#rheumatism

[brain-n-body-in-disarray]

It's the little things that hurts.

The way people don't get you can't do the things they do, at least without costing you so much.

The way the doors of shops or buildings used to fly open at the slightest touch and now they seems to weight a hundred tons.

The way my mother in law asked me if I wanted orange juice and when I said yes she put two oranges and a old manual juicer. I was too ashamed to admit how much it would cost me to do it this way. So I did it, fighting the tears and then couldn't use my arm for a week.

The way I can't get out of my apartment sometimes because even if there is a lift, there's also stairs between my apartment door and the lift and between the lift and the building door. Why make a lift at all if it's not even accessible because of the stairs? (I can't move out. I have neither the money nor the spoons.)

The way the new building the local bookshop moved into makes things so much harder for me than the old one. There was so much unused stairs that I could sit and rest for as long as I needed. Now in the new building the stairs are so narrow you can't think of sitting on them, you'll just block the way. And there's no chair or bench anywhere in this 4 stories building. You just can't sit and rest there.

The way the city is getting rid of public benches and putting in their stead blocks of concrete with metal spikes on them to dissuade homeless people to sleep on them, which is wrong on its own, but also impacts disabled people. There's less and less places where to sit and rest during a walk through the city.

It's people laughing when I can't open a bottle of soda.

It's people gossiping behind my back, saying "oh they are a junky" because I takes so many meds, including the ones for the pain, but not only for that.

It's me being too ashamed to be disabled at a relatively young age and having an invisible disability. It's me being too ashamed to ask for accommodations. It's me being too ashamed to ask for a seat in the bus when all of them are already taken. It's the society making me ashamed of myself.

It's life itself, mocking me, and the world joining in the good laugh at my expense.

#physical disability #disability problems #disability #disabilties #disabled #actually disabled #actually physically disabled #actually chronically ill #chronically ill #chronic illness #chronic pain #chronic fatigue #rheumatism #ankylosing spondylitis #joint pain #ehlers danlos syndrome #rheumatoid arthritis #rheumarthritis #accomodation #disability awareness #disability aids #arthritis

[vintagepromotions]

Travel poster for the Helwan Spa in Egypt, promoting the spa for rheumatism sufferers (c. 1910). Artwork by Herbert Leslie Greener.

#vintage poster #vintage travel poster #1910s #Herbert Leslie Greener #Egypt #Helwan #helwan spa #rheumatism #travel #tourism #holiday #hot springs

[dovie-system]

I want to ask about something but idk if this is like disrespectful or like wrong in any way but like please read the whole thing.

Okay so I am diagnosed with fibromyalgia and have been dealing with it for the last 5 years. I used to be really happy about the diagnoses because it have an answer to what I'm going through.

And I used to explain it to any person who would listen. I mentioned it to my instructors in college, the students basically everyone.

But recently I don't have the energy to explain and go into detail about how this affects me and how it like works and explain the details of all of that.

So recently I've been saying that I have rheumatism. Which helped them get the picture quick enough to not ask me more questions....

Oh and I believe I have psoriatic rheumatism because I do have psoriasis but my Dr refuses to diagnose me because "we haven't seen any clear signs" whatever that means.

Anyone have a specific opinion about that? Like is it wrong? I'm technically lying about a diagnosis I don't have. Or is having a rheumatological condition close enough that it doesn't matter?

#chronic illness #chronic pain #questions for people with rheumatism #rheumatic diseases #rheumatism #fibromyalgia

[solarianvoidthearoace]

I’m a first-time cane user and want to crowd source what I need to keep in mind/ be aware of.

I also worry I might have gotten one that is like 1.5-2 inches too short – it’s 36 inches at the tallest and according to “height/2+ 0.5 inch” I should have one that’s 35 inches but I couldn’t ask someone to measure and did the math using my height without shoes

Relevant info: I have several joints that ache regularly (e.g. my knees occasionally bitch despite orthopaedic insoles; have barely taken off my wrist splint the past 6 weeks), I have orthostatic intolerance and chronic fatigue; likely dysautonomia and possibly rheumatism

The cane I bought is an offset cane with a square (mini-quad) base and it is adjustable in height as well as foldable for transport.

