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#is it because I’m hyper mobile?
passive-poet · 3 months
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Hey guys don’t you just love it when your knee, specifically the right one, hurts on and off for no reason and every time you try to talk to someone about it they just write it off?
Hey don’t you love having a stabbing pain in your leg elbow at the weirdest times, but you can’t complain without your mother just saying it’s because you don’t exercise?
HEY GUYS DON’T YOU LOVE IT WHEN YOUR KNEE BUCKLES OUT FROM UNDER YOU FOR A HOT SEC BUT IT’S FINE BECAUSE YOU’RE JUST OVERREACTING??
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Went to a hand doctor because my hand hurt severely after cross stitching and learned my thumb bone is very off from where it is supposed to be and my muscles are trying to make up for it. I asked what to do about it and he basically went ¯\_ (ツ)_/¯ “come back if it starts hurting all the time” how tf does that help me :|
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hexsrealityarchived · 11 months
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I’m home and I have a massive headache after drink two cups of espresso
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After a rather difficult few months finally feels like things are settling down some what. Iggys got his first physical therapy appointment tomorrow, which was moved up from August. Within the last couple of days hes also started putting some weight on his back leg, so I’m more optimistic about the therapy working.
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mirroredmemoriez · 5 months
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Just cracked my back on the kitchen counter. I’m a new person.
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Honey, If You Stay, I’ll Be Forgiven
-> Famous Last Words by My Chemical Romance
Verstappen x Reader, in which they were once karting rivals. A long time ago.
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Snow falls outside, just on the other side of the window you slouch against. Shadows cast themselves against the pages of your book.
A coffee sits on the table in front of you stopped letting off steam a few minutes ago. The half drank peppermint mocha tastes great, the book in your hands is just a little bit more interesting.
Across the shop, just missing you when he walked in, Max pays for his own coffee. Probably the first time back after the end of his F1 season.
Your eyes follow him. All the way until the two of you make eye contact.
He breaks eye contact as soon as he sees you.
You turn back to your book, and your cold coffee.
Nearly too engrossed in your book, you almost don’t notice another coffee cup setting itself on the table across from you. The chair pulls out and the man imposing himself on your time alone finally grabs your attention.
“I almost didn’t recognize you,” he says. His eyes are joking, his tone doesn’t agree. He sounds almost accusing. In spite of the faint smile on his face.
“Sorry, I’m not doing autographs right now,” you spare him a glance before looking back at your book.
Banter still comes naturally. The two of you got on because of it. A similar humor, dry and sarcastic. Got on like fire on trees. That’s what your family would always say. Fought like cats and dogs, absolutely adored each other until-
“You could be a driver,” he pushes your book down out of your face, “signing plenty of autographs yourself.”
The question he meant to ask is thick in the air. You gave him no excuse when you quit. Neither of you can even recall the last words you said to him.
“But I’m not.”
You try. You ignore his eyes. You debate some cold remark, something to push him out. Even sitting in front of him brought you back.
“I used to think about us.”
You want to shut him down, thinking hard about getting up and leaving him in the shop. Leaving him in the dark. Separating yourself even further from the dream you once had. The dream that you would be reminded of, every time your joints ache in the cold.
His hand covers yours, “I’m not mad.”
His voice is a whisper. You stare down at your hand. The one pained at the contact.
“I couldn’t have continued if I wanted to,” your fingers slip through his by then.
“Why not? You were-“
“I was injured, Max.”
“Was it that bad?”
You pull your hand back, flexing your fingers under the table. “Everything hurts, my joints, my doctor said I’m well on my way to developing some form of arthritis.”
You pause for a beat. If anyone knew how devastating news like that could be for a kid with the dreams you had, it would be Max.
“I couldn’t admit it.”
You look back up at him. His expression is blank. His mouth open and close, not really finding anything to say.
“I’m also prone to dislocating joints. They’re all stiff, but hyper-mobile at the same time it’s- it’s super weird.”
You deflect into a joking tone. Maybe a conversation change could follow.
“What about we go for a drive,” he cocks his head toward his car, the Aston Martin he’d been bringing around, “change the subject.”
“Mine isn’t as fast,” yours parked two spots down. A stock early 2000s Mustang wouldn’t touch his Valkyrie.
“It’s not a race,” he says, standing up and holding a hand out to you, “just a drive. Take the lead?”
