Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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I know you probably abandoned this blog. But I want to say your writing has helped me. I have always had trouble with self-confidence, but I read your work, and I started to try and put myself out there more.
Oh...oooh..this made me incredibly happy. Thank you for taking the time to send this to me. I'm really touched, and happy my writing helped you in any way :). And I haven't abandoned this blog, I just got a little...busy with this :
Hehe.
I love you all. I will be back soon.
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dunmeshi modern labru au where Kabru wants to try fromsoft games to understand why they’re so popular.
he gives elden ring a shot and surprise he gets fucking rolled. can’t get past tree sentinel, tries to fight Margit at level 15, put all his stats in intelligence and not enough dex, hasn’t even found a proper staff, picked warrior as his starting class.
he’s ready to uninstall but he paid full price for this game, he’s at least gonna defeat one boss goddammit. so he tries summoning players for aid and just his luck, he summons cooperator WolfChimeraWyvern.
and this cooperator is SO GOOD, he solos Margit without getting hit, and Kabru is just. in awe. so he adds him as a friend.
and that’s how he meets Laios, expert on all things fromsoft (has literally read every item description, knows the most obscure lore by heart, don’t ask him how many hours he’s played, he has all the platinums)
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"Don't grieve for me when I'm go—" listen up here asshole. If you wanted to tell me how to feel about your death, you shoulda fucking stuck around. You're not here so you don't get a say anymore. You're not the one who has to deal with the emotional and logistical consequences of your passing. You are the missing piece in my life now, so you have (had) neither the knowledge nor ability to predict the best way for me to cope with it. And frankly, yes, I would have felt better if there'd been some kind of massive event where I could join everyone else grieving your loss and we could say to each other the awful hollow things that can't make it okay but can make it better, and then we could go get drunk about how much we missed you. So frankly, go fuck yourself. I miss you like hell. Hopefully you can take this criticism on board the next time you die. xo.
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