#chronic illness flare

[wren-was-here]

*stands up*

my body:

Ẃ̷̢̗̞͐͐̃͛̊́̏H̷͍̜̺̞̤̣͍̗̠̽Å̵̢̫̲͖͔̫̰͖̓̌́̆̕͜͠ͅṮ̷̡̝̞͕́̍͊̑͝͝ ̷͎͖͖̟̖̭͑͌H̷̙̱̳̝̤̟̆̐̓̍̓̕͘͝A̴̡̞͙̲͖̱͇͖̳͊͘V̷̡͇͖̯̙̊̊̇̎ͅË̵̯́̉́͝ ̷̧̗̪̪̹̼̱͚͚̈́Ỳ̵̨̠̙̣̺̞̞̝̲̖̿̔̂̆̔O̴͍̤̪͓͔̪͛̈̉̀̑͑͐̔͜Ừ̶̧̤̦̮̰̍͝ D̷̢̥͚̯̯͉̳̜̐̃͌ͅO̶̡̡̠̞̱̮̼̘̮̟͊͑̓N̸̲̠̳̱͍̰̹̖̤̽͘Ê̸̟̬̤̙̂̈́̈́̉̚?̸̻̩͉̙̈̂̚̚?̵̫̱̣̅̅͗̾

#pots syndrome #chronic illness #chronic illness flare

[fernfolly]

Maybe she’s born with it, maybe its PMDD 🙂

#me #feeling ill in the head and body #extra depressy #anxiety #chronic illness flare #pmdd #no seriously who knows if its me or just my period about to start #panic

[livingwithlupus614]

The struggle is real

#chronic illness flare #living with lupus #lupuslife #lupuswarrior #sjogrens #chronic illness awareness

[arunreadingbooks]

Julius Caesar - easier to find men who will volunteer to die, than to find who are willing to endure pain with patience

What will you chose if life is crumbling/exhausting every moment of every day.

Life shouldn't feel like a sisyphean task.

What's the breaking up point anyway?

#complex regional pain syndrome #crps #cripple punk #grief #dealing with grief #chronic disability #chronic illness #severe pain #burningpain #invisible disability #actually disabled #grief journal #postural orthostatic tachycardia syndrome #disability advocacy #actually chronically ill #chronic illness flare

[mental-mona]

This is aimed at outsiders who interact with a chronically ill person, and I feel like it's a good article to send to loved ones who Just Don't Get It.

#chronic illness #chronic illness flare #spoonie #spoonie life #loving someone chronically ill #communicating and relating #people just don't understand

[house-of-slayterr]

Guys I’m in so much pain rn it’s not even funny. I can barely move. But my nurse should be here in the morning, so I’ll ask his advice. I didn’t want to go to the ER on Halloween. But I don’t know what’s wrong with my neck. I can move it at all or I get a shot of pain and hella dizzy 😭

#fml #chronic illness flare #I’m in pain #I’m gonna throw up #this sucks #the pain meds aren’t helping #I had to leave my car and my dad picked me up

[calmmyfears]

when rest and "lazy days" stop being optional, you eventually stop enjoying it. i don't even know how to relax anymore. there's barely any relaxation in rest for me, it's all forced by a sick body.

#spoonie #chronic illness #fibromyalgia #flare up #chronic fatigue #chronic pain

[realstrap]

Happy belated TDOV!! help a disabled trans lesbian couple get some groceries!!

Hey yall, my partner and I are having a real rough time disability wise and we need to get some safe foods we know are easy to prep and eat while we're on the struggle bus

We need $75 for everything on our list!! This needs to be met ASAP, we haven't eaten since yesterday morning!!

$0/75

CA: $lezsalt or $sleepyhen

VM: wildwotko

Dm 4 PP

#sorry we are poor #ran an errand yesterday and my wife did a bunch of cleaning and we're both wiped #we're very tired and wife is going through a chronic illness flare uo

[theramblingvoid]

Low level/continuous pain tips for writing

Want to avoid the action movie effect and make your character's injuries have realistic lasting impacts? Have a sick character you're using as hurt/comfort fodder? Everyone has tips for how to write Dramatic Intense Agony, but the smaller human details of lasting or low-level discomfort are rarely written in. Here are a few pain mannerisms I like to use as reference:

General

Continuously gritted teeth (may cause headaches or additional jaw pain over time)

Irritability, increased sensitivity to lights, sounds, etc

Repetitive movements (fidgeting, unable to sit still, slight rocking or other habitual movement to self-soothe)

Soft groaning or whimpering, when pain increases or when others aren't around

Heavier breathing, panting, may be deeper or shallower than normal

Moving less quickly, resistant to unnecessary movement

Itching in the case of healing wounds

Subconsciously hunching around the pain (eg. slumped shoulders or bad posture for gut pain)

