#chronic regional pain syndrome | Explore Tumblr Posts and Blogs

cpunkwitch · 10 months

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happy disability pride month

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i want to talk about chronic pain. might make more posts similar to this one for other things but right now lets discuss chronic pain.

Chronic Pain Syndrome, aka Chronic Regional Pain Syndrome (CRPS), is a broad classification of prolonged pain typically outside injuries or outside the usual timeframe for pain caused by injuries.

there are plenty of things listed under chronic pain like arthritis, back pain, fibromyalgia and more, however not everyone realizes what they have is chronic pain.

chronic pain is not about how bad the pain is, how much it hurts nor about how consistent it is, its about how long it goes on for.

if youre feeling pain for days on end in some area, thats chronic pain if youre feeling pain for a while after every time you try to do something with a limb (ex. lifting causes pain that stays all day and even the next day, getting up in the morning causes pain that lasts etc), thats chronic pain

if the pain goes on and off but still lasts a while when its there thats still chronic pain, it doesnt have to be consistent with how it lasts but pain that lasts longer than it should is chronic pain.

i always have pain in my spine when i get up in the morning, stand too long, walk or just be on my feet too long, lift heavy things etc and that pain lasts at least till the next day but usually much longer. strained muscles and exhaustion, soreness and aches are normal after activities but if they last longer than a day that isnt normal.

if someone tells you prolonged pain after doing something even mildly strenuous on your body is normal pain, they dont know what they're talking about and likely experience chronic pain themselves and no ones told them.

chronic pain can be caused by injuries, by conditions you were born with or gained over time. i was born with a defect in my spine thats caused me back pain, jaw pain, headaches and more for years and i only found out about it rather recently.

chronic pain can cause exhaustion and even be accompanied by chronic fatigue more often than not. it can cause you to need longer breaks and rest and avoid usage of your arms or legs or avoid further strenuous activity more than an abled person would need.

often any pain that causes you to avoid usage of your body isnt normal. pain that flares up after you move, be active or arent active enough isnt normal

pain that lasts longer than it should and pain that is always there after doing something is not normal and more likely than not, a sign of chronic pain.

a lot of people wont realize they have chronic pain unless they discuss their symptoms with someone who knows about chronic pain or understands that those symptoms arent normal pain. its okay to not realize or know something about your body, thinking it was normal then being told it isnt, its better to learn these things about your body, listen to your body and accommodate it than remaining ignorant and not doing any of that.

everyone's experience of chronic pain is different, not one experience will be the same as another or fit in a box, but they all have the similarity of their pain lasting longer than it should, however that presents.

the pain doesnt have to be excrutiating, there are days where it can just be dull and manageable, times where its just sharp and stabbing meaning you need to take it easy and so on. any manner of pain no matter how manageable or fierce, lasting longer than it should, is counted for chronic pain.

your knee pain flares up and stays in pain (regardless if its gone from fire to a dull ache) for the next few days or longer? chronic pain. your wrist has been in pain for a week and this happens often? chronic pain.

it doesnt matter where on your body, pain is pain and prolonged pain is chronic.

theres ways to make it more manageable, so long as you listen to your body and care for it. ice packs or hot showers/baths and anti-inflammatory meds can bring down swelling and relax the muscles, for example. you might find different things work for you and different pain you have, thats fine! not everything suggested might work for everyone.

not everyone has the ability to see a doctor but its important to try and talk to one if you can. and its okay to change doctors if you have any issues with your current one, especially if they arent listening to you.

its important to know your bodies limits as well, and to try not to push yourself past them unless you absolutely have to. dont let anyone pressure you into doing so. pain becomes more manageable once you understand your limitations.

feel free to add on tips and stuff about your experience with chronic pain! but please note im not a doctor and cannot diagnose you all i can tell you is what your symptoms sound like to me and suggest things for you to look into.

POST IS ABOUT CHRONIC PAIN AND PHYSICAL DISABILITY, DO NOT DERAIL.

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pridewishes · 7 months

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♔ || GRAY WING ICONS

250x250 || crps || bordered circle

like / rb + credit + read dni if using

requested by anon !!

art by berrym00n & cloudtail !!

#gray wing #warriors #warrior cats #icons #pride edit #pride icons #crps #chronic regional pain syndrome

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ottitty · 1 year

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If you have AMPS please know that no matter where you are in your "pain journey" you are absolutely worthy of treatment and people who believe your pain is real because it is. You deserve the accomodations you need, and you're allowed to have ups and downs and flare-ups just like everyone else. You deserve to be remembered even when you enter remission and as an adult with AMPS, too.

There is such a severe lack of support for us and I'm so sorry if you ever felt lost or alone because of that.

#not-so-friendly reminder that AMPS/CRPS is rated as THE most painful chronic pain condition known #and it often partners with diseases like gastroparesis/EDS/POTS/etc/etc #so please be patient with anyone you know with AMPS/CRPS #Amplified Musculoskeletal Pain Syndrome #Chronic Regional Pain Syndrome #AMPS #CRPS #CRPS/RSD #happy first monday of november #otter talks

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orlandopainsolutions · 1 year

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How Do You Stop CRPS From Spreading?

Chronic Regional Pain Syndrome (CRPS) is a disorder in which you have chronic pain that increases with time. There are several complex regional pain syndrome therapies available to assist prevent CRPS from deteriorating, such as the Ice Method, Physical Therapy, and Injection Treatment.