You grab his hand, you use him to steady yourself as you stand. Mild relief from sitting on the hard coffee shop chairs is overwhelmed by the stiff joints adjusting to being forced back into use.
The two of you walk out. In your separate cars, you make eye contact. Just like you used to before cart races as children.
Your dreams as a child came crashing down around you, but you could build them back up, just adjusted. With Max hopefully staying in your life, maybe he could help.
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talkethtothehandeth · 9 months
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As much as I agree that people who have EDS shouldn’t talk over people who have worse disabilities than us, and as firmly as I believe that disabled people should let other disabled people speak about their struggles without comparing it to EDS, I need you to know that having EDS, especially my type— the one you find more often than other types, is not just “being bendy”.
I was diagnosed with EDS when I was a baby. I was very lucky, and was able to receive treatment (whether good or bad) quicker than others. However, EDS caused my hip dysplasia, it caused the condition that affected my mobility to the point where I needed three corrective hip surgeries; it was the cause of my bone not forming, I needed a bone donor to aid in correction. I have three long scars on my bikini line where Dr Caroll (from Shriner’s in Utah) cut into me in order to give me a better chance of having less limited mobility.
EDS isn’t just me being able to play bendy straw with my hands, it isn’t just me having to deal with “fake dislocations, it’s subluxations so it’s not that bad”. It caused my scoliosis, it caused my arthritis from my joints going out of place so often. I was diagnosed with osteoarthritis as a child, but as I got older, my arthritis spread to more places. I have burning nerve pain that makes me want to die, I have partial paralysis whenever my body decides to attack me spontaneously, I have dystonia, I have hearing loss, allergic reactions, and pain in every joint in my entire body. From head to toe, all of my joints, all of my muscles.
EDS is something that has severely impacted and negatively effected my entire body. It took everything from me, it took my already limited mobility, it took my peace, it took my mental health, it took my most beloved hobby ever— riding horses. I cannot sit to play piano, use my hands for my guitar, sit in a chair for more than 30 minutes without my back muscles screaming.
I took 14 pills every single day with multiple prescriptions because of what EDS has caused. I am undiagnosed with something that nearly killed me last year, everyone was preparing for me to die, and it has been dismissed by anxiety or an eating disorder, it is caused by my disease. EDS will affect me for the rest of my life.
EDS isn’t “just” being hyper mobile. This isn’t just a small disease that people go through, it is life altering and life compromising and life threatening from all of the comorbidities that come along with it; it is debilitating, it is isolating, it is pain that cannot be treated with even IV morphine, it is a constant, unrelenting acid rain condition just as many other physical disabilities.
People who have EDS shouldn’t try to play the Sick Olympics, we shouldn’t go to someone’s page and say “I’M JUST AS SICK AND DISABLED AS YOU ARE”. We should take the time to listen to people who have it worse, because so often they get ignored by abled people, they don’t need other disabled people to say that their conditions aren’t worse just because we have it bad. So many people are definitely more disabled than I am, and that absolutely does not erase my struggles.
Every physical disability affects the body in different ways, and every physical disability isn’t necessarily comparable to others. My degenerative arthritis isn’t the same as someone’s ankylosing spondylitis. My joints are fucked and my mobility has been significantly decreased as my disease has progressed. I am not going to compare my knees that will need to be replaced to someone whose spine is literally fusing together. Even though it’s a form of arthritis, it isn’t the same as mine and it isn’t my place to pretend it is.
But someone saying “it’s just hyper mobility” is perpetuating a harmful narrative, because people already don’t believe us, our stuff doesn’t show in labs and it only shows during further and extensive testing that many doctors don’t want to pursue because we’re “faking” or “being over dramatic”, because it isn’t “that bad”, it’s just bendy joints, it’s not debilitating./s It isn’t just being bendy, it is so much more and doesn’t need to be dismissed solely because it isn’t the same or as severe as someone else’s condition. Even if someone does have it worse, it doesn’t mean that EDS isn’t bad, and just because someone has EDS, it doesn’t mean it’s always comparable and needs to be shouted to the world on people’s posts about a completely different situation.
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restinslices · 2 months
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hiiii :D
would it be okay for you to do bi-han, liu kang and kung lao x hypermobile reader if you're not too busy or anything?
like reader has alot of pain in the knees, back and gets frequent migraines and they try to help?
