#chronic pain syndrome

[murruspins]

#chronic pain syndrome #chronically ill #chronic illness #chronic pain #chronic fatigue #ehlers danlos #hypermobile ehlers danlos #ehlers danlos life #ehlers danlos awareness #ehlers danlos problems

[asecretnerdcollection]

ouch

#chronic pain #disabled #chronic pain syndrome #chronic illness

[chronicallyuniconic]

Painscrolling

When you're in too much pain to sleep and can't do anything else except lie there, so you scroll aimlessly, hoping it all goes away

#chronic fatigue #chronic illness #chronic migraine #chronic pain #chronically ill #fibro #fibromyalgia #mental health #myalgic encephalomyelitis #chronic life #out of spoons #cripple punk #chronic fatigue syndrome #no spoons #chronic pain syndrome #joint pain #painrelief #doomscrolling #pain flare #me/cfs #me cfs #Myalgic Encephalitis #fibrosucks #nerve pain #fibrowarrior #fibro problems #chronically tired #chronically disabled #chronically sick #chronically online

[unfilteredrealities]

Had a panic attack and a meltdown the second I arrived home today from work. All my muscles tensed up so badly that after they released a while later I fell asleep but when I woke up my lower back was hurting again and my subconscious stress is back…

I’m crying on and off since I’m awake. I managed to eat something but it was very hectic and chaotic.

Rn I want to just not exist for a bit or at least step out of my meat flesh suit and not feel the chronic illness the chronic pain rn because it’s fucking me up.

#everyday echoes #unfiltered realities #chronic pain #echo rambling #echoes echo of today #unfiltered life #mental health #chronic fatigue #mental illness #neurodivergent #audhd #meltdown #panic attack #generalized anxiety disorder #burnout #food tw #chronic pain syndrome #chronic illness #cripplepunk #spoonie stuff #fibromyalgia

[cpunkwitch]

happy disability pride month

[id: image on the right is a flag with a dark grey background, a dusty rainbow diagonally going across it from the bottom left corner going up to the right and two dark grey circles in the middle of the image one smaller in the middle of the other. the mage in the middle is a green uerbox with the flag on the right and white text reading "this user wants people to understand that living with a physical disability in this world today is a waking nightmare". the image on the left is the same flag as on the right. :end id]

i want to talk about chronic pain. might make more posts similar to this one for other things but right now lets discuss chronic pain.

Chronic Pain Syndrome, aka Chronic Regional Pain Syndrome (CRPS), is a broad classification of prolonged pain typically outside injuries or outside the usual timeframe for pain caused by injuries.

there are plenty of things listed under chronic pain like arthritis, back pain, fibromyalgia and more, however not everyone realizes what they have is chronic pain.

chronic pain is not about how bad the pain is, how much it hurts nor about how consistent it is, its about how long it goes on for.

if youre feeling pain for days on end in some area, thats chronic pain if youre feeling pain for a while after every time you try to do something with a limb (ex. lifting causes pain that stays all day and even the next day, getting up in the morning causes pain that lasts etc), thats chronic pain

if the pain goes on and off but still lasts a while when its there thats still chronic pain, it doesnt have to be consistent with how it lasts but pain that lasts longer than it should is chronic pain.

i always have pain in my spine when i get up in the morning, stand too long, walk or just be on my feet too long, lift heavy things etc and that pain lasts at least till the next day but usually much longer. strained muscles and exhaustion, soreness and aches are normal after activities but if they last longer than a day that isnt normal.

if someone tells you prolonged pain after doing something even mildly strenuous on your body is normal pain, they dont know what they're talking about and likely experience chronic pain themselves and no ones told them.

chronic pain can be caused by injuries, by conditions you were born with or gained over time. i was born with a defect in my spine thats caused me back pain, jaw pain, headaches and more for years and i only found out about it rather recently.

chronic pain can cause exhaustion and even be accompanied by chronic fatigue more often than not. it can cause you to need longer breaks and rest and avoid usage of your arms or legs or avoid further strenuous activity more than an abled person would need.

often any pain that causes you to avoid usage of your body isnt normal. pain that flares up after you move, be active or arent active enough isnt normal

pain that lasts longer than it should and pain that is always there after doing something is not normal and more likely than not, a sign of chronic pain.

a lot of people wont realize they have chronic pain unless they discuss their symptoms with someone who knows about chronic pain or understands that those symptoms arent normal pain. its okay to not realize or know something about your body, thinking it was normal then being told it isnt, its better to learn these things about your body, listen to your body and accommodate it than remaining ignorant and not doing any of that.

