#fibrofog

[myalgicencephalomyelitiscfstom]

#BrainFog #mecfs #LongCovid #fibrofog #chronic illness

[sralargada]

Sobrevivendo

Me alevanto com a sede de viver

Mas caio sem saber o que fazer

Me falta força pra levantar

Será que Deus finalmente vai me levar?

Fraca!

Sinto as pernas faiar

Meu choro gritar

Minha mente arriar

Ninguém pra me ajudar

Saber ser sozinha

Há de bastar

Fraca!

Tento me rastejar

A força vejo faltar

Peço novamente a nossa Sinhora:

Me leve simbora, agora é a hora!

Fraca!

A dor grita

Ela é profunda demais

Será que vou aguentar

Ou mais uma vez vou faiar?

Fraca!

A visão apaga

Arriegua!

Que diacho de batalha

Que toda vez me maltrata

Fraca!

Acordo desnorteada

Onde está a fé que me foi dada?

Onde está a força que me foi tirada?

Peso!

Um herói sem capa

Aparece a me ajudar

Será se é anjo de Deus

Ou um sonho daqueles da morte

Doente!

Ah a morte... nunca temi

Sempre a vi como uma amiga

Pode ser egoísta

Mas é a verdade de quem sofre muito nessa vida

Fraca!

Tun tun tun bate o coração

Bateu demais

Que quase parou

Novamente pedi a Deus

e a nossa Sinhora aquele favor

Fraca!

Mais um teste, não vejo nada

A mente grita

Meu corpo falha

Peso!

Vala meu pai

Que dor é essa

Que gente é essa

Todo mundo de branco

Agora eu fui?

Peso!

Parece que ainda não é hora

De ir simbora ao lado de nossa Sinhora e nosso Deus maió

Doente!

Recebo uma benção

De uma vózinha da voz serena

Ela traz a paz

Pra essa alma aperriada

Doente!

Peço perdão por querer ir

Pelas pessoas que me amam

Que quero deixar

Se soubessem a minha dor

Não me deixariam continuar

Fraca!

Sofrendo nessa luta

Esperando a cura

De algo que não vai chegar

Fraca!

Asa Branca trouxe uma esperança

Um moço da capa branca

Diz trazer uma nova chance

Doente!

De acalmar essa mente

E as dores desse corpo

Que de tanto sofrer

Perdeu as forças

Pra continuar a tentar

Fraca!

Pode ser o último suspiro

O último teste

Pra ver se volto a respirar

Mesmo sob aparelhos

Estou tentando me salvar

Peso!

Finalizo esse cordel

Com esperança de ir para o céu

Quando finalmente a hora chegar

Estarei pronta para meu novo lar.

#fibrofog #ansiedad #ansiety #depressiv #cordel #literatura #prosa #poem a day #poemas #poetry

[sickandsarcastic]

Hey y'all I have a fibromyalgia and trauma support server!

It's an anti self diagnosis server since I used to be apart of a server where some kids were faking having self diagnosed trauma disorders (but only the fun parts) that I actually got diagnosed with because of a struggle with CSA

I also have PTSD and post resources for trauma and fibro on my server!

Here's the link

#fibromyalgia #fibrofog #fibrowarrior #ptsdsurvivor #childhood ptsd #ptsdwarrior #chronic illness #chronically ill #discord chat #discord server #chronic pain #chronic fatigue #trauma #support #dank memes #adorable pets #ptsd #living with ptsd #fibro #gaming #anti self diagnosis #anti self dx

[strugglingtoknowledge]

Set the personal goal to complete 5 crowns a day on the Spanish Duolingo tree that I restarted. I need to work on building consistency and finding a schedule that works with my adhd hamster brain, before I can commit to going back to college. Today I completed: Intro, Phrases, Travel, Restaurant, and Family to crown level 1. I plan on completing the entire tree before going back to top off the skills. According to Duolingo, I learned 125 words today. Let’s see how many are retained in my next fibro fog. 

#spanish duolingo #duolingo #learning spanish #please finish the tree this time #adhd brain #actuallyadhd #fibromyalgia #fibrofog #5 crowns a day keeps the owl away?