Hey bookie, I wasn’t ignoring you. I was just procrastinating 😭. Finally got to it though! When I looked it up a hypermobile person seemed like a double jointed person but with occasional aches but obviously there could be stuff I missed since I’m not hypermobile. Because of that I mainly focused on the things you brought up however if there’s certain things I missed, you can always request again.
Bi-Han
When it comes to your joints moving more than normal, I don't see him making a big deal about it 
I don't see him being like “omg that's so cool” but I also don't see him being like “that's freaky”
It's something he notices but doesn't point out
When it comes to pain he'll suggest stretching it out, which might do the opposite but it's what his brain conjures up first 
I just feel like stretching and trained assassins go hand in hand
He knows multiple stretches that focus on those areas and that's what he'd suggest first 
There’s also other physical activities like walking for your knees
His brain goes to physical things
If all else fails, he's a walking ice pack 
I don't think he'd necessarily want to be an ice pack but if I'm the wind under your wings, spit out a couple ice cubes for me 
As for migraines I am a firm believer that Bi-Han as the oldest brother is a mini medic
He'd assume your sick so he'd advise you to drink tea, eat soup and keep your eyes closed so they're not being strained while looking at something bright 
If you get migraines often he'd buy some thick ass curtains so the sun doesn't peek through 
He may be a lil asshole but I'm gonna stay delusional and believe he'd be a good partner 
He's a good man Savannah- 
Liu Kang
I also think he wouldn't make a big deal out of it 
He might comment on it but you'd be forgiven for thinking he forgot about it 
Idk how you could use this in fighting but if you could, all 3 of them are impressed 
When it comes to pain in the knees and back, he's the opposite of an ice pack 
His power might work better with aches and pains. Depends on your body
I doubt heating his hand up would be difficult for him 
He mostly wants you to rest and take warmth baths to soak your joints 
Him and Bi-Han are mini medics but Bi-Han is more of a physical therapist. Also sitting around is a problem for him. Liu Kang is more patient and understands that there’s nothing wrong with taking a break and letting yourself heal
He probably also knows a bunch more healing methods I don't 
He's been around the block for awhile. He knows how to do other things besides leave someone concussed 
Assuming you're a regular human, he knows how weak your body is (no tea no shade) and you really need to rest or you'll break down 
That's his thought process with migraines as well
Has you sleep a lot more since migraines can be eased with sleep 
He knows all the tricks in the book. You know when your parent is like “you have a headache? why don't you *insert the most old and outlandish bullshit*”? 
That's him 
You'd think he'd use all this worldly knowledge to oh, idk, build an empire or smth but no
Kung Lao
He wouldn't make a comment in a mean way but he would do a double take 
Maybe I'm wrong but I would imagine people don't go “hey! How are you? I'm hyper mobile btw” 
So when he sees a joint kinda move funny he's thinking “am I tweaking? I gotta be”
But then it happens again and he's like “aight, what the fuck was that?”
He asks a few more questions but that's kinda it. He won't ask your whole life story. If you wanna share more, then you will 
When it comes to pain you gotta thug that one out-
I'm joking… slightly 
Liu Kang is a demigod. Bi-Han is a human but got magic powers. Kung Lao is a normal person and only has a hat
And I don't wanna hear about the magic shit in his moves. In the game I'm pretty sure he only has that hat. The hat is cool and all but my point is, he can't magic any pain he feels away 
He knows better than anyone that sometimes you just gotta take the shit on the chin and try to go on about your day 
However, that wouldn't be his only solution 
Regular human who can't make his own ice packs means he's a regular human with tons of medicine 
Medicine he'd obviously share 
He'd even buy some specifically for joint pain and keep it on him for you 
Same with medicine for migraines 
He probably has way more of those so he can't carry all those bottles but he carries some in his pocket 
He actually has a phone so he's for sure looking up ways to help with any pain or discomfort 
Whatever comes up, he'll suggest to you or help you with 
Your pain won't go away the quickest with him but it's obvious he's trying his hardest 
I did not mean to give Kung Lao the most-
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babygirlgiles · 6 months
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I think one of my biggest critiques about Catching Fire as a movie is that there’s entirely too much Gale in it. And I’m not just saying this as a Peeta Girlie, I’m saying this because Gale’s palpable absence is so strong at the beginning of the book that it’s a presence within and of itself and that’s central to the first part of the story!! The fact that Peeta is there when Gale isn’t is key to showing How The Games Have Effected Katniss!!