Using a hand to steady themself when walking past walls, counters, etc (also applies to illness)

Narration-wise: may not notice the pain was there until it's gone because they got so used to it, or may not realize how bad it was until it gets better

May stop mentioning it outright to other people unless they specifically ask or the pain increases

Limb pain

Subtly leaning on surfaces whenever possible to take weight off foot/leg pain

Rubbing sore spots while thinking or resting

Wincing and switching to using other limb frequently (new/forgettable pain) or developed habit of using non dominant limb for tasks (constant/long term pain)

Propping leg up when sitting to reduce inflammation

Holding arm closer to body/moving it less

Moving differently to avoid bending joints (eg. bending at the waist instead of the knees to pick something up)

Nausea/fever/non-pain discomfort

Many of the same things as above (groaning, leaning, differences in movement)

May avoid sudden movements or turning head for nausea

Urge to press up against cold surfaces for fever

Glazed eyes, fixed stare, may take longer to process words or get their attention

Shivering, shaking, loss of fine motor control

If you have any more details that you personally use to bring characters to life in these situations, I'd love to hear them! I'm always looking for ways to make my guys suffer more write people with more realism :)

#voidrambles #writing #whump #does this count as that? whatever those folks will probably enjoy it at any rate #this is honestly mostly for my own reference but i hope it can maybe help some other people too :) #I'm so pulled in by books that write pain in a human and detailed way and not just when it's dramatic or intense #would love to see more of that and incorporate it into my own writing #oh i should have added. distraction seeking to that list #like writing a really long post about. #...yes i may be chronically ill and having a flare today and yes i may be farming myself for writing tips for Future Me hdgfhfhsjs #but hey gotta do your research somewhere babeyyy it all goes in the creativity soup #tw injury #tw illness

[like-i-was-an-old-cardigan]

ykw. shout out to everyone who is both too disabled and not enough.

i wonder if i am disabled enough for cripplepunk, but at the end of the day, scrolling through the cripplepunk tag makes me feel better.

i am not quite disabled enough to be who a post for people who have been deemed scary or weird is for, but i do deal with those feelings. and i bite my arm because it makes me feel less like i’m dying and then i wonder if maybe they would think i am weird and scary.

i guess what this boils down to is: i feel like i am not disabled enough for disabled community. and if anyone else sees this who feels the same way, you deserve community. you deserve not to feel alone.

#disability #cripplepunk #chronic pain #chronic illness #fibromyalgia #cripple punk #disability pride #i know phrasing is weird i have not slept #and still in flare up #so words hard

[hoshi-kawaii]

I'm so so so jealous of people who get to leave the house and do activities and can be in sunlight and move comfortably in their own bodies who don't have to worry about what they might feel like just 10 minutes from now.

#i had to wait in line for an hour yesterday and today i am flaring like crazy #my body has betrayed me once again #literally crying #its not fair #disabled #chronic pain #chronic fatigue #fibromyalgia #photosensitivity #homebound #autistic adult #chronic illness

[stars-and-branches]

Fibromyalgia is so stupid like what do you mean that all the nerves in my leg are wailing because the wind from my fan is touching it. Pussy ass bitch

#throwing hands with my nervous system #fibromyalgia #fibro #fibropain #fibro flare #spoonie #chronic pain #cripple punk #c punk #chronic illness #disability #actually disabled #disabled

[myalgicencephalomyelitiscfstom]

#illness flares #pain flare #illness flare #chronic illness #chronic pain

[teathattast]

This is just what it's like to have a chronic illness

#textpost #teathattast #chronic illness #me coming out of the worst almost 2 week flare up ive had in over a year

[sickly-stitches]

"why am I feeling symptoms of my disability?" 😐

#disabled #disability #chronic illness #chronically ill #chronic pain #chronic fatigue #flare up #cpunk

[asharestupid]

I don't think people understand how bad cfs actually is. Like whenever I tell ppl a lot of them are like "oh haha yah me too" and just... No??? A few hours ago I was so tired I couldn't even move (not an exaggeration, I was literally stuck in bed, laying down without being able to even turn over) cfs is an actual thing and I hate that ppl do this with things they don't understand. Disabilities aren't adjectives.

#im still stuck in bed but now i can move a bit lol #i mean a win is a win #cfs #chronic fatigue #actually chronically ill #chronically ill #chronic pain #chronic illness #disability #actually disabled #disability awareness #physical disability #disabled #flare up #flare ups suck #i hate them #im so tired #chronic fatigue syndrome #writers on tumblr #ableism #fuck ableists #ableist bullshit