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May is Celiac Awareness Month!
Celiac is a serious autoimmune disease
It is not a food allergy, diet, or fad
It’s an immune reaction to gluten, a protein found in wheat, barley, and rye
Oats can be triggering as well, since they are typically grown next to wheat
Celiac causes physical and sometimes permanent harm to the intestines
Celiac is a genetic disorder
It is also known as "coeliac”
1 in 133 Americans (about 1% of the population) have celiac disease.
83% of people are undiagnosed or misdiagnosed
The average time to get a correct diagnosis is 6-10 years
There is no cure for celiac
The only existing treatment is a strict 100% gluten free diet
Eating gluten free is a life-long, difficult, expensive commitment
Celiac Disease Foundation and Johns Hopkins have more in-depth articles on Celiac for more information
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iam1withthepeggy · 8 months
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Reblog if you or your friend/family member has celiac. I have celiac, and it’s like so unknown, so I just want there to be more recognition for it out there.
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lifblogs · 1 year
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Anyone else out there who can’t get admitted for psychiatric help because of food allergies? Hospitals have usually helped me in the past, but now with lactose intolerance on top of celiac disease (and it’s celiac awareness month too, would you look at that?) I really cannot be hospitalized. I will get sick. There is no guarantee that I won’t. So as a merge of mental health awareness month and celiac awareness month, I’m gonna say that hospitals should be equipped to safely treat patients with severe food allergies and intolerances. It is not fair that I—and surely other people—miss out on this level of care because of dietary restrictions. I should be allowed to receive intensive treatment when I need it and feel safe with the food I am putting in my body.
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whattheell · 14 hours
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Happy Celiac Disease/Ehlers-Danlos Syndrome awareness month to any of y'all who celebrate (and other awareness months too!)
I have no idea if anyone would be interested at all, but I will crappily edit an awareness ribbon of your choice (like below) to any pfp if anyone would like one
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the-sky-queen · 6 months
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Update: Apparently I do have symptoms
Gonna be a bit of a long post. We need to spread Celiac awareness.
Also, trigger warning for throwing up, sickness and the like.
So, yesterday, I was at my YSA Ward linger longer. We were having pumpkin pie, cookies, and vanilla ice cream. The food people in my ward are aware of my Celiac. I'm pretty sure there's at least one other person in the ward who's GF as well. Yesterday, they offered a pumpkin pie without crust, and GF chocoate chip cookies. The ice cream was okay by default.
I grabbed one of each since I hadn't had lunch yet and sat down to eat. Only after I had finished everything did one of the food people come over and tell me that they had just realized that the cookies weren't actually GF. I was a little concerned, but I shrugged it of. After all, I've been asymptomatic so far.
Fast forward to later that day. I was taking a midterm online and I started feeling absolutely horrible. I was hot, I could barely think, and my stomach wasn't faring much better. Somehow, I managed to get the test done. I grabbed the trashcan and immediately threw up.
I spent the next several hours sitting by the toilet and taking it easy. It didn't really take that long for me to start feeling better, but I did have a bit of a lingering feeling of crumminess. It was not fun.
Now, let me make it clear that I DO NOT blame my ward for glutening me. The cookie package said it was things like lactose free and all kinds of other stuff. I can't blame them for assuming. This has however, made me more aware of what it means to have Celiac. I didn't think I had symptoms, but apparently I do. And it wasn't fun.
SO. If you EVER find yourself in a position where you will be providing food for a Celiac person or even someone with allergies in general, I am BEGGING you to get that person involved in the food planning process. You haven't been affected by this and you are not aware of what is and isn't safe for us. You don't know how to read the labels. But we do. We've got the experience and we know what to get. So please get us involved. We would much rather do a bit of extra work to ensure we are accommodated for and safe than to risk getting exposed and sick.
Stay safe everyone. Thank you for reading.
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certifiedceliac · 1 year
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MAJOR GLUTEN-FREE FOOD RECALL 5/4/23
There has been a massive (literally millions of pounds) recall on Prosante (owned by Cargill) soy flour used in manufacturing gluten free foods due to the potential to contain more than 20ppm of gluten. This recall affects several countries, including the United States, United Kingdom, Canada, Mexico, Chile, Costa Rica, and Guatemela.
This recall is relatively new information, and the FDA hasn't listed a press release for this event yet (for now it only shows up on their weekly enforcement report, probably because it was a firm-initiated recall), but if the figures are accurate, this could have far-reaching effects across gluten free food products. A glance at Cargill's website shows this flour is mostly used in meat alternatives, but be wary of products with soy flour included until we know more.
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cjrights · 5 hours
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happy celiac awareness month ₊˚ෆ
celiac as defined by google: “Celiac disease is a serious autoimmune disease that occurs in genetically predisposed people where the ingestion of gluten leads to damage in the small intestine. It is estimated to affect 1 in 100 people worldwide, but only about 30% are properly diagnosed.”
although my journey has been long and extremely difficult, this disease made me who i am today. i think its so important to spread awareness because some people don’t know celiac exists. some people suffer in silence. instead of undermining people’s experiences, i want to bring light to them!! i was diagnosed when i was younger, so this is what ive known for a long time. there have been days where i cannot get out of bed because i got glutened, days where i have hives and my skin aches to live in, and days where my stomach hurts so bad i think im going to explode.