Katniss is experiencing this meteoric rise in economic class practically overnight. She’s gained an immense amount of privilege, relatively speaking, at an immense cost (the trauma of the Games, the damage to her emotional and mental well-being, the damage to her sense of self, the increased risk that immediate harm might come to her family and loved ones). She’s realizing that she really was part of her community before the Games by virtue of being distanced from that same community now. Because that’s what the Games, and the resulting class hyper-mobility, did to her: it’s set her apart from her peers. And Gale being absent is part of that. She doesn’t have to go to school. She doesn’t have to hunt or trade at the Hob. She doesn’t have to join the district’s industry. But Gale does have to do all those things. It’s why they only ever see each other on Sundays, the one day of the week he isn’t in the minds. It’s why they have increasingly little to talk about when they do meet, because their lives are so vastly different now and because the things that do occupy Katniss’s days are things generally related to her stratospheric class leap and/or the horrific cost of that leap, things she either doesn’t want to talk about or straight up can’t talk about.
She’s had this seismic shift in her life that’s detached her from her world and turned her into an island. Peeta and Haymitch (and to a lesser degree her mom and Prim) are the only ones that have been metaphorically cast out to sea like her. That’s why they’re a constant presence in the beginning of the book when Gale is not. And that’s why adding in scenes with Gale to the beginning of the movie (or keeping in scenes with Gale at the cost of like. literally every other thing that happens in that part of the book, including all the time she spends with Peeta and the others) undermines that point.
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bobbile-blog · 6 months
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Okay so my addition to the extensive list of “Tiny world building things that Arknights consistently gets really right” is not having binary, two-sided conflicts.
Like, yeah, okay. Everyone knows that having a multi-sided conflict is generally more realistic and makes for a better allegory and helps motives seem more real or whatever, sure. But that’s haaaard, and it takes forever to world-build and set up stuff that you’ll probably never use again anyway, and do we really need hyper-realism for this one character’s side plot anyway? It’s fine if we don’t have that here, right? This sort of world-building, while good, is usually not worth the effort you put into it because not all conflicts are important enough to justify that level of detail.
To pull an example from another mobile game, Honkai Impact does this in a perfectly serviceable way. While the story as a whole has a number of factions that interact with each other, there’s usually only one faction in the role of “major antagonist” and which faction it is shifts over the course of the story. You’ll sometimes get more than two groups at play, but that’s usually only used to set up the next major antagonist and they’re rarely on even footing and given equal focus. And that comes out fine! It works great for the pacing of the story and serves its purpose perfectly well.
With Arknights, however, they have consistently refused to write stories that are just a two-sided A versus B conflict. From way back in Grani and the Knight’s Treasure up to the political clusterfuck of the more recent story chapters, Hypergryph just doesn’t write stories that are black-and-white protagonist-antagonist. Off the top of my head, the closest we get to that is in stories like Lingering Echoes and Guide Ahead where a single character disrupts a protagonist-antagonist plot. The two stories share a lot in common, actually - there’s a two-sided protagonist-antagonist story that is disrupted by a protagonist-aligned figure, Czerny in the former and Fiametta in the latter, that refuses to be bound by the said simple conflict. Both stories are also complicated by B-plots that don’t have nearly as simple resolutions, which are tied closely enough into the A-plot to make it more complicated.
All of the events are like this - as I write this I’m looking back through the event records for something I’ve missed because there’s no way they’ve been that consistent with this, right? But they have, and it’s staggering how consistent they are with it. There are all sorts of factions lying around that just get picked up again on the whims of the writers (like AUS or the Browntails), and it does wonders for making the world feel more complex and more alive.
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tater-tot-jr · 4 months
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I think I should put in my two cents considering the Hazbin hotel leaked Angel Dust clip. I’ll say that this post should be one absolutely massive trigger warning. If you’re sensitive please don’t read this, I’m pretty blunt. Also I’m only talking about a small leak but SPOILERS!!!
