#chdsurvivor | Explore Tumblr Posts and Blogs

glecerella · 2 years

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Last year, I couldn't believe I was 33. Not because I'm older but because I was told I wouldn't make it as a baby. I fought hard & strong & proved them wrong. Little did I know I was in for a surprise. At 33, I found out I needed another open heart surgery... 4 years after my 2nd one. I was shocked. Confused. & in disbelief. But it had to be done. 3rd one & hopefully the last one. 6 months postop & here I am! Back to work, back to traveling, back to being better than ever. Thankful to all my friends, family, & coworkers who reached out to me. Recovering during the pandemic was tough but they all made me feel loved even from a distance. Also I am grateful for my husband who became my nurse after surgery... feeding me, giving me my medications, comforting me, updating my friends & family, & even taking my vital signs. This post is just a reminder to check up on your friends & family. A simple text like "How are you?" makes a big difference. Take care everyone! [Scroll through the slides & watch me get better]. #chdawareness #tetralogyoffallot #heartwarrior #heartdiseaseawareness #openhearts #chdsurvivor #heartfriend #thankfulandblessed https://www.instagram.com/p/ChtTQKtOJE8/?igshid=NGJjMDIxMWI=

#chdawareness #tetralogyoffallot #heartwarrior #heartdiseaseawareness #openhearts #chdsurvivor #heartfriend #thankfulandblessed

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yourtrustedhealthcarepartner · 8 months

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magscoonley · 4 years

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Great news! Magnusson had his annual EKG and echocardiogram last week. Dr. Rhee from Phoenix Children's Hospital called today and said both valves (aortic and pulmonary) look perfect!!! No leaks or narrowing/expanding. He’s doing so well that his next appt. is in 2022 (2 years out). We are soooo relieved! ❤️ 👨🏽‍⚕️🥳

#hearthero #chd #pch #chdawareness #tinysuperheroes #chdwarrior #heartcheckup #magscoonley #chdsurvivor #ekg #echocardiogram

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maouie · 6 years

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My Suicide Attempt.

On May 15th, 2018. I overdosed on pain killers. I was rushed to the hospital and was told to drink this black liquid that turned out to be charcoal. It was either I do that or they would have put a tube up my nose and down my throat into my stomach and pump my stomach with two bottles of charcoal and each bottle were 4 oz.

What can I say? Life has been hard. Living with congenital heart defect, chronic depression, chronic pain, chronic anxiety, bipolar type 2, having to worry about getting heart attacks again and oh being transgender and dealing with Dysphoria and other bullshit.

But this wasn't the first time I've tried killing myself. In fact I've lost count. But about two or three years ago I tried again and was in the hospital for five days. This time on May 15th I was only in the hospital for a little over twenty-four hours. But this time was the worse and the biggest attempt that I tried.

But I stopped half way because I remembered that I had friends who cared about me and a family. I remembered my birthday was coming up, May 18. I turned 20. I remembered Fanimecon was coming up. I remembered I was going to visit my best friend Ashley again this summer, who lives in Missouri. I remembered that I have top surgery this November. So many things I would have missed out on, if I would have taken more pills.

For once in my life, I'm actually glad to be alive.

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t0ny137gaming · 4 years

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Decided to take pictures of this older Livery I made for @heart_soul_chd because I love this car and Livery a lot 😁😁. Car info and livery share code below ⬇️⬇️. . . . Vehicle: 2003 Fairlady Z Vehicle Manufacturer: Nissan ( @nissan ) Livery creator: t0ny137 ( @t0ny137gaming ) Livery Name: Heart & Soul CHD Livery Theme: CHD ribbon @heart_soul_chd Livery share code: 964 444 152 Game: Forza Horizon 4 ( @forzahorizonofficial ) . . . #nissan #fairlady #z #nissanfairlady #fairladyz #nissanfairladyz #nissan_fairlady #nissan_fairlady_z #fairlady_z #chd #chdawareness #heartandsoul #heart #chdribbon #ribbon #heartstrong #heartwarrior #chdwarrior #chdsurvivor #chdaware #gamerheart #t0ny137 #t0ny137gaming #hearthealth #heartdisease #chdlife #heartdefects #congenitalheartdefect #forzahorizon4 #forzahorizonofficial (at Forza Horizon 4) https://www.instagram.com/p/CDXCRRuj4sK/?igshid=kuo3vj1hj45k