Contact Details-

Call@ 407-284-1993

For more info visit:

https://www.orlandopainsolutions.com/how-do-you-stop-crps-from-spreading/

#Chronic Regional Pain Syndrome #Stop CRPS From Spreading

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sky-guard-you · 1 month

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Oof me rn

#my meme #spoonie #spoonie memes #chronic illness #chronic pain #chronically ill #crps #complex regional pain syndrome

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badxwolf · 2 months

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“None of us know for sure what’s out there. That’s why we keep looking. Keep the faith. Travel hopefully. The universe will surprise you constantly.” - The Doctor

I don’t talk about it very often on this blog but I have a rare neuropathic condition called Complex Regional Pain Syndrome. It causes me constant, debilitating full-body pain along with a host of other symptoms that affect every aspect of my life.

I got sick when I was 9 years old. I am 25 now and over the years my condition has deteriorated. I’ve developed several comorbidities which in combination have become life threatening.

In 2021 I was admitted to hospice. I was only able to make it through with the support of my friends who found new treatment options and set up a fundraiser for me. I’m beginning another round of treatment soon and with your help I will be able to afford the care I need during this lengthy recovery process.

These last few years have been the hardest of my life, but also the most hopeful. This disease has taken so much from me but I refuse to give up. I know I have a future, I just need help getting there.

You can learn more about my story here:

TV Interview // Radio Interview

You can help by donating, reblogging this post and sharing my fundraiser. Every bit helps!!!

🌟 LINK TO MY FUNDRAISER! 🌟

#fundraising #complex regional pain syndrome #chronic pain #crowdfunding #mutual aid #chronic illness #gofundme #crps #signal boost

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robyinski-screem · 1 month

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I got forearm crutches and went on a walk for the first time in like 3 years!!!! I feel so free and I am so happy, I was able to go outside and breathe!

#disabled #disability #mobility issues #mobility aid #nerve pain #nerve damage #crps #hypermobility #chronic pain #complex regional pain syndrome #nerve stabby #robynski ramble

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takemeawayintothatgoodnight · 1 month

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I'm sick of going through the same cycle again and again and again and again and again and again and

#chronic pain #crps #chronic illness #disabled #complex regional pain syndrome #disability

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crps-chronicpain-ptsd · 8 months

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Chronic pain problems •

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wishful-seeker · 8 months

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Btw if your skin is really sensitive due to crps and most fabric FEELS LIKE BEING STABBED WITH NEEDLES i highly recommend satin and silk clothes they feel like a breath of fresh air on my painful areas.

#CRPS #complex regional pain syndrome #cripple punk #physical disability #disability #chronic pain

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gold-as-hera · 1 year

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pridewishes · 1 year

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♔ || NAGITO KOMAEDA ICONS

250x250 || crps || bordered circle

like / rb + credit + read dni if using

requested by anon !!

#nagito komaeda #sdr2 #super danganronpa 2 #danganronpa #dr #icons #pride edit #pride icons #crps #chronic regional pain syndrome

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daisyprayers · 1 year

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Today is #GivingTuesday!

As most of you know I am fundraising to receive life saving ketamine infusions at a clinic in Florida to treat my Complex Regional Pain Syndrome. I cannot tell you how blessed and grateful I am to have this opportunity. There is so little research on CRPS that for years I had no hope of any treatment or symptom management. This disease ate up my life, a life which I now have the chance to get back.

To celebrate Giving Tuesday I want to share 5 things I'm excited to do after treatment:

5. Make more art - This is something that I already do, but with great difficulty. Sculpting and painting are my two favourite forms of visual art but are especially exhausting. I want to pursue my inspiration uninhibited and be able to fully express my creative vision!

4. Interact with nature - Nature has been a huge part of my mental, physical and spiritual healing. I feel most myself when I am deep in nature, but this is difficult for me because forests aren’t very wheelchair accessible. I dream of hiking, swimming, climbing, gardening, exploring this beautiful earth in every way I can.

3. Go back to school - I had to drop out of school in grade 12 because I was too sick to keep up, even with alternate education. I loved school and I love to learn. I want to finish high school and go to university to study film, visual art and writing.

2. Make movies - I am a filmmaker and have been since I first watched a movie. My love for film is my most consistent passion and driving force. I am an artist and a storyteller and I have so much to share with the world!

1. Be myself! - I want to figure out who I am and be that person with my whole heart. I got sick so young that I never had the opportunity to explore myself as an individual human being. I’ve learned so much about myself over the last year and I know there is so much of me left to discover once I am given the chance.

By supporting my fundraiser, whether through donation or sharing, you are helping me live the life I have only dreamed of. For that I am endlessly thankful.

#givingtuesday #crowdfunding #gofundme #fundraiser #signal boost #disability #chronic illness #crps #complex regional pain syndrome #crps awareness #disability support #community action #medical fundraiser #direct action #crowdfund #opheliarambles #crps warrior #please reblog

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c-catoutthebox · 6 months

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Do you ever have to talk to a doctor or someone, kind of proffesional like, and they say somthing along the lines of, you're so awfully young too and then list of everything you can't do because of pain and illness, and then you have to stop yourself from crying ......

Cause yeah me neither

#chronic illness #chronic pain #complex regional pain syndrome #crps #chronic fatigue #disabled #disability #spoonie #me #cfs #me/cfs

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not-straight-cubed · 1 year

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woman (transmasc) in stem (figured out what was causing chronic pain to freak out)

#chronic pain #crps #complex regional pain syndrome #chronically ill

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crpsdesign · 6 months

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