mother: stay up until midnight so you can drive me home after a party
me: ok
mother, at 11:20pm: nvm i got a ride
me: ???
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my heart is a crime scene that has been put to the torch.
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“I’m gonna go to bed”
Both my ovaries: would you like some debilitating cyst pain in this exact moment?
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no more hip arthritis all i want in the whole world is to sit in a hot tub
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So did my soap cosplay on Friday- y’all the photoshoot looks so good oh my god. But- don’t wear tactical gear for long periods of time if you’re not used to it. (Not pictured my bruised ribs and hips)
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RATE MY FIT (BACK BRACE NOT PICTURED)
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I want a heart shaped lollipop so badly.
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i've always tried to control things
in the end thats what controls me
- NF
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I stubbed my toe on the huge thing of water bottles. Today I will commit acts of terrorism in this state
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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We were so close to smoking not being cool anymore. We were so close. Then they flavored it mango and now it's taboo to criticize it anymore. People don't ask if they're allowed to vape indoors, they aren't considerate of people who may have health problems that are triggered by the chemicals or if it just bothers them, people don't care that they're supporting an industry built on corruption and greed, they can't see it draining their pockets and much less their health. We were so close to smoking not being cool anymore.
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I've been trying to crack my back all weekend and i finally did it and it was not enough i need more
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