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leahrosejewels · 4 years

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Flashback to those first days of parenthood, the ones that challenged us with a critically ill child. I remember the NICU at Columbia Presbyterian Hospital, I don't want to go back. Must keep my CHD child safe from CoVid-19. Keeping him home now. #chdwarrior #chdsurvivor #heartbaby #specialchildren #staysafeathome #nicusurvivor #jewishmom #coronavirustimes #parenthoodmoments #momartist #chdawareness #nicudays #isolatedbutnotalone https://www.instagram.com/p/B_ziPX6H-dQ/?igshid=i5r7z8y5n3na

#chdwarrior #chdsurvivor #heartbaby #specialchildren #staysafeathome #nicusurvivor #jewishmom #coronavirustimes #parenthoodmoments #momartist #chdawareness #nicudays #isolatedbutnotalone

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loveinjune16 · 4 years

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❤️💙 Congenital Heart Defect 💙❤️ Congenital heart defect is the most common birth defect. 1 in 100 babies is born with CHD. Approximately 85-90% of CHDs have no known cause or origin. I am doing this red and blue #bookstack for @nic_reads_inheels it is in honor of her daughter that lost her life due to a heart defect. Kinley was just 12 days old. #rememberingkinley Nic is helping raise awareness and will be donating $1 (up to $100) for each book stack in the month of February! Money will be going to Children’s Heart Foundation! My son had open heart surgery and is now a healthy teen! I am forever thankful for his doctors, nurses and the care that he got! Please join us and raise awareness about CHD! #chdawareness #chdawarenessweek #chd #chdwarrior #chdsurvivor #chdaware #chdbaby #bookstack #bookstacks #bookstagrammer #bookstagram #redandblue #redandbluebooks #chdbook #chdbookstack #chdbooks #childrenshealth #childrensheartfoundation #heart #childrensheartproject #childrensheart #heartsurgery #heartsurgerysurvivor #remebering #febuarychallenge #febuaryheartmonth #heartmonth #heartmonth2020 #openheart https://www.instagram.com/p/B8z4bcEjZ09/?igshid=14oca2afrmko

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cyphersatoori-blog · 7 years

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CHD Teens

Hello,

I’m a 17 year old boy, my name is Zaya, and I have a CHD (congenital heart defect). I’m getting my open heart surgery on Monday (June 12th). It’s my first one. I can’t find anyone my age who has had the surgery (I have a bicuspid aortic valve). And I’m angry, depressed, and anxious I have to have this done. Why me? Why do I have to have this? I’m tired of everyone telling me “you’re okay” and “it’ll be okay”. They are not me. They don’t have a CHD, they don’t have to live like this. They can do whatever they want with their lives, they don’t have to go through this. Is there anyone my age I can talk to…? I can’t find anyone who has had the surgery, or an open heart surgery and I’m struggling with the depression, anxiety, and anger over it and having no one who can relate to me.

Thank you.