[thedorkdisorder]

Disheartened but Determined.

Trying hard to keep on pushing through my limitations. #mentalhealth #mentalhealthawareness #blog #community #artcommunity #determination

Really struggling at the moment and admittedly, feeling really lost. Since starting this current project, I have had many people offer me ideas, options and avenues I can try and take that it is getting rather overwhelming. I know everyone is just trying to help me succeed, for which I am very grateful but it’s confusing me and will make me shut down if I don’t get a grip of things and make some…

View On WordPress

#anxiety #artist #blogger #chronic fatigue #community #depression #fibrofog #Mental Health

[snowhawk1976]

#truth #fibromyalgia #fibrofog #mentalhealth (at Chicago, Illinois) https://www.instagram.com/p/CkoyK-ruWPW/?igshid=NGJjMDIxMWI=

#truth #fibromyalgia #fibrofog #mentalhealth

[hawkelf]

Hey. Anybody who’s known me since waaaaaay back. Y’know, that non-LJ site.

a) do you know how to get in touch with boz4pm?

b) do you know if there’s a backup somewhere of boz’s TAD stories?

c) I should not bind C*l*br*ian into a physical book even for the lulz. Riiiiight?

#i would tag y'all but too many of you are STILL CHANGING YOUR USERNAMES #I can recognize you on sight but not pull up ur urls in my brainbox #that sounded creepy #HI I MISS YOU BTW #I respect all the incognitoness but gd trying to just @ ppl or chat is hard #I have too much fibrofog for that

[fibro-memes]

#brainfog #fibrofog

#fibromyalgia #chronic illness #chronic pain #chronic fatigue #spoonie #fibro #chronically ill #invisible illness #brain fog

[agena87]

Since @pralinesims basically tagged everyone (also, I'm team coke zero - but an off-brand coke, since real Coca-Cola makes me sick in the stomach :()

rules: tag 9 people you would like to get to know/catch up with

last song: "Hollywood" by Lewis Capaldi

last show: I haven't watched anything for a few weeks, but I think it was either "Mad For Each Other" or "Mr Queen"

currently watching: Nothing (though I intend on watching Lewis Capaldi How I'm Feeling Now later today)

currently reading: nothing, the fibrofog is too strong to understand anything

current obsession: making renders

Um, I always feel a bit strange tagging people (my sweet fear of being a nuisance) but here we are: @ezra-trait @void-imp @helltrait @woosteru @igotsnothing @minimooberry @salemssimblr @nooboosim @tortitudesim. Feel free to ignore me if you don't wanna play or have already done it 💛💛💛

#tag game

[radgritty]

Anybody else got Fibromyalgia? What do you take for pain? How do you combat fibrofog?

[myalgicencephalomyelitiscfstom]

#brain fog #foggy brain #Brainfog #fibrofog #cognitive problems

[sralargada]

#fibrofog #fibromialgia #poem a day

[renee-writer]

WHAT YOU SHOULD KNOW ABOUT ME

1. My pain - My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I can not work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.

2. My fatigue - I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can't. Please do not take this personally. If you saw me shopping in the mall yesterday, but I can't help you with yard work today, it isn't because I don't want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

3. My forgetfulness - Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don't have any short-term memory at all.

4. My clumsiness - If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

5. My sensitivities - I just can't stand it! "It" could be any number of things: bright sunlight, loud or high-pitched noises, odors. FMS has been called the "aggravating everything disorder." So don't make me open the drapes or listen to your child scream. I really can't stand it.

6. My intolerance - I can't stand heat, either. Or humidity. If I am a man, I sweat...profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don't feel compelled to point this shortcoming out to me. I know. And don't be surprised if I shake uncontrollably when it's cold. I don't tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

7. My depression - Yes, there are days when I would rather stay in bed or in the house or die. I have lost count of how many of Dr. Kevorkian's patients suffered from FMS as well as other related illnesses. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

8. My stress - My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I'm not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

9. My weight - I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My appestat is broken, and nobody can tell me how to fix it.

