#rheumatoiddisease

[kynmoonlight]

My life:

#chronic illness #chronic pain #no spoons #brain fog #can't focus #lupus #rheumatoid arthritis #rheumatoiddisease #animated gif

[vastderp]

MY SKELETON MAP

I'm starting to map out my skeletal anatomy based on when i become aware of individual bones via pain, and the nature of said pain. most recently: tibiae, via a sensation like the top ends of the bones being gnawed slowly and deliberately by a giant rodent.

Rheumatoid is fun.

there’s also the one where it feels like someone poking one rude hard finger aggressively against my body, compressing a pinpoint of tissue into a flaring star of pressure, but since this one gets various parts of the body it’s not as useful for building the skeleton map.

On the topic of rheumatoid, I should mention how grateful i am to be on max dose sulfasalazine instead of methotrexate now. The idea that this pain could ever go untreated for christofascist reasons is the worst invasive gnawing/splitting/pinching bone pain that exists.

In conclusion, once I map my skeleton completely, its image will likely be flipping off the world hard enough to leave no ambiguity as to why my fingers ache so much.

And thus, I turn 42.

#rheumatoiddisease #rheumatoid arthritis #nak nak nak #birthday post #chronic illness

[autoimmunechronicles]

I know many of us can relate to feeling like a burden and even those dear get tired of being around chronically-ill people such us ourselves.

How do you cope with depressive thoughts?

#autoimmine disease #autoimmune #lupus warrior #systemic lupus erythematosus #lupusawareness #lupuslife #chronically ill #chronic pain #chronic disability #chronic fatigue #fibromyalgia #chronic illness #crohn's disease #spoonies #spoonie humor #rheumatoiddisease #rheumatoid arthritis

[gypsy-that-i-was]

#RA #chronic pain #autoimmune #pain #health #rheumatoiddisease

[kazooie]

Ya bitch

has

RHEUMATOID ARTHRITIS

#rheumatoiddisease #rheumatoid arthritis #it hasnt sunk in yet #that i have a diagnosis #gotta give my brain time to catch up

[butch-bakugo]

Cause i have autoimmune based arthritis, heres some things to look out for if your worried you might have it or some other form of auto-immune disease. However this obviously dosent encompass every joint pain and/or autoimmune experience but its my experiences and i get to share them.

This isnt a diagnosis list and shouldnt be used as such. Dont diagnosis yourself with this. I 100% support self-dx but seriously? Dont. It can be very bad if your wrong and even potentially life threatening because other fatal illnesses can present themselves with these symphtoms.

Random achy pain, usually at night.

Pain in odd areas where you wouldn't think a joint would be (center of the front pad of your foot, middle of the back of your hand).

"Blowing out" your knee, ankle or wrist and it wont work for a week repeatedly.

Exhaustion in one singular area without any sort of work out or injury( one foot is exhausted and sore despite not overworking it nor injuring it).

Cold feet and hands or alternatively very warm feet and hands( its usually poor circulation but it can be autoimmune related).

Back pain.

Joints that are painful and swollen.

Exhaustion in general.

Major exhaustion the day before pain begins(im talking spending the day sleeping and/or napping), minor exhaustion the day of the pain, medium pain the day after.

Pain being more and more common over the course of the years.

Limping in the morning but running by the afternoon. Then limping in the evening and bed bound by night time.

Pain so mild you dont notice it but also pain so severe you have to groan or cry to cope with it.

Pain meds not doing anything.

Heating pads or ice packs only taking away pain for about 30 mins to an hour just for it to return.

Needing to buy a cane and/or wheelchair for limping days.

Heat intolerance.

More likely to be sick when your in pain.

Having an entire week without it just to absolutely suffer for a whole month after.

Any injury from a papercut near a joint to stubbing a toe could cause a flare up of pain near the site and in other places.

Having a weaker grip when in pain to the point of not being able to hold a cup.

Dizziness.

Having litterally any familial history of any arthritis and/or autoimmune disorder.

Stiffness in joints when its cold.

Being constantly warm or constantly cold.

Getting sicker from common illnesses than usual(getting a worse cold than normal when flare ups are occuring).

Having other autoimmune disorders( crohns, ibs, etc.).

Having that one joint that always hurts no matter what other flare ups are occuring.

Being bed bound for days to weeks because walking hurts so much.

Having "growing pains" in your late teens.

