#hidradenitis

[squishmelo]

Getting a new diagnosis always sucks, even when you’ve suspected it for a while. But especially when no doctor is picking up your treatment and you’re just diagnosed and released by the doctor, like youre a rare species of newt a field scientist tagged and put back in the bog, washing their hands thoroughly after dropping you off 100ft from where you started. Close enough. Added to the document. Goodbye.

#hidradenitis suppurativa #hidradenitis #spoonie #chronic illness #disabled #this is a post #hey maybe next time YOU HELP ME YES??? #PERHAPS NEXT TIME YOU WRITE DOWN THE LITTLE NEWTS NAME AND THEN GIVE THE LITTLE NEWT A NEWT SPECIALIST #GIVE THE NEWT A DERMATOLOGIST CHALLENGE

[pistachio-2]

its me i am friend

#hidradenitis suppurativa #hidradenitis

[navelgazed]

Mmm the hs cysts in my neck are having a severe time

#it's fun to try to sleep when moving your neck at all hurts like nobody's business #!Azura post #hidradenitis

[snowieluna]

Dermatologist put me on spironolactone for my hidradenitis. Took my first dose today and I've been kinda dizzy, but I guess it could be worse. I'm dehydrated by default, so maybe that's why the excessive peeing hasn't kicked in? I've had a can of ice tea, a small bottle of water, and a can of Coke today.

#spironolactone #hidradenitis

[thatredlady]

my hs these days has been hitting me really hard. it just feels like a whole throwback to last November when I discovered about it. I've been feeling so much stressed out and I think that's why I've been feeling so much pain with my hs too. I don't know what to do :(

#hidradenitis suppurativa #hidradenitis #hs #chronically ill #chronic pain #chronic illness #chronic disease

[bidhuan]

FDA Menerima sBLA untuk Bimekizumab-bkzx dalam Pengobatan Hidradenitis Supurativa

Majalah Farmasetika – Bimekizumab-bkzx (Bimzelx; Union Chimique Belge) adalah antibodi monoklonal imunoglobulin G1 manusia yang dihumanisasi yang menghambat interleukin (IL)-17A dan IL-17F. FDA menerima aplikasi lisensi biologis tambahan (sBLA) untuk bimekizumab-bkzx (Bimzelx; Union Chimique Belge) untuk pengobatan hidradenitis supurativa (HS) sedang hingga parah pada orang dewasa, menurut rilis…

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#FDA #Hidradenitis #Supurativa

[lady0mandy]

I feel like a fat oaf, waddling around oozing blood and pus. The medications I need are there, but insurance won't let me have them. They just dangle them in front of my face and then transfer me to another team member.

Do you know how frustrating it is to be transferred again and again just for them to send you back to the startup menu?

#hidradenitis suppurativa #hidradenitis

[smoov-criminal]

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

#disability pride month #disability pride #cpunk #cripple punk #multiple sclerosis #marfan syndrome #cerebral palsy #bells palsy #hidradenitis suppurativa #cauda equina syndrome #mixed connective tissue disorder #hyperandrenergic pots #eds #ehlers danlos syndrome #stickler syndrome #mitochondrial disease #cystic fibrosis #sickle cell disease #myasthenia gravis #post-cholecystectomy syndrome #swan #syndrome without a name

[bfmkketurs]

Romi Rain gives a hot blowjob Gay garganta profunda Britney Amber Gets Fucked Hard good African fuck between noon and two BANGBROS - Incredible PAWG Kelsi Monroe Taking Anal From Sean Lawless Latina Jessi walks in to sell a pet and ends up fucked hard Minha colega tocando siririca pra mim Las Vegas milf road head Spitroasted teen screwed by seniors outdoors Butt plugged goth babe Kendra Spade ANAL fucked

#mulse #disturbedly #aitchpiece #destain #mumus #storyboarding #uncrates #penthemimer #croisee #bitter-enderism #leaf-eating #Christianopaganism #misaccent #tssm #hidradenitis #noneditor #mammals #deedbox #polyphagic #commoved

[kaijugifs]

#godzilla #gojira #shin gojira #shin godzilla #hidradenitis suppurativa

[420spoons]

Meme painting of a woman adorned in royal clothing and jewels. The text over the image reads, ‘Disabled people, watching all of the accommodations that were created because of COVID get ripped away as part of able-bodied peoples’ “attempt to get back to normal.”

#Spoonie #accomodation #disabilties #chronic inflammation #meme #chronic illnesses #Covid #ableism #mecfs #hidradenitis suppurativa #rare disease #Spoonie strong #sickandtired #neisvoid #sad memes #rheumarthritis #pots #sepsis #disability #actually mentally ill #actually neurodiverse #cancer #chemo #truth

[navelgazed]

"Oh no did I get a period--oh no lol it's just an open wound down there, phew"

#blood tw #tmi #hidradenitis

[hannahcrazyhawk]

We live in a world where chronically ill and disabled humans seeking help are treated like criminals. No one should feel like they need lawyers to litigate for their bodies and minds.

#chronic illness #spoonie #disability #sick and tired #neisvoid #human rights #hidradenitis suppurativa #eds zebra #autoimmune #medical trauma #rheumarthritis #crohn's disease #cfsme #chronic pain

[snarp]

May have just figured out why the lesions have been getting worse! I got the new bottle in early December.

TL;DR, sulfate-free cleansers tend to require more scrubbing for effective cleaning/rinsing. This isn't good for people with skin conditions that are aggravated by friction. Which is, practically-speaking, most people with skin conditions!

And since this cleanser is marketed towards people with "Itchy, Dry Skin" (major symptom of eczema), reviews since the formula change in November have been almost 100% negative. Most reviewers aren't sure why it's now irritating their skin, but they know that it is.

(Notably, in my case, hidradenitis suppurativa-affected hair follicles can easily become inflamed to the size of a thumbnail if the hair gets tugged on too hard. However, since HS also affects the skin's ability to fight off infection, failing to clean the area well enough is dangerous, too! Sulfate-free products are trying to kill me.)

#aveeno #hidradenitis suppurativa #eczema #dermatology #medical cw #unsanitary cw

[toastbite]

Finally bought a new @mayakern skirt !!!!

It's so pretty and the material feels amazing! I ordered a C and realized when trying it on that i should've sized down to a size B but I'm not bothered by it because I look SO BEAUTIFUL!!!

PS ignore my messed up elbows, I've had some effed up skin problems my whole life ✌️😎

#maya kern #skirts #size inclusive #size inclusive fashion #fashion #damn im kinda hot tho wtf #to add to the skin issues that very fucked up elbow is on the same arm as my very very bad scars on my armpit from my skin disease #yall heard of hidradenitis suppurativa? #that shit SUCKS lmao #cysts on my armpits AND my ovaries??? wow im so lucky LMAO

[holyship-im30now]

I know alot of people have problems with Prednisone, but for me it's been such a miracle. It's calming my HS flare, and my chronic fatigue is GONE. I haven't felt this good in YEARS. I'm only on it for one more week and I'm so sad that I have to go back to the way things were...

#personal #prednisone #spoonie #chronic fatigue #hidradenitis suppurativa