I’m not asking for medical advice/ anything diagnostic, I’m asking for everyday tips!

The cane was *not* prescribed. It’s my choice and sort of a test run to see if it is the type of mobility aid that can help me in my everyday. It’s a semi-cheap one ($30) so if it works for me that’s great, if it doesn’t I’ll at least know that for sure.

#first time cane user #cane user #me cfs #cfs (chronic fatigue syndrome) #cfs/me #chronic fatigue #orthostatic intolerance #orthostatic hypertension #orthostatic hypotension #rheumatism #dysautonomia

[721km]

so badly I just want to be able to go on a walk without it being such a fucking mission. im back to feeling like im walking around with two sprained ankles and I swear to god I’d be outside running for hours if it didn’t hurt so bad. and I feel so goddamn guilty for feeling this way and I’ve realized it’s my mothers voice in my head telling me it’s not so bad, stop complaining, it used to be worse and I just need to exercise more. maybe that’s true. maybe it’s not. I don’t know. all I know is that it’s Monday and I’m laying on my couch with my legs wrapped in a heating blanket because I walked to my friends place yesterday.

#chronic illness #chronic pain #rheumatism #arthritis #the hospital called #it’s fall and my body can’t cope #medication #chronic fatigue #chronically ill #vent post #text post #but you’re growing up so you can never go back #I’m so sad for the child I could have been #mommy issues #mom please #I was supposed to outgrow this

[coffeemonster42]

More snaps from the Danube cruise.

Joining us on the cruise ship was a party of ladies who apparently all worked in a beauty and tanning salon. They were great fun, with their raucous singing, shrieking banter with the waiters and a gargantuan thirst for prosecco. And after breakfast they got even more crazy!

I did overhear an elderly gentleman on the next table mutter something about not wanting to share the boat with a 'bunch of yo-yo knickered painted tarts' but perhaps his rheumatism was playing up.

#tarts #rheumatism #boat #danube #coffeemonster42 #fujifilm #x-t5 #star wars #tanning #beauty parlour #prosecco

[sybilhallward]

warm weather is nice, I like doing things without fighting for my life with every movement <3

#vane blogging #chronic pain #fibromyalgia #rheumatism

[getmoxied]

Writing a bsd fic where aya koda is the mc, i might give her an ability, but if someone could give me a link or something to some of her works translated In English that would be awesome. I'm aware that theres only ever been one but,, its worth a shot, and i still haven't found the book that WAS translated so who knows. A basic summary on the characters or topic would be greatly appreciated aswell. Also wondering if characters in bsd have the disabilities some of the authors might have had, according to the wiki aya koda(real) had rheumatism and im wondering if that would be good to include in ayas character. (bsd) and if so how would i write that. Sorry im rambling but if anyone can find her works thatd be awesome. Also im doing full on character analyzes on bram and aya

#bsd #aya koda #bram stoker #fanfic #rheumatism #bungou stray dogs #aya kōda #fanfiction #writing #au

[shotgunneddog]

Does anybody know if I could like… get a wheelchair but not have to pay the expenses? Even the ones on eBay are like 100 and I just don’t have that money. I’m not diagnosed with anything(because the doctor I saw literally just said that my pain full on doesn’t exist even though I can’t walk without pain all the time now) but its become a dire situation and my pain is spreading. Im limited to my house when im not in school because I’m in too much pain to go out, to a point where I have to miss things I like because I’m in too much pain. Anybody know how? (It’s suspected rheumatism, it runs in my family)

#rheumatism #disability #disabilities #disabled #arthritis #wheelchair

[envieluvvicixe]

it's the very audible loud cracks of my wrists at frequent times that make my mom worry about rheumatoid arthritis since we share a lot of symptoms over it lmao.

#. pain directory #rheumatism #rheumatoid arthritis #chronic pain #clicky clack wrists #that's my life with the fatigue and pain #clicky clack skeleton

[brain-n-body-in-disarray]

As of today I am a cane owner. Now I need to figure out how to become a cane user...