Having achey/sore muscles around the flareing up joint. (Ex: having an achy theigh and/or calf around an achy knee)

Constant pain and swelling in finger and toe joints

#levi speaks #arthritis #auto immune disease #auto immune disorder #ra #chronic pain #joint issues #joint pain #rheumatoid arthritis #rheumatoiddisease

[osnapitscookie]

Alone

Can I preface this with saying a lot of humans suck! They are a bunch of ableist and don’t know if they are or care. In one of my support groups, a lady told me the more her disease progressed the less she heard or saw people. Family and best friends included. They were often dismissive of her feelings. They kept making her feel as if she was the one not inviting them places. At one point in…

View On WordPress

#Advocate #ArthritisFoundation #BehindTheScenes #BlackChickWhoIsSick #BlackWomanAdvocate #ErasingTheStigma #GiveMeABreak #HadEnough #LifeLessons #RALife #RAWarrior #RheumatoidDisease #StrugglesAreReal #ThisIsWhatRDFeelsLike #ThisIsWhatRDLooksLike #WomanAdvocate

[living-with-arthritis]

#rheumatoidarthritis #rheumatoidarthritiswarrior #rheumatoidarthritisawareness #rheumatoiddisease #rheumatoiddiseaseawareness #rheumatoiddiseasewarrior #arthritis #arthritisawareness #arthritiswarrior #chronicpain #chronicpainawareness #chronicpainwarrior #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #invisibledisease #invisiblediseaseawareness #invisiblediseasewarrior 💜💙 https://www.instagram.com/p/CeTmMnKr-3X/?igshid=NGJjMDIxMWI=

#rheumatoidarthritis #rheumatoidarthritiswarrior #rheumatoidarthritisawareness #rheumatoiddisease #rheumatoiddiseaseawareness #rheumatoiddiseasewarrior #arthritis #arthritisawareness #arthritiswarrior #chronicpain #chronicpainawareness #chronicpainwarrior #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #invisibledisease #invisiblediseaseawareness #invisiblediseasewarrior

[imsickofcoveringup]

I know everyone is struggling during the holidays and anything helps! Share and read my story please Everyday has become a task and typical mobility aids cause more pain and injuries. Thank you so much for taking the time to share and read my story.

#chronic pain #chronicillness #ehlers danlos syndrome #hypermobile eds #disabled #disabledandcute #disability #endometriosis #endosucks #rheumatoiddisease #rheumatoid arthritis #invisibleillness

[skin-care-blogger]

Rheumatoid Arthritis Doctor | Rheumatology Clinic

Rheumatoid disorders like Osteoarthritis, rheumatoid arthritis, Vasculitis, and Interstitial lung disease are treated by rheumatoid arthritis doctors. Do you have rheumatoid problems? Visit the rheumatology clinic in Coimbatore immediately!

For more details, contact now: 7970 108 108

#rheumatoid arthritis #rheumatology #rheumatoiddisease #rhei #rheumatic #rheumatism #arthritis #arthritis treatment #rheumatology clinic #vasculitis #rheumatoid arthritis doctors

[pinkysmiles]

I try….- Posted @withregram • @oh_chronicpain No need to apologize, being sick is not your fault. . . . . . . #chronicillness #chronicpain #chronicfatigue #invisibleillness #invisiblefight #ra #chronicallyill #rheumatoidarthritis #rheumatoiddisease #autoimmunedisease #arthritis #fibromyalgia #osteoarthritis #degenerativediscdisease #scoliosis #raredisease #nervepain #pituitarytumor #pulmonaryhypertension #PAH #spoonie #spooniestrong #spoonielife #spooniesupport #butyoudontlooksick #chronicpainwarrior https://www.instagram.com/p/CeRWKKHFgOV/?igshid=NGJjMDIxMWI=

#chronicillness #chronicpain #chronicfatigue #invisibleillness #invisiblefight #ra #chronicallyill #rheumatoidarthritis #rheumatoiddisease #autoimmunedisease #arthritis #fibromyalgia #osteoarthritis #degenerativediscdisease #scoliosis #raredisease #nervepain #pituitarytumor #pulmonaryhypertension #pah #spoonie #spooniestrong #spoonielife #spooniesupport #butyoudontlooksick #chronicpainwarrior

[vastderp]

I am very disappointed in my bones right now. If I could cook dinner without them, I would send them to their room.

You have let me down, Methotrexate. You were supposed to be the chosen one.

I tried to wring my hands in distress but now my hand bones hurt too.

Grumble.

#rheumatoiddisease #fuck you bones what are you even doing #invertebrate ni naru

[autoimmunechronicles]

Recently, I find myself having to 'prove' my disease, symptoms, and pain to others as though to make them and myself believe that it's INDEED real. (to my fellow warriors, your disease and pain is enough-- you're enough)

I feel in my bones the doubts and judgements (even myself) that sows the seeds of negative emotions affecting my mental health.

Why does my disability have to be recognized and supported in the first place?