but i love my body and everything it does for me, disease and all!! i know its doing its best. i love you so so much too
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bluesey-182 · 2 months
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the amount of people I've encountered who think that "organic" and "gluten free" are the same thing would almost be funny, if i didn't have celiac and therefore have to worry that someone's good intentions were going to make me violently ill bc they made something with organic but not gluten free ingredients
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newtness532 · 5 months
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im so annoyed with everything today, i think i need some tasty food and a million hours of sleep and then I'll be back to normal
#the teacher at the first class today was so dibsjdhdhdhdhsgs 😫#like she was teaching us things that are like unrelated to the class that shes teaching so idek why she was teaching it#but also its things that we have been learning since the 1st semester and we've done them in at least 10 classes and she was acting like#this was the 1st time we were hearing about it#like oh yeah we're on the 7th semester of studying nutrition but no one bothered to tell us how many calories are in a gram of fat#and she gave us homework 'to see if we know this' like#oh yes i can make a meal plan for a child with crohns or cystic fibrosis or celiac disease or everything else we've done this semester and#all the other semesters but i guess i cant tell you what micronutrients are in this one breakfast meal#like fuck off and stick to what you're supposed to be teaching#anyway i know im getting more annoyed than i should but she was just even more annoying than usual today#like she interrupted the lesson every 5 minutes to yell at someome to be quiet i wasnt even aware there were people talking until she yelled#anyway#also my new earphones aren't working well idk why ive definitely not been mistreating them that much for them to break in less than a month#like i had my old pair for at least 4 years until the broke and i dont think the wire got cut in them like the sound was coming out weird#but there was sound coming out. in the new ones you need to hold them in a very specific angle for sound to come out#and like im careful with how i put them away so what is up with them?#my theory is that they make wired earphones shitty on purpose so that you will spend a lot of money and buy wireless#also we had said from Tuesday that we would hang out with my friends today but i guess they forgot or idk and they made other plans#(to go home and sleep) and during the weekend the one friend wont be here and next week my family will be here so we probably wont hang out#again until next year and we have exams almost immediately so we wont be hanging out much then either#also my period is supposed to come soon and i hope that it will either come today or it will wait until after Christmas#ideally it will never come ever again but we cant always get what we want#anyway im gonna go eat the rest of my μεσογειακό and go take a nap#jo says stuff#personal ramblings
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valravn72 · 11 months
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STOP JOKING ABOUT GLUTEN FREE DIETS!
Seriously! This is not a joke! I have a loved one with lupus-spectrum celiac disease and the more you spread the idea that people who request gluten free diets are just privileged hippies the more you are endangering their immune systems! That shit has permanent damage!
There are some people who eat gluten free for the diet but there are also plenty of people who do it to survive. People who take these sort of jokes about it seriously stop being careful around immunocompromised people who are trying to avoid wheat because they think that they’re being dramatic and can seriously end up permanently harming their bodies!
Please rb this if you can for awareness the less people making these jokes the better
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consolecadet · 1 year
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So far my nutritionist appointments have mostly been them being like 'sounds like you already know what to do, you just need some practice and to be patient, which you also already know to do'
Cool, I guess?
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twodragonspirits · 2 years
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The irony is that today is Celiac Awareness Day, too… (5/16)
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sickzombi · 2 years
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does anyone know where to start w/ asking for reasonable accommodations???
i am going to need to start the process but its so hard ;-; hallpp
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lifblogs · 1 year
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For Celiac Awareness I’m going to be honest and gross.
Celiac is a very serious illness, and it’s not some fad. It’s something that needs to be taken seriously, and there are severe consequences if it isn’t (and I wish it was easier for there to be at least monetary or career consequences for the people that cause these issues). If I have gluten (a protein in wheat, barley, and rye) it’s not just a sort of bad day or a bad and hurried trip to the bathroom. No, it is violent, it is everything in me coming out both ends till I’m bleeding everywhere, till I pass out, and probably till death if not for emergency medical intervention. So great, I made it to the hospital, they got my GI system under control except all I can handle are popsicles and ginger ale, what’s next? A mini coma. That’s right, fam. I’m talking sleeping for a few days without waking up or being able to wake up. And then I can’t consume solids or anything with much color for at least a week. After that is six months of fatigue and malnutrition.
Celiac is serious. It’s not a joke. It’s not a fad. This has life-ruining consequences, and I want people to take it seriously. And yes, people with celiac are allowed to snap at you if you’re about to cross-contaminate their food and it’s the fastest way to get your attention. Sometimes there isn’t time to be polite and incredibly informative. I bring this up because I’ve had family members call me rude for this, and have seen plenty of food workers complain about it. If you’re about to make a mistake that’ll get me sick and will make me not be able to eat anything or you’ll have to start my meal all over again then I damn will be as “rude” as I like to get your attention. Being SAFE is more important than me being “polite.”
I wish I could say something to the FDA about Celiac because less than 20 ppm of gluten in a food IS TOO HIGH. I can get sick from 19 ppm. This is not okay.
I also wish I could extend my reach and hatred for people who don’t care as far as the companies that certify that certain foods are safe with people for celiac to eat, because as I learned a few months ago they will actually certify cross-contaminated foods. There is no law saying they can’t do this, and I’m apalled.
Also, Schär, having wheat with “the gluten taken out” in your products makes people sick, so congrats on that.
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drhitendrakgarg · 6 days
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Celiac Disease: What It Is, Symptoms, Causes, and Tips for a Gluten-Free Lifestyle
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Do you remember how you became sick after eating bread or pasta? It might happen that you are questioning if it is gluten tolerance or something bigger. Celiac disease is a health condition that belongs to the class of gluten-triggered patterns that contain gluten, a particular protein found in wheat, rye, and rye. Different from a pain or an allergy, celiac disease kicks off your immune system which then damages your intestine. First, we will attempt to understand what celiac disease is, the symptoms of it, as well as the causes and the factors involved in dealing with this complex ailment.
What is Celiac Disease?
Think of your small intestine as a net used to sieve your digested food for nutrients with each finger being a finger on this net. Celiac disease
To Know More Read The Full Blog :https://drhitendrakgarg.com/celiac-disease-tips-to-gluten-free-lifestyle
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