#chd #chdwarrior #chdawareness #chdsurvivor #congenital heart defect #congenital heart disease #bicuspid aortic valve #heart defect #heart disease #cardiology

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4evahaka · 7 years

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From @thelifeofchaceelijah - My (1 out of 110) Mr. #stealyourheart #teamchace 🤴🏾 is sucking in his stomach, trying to show off his abs like his daddy but all you see are his little ribs 😦😁💪🏾 I just cut and glued one of his G-tube on me to show support for him. He has a congenital heart defect (#chd) called Tetralogy of Fallot (#tof) and he uses a feeding-tube (#gtube) to help with him being under weight due to him not eating orally as much. But as long as I'm breathing, I'll always support my son and he'll never be in a fight alone 😊✊🏾👍🏾 05 || ²2 || ¹7. #tloce #thelifeofchaceelijah #congenitalheartdefect #chdwarrior #chdawareness #chdsurvivor #heartdefect #heartwarrior #heartsurgery #tetralogyoffallot #clothdiapers #openheartsurgery #smib #pha #feedingtubeawareness #openheartsurgery #exercise #workout #childernshospital #daddyduties #theblackmancan💕💚🐍#ThisIsAREPOST:🐍💕💚 #REPOSTEDBY: @4evahaka #FAMU_1908💚💕🐍

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strength--in--scars · 7 years

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Tomorrow is National Wear Red Day to raise awareness against the number one birth defect and the leading cause of death in America: heart disease. At this point in time, there is no cure. Wear red tomorrow with the hopes that one day there will be a cure. February is heart disease awareness month, but when you have heart disease or love someone who has heart disease, you're aware every day❤

#chdwarrior #chd #chdsurvivor #chdawareness #1in100 #congenital heart defect #heart #wearred #national wear red day #go red #red #heart disease

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stephanieromer · 5 years

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Check out www.CHDLEGACY.com to learn about Congenital Heart Disease aka Congenital Heart Defects. Ps. CHD has nothing to do with Acquired Heart Disease aka the kind you get from eating bad food, stress, etc. #chdlegacy #stephanieromer #advocate #chdlife

#chd chdlegacy stephanieromer chdsurvivor chdlife chdadult adultchd hlhs fontan hlhs hrhs singleventricle chdwarrior ohs legacy trailblazer p

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marfamata · 4 years

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God blessed me with you. My partner, my friend, my support. You made me believe everything is possible, even facing the hardest times... Repost @vickyhcabm I am a firm believer that life doesn’t give you things you can’t deal with. Sometimes I forget about it, yes, but I’m here. 10 years ago this month I started my life journey. A journey that’d give me the fight of my life, where I’d second guess myself, sometimes even ask myself why it happened to me. I have been constantly in hospitals for the last 10 years of my life, however, I would not change a single bit of it because I would not be who I am today. I’ve heard so many times that I’m here with a purpose because I’ve been able to conquer every single one of the battles I’ve encountered. I’m not entirely sure why I am here but I’m certain that I will do whatever is in me to keep going. The phrases in the video say: “Look kid, bad things happen and you can’t do anything about it right? Wrong! When the world turns its back on you, you turn your back on the world. - Timon When life keeps you down, you know what you gotta do? Just keep swimming, just keep swimming. - Dory You gotta put your past behind you - Timon But it still hurts. Oh yes, the past can hurt but the way I see it you can either run from it or learn from it. - Rafiki to Simba Yesterday is history, tomorrow is a mistery, but today is a gift. That is why they call it present. - Master Oogway Your story may not have such a happy beginning, but that doesn’t make you who you are. It is the rest of your story so, who are you? - Soothsayer in KFP2” Cheers to many many more years 🥂✨ NEVER stop fighting ❤️ Ps: I know I posted this on my story but I wanted to make it permanent on my feed! #CHDSurvivor #HappyLife #ScarsToYourBeautiful #HeartDisease #JustKeepSwimming #StillStanding https://www.instagram.com/p/CFD3WhwHDlZ/?igshid=kw5giu7ykuxz

#chdsurvivor #happylife #scarstoyourbeautiful #heartdisease #justkeepswimming #stillstanding

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imladylilith · 7 years

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Arien had to be sedated to finally complete her 1st annual 2d echo. We are very blessed to know her VSD patch is intact & no leakages found thank God! There are no other problems found other than a minor pulmonary hypertension which is curable in a few months! We are grateful to all her doctors. It was exciting to see most of them again awhile ago too! You all are arien's heroes! See you doc in the next 3 months! #heartwarrior #chdvsd #chdsurvivor #pedia2decho

#chdvsd #chdsurvivor #pedia2decho #heartwarrior

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maouie · 7 years

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Chronic illness: Congenital Heart Disease.