everyone's experience of chronic pain is different, not one experience will be the same as another or fit in a box, but they all have the similarity of their pain lasting longer than it should, however that presents.

the pain doesnt have to be excrutiating, there are days where it can just be dull and manageable, times where its just sharp and stabbing meaning you need to take it easy and so on. any manner of pain no matter how manageable or fierce, lasting longer than it should, is counted for chronic pain.

your knee pain flares up and stays in pain (regardless if its gone from fire to a dull ache) for the next few days or longer? chronic pain. your wrist has been in pain for a week and this happens often? chronic pain.

it doesnt matter where on your body, pain is pain and prolonged pain is chronic.

theres ways to make it more manageable, so long as you listen to your body and care for it. ice packs or hot showers/baths and anti-inflammatory meds can bring down swelling and relax the muscles, for example. you might find different things work for you and different pain you have, thats fine! not everything suggested might work for everyone.

not everyone has the ability to see a doctor but its important to try and talk to one if you can. and its okay to change doctors if you have any issues with your current one, especially if they arent listening to you.

its important to know your bodies limits as well, and to try not to push yourself past them unless you absolutely have to. dont let anyone pressure you into doing so. pain becomes more manageable once you understand your limitations.

feel free to add on tips and stuff about your experience with chronic pain! but please note im not a doctor and cannot diagnose you all i can tell you is what your symptoms sound like to me and suggest things for you to look into.

POST IS ABOUT CHRONIC PAIN AND PHYSICAL DISABILITY, DO NOT DERAIL.

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#chronic pain #chronic illness #chronic disability #chronic pain syndrome #cps (chronic pain syndrome) #crps #chronic regional pain syndrome #disability blogging #actually disabled #disabled #cass rambles #physical disability #physically disabled #cpunk blog #cripplepunk #cripple punk #cpunk #cripplepunk blog #crip punk #cripple punk blog #crippunk #back pain #jaw pain #disability pride #disability pride month

[alice-madness-decends]

PLEASE DO NOT READ IF YOU ARE FEELING UNHAPPY OR DEPRESSED.

Sometimes I feel absolutely terrified for my future.

I turned 31 in January.

I'm physically disabled.

I live with my parents, (whom have no problems with me living them), but I'm lonely.

I fear I'll always be alone in terms of partnership.

I've had one relationship and it lasted 9 years.

I was unhappy for reasons I'd rather not fully detail, so all I shall say is that I wasn't understood or treated in the nicest of ways.

At the moment, my future will consist of assisted living.

I have no partner to love and to love me.

I fear I shall always be thus way.

Lonely hospital trips and stays.

Surgeries and other procedures with no one to visit me.

How do I make a living if I'm unable to work.

Do I really only have carers and nurses as my friends in my future?.

I have a great relationship with my family but when my parents are no longer here I worry my Sister won't always bother with me even though we've never fought once.

Sorry if this has upset anyone, I just felt the need to get this out there. I shall probably delete a bit later.

#disabled #disability #physically disabled #ehlers danlos syndrome #hypermobility #just thinking #epilepsy #chronic pain #chronic pain syndrome #heart attack survivor #chronic illness #arthritis #pots syndrome #post orthostatic tachycardia syndrome #sinus tachycardia #bronchial asthma #pcos #polycystic ovarian syndrome #depression #autism #adhd

[aetherrexic]

me: my brain fog doesn't affect me that much also me: *forgets how to spell next* nex, necst, nest

#this just happened help #i wish i was joking #fucking NECST? #the only person to look at “nex” and think wtf am i doing wrong #brain fog #4norexi4 #chronic illness #chronic migraines #chronic pain syndrome

[consider-your-potatoes-mashed]

Me: “my pain and fatigue and everything else is getting worse and doctors still don’t know what to do about it”

My mom: “ well the problem will fix itself and you’ll get better and then it won’t matter”

Me (internally yelling in my head): THATS NOT HOW CHRONIC ILLNESS/PAIN FUCKING WORKS MOM I HAVE TO USE A CANE (AND NOW CRUTCHES) TO GET AROUND OTHERWISE ID BE STUCK INSIDE

#chronic pain #chronic illness #disabled #disability #actually disabled #hypermobility #physical disability #pots #disabled community #chronic fatigue #pain #ouch #chronic pain syndrome #why is it always people saying you’ll get better when it’s really only been getting worse #let me cope with my life as it is so that I can fucking survive damnit #saying it’ll get better as in you’ll be cured doesn’t help that just minimizes what I’m going through