So before I make any points I’ll start by saying that I’m not an inherent fan of vivziepop, this isn’t meat riding, it’s a genuine attempt at open conversation and discussion. I’ll also say I’m a survivor myself and while I don’t claim to speak for anyone else I have some ground to stand on here. I completely understand that people can be triggered by this type of imagery and will at least skip this particular scene or episode, I promise I’m not talking about you guys.
You wanna know who I am talking about though? The weird ass moral police I’ve been watching mobilize. It’s crazy how people are making a big deal out of this. I’ve seen three arguments and all of them are terrible in themselves and being used to justify terrible behavior.
I’ve only seen people claim three major things, this is a bad depiction of a s/a survivor and situation, this is something that’s too graphic and immoral to put in a TV show, the fact that the singing and dancing lightens the tone in a way people find distasteful. I’m going to be trying to prove why I find these arguments mostly ridiculous and unfounded.
As for argument one, s/a survivors come in all shapes and sizes and hyper sexuality happens to be an incredibly common reaction to sexual trauma. I haven’t watched episode one and two but even if I had I’d still have too small of a sample size to determine the entire tone of an incredibly messed up complex dynamic between too incredibly interesting and layered characters. It’s ridiculous to have so many assumptions and expectations of an *11 second leaked clip.*
Secondly. Creative freedom is possible the most important thing in art. If we didn’t have the freedom to put what we wanted on paper or on screen then we wouldn’t have had so much societal change recently. Just because you might find something distasteful and immoral doesn’t mean it absolutely has to be hated on and removed. It’s okay to not like things because you find them gross, it’s okay to not enjoy graphic depictions of serious subjects, it’s not okay to start internet wars over moral bullshit. It’s okay to be mad in silence sometimes, guys.
Thirdly. I kinda get this one, I don’t agree with it but I do understand the point. The idea you don’t want a serious subject framed with a sexy pop song is not inherently bad, it’s just something that makes me think you wouldn’t have liked Hazbin Hotel anyway. I actually appreciate the fact they are using the creative medium to make bold and shocking decisions but I get some people are sensitive to new things, that’s fine. Where this argument gets ridiculous is when people act like this is very out of line for a show like this. This isn’t a Saturday morning kids cartoon it’s and adult animated show about people in hell. It’s highly likely that this won’t be the worst thing we see, you either need to heed the trigger warnings at the beginning of each episode or get over it.
You’ll notice that I didn’t bring up anything about the merchandise pins or the storyboard artist, I did this because they aren’t arguments but barely related attempts at character assassinations. When you spend five minutes thinking about them critically you come to realize that there is nothing substantial to those arguments.
I’d like to finish up talking about how I think this scene is doing more good than harm. It’s important to make people uncomfortable when you’re talking about things so horrible like s/a and rape. It shouldn’t be meek and palatable for a general audience, it should upset you. I remember hearing something in a video game once that stuck with me. There was a character who said that when you’re sick you need strong medicine and that the strongest medication is very bitter.
I think episode four will be some very bitter medicine.
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bodhrancomedy · 1 year
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Uh, guess what’s apparently getting a live-action remake?
Fuck it, don’t care that it’s cringy, I’m doing a full fucking audition today. It’ll be just as successful as my Doctor Who companion, but it’ll be fun.
(Maybe Hiccup can be Deaf and hyper mobile this time because I don’t know if they’re drawing from the films, books, or both)
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humanransome-note · 10 months
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Thinking about TLOU infected biology because it’s fuck all AM and I can’t sleep.
They should all have broken/poorly healed limbs.
Like I know why they don’t, in the game and the show. (Game: because it came out in 2013 before we figured out cordyceps didn’t actually take over the brain. Show: because you can’t find and hire every appropriately hyper mobile individual on the planet)
So, the cordyceps fungus controls the necessary portions of the infected’s body for movement, and subsequent propagation. In the case of humans, this means limbs primarily, and mouth/throat secondarily.
I’d argue that in the front end of infection, you probably wouldn’t have people biting, but then again, insects infected by the cordyceps are often made to bite whatever plant they have been compelled to climb, as a more secure tether for when the fungus starts sprouting. But this is also the end of the infection, so a toss up.
Fungi mutate pretty quickly though (especially compared to vertebrates) so Tess being forced to open her mouth by the fungus at the end of the episode could easily be explained away by mutations over time, as well as where her infection began.
