chronically ill/physically disabled people, how do you deal with doctors appointments? what do you say/do to advocate for yourself? im autistic and not diagnosed with a chronic illness yet and i really struggle to know what to say to get them to listen to me and understand so that i can get the help and care i need. even if i bring someone with me, they also need to know what to say and i don't know anyone who understands well enough to explain to the doctor for me, which means that i have to tell them what to say before going. but that's the problem since i just don't know.
i have chronic joint pain that ive had for years but has only gotten worse over time. i also have hypermobile knees which are the worse they've ever been right now. i'm chronically fatigued and barely have the energy to eat and do basic hygiene. i have a few friends that i talk to fairly regularly and im very thankful for them but i still struggle so much with maintaining a social life when i cant even maintain my own physical wellbeing. i only go outside when i absolutely have to/when my pain is low enough and i have enough energy. on average i probably leave my house about once or twice a week, usually to go to medical appointments, to an internship i have once a week or to go grocery shopping. i usually try to do both at the same time if i can (like going grocery shopping after my internship) but most of the time i have to ask my parents to get me groceries since i dont have enough energy to. all i want is to be able to go outside just to take short walks and enjoy nature and the fresh air but i can't do so without the right treatment/a mobility aid. everything im doing right now is bordering the line of too much. im constantly tired and overwhelmed and everything feels like a struggle, even the smallest tasks most people do everyday without thinking twice about it.
i have almost only had bad experiences with doctors and other medical professionals like physiotherapists, which has given me a lot of extra anxiety on top of my already pretty bad social anxiety. i really struggle to make appointments and even more so to go to them, and when i bring myself to do so i really struggle to express myself and explain how i feel and how i want them to help me. i almost always get shut down and offered no actual help with any of my problems. i just don't know what to do anymore.
if anyone has any advice i'd really appreciate it. i know that i can't give up because my life right now without accommodations is too miserable, but i also don't know how to move forward.
sorry if this was hard to understand. i really tried my best to explain but im having a bit of a hard time expressing myself right now due to feeling worse than usual.
105 notes
·
View notes
This is going to be a very rambling and venty post cause im tired and annoyed and honestly am just using this to vent my anger/hurt. there is going to be stuff that can maybe be seen as anti tommy/bucktommy (please dont tell me a ship name to put i dont care about if they do have an agreed upon ship name right now) so if you dont want that please just move on. i dont want to fight i just want to yell into the void on a stupid throw away account so i dont bring my negativity stew and come out on my main blog where i just want to enjoy my stuff and just keep happy energy. I dont normally post and try and just find someone who explains it better because im not great and getting what im saying across or understood the way i want, so please bear with me. With that said i will move on to what i want to say
Okay so i have been watching 9-1-1 for years and i love and adore it. Its characters and dynamics and i have always loved found family. Now i will admit that i started watching it thinking that Buck and Eddie were a couple and had a son so i was kinda watching for it. Do i think if i didn't start watching thinking that i would ship them still yes 100%. I have always loved their relationship and i have loved watching both Buck and Eddie grow and start to be happy while also having each others back even at the worst times. Sometimes if i think to hard about Eddie and start crying cause I'm very normal about this show and it characters. Now Eddie is my favorite character in the show and at least in my top five overall favorite characters. I love him and his development and i adore seeing how much he does to just do right by Chris even when he messes up you can tell how much he adores that boy and how badly he wants to give Chris the best life possible. I could write essays about Eddie Diaz trying to explain how much i love him and why and i think words would run out before i could finish making people understand. Buddie is my favorite ship (sometimes second depending on my mood. i would say sorry but Henren and Madney will always be amazing ships and sometimes i just cant stop think about them)(Sorry Bathena i love you too i swear i just cant decide if i wanna kiss athena or be adopted by bobby and athena:( Its confusing) and has been for quite awhile and is one of my overall favorites and its one of my comfort ships.
With that context when bi Buck happened i was so insanely happy and i wouldnt shut up about it. it made me sick. i was so happy for Buck and while i think a part of me will always be a little sad Eddie wasnt his first kiss with a guy i dont think either of them are ready for that. i also understand that it wouldnt make sense for how the story is going right now. Now i have nothing against bucktommy in the show. I have watched the kiss scene and sobbed to much to pretend like i hate them or even dislike them. However I genuinely dont care about Tommy. Hes kinda bland and i forget about him half the time and before they brought him back i completely forgot his name. in my mind he was the one that wasnt as much of an asshole to chim and hen as the other two assholes which wasnt saying a lot. Now I dont dislike tommy nor am i going to act like hes irredeemable because neither Chim nor Hen seem to think hes still that guy and while they dont seem super close they seem to get along so clearly, he's not like that anymore. I have nothing that makes me dislike him nor do I like him. He's just there. He's just the guy buck kissed. Thats all he means to me. I would give up his screen time for Ravi or May or Karen in a heartbeat. because i love them cause they mean something to me. I don't think i thought about the fact that people might actually like him especially not more than EDDIE.