[crippledpunks]

coming home from work, school, or any other prolonged activity like a trip and being in a noticeable amount of pain that doesn't go away after resting is a sign that you are dealing with chronic pain, especially if you are still in pain after a full night's sleep. if you find that standing, walking, or moving around for extended periods of time causes pain that does not ease up after you are able to sit, lie down, rest or sleep, it is a sign you are dealing with chronic pain. if you find that your muscles get very fatigued after light to moderate activity and they do not feel better after rest, hydration and stretching, it is a sign you are dealing with chronic pain.

society has normalized being in pain by telling people to "just take some Tylenol". i'm tired of it. if you are experiencing something like this, you are more than likely experiencing chronic pain, and you shouldn't have to just shove a weak and ineffective for chronic pain conditions pill in your face and power through it. you deserve to listen to your body and have someone help you figure out what it is specifically you are dealing with so you can possibly be given a far more effective treatment that will actually work for you. don't listen to people who tell you to just take a tylenol/ibuprofen/etc. please see a doctor if you feel like these things apply to you, you deserve treatment, not dismissal.

#cripple punk #actually disabled #disability advocacy #disability rights #disability culture #disability problems #chronically chill #chronic pain #fibromyalgia #disabled culture #chronic pain culture #cripplepunk #cpunk #crip punk #ehlers danlos syndrome #arthritis #depression #chronic pain syndrome #chronic pain problems

[real-magnapinna-squid]

I’ve seen doctors more than I’ve seen friends since I started having chronic pain

#chronic pain #chronic illness #chronic pain syndrome #fibromyalgia

[murruspins]

TW !!!!!!!

I lost feeling in my tongue and the skin is literally peeling off. Does this happen to anyone else who looses feeling in their limbs or parts of their body 😭😭

#chronically ill #chronic illness #chronic life #chronic pain #chronic pain syndrome #chronic fatigue syndrome #chronic fatigue #ehlers danlos #hypermobile ehlers danlos #ehlers danlos life

[asecretnerdcollection]

does anyone have any good ideas for hobbies I'm stuck in bed most of the time unable to write and bored out of my mind. I crochet but can't for long as it fucks up my joints.

#chronic pain #chronic illness #disabled #chronic pain syndrome

[chronicallyuniconic]

I feel guilty because to them it's "only" chronic pain & fatigue.

It's not life threatening, even though it can get there.

It's not really treatable, just sit-withable.

It's not something like cancer, that can be cut or irradiated out of you.

It's not like I have to do anything other than sleep & try to cope with the pain levels.

I feel guilty because my illness isn't seen as valid as others.

I feel guilty because funding is so minimal and research so sparse, i am only able to lay in bed.

I feel guilty because my illness isn't seen as worth caring about and by extension, me.

I feel guilty about their positive outlook when I used to have that too, but they're getting treatment unlike me.

I feel guilty for having bad and worse-than-bad days, when I used to fully function like my friends and family.

I feel guilty because nobody gives a damn about M.E

#does this make sense

#chronic life #chronic pain #chronically ill #chronic illness #chronic fatigue #fibromyalgia #myalgic encephalomyelitis #chronic migraine #invisible disability #sorry for being depressing #no spoons #chronic pain syndrome #physical illness #life #m.e #me cfs #me/cfs #fibro #out of spoons #spoonie problems #spoonie life #disabled #disability #i feel so guilty #spoonie #chronic fatigue syndrome #just a thought #does this make any fucking sense

[theoutletonmychest]

I don't really vent about my illness anymore through essays, despite things getting worse.

But today's my 20 year anniversary of being sick enough to drop out of school.

I'm still standing. Two decades later. I was certain I would be dead by 28.

To anyone who has helped me along the way, knowingly or not... thank you.

#journal entry #spoonie #chronic illness #chronic fatigue syndrome #chronic pain #chronic pain syndrome #cfs/me

[cpunkwitch]

living with chronic pain, fatigue and cotards syndrome is a fucking trip man

#cass rambles #cotards syndrome #cotards delusion #disability blogging #cpunk #chronic pain syndrome #chronic pain #chronic fatigue #chronic fаtiguе ѕуndrоmе

[thanakite]

Untreated chronic pain that goes on for years feels like you are dying a very slow agonizing death

Like the GENEROUS age I give for my chronic pain beginning is 13, I'm very much aware that the pain started before then, but 13 is the age I give because it was definitely fully noticable regularly at that point, so that means it has been going on even longer than I state for stuff

I am currently 26 years old, which means at least half my life has been filled with increasingly worsening chronic pain, and it is still largely untreated, and the only reason I don't say completely untreated is because I smoke medical marijuana which helps a little bit

So yeah, to me this feels like an agonizingly slow crawl to death

#chronic illness #chronic pain #chronic pain syndrome #chronic illnesses #disabled #disability