#cognitive impairment

[gayvampyr]

this shouldn’t have to be said but if someone who struggles with cognitive issues due to things such as fibro fog, autism or adhd etc has difficulty speaking or getting their point across, do not point it out. im talking about stuttering, misremembering words and definitions, using the wrong words in place of other ones, mixing up words or merging them together. you are allowed to help us find the right word but wait for us to ask first and give us a chance to find it ourselves. blurting out random words causes a lot more confusion for us and we often end up losing our train of thought.

also, in a similar vein, we may pause to think about what we’re going to say next, and it’s important that you not interrupt. for me, my train of thought is already on the verge of derailing. if i stop talking mid-sentence, give me a second to find my words and sort out my jumbled mess of a brain. don’t start speaking like we’ve finished our sentence and please don’t just abandon the conversation. it’s very frustrating, especially when you make jokes or tease us for forgetting words or misspeaking and it makes it much harder for us to get to our point. and tbh it’s embarrassing and it sucks because our brains aren’t doing what we want or need them to do and we don’t need a reminder every time it happens.

like the jokes might seem harmless or lighthearted but it hurts nonetheless because we are constantly in a struggle against our own brains. it seems like it should be such an obvious thing, not to tease or make fun of someone with cognitive issues, but so many people do it, including some of you who don’t think you do— particularly if you don’t think the reason behind it is a disability. it’s not the same as joking about your friend making a typo in the group chat. those are minor slip-ups and they happen to everyone. for a lot of us, they’re constant. we’re almost always trying to get our brains to work with us rather than against us and pointing it out only makes it that much harder to concentrate on actually articulating our thoughts instead of focusing purely on avoiding misspeaking so you won’t point it out again. obviously this will vary from person to person, not everyone with these symptoms feels the same way i do, but i think it’s a good rule of thumb to just. not interrupt and/or draw unnecessary/unwanted attention to our speech problems. i don’t think it’s too much to ask.

#disabled #disability #spoonie #chronic illness #cognitive impairment #fibromyalgia #fibro fog #adhd #autism #neurodivergent #text post #top posts #3k #4k #5k

[onironerd]

If you want to participate in science in a fun and low effort way, have a look at the Neureka app. It was developed by the Global Brain Institute of the Trinity College of Dublin, and combines mobile technology with citizen science to help create a clearer picture of what keeps the brain healthy. You play games and track your mood over time, and the data gathered helps researchers figure out new ways to prevent and combat mental health problems and dementia.

It's a very well developed app, the games are fun little brain teasers, and it doesn't take much time commitment to take part. I'd really appreciate it if people would check it out. I live with a parent with Alzheimer's and have issues with cognition myself, so this project is obviously close to my heart. But mental health problems and cognitive degeneration later in life are issues that could affect anyone, and the numbers of those affected are steadily on the rise. More awareness and research are sorely needed.

You can read more about Neureka on their website, and you can download the app on the app store.

Become a citizen scientist! Signal boost this if you can! The more people participate, the more data we can gather, and the better we can use those insights to help improve lives.

#Neureka #Science #Neuroscience #Signal boost #Mobile app #Citizen science #Dementia #Mental health #alzheimers #cognitive impairment #Prevention #Awareness

[hussyknee]

Fucking hate how in stories (both mainstream media and fanfic) someone nearly dies or is thought lost, but then turns up changed with brain damage or some kind of disability. And their family and friends, instead of being happy the person they loved is alive and returned to them, they just start mourning the version of them they knew. "Please God let them live!" but then "No wait not like that". And then it's all about the tragedy of them "having to see" the one they supposedly loved changed and impaired, instead of gratitude for their life or focus on their thoughts and feelings in their disabled state. Like that one horrible TV show said: "I don't know what I'll do if this is all that's left of the person I love."

"All that's left." Disabled people being hollow shells instead of different versions of themselves who are still as important, who can feel happiness and joy and love. Once cognitively impaired we're less than human, the mourned living.

I know that "love is not love that alters when it alteration finds" is incomprehensible to abled people, whose compassion and care is inherently conditional, but at least once I'd like to see a story that said "as long as they're alive, we can figure out the rest". It's a very strange kind of love that can't grant you enough humanity to at least be happy that you're alive.