How to use it the most effective way without harming myself.

How not to feel like a fraud or a faker while using it.

How to handle ableist people outside or the comments from family.

#cane user #mobility aid #mobility aid user #physical disability #actually disabled #cpunk #cripple punk #ankylosing spondylitis #rheumatism #chronic pain #ableism

[movietonight]

Would kinda suck if it turned out I got rheumatism but I already got the pain anyway so I'd rather know where it comes from

#Rheumatism #macks musings

[i-my-me-camino]

KUMANO Day2

👣 Hosshinmon oji - Hongu taisha

the second day of kumano, i started to walk from hossinmon oji to hongu-taisha. because of my condition (especially joint pain), i needed a lot of times, for 4.5hrs, to walk this just 7km. so there was no time left to visit oyunohara (tha last point of this way) and i took a return bus. it means that i couldn't made it (dual pilgrim) this time. so i'll make it next time.

my knee hurt during walking on downhill & down stairs and i thought it was not time to try this kind of activity…this made me depressed because i want to walk camino again (next will be portugues way), but i also decided "i'm gonna be ok. everything is going to be fine."

for the last few monthes, i cared for the symptoms of rheumatism and did the best to cure it, so now i feel like it depends on my thought ? or fellings ? something like that…humm it's not so easy…

☞ see below for the diary in japanese & more photos.

#camino #pilgrimalbergue #santiago de compostela #camino francés #albergue #journey #trip #travel #camino portugues #rheumatoid arthritis #rheumatism #カミーノ #サンチャゴデコンポステラ #巡礼 #フランス人の道 #ポルトガル人の道 #タビ #旅 #旅行 #アルベルゲ #リウマチ #熊野古道 #kumano #kumano kodo

[solarianvoidthearoace]

I’d like some advice about self-advocacy.

I’m in my mid-20’s and physically disabled but don’t know the specifics; I am German and live in Germany.

My major problems are my left wrist and my knees (right wrist to a lesser extend)

I have been wearing my wrist splint for months by this point (previously I only needed it for a week or so before taking it off) and I have been wearing knee compressions/ support bandages

I also bought myself a walking cane without officially consulting a medical professional

So now my question is: how do I self-advocate towards my general practitioner that these mobility aids get noted/ recorded in my patient file?

A friend of mine who’s a social worker suggested I just tell my GP “I have these and these issues. I started using these and these mobility aids to mitigate/ prevent pain. I bought and began using them on my own account. They actually help me a lot and make life easier. Write that into my file and then we talk about me seeing a professional about it.”

#undiagnosed disability #undiagnosed chronic pain #undiagnosed rheumatism #walking cane #cane user #personal whining #self advocacy #medical self advocacy #disability advocacy #self medication #rheumatism #rheumatic #mobility aid #medical advocacy #personal whiny shit

[danskjavlarna]

Source details and larger version.

You spin me round: my dizzy collection of vintage spinning and twirling imagery.

#rheumatism #spinning #vintage ad #vintage illustration #ad

[sweet-raw-healing]

Chickweed

• Has mucus removing properties for bronchitis or lung infection - rich in saponins (expectorant). • By forming a protective film, it soothes minor inflammations or irritations of the mucous membranes, especially in the lungs. • Kidney herb - As a mild diuretic to flush and cleanse the kidneys. • Relieves minor pain or stiffness in joints or connective tissues. Carrageenan and allantoin are compounds found in chickweed that have anti-inflammatory effects that reduce swelling and joint pain. For arthrosis, chronic inflammatory diseases and rheumatism. • Relieves stomach or intestinal problems, has a calming effect on diarrhea • Helps remove mucus buildup and mucoid plaque in the gut.

#chickweed #herbology #the detox miracle sourcebook #expectorant #lung infection #bronchitis #healing #kidneys #herbs #inflammation #rheumatism #stomach #gi tract #Mucusless Diet Healing System #mucoid plaque