When I was at the hospital today, because of some pain going on. I was getting weird looks, when getting out and in the car. I am fully aware that, I'm parked in the handicapped area, and I'm fully aware that I look fairly healthy on the outside. I'm also aware that many people fake having an illness just to get benefits. But don't always assume that someone is faking something. I always feel like I need to look more sick. But I don't, people just need to realise that not all chronic illnesses make you look like you're dying or sick. You can look perfectly normal and have something wrong with you. I've been trying not to let the weird looks bother me, and I know once I get a service dog that I'll end up getting more strange looks. But I'm doing this for myself, I feel like I need a service dog. And I feel like I need a wheel chair, along with many other things. Having the congenital heart disease that I have, simple tasks like cleaning up or even walking around is a huge struggle for me. As I'm writing this right now, at 12:44 am. I'm experiencing breathing issues and chest pains. Along with back issues and a headache, but this is my normal. Feeling like crap on the daily, is my normal. Having bruises, being cold, coughing a lot, feeling dizzy or having headaches, and also having so many chest pains and breathing issues is my normal. Going to the hospital nearly every week is my normal, blood draws, medical procedures, ER, MRI's, Stress test, and so many other things. Are my normal, I don't need people saying "I feel sorry for you" or "I'm worried about you" because this is my normal, I'm okay. I'm happy in my own way, yeah it causes me depression sometimes. But that's okay, I don't need you to feel sorry or to worry yourself sick because I ended up in the hospital three times in a row. That's normal for me. The only times someone really needs to worry about me, is if I'm having surgery or my heart spaz episodes again. Other than that everything else is just normal. Spread more awareness about Congenital Heart Disease, 1 out of 100 kids each year is born with CHD. It's a very common and extremely dangerous disease. We are so lucky now to be having so many more heart doctor's on hand. Many more CHD kids are now being able to live into adulthood!

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antman028 · 7 years

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@Regrann from @thelifeofchaceelijah - For every reason you give yourself why you CAN'T workout and stay Healthy My (1 out of 110) Mr. #stealyourheart #teamchace🤴🏽 will give you reasons why you can. Never sell yourself short on what you can do in life... just look at my son as #motivation and #determination to over come opticals. 0౩ // ¹9 // ¹7 #cater82 #chd #congenitalheartdefect #chdwarrior #chdawareness #chdsurvivor #heartdefect #heartwarrior #heart #heartbreaker #heartsurgery #tetralogyoffallot #tof #clothdiapers #toodlermodel #gtubebaby #openheartsurgery #gtubebaby #thelifeofchaceelijah #ekg #nike #justdoit #childernshospital #dailyvlogs #allnatural #gym #workout #exercise @repostwhiz @hopeful_hearts_foundation @tinkandkey @thechf @chd_awareness @chd_hearts @acha_heart @art_for_heart_foundation @diaryofanaijagirl @jai_amaru_13 @fitnesswithaj

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inspirecommunity · 7 years

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#Repost @jacobs_heart_story with @repostapp ・・・ Gave my BIG speech this morning at the American College of Cardiology 'CardioSmart' expo...It was AWESOME!!! You can check it out at https://youtu.be/0_67_ssSK6Y I got this incredible award & I am of course, LOVING being in Washington, DC!!! Tomorrow I get to go to the Smithsonian museums!!! ❤️#jacobsheartstory #acc17 #chdsurvivor #coarctationoftheaorta #chdawareness #1in110 #cardiosmart #washingtondcorbust #spiderman

#washingtondcorbust #chdsurvivor #coarctationoftheaorta #chdawareness #spiderman #1in110 #jacobsheartstory #cardiosmart #repost #acc17

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