#ableds should just stop writing love stories #what y'all consider love is a fuckin nightmare #the biggest fuck you possible to the Flash tv series and their mutilation of Iris West's character #ableism #dehumanization #brain damage #intellectual disability #cognitive impairment #disability justice #relationships #fanfiction #toxic tropes #knee of huss

[inquisitivetree]

One of the really shitty things about having memory issues is that people just assume that you can’t remember anything and will often question you when you say you recall something, especially when it is convenient for them. Every person in my life whom I have revealed I have memory issues to has tried to use it against me in some way, even people who I know care about me. Often it is posed as a joke (e.g. “how do you know that happened, I thought you can’t remember haha”), but it happens frequently in arguments, when they will try to gaslight and dismiss me. There are so many different kinds of memory and therefore so many different kinds of memory problems. You can have only one or a few specific issues and not others. You can have brain fog and struggle a lot with remembering one day and then be fine/better the next day when your mind is clearer. It is incredibly frustrating when people try to gaslight you or try to act like they know your brain more than you do when they find out you have memory issues. I try to avoid telling people for this reason, but eventually people who get to know me will find out and then try to use it against me. It is hard enough to deal with memory problems as it is, but dealing with the way people treat you is really infuriating and I don’t think it is talked about enough.

#disability #memory problems #memory #cognitive impairment #gaslighting

[crowpunkcognitivedecline]

people without neurological, neurocognitive, or intellectual disability DNI with this post - click for details & why

what do you do when you have cognitive decline and you’re young? like, genuinely?

my memory loss isn't like ADHD or even dissociative memory loss, which is what people my age have context for. it's an extremely physical issue, and it affects my processing in very specific ways. it's hard to even explain it. it's hard to explain developing a stutter or sudden episodes of confusion that really aren't even a little linked to being neurodivergent when that's all people around you know.

ND amnesia tips and accommodations won't work for me. my memory loss can't be treated the same way, and neither can confusion or similar cognitive decline symptoms. but i also can't really articulate or figure out what'd work either.

most people with my experience are senior early dementia/MCI patients, and that just... isn't my experience beyond the confusion and memory loss. dementia tips also won't really work for me because that's not what i have.

i'm disabled in a way that no one in my life is--and not only that, but no one in my life even knows people like me. and that's a lot. i really just want a way to accommodate myself and explain my needs, but there's absolutely no blueprint.

#if i'm rambling blame it on the rapid loss of cognitive function or whatever lol #medium post #neurological disability #neurocognitive disability #cognitive decline #cognitive impairment #spinal cord injury #sci #nontraumatic spinal cord injury #nt sci

[semispeakingautie85]

You can have higher support needs because of the combination of conditions where each of them by themselves may be lower support.

Like having a chronic illness as a Autistic means having extra things to deal with for daily living. You may be able to cope without those extra demands but not with.

You may be able to cope with you chronic health if you weren’t autistic.

I don’t read a lot about having additional challenges as an autistic.

When you have to deal with medications, and doing extra therapies.

When you have to not only cook but cook to your dietary requirements.

When your fatigue makes your speech problems much worse.

When you not only have to motivate yourself to do something but additionally have to push through fatigue and pain.

When you can’t manage your own pacing because you can’t organise, plan or remember what you need to to do pace.

It’s not just higher and lower support in terms of autistic symptoms.

Autism + something else can push you from coping to not being able to exist without extra support.

I don’t see this talked about very much at all.

Coping with comorbidities as an Autistic is extra challenging.

#actually autistic #semispeaking #semiverbal #autistic #dysautomnia #mecfs #dysautonomia #dyscalculia #cognitive impairment

[dreaminginthedeepsouth]

Clay Jones

* * * * *

Biden’s campaign continues to publicize Trump's missteps.

President Biden’s campaign has started to release real-time commentary on Trump's bizarre statements and mispronunciations. Over the weekend, Trump spoke in Nevada and the Biden campaign released video clips within minutes of the tape becoming available.

For example, Trump reminded voters in Nevada to show up at the polls on “Februarerth.” See Biden-Harris HQ on X: "A confused Trump tells his supporters to caucus on “Februarerth.”

Trump is clearly on the defensive about his mental decline. He increasingly discusses it on the campaign trail—which only reinforces that perception. For example, the Biden-Harris HQ Twitter account posted this from Trump's speech over the weekend,

Trump insists he’s not cognitively impaired because he took a test that included pictures of “a lion, a giraffe, a whale, and a shark” and could identify which one was a lion.