This is where the context matters cause i am to my core a one ship per person girly. I might see a ship and people who like it and even think thats not a terrible ship but i will still only look at content for my ship for that person (ie. i ship Destiel (dont say anything bad about them ill cry<3) but i can see the way someone would also ship Dean and Benny or crowley or Cas and Crowley or Mick but i will ignore the ship and move on and look at more Dean and Cas). normally i will just ignore the ship and move on because im not who its for. If it gets annoying in my tag or anything like that ill block it or whoever is annoying me cause its not a them problem that i dont want to see it. When i start to have a problem is when multiple people arent tagging right for whatever reason or people who are being rude about the ship i like because of their ship. When I started seeing Bucktommy stuff more and more in the 9-1-1 tag i went to the buddie tag cause i dont want to see them. my problem is that when im reading on AO3 and click on a fic tagged Buddie where bucktommy get married. it was literally just hurting Eddie. There was stuff before like id be scrolling though the buddie tag here and see someone saying that Tommy is a better character then Eddie and saying that they hope bucktommy is endgame. Whatever block and move on. Just like always but then people who have shipped buddie for years who ive seen talk about them are suddenly saying that they like bucktommy better. People who started watching because of bucktommy saying they dont like Eddie. People are going to have different opinions but it still bugged me. and then i read that and i was just hurt because it was tagged happy ending and i cannot fathom ever thinking Eddie hurting and pining is a happy ending. So i started to get more annoyed and i hate when that happens especially with a show i love and a character i dont dislike so i tried to just move on but more and more people are taking about it then i saw someone saying that they wanted eddie to die so buck and tommy can have Chris.
I just hate that so many people are jumping on the bucktommy train and saying that they like it better than buddie something that is so good and sweet or saying that they like Tommy more than Eddie. I just dont get it cause Tommy is boring. like yeah we now some about him and he flies a helicopter but hes forgettable he could be a completely different person and next to nothing would have to change. We have seen Eddie at his worst and claw his way back up and hes finally letting himself be open and honest and soft. Eddie couldnt be replaced. Now im not saying Tommy can't be an interesting character but as he is right now?? He just isnt. Hes just as bland as every women (minus Taylor and Shannon) Buck and Eddie have dated and been hated on for no reason!!! Like i get that Tommy is a guy and we got canon Bi Buck and people are happy but those same people turn around and shit on Marisol from what ive seen(I could be wrong cause again i have done my best to avoid). Buddie fans arent safe from that either, cause we all know that Buddie fans do that but so many of those people who hated on them and said they didnt want them with anyone else suddenly decided that they were okay if Buck ended up with any guy. I dont know its just weird and i hate how many people are acting like Eddie isnt always going to be better then Tommy. Part of me wanted Tommy to stick around and help Buck and Eddie figure it all out but now?? i honestly just cant wait for him to be gone cause I want to have fun and read fics for my comfort ship and just chill where i can see all of my ships in the show without buck and tommy being everywhere or people saying crap about Eddie.
I have more to say but most of its about how gratifying waiting and seeing where this whole thing goes(Buddie season 8 PLEASE!!) and this is already why to long and i think im just going in circles and none of this makes sense so ima shut up for now and hopefully this will help it not fester and drive me insane and become a tommy hater
Edit: but i also hate that Tommy calls Buck Evan so he already had some stuff against him rip
48 notes
·
View notes
it's all "be yourself" or "don't let other people get in the way of your dreams" until the person is non-white, queer, disabled, (mostly the victims of this are low-functioning) neurodivergents, non-American/European, anything that's not Christian, non traditionalist or if someone's dream is """stupid"""
Then it's always "Why can't you be more like others?" "You'll repent eventually and realize the error of your ways." "You want to do ["weird" hobby] as a job? How stupid! Wouldn't you want something normal instead"
Kinda contradicts the moral, doesn't it?
11 notes
·
View notes
im never trying to replicate what you can see in real life and that was something that id get a LOT of crap for growing up because i was really against studying life for art and my parents and any teachers ive had who were teaching me art would get unbelievably frustrated when id say that i dont have any desire to draw real life. i understand the important of studies now, but that's something i still strongly feel. i thin ka lot of people who dont see my vision specifically wonder why i spend so much time drawing the things i do instead of drawing like beautiful women with cats or something and its like i dont know. i dont really feel like replicating soemthing just because other people deem it beautiful. i want to create the illusion of my thoughts being tangible things
2 notes
·
View notes
it IS possible to take harm reduction too far for the record. at camp this past summer my coworker/sister/bestie/beloved caught one of the junior staff trying to drink bubbles because he thought they looked tasty and instead of telling him to stop she told him ‘try not to drink too much, and have plenty of water after, and go to the nurse if your stomach gets upset.’ i had to intervene.
13 notes
·
View notes
Me: haha yeah I'm always really confused when someone hands me something so as a kid I would unintentionally steal things because I thought people were giving them to me lol. Like I have to ask if someone is just showing me something or giving it to me. Or like idk if they want me to try a bite of something they cooked but not snatch it entirely or something.
My friend: uh... huh. And you said your family didn't know you were autistic??
Me:... 👀
22 notes
·
View notes