Here are my thoughts:

I DO NOT have to prove my pain and disease to anyone -

My "invisible" but very real, unimaginary illness exists. I feel pain 24/7. Some people do not (even try to) understand and have a distorted and disproportionate expectations.

2) We just want the support of the people dear to us.

People surviving with chronic illness face challenges that are inconceivable to normal and/or healthy people.

Often times, family and friends tend to make insensitive or thoughtless remarks or even requests that exhaustively impact our well-being.

3) We are dis-ABLE-d

Inspite of the awful unpredictable nature of autoimmune diseases, there are moments, hours, or even days of "low pain". Sometimes it lasts for a short period of time, sometimes not.

Personally, whenever I do not feel crackling pains, (chronic & extreme) fatigue, weakness and have all the limited energy (SPOONS) to move around and carry out chores, I DO THEM. I AM ABLE TO DO THEM.

To put it briefly, even through pain, I can carry out chores that I DEEM AM ABLE TO ACCOMPLISH. Otherwise, I will NOT carry through or postpone the tasks / activities.

In my experience, I do feel that I am a burden when it comes to contributing to house works and chores nowadays. I am not WHO and WHAT I used to be -- as much as I want to move I feel extremely guilty for not being able to do so. But I do remind myself that autoimmune in general cannot be prevented and there's only so much that I can do.

THAT IS WHY when I CAN, I DO.

4) Stop putting labels and words in our mouths:

When we are trying to help out and contribute, please do not be so insensitive as to say what we CAN and CANNOT do.

Believe us when we say we wen and DO NOT ASSUME THAT WE CANNOT.

Example: You see us washing the dishes then suddenly you would remark "You are not able to do that." YES WE CAN, WHEN WE CAN.

Yes we are disabled and each and every one of us have different diagnoses, symptoms, limitations -- but we continue to fight and make things work everyday. Chronically ill people are creative, smart, innovative, and are masters of life!

We are only disabled because of our illness and its complications which might prevent us to perform, live, and interact with the rest of the world in what's perceived to be in a normal way.

But please, we will appreciate it if we you can also give us the space to fully appreciate being ABLED.

Caveat: Please do not gaslight or get AGGRESSIVE and make degratory remarks or make your loved one feel guilty for not being able to perform normal tasks that may seem easy, fast, or normal to you.

In my case, I am able to cook, clean, and do chores but in a very, very slow and painful phase requiring rest every 5 minutes as I tend to be fantastically exhausted.

(Yes, 10 steps is exhausting enough for me. Legs crack up, lungs requiring deep breathes. But I STILL DO, I endure when I can.)

5) We appreciate all the emotional, physical, and financial support extended to us

Every single effort to help, support, and understand our condition is wholeheartedly appreciated!

Most importantly, especially to the family members, it would mean a lot if we can make an effort to really learn and work on knowing the specific autoimmune disease your loved ones have.

We are also trying to learn more about our disease everyday. Autoimmune is still a big mystery even to the medical community.

6) We DO NOT NEED unsolicited advise or opinions you heard online from herbal doctors or those who are "HEALED" or "CURED" of the disease

We do understand that a healthy and balanced diet is important but you also have to remember that:

+ Autoimmune diseases are incurable. It can only be managed.

+ Each patient / fighter are experiencing different symptoms. No TWO LUPUS patients' experiences and symptoms and treatments are the same.

+ There is no "GETTING BETTER." We do not enjoy the pain, but realistically, this only upsets us.

+ If there was one single herb and diet restrictions that works, all of us would have been cured, healed.

Nonetheless, we know your intentions mean well! :)

#autoimmine disease #autoimmune #chronic pain #chronically ill #chronic illness #chronic fatigue #lupusalertday #lupus warrior #spoonies #chronic disability #queen selena #rheumatoid arthritis #rheumatoiddisease #raynauds #invisible disability #invisible illness #spoon theory #disabled #fuck ableds #shit abled people say #symptoms #stress #wellbeing #fibromyalgia #disease #the fatigue is real #chronically fatigued

[gypsy-that-i-was]

EVERYWHERE!

#RA #pain #chronic pain #autoimmune #rhuematoid arthritis #rheumatoiddisease

[unlikelykingdomphilosopher]

#not mine #ableism #disability #chronic illness #chronically ill #chronic fatigue #chronic pain #spoonie life #spoonie #rheumatoid arthritis #rheumatoiddisease #rheumatism #rheumatology

[globalstemcellcare]

Global Stem Cell Care helps those patients to finding best hospitals for the Rheumatoid Arthritis stem cell treatment in Delhi, India

To know more about #rheumatoidarthritis visit, www.globalstemcellcare.com

#rheumatoiddisease #rheumatoidarthritisawareness #stemcelltherapyindelhi #stemcelltherapyforrheumatoidarthritis