I am including the above snippets for readers who criticize Biden for “being too nice” or too passive. But more importantly, the strategy seems to be working. By bringing attention to Trump's miscues, the press has begun to flyspeck Trump's speeches. The media narrative is turning.

For example, two weeks ago, Saturday Night Live skewered Biden and Trump for being too old. Ha, ha—not funny! But this weekend, SNL mocked only Trump and made no mention of Biden. The SNL “news” segment is here: Saturday Night Live | January 27, 2024. (Watch the first 2:40 of the skit for the full references to Trump's increasing cognitive problems.) (A separate comment is included about Biden sending the CIA director to help negotiate for the release of hostages.)

Referencing an SNL comedy skit is not usually a serious way to gauge the political narrative. But here, it is relevant because it indicates the shift in the narrative—especially on a show watched by millions of young adults.

Here’s my point: The 2024 general election campaign has been underway for only four weeks. Trump is faring badly. The more people see him, the less they like him.

[Robert B. Hubbell Newsletter]

#Robert B. Hubbell #Robert B. Hubbell Newsletter #TFG Cognitive Decline #cognitive impairment #Clay Jones

[big-tees-and-short-skirts]

alternatives to typing

please help me w this if u can. searching on google isnt helping. I can barelt type anymorw. I had to download a larger keyboard and I've given up on my laptop. still isn't helping. heeews what's a nomral sentabece from.me looks like now. and that has autocorrect. trying to type makes me cry like several times a day now and its all I have at the moment

things I can't use:

voice type. I can't talk very well and stt already doesn't work well w me

that device that uses breath to control aim on the device. lung/throat issues

bigger keyboards. its not.help

please tell me there are other ways to type. I can't comprehend what else I could use. I can't spell or reach or think anymore but I stillnwanna talk to ppl and.share stupid jokes.on this website. do I need.ti slow.down even.more? idk. I've tild my.doc how bad its getting and he sent me to a neurologist whoni wolt.see in a few months.

#typing #disabled #cognitive issues #I dint.k.ow whay to tag inhatenthis I wanna cry #I hate hiw awful this looks #I'm always.bad at typingbut nowz its fucking useless I just wanna say wirds #do I need ti fucking.write on paper and uplaod scans of my paper #disabled advice #accessibility #I spend like eight minutes on a signle postbjustbto add tags it seems bc itherwisebit looksblike this #cognitive impairment

[caregiversherry]

One of the hardest parts of being the caregiver of your spouse is finding the balance between those two roles. How do you fulfill the role of wife and also be a full time caregiver without blurring the lines? You don’t. You can’t. It’s impossible. Does this interfere with intimacy at all? Yes. Does it make it impossible to be intimate? No. It’s tough for me personally to keep the spark sometimes because cognitively, due to the PPMS progressing so fast, Josh is not able to think too deeply. He had a very surface level grasp on most topics and gets confused easily. His processing speed is very slow and it takes a lot of repeating for him to finally comprehend what I say, often times. This makes it difficult for me to feel connected because I am someone who thrives off of deep conversations. Something we used to be able to have. I’ve learned to accept what I cannot change though, and find the deeper conversations in my friendships, and be grateful for everything else I share with him. MS is a bitch… but you can do what you can to live with it and find the good in every day.

#ms #multiple sclerosis #PPMS #cognitive decline #cognitive impairment #dementia #early dementia #intimacy #neurocognitive disorders

[healingwgabs]

Idk what person struggling with depressive symptomatology needs to hear this, but stop gas-lighting yourself into the narrative that you're "stupid" "dumb" "lazy" or "not smart" when the reality is that you were likely to have been traumatized into struggling with symptoms 5 and 8... and you're also not r*tard*d!! This also applies to anyone struggling with cognitive and executive function-related dysfunction, impairment, and distress as a result (adhders, anyone w trauma n anxiety related disorders <3). I honestly to my core believe that words like "stupid" "dumb" and "lazy" are ableist slurs.

#bipolar disorder #bipolar 1 #bipolar 2 #major depressive disorder #trauma #executive dysfunction #cognitive impairment #missing tags for sure #anti oppression #social justice

[ophidahlia]

This "relapse" of my neuro disorder has been ongoing since October and its looking more and more likely that this is a long term thing. I think it's getting worse.

