focused on weight:
•And don’t acknowledge that everything that obesity increases risk for, MCAS will significantly increase the risk for because they are linked together. Most of the things associated with obesity (including obesity itself) is linked to mast cells. So regardless of weight, my risk of diabetes, high cholesterol, and more is increased significantly.
•Don’t or refuse to factor in how significant mental health factors into physical health. Especially ADHD. ADHDers aren’t making excuses, we are just trying to work in the perimeters of how our brains function. And suggesting we do things that are mentally (and therefore physically) destructive is not practicing neurodivergent affirming healthcare.
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cubesbloodsucks · 5 months
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Tw: Blood and Needles
My worst blood drawing experience
So I went to a new doctor and this doctor was the first one who wanted to test my hormone levels. So I have had blood test many times before so no big deal. So me and my mom (My mom comes with me to all of my appointments because I’m scared of doctors and I can’t drive) walk to the lab and it was right across from the bathroom. So my mom had to go and she asked me if I was ok with getting my blood drawn by myself and since I have done it before I said sure. So the lady walks me back sits me in the chair introduces herself and starts getting ready for the blood draw. So she puts the needle in my arm but she can’t get a vain which is weird because the doctors at the old place had no problems with finding a vain. She tries the other arm nothing. So that’s not good and she asked me “So you can ether wait for the other lab person or I can do it again” I did not want her doing it again so I waited. The worst part is I haven’t had lunch yet and from past experience if I haven’t eaten yet and I get my blood drawn I feel terrible. So I’m waiting in the waiting room like you do and the other person comes in and she’s like ok I will try. So me and my mom walk back because the only way that I won’t cry is if I can talk to her. So they stick the needle in and they didn’t get a vain so instead of talking out the needle and trying the other arm she just moved it around in my arm. It hurt so bad. I couldn’t move my arms the rest of the day and I got subway to lunch.
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