10. My need for therapy - If I get a massage every week, don't envy me. My massage is not your massage. Consider how a massage would feel if that charley horse you had in your leg last week was all over your body. Massaging it out was very painful, but it had to be done. My body is knot-filled. If I can stand the pain, regular massage can help, at least temporarily.

11. My good days - If you see me smiling and functioning normally, don't assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

12. My uniqueness - Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else.

I hope that this helps you understand me, but if you still doubt my pain, your local bookstore, library and the internet have many good books and articles on fibromyalgia.

Author's note: This letter is based on communications with people throughout the world, males and females, who suffer from fibromyalgia. It does not represent any one of the over 10,000,000 people with FMS, but it can help the healthy person understand how devastating this illness can be. Please do not take these people and their pain lightly. You wouldn't want to spend even a day in their shoes...or their bodies.

I thought this would be good to share!

#fibro issues #fibromyalgia #fibrosucks

[charlattehotte]

man i thought fibrofog was the worst but the absolute brainfog that comes with UC/uc meds is actually worse i physically feel my brain not working

#:3c #ibd

[katruna]

Fibromyalgia in a nutshell for people that don't understand it ...

1. My pain - My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I can not work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.

2. My fatigue - I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can't. Please do not take this personally. If you saw me shopping yesterday, but I can't help you with house/garden work today, it isn't because I don't want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

3. My forgetfulness - Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don't have any short-term memory at all.

4. My clumsiness - If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

5. My sensitivities - I just can't stand it! "It" could be any number of things: bright sunlight, loud or high-pitched noises, odors. FMS has been called the "aggravating everything disorder." So don't make me open the curtains or listen to your child scream. I really can't stand it.

6. My intolerance - I can't stand heat, either. Or humidity. If I am a man, I sweat...profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don't feel compelled to point this shortcoming out to me. I know. And don't be surprised if I shake uncontrollably when it's cold. I don't tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

7. My depression - Yes, there are days when I would rather stay in bed or in the house. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

8. My stress - My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I'm not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

9. My weight - I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My appestat is broken, and nobody can tell me how to fix it.

10. My good days - If you see me smiling and functioning normally, don't assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

11. My uniqueness - Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else.

Please put this on your wall to help others understand better fibromyalgia symptoms and effects 💜💜💜“

[karen-carlisle-off-the-artboard]

February Meant There's More Tests...

https://karenjcarlisle.com/2023/03/05/february-meant-theres-more-tests/

Well, 2023 is nothing, if not, eventful.

During my breast cancer scare (November 2022 to January 2023), I also found a lump on my left hand. I waited until I’d had had my surgery and things were less stressful to have it looked at, as I wasn’t particulary worried about this one. I visited the GP and he ordered an ultrasound (Always get any new lump checked!)

Wednesday was scan day.

Again, the staff were wonderful and supportive. The technician (do radiographers do ultrasounds?) had the results checked by a doctor-on-staff who came back with a diagnosis of Dupuytren’s Contracture or Palmer Fibromatosis… (possibly related to the Focal Fibromatosis – not cancer! I’m still excited by that – removed from the left breast?)

Dupuytren’s Contracture is a thickening of the fascia (fibrous layer under the skin), and is benign, but progressive (thank goodness it’s in my left hand), which causes one or more fingers (usually ring and little finger) to curl towards the hand. Various sources suggest it’s a chronic inflammatory condition, possible a T-cell-mediated autoimmune disorder, related to rhematoid(?) arthritis, and possibly heriditary (so I’m asking around the family to confirm if Grandma had it as I don’t drink or smoke, or have other possible related causes).

You can see the two raised lines of thickening on my palm here.

This all explains why I’ve had some issues with picking up things with my left hand recently. I’d thought it was migraine (vertigo and depth perception issues) or fibromyalgia (fibrofog and chronic pain)- related.

So… I’ve made an appointment with my to GP to discuss my options going ahead. Research says it can affect doing tasks and therefore work options in the future. At least it’s my left hand, so I can still write!

  (This post was posted as an early sneak peek for Patreon supporters on 23rd Feb)

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