Can anyone offer advice? I cannot deal with the cognitive impairments, these symptoms are actually new and it's genuinely too much. My home care hours are maxed out. I have moments of clarity but I reliably can't understand things that used to be basic to me eg my budget, shopping for myself, problem solving, reading instructions, and I get extensive & prolonged confusion when I get mildly stressed or overstimulated. I used to play cognitively challenging games like Factorio but now anything more complex than Solitaire is difficult or even inaccessible. I can focus for only short periods before my brain just grinds to a halt. My doctor & therapist both say I know more than them at this point but I don't know how to cope. I'm going to try going back on CBD oil but I'm not sure it really helped last time.

How do you deal with this? Anyone who's gone thru this kind of thing and has advice, I'd love to hear from you

#chronic illness #Disability #cognitive impairment #cognitive issues #Brain fog #FND #functional neurological disorder #conversion disorder #neurological conditions

[shanatoone]

Well, it happened.

I got diagnosed with EUPD/BPD after 16 years of being undiagnosed, my parents not knowing what to do with me, because of the way I was/am.

I'm now on antipsychotics which are draining the fuck out of me and only been on them ONE day.

Still undergoing to see if I will also be diagnosed with Bipolar or ADHD.

I'm just curious if there's ANYONE on here that is suffering or has gotten the better of this awful disorder and can message me and give me some sort of ✨️hope✨️ ?

#mental health #bpd thoughts #depressed #eupd #fuckedup #disorder #cognitive impairment

[travelinglowcarb]

I'm still not doing great, but I'm still doing all the things - anyway. 🙃👍

Today: sunshine & cold therapy. That water is COLD 🥶 lol, but submerging my head really helps with the tremors & cognitive dysfunction. Plus an hour in the river just does me good! 🌞❣️💦

📲 I shared a new video chat & blog post last week in case you missed it...

Video Chat: Motivation vs Commitment

https://www.travelinglowcarb.com/30349/motivation-vs-commitment/

I didn't really feel like getting out today.

But I did.

I didn't feel up for working this morning.

But I did.

I definitely felt like having a long nap after both. And I did, lol. 😅👍

I miss summer already, but Tennessee gifted me with a beautiful week to enjoy some much needed outdoor therapy. 💝

Tuesday I had to go to the hospital for an ultrasound on my legs. That short trip & appt totally wrecked me. I've been resting & recovering since. But the results were good news, so yay! 🙌 But that leaves me with more "no answers" ha - ugh!

I know there are a lot of crazy things going on in the world, but hey... don't forget to:

#takecareofyourself ❤️

xo

#take care of yourself #coldtherapy #naturetherapy #dysautonomia #long haul covid #longhauler #long covid diagnosis #longcovidrecovery #long covid #pots #outdoortherapy #fall days #sunshinetherapy #brain fog #tennessee #chronic illness #cognitive disorders #cognitive impairment

[kp777]

#persistent loss of smell #persistent olfactory loss #cognitive impairment #long term covid #cognition

[crowpunkcognitivedecline]

people without neurological, neurocognitive, or intellectual disability DNI with this post - click for details & why

i think i have vascular neurocognitive disability and i kind of want to just lie down and scream lmao.

i really really really want to talk to a doctor about this but my neurologist is super unresponsive* and i don't think my EDS specialist is familiar enough to help beyond telling me to see that neurologist so. wails.

*as in unresponsive to the point that i was in gabapentin withdrawal for a week because she wouldn't answer calls or emails or put in the order

#neurological disability #neurocognitive disability #vascular neurocognitive disability #NcD #vascular NcD #cognitive decline #cognitive impairment #spinal cord injury #sci #nontraumatic spinal cord injury #nt sci #atlantoaxial instability #aai #craniocervical instability #cci

[semispeakingautie85]

Borderline cognitive impairment 😬 on my cognitive assessment.

my MRI is fine so I know I don’t have anything degenerate.

It was the working/short term memory tasks.

Which has always been bad and already shown up on IQ test from years ago.

Still shocking though but validating at the same time.

Any other Autists or ADHDs had a cognitive assessment done?

#actually autistic #autistic #medium support needs #auditory processing disorder #cognitive impairment