But! Back to broken limbs. What we know now about cordyceps, is that they do not invade and take control of the brain, they in fact do not commingle with the nervous system at all. (So I gotta go back and amend that TikTok I made cause it’s very wrong now but I doubt anyone besides me cares.)
Cordyceps invade muscle tissue, and there are actually studies trying to figure out if they can help with things like muscular atrophy and weakness because they are thought to increase the body’s production of ATP (cellular energy) in those areas. (Extremely simplified, not a biologist, just a weirdo who can’t sleep rn) Anecdotally Cordyceps can help with muscle growth and repair, immunity to some forms of cancer, and *cough* performance, in those suffering with ED.
I’m off track again! Anyway! With all this information and it being 2:15 am I have come to the sleepless conclusion that a better analogy for TLOU infected internals would be more akin to a secondary nervous system, controlled solely by the fungus.
Now, you may be asking “if it’s like two nervous systems, why can’t the person fight it?” Well I’m glad you asked that voice that feels like it belongs to a Janet.
Because the human brain is a wonderful, complex, convoluted thing. Like a pile of tapioca in a bowl of soy sauce with some sautéed batteries, piloting a mech suit made of meat.
You can break your own bones.
Theoretically.
Or actually if you’ve got the gumption or just general lack of hand eye coordination and a shitty inner ear.
But most of the time, it’s theoretically, because your brain stops you from breaking them. Your muscles, even if you don’t work out, are capable of producing enough force to tear themselves from the bone, if not just break the bone while they’re at it. Your brain, the genius that it is, goes ‘ya know what? How about I put a cap on that’ and prevents you from producing that much force.
There have been recorded instances though of “hysterical strength” where people have just lifted entire cars, torn a car door off the hinges, there was even one where a kid lifted the car off his younger brother, cracked at least three teeth from how hard he was gritting them. Think Deku’s quirk from the first few seasons of MHA. All of these people lived, all of them fractured something.
We can’t replicate it in controlled setting because the current theory for why in part that it happens has something to do with shock, and putting someone in shock is unethical. It would be cool to know how it works, sure, but I don’t see any real point for trying to figure it out.
But back to the mold, cordyceps don’t have that limiter, it wouldn’t even have a concept for something like that, it’d just go!
This also goes with another thought I had about how the infected should be either missing a lot of teeth or have chipped teeth. The human reflex is to protect our heads and faces when we fall, fungus don’t care, fungus doesn’t have teeth, fungus doesn’t even know what teeth ARE.
“The person is still conscious during all this?”
… YEP!
Unfortunately, as long as higher brain functions are still capable of functioning, then there is a non zero chance that the person is helpless and aware.
The common consensus for a person living without water is three days, without food roughly three weeks. These are generalizations but they also need to be considered when talking about the progression of the infection.
The food I sort of rigged an idea for, that being the initial fungal blooms occur in the stomach and GI tract, the fungus eats the body, the body eats the fungus. This can’t last forever, because that would be a perpetual machine and that would completely obliterate the laws of thermodynamics, but it could keep a person going, that and the body naturally breaking down fat and muscle tissue for energy.
The water is a bit trickier though, the fungus is definitely the primary receiver and source of water for the body. Humid climates would be hell for a multitude of reasons.
But these issues are also somewhat mitigated by the fact that most infected aren’t ‘actively’ hunting. More often than not they’re in a dormant state until an external stimuli brings them to attention. (Usually sound) and while humans don’t hibernate, sleeping/keeping still can have lesser but similar effects on the metabolism.
Which means patrols were probably more for bandits/raids/smugglers than for roaming infected.
Ellie’s immunity.
It does, in part, have to do with the fact her mother was infected while pregnant. No doubts about that. But genuine immunity? Like actual full on she can’t catch it? No. Because she already has it.
Asymptomatic carrier was my first (and still is) my preferred explanation for this. The electronic scanner caught it, but the dogs didn’t. Why?
Because dogs aren’t trained to sniff out the fungus itself, what they’re smelling are the body’s attempts at an immune response, which is usually fine because antibodies in this sense mean definitely infected. But since Ellie is asymptomatic, it means her body isn’t producing an immune response at all.
Could she give it to someone else? In both the game and show, no. Because she is an asymptomatic carrier, she has actually grown a mutualistic relationship with the fungus, and I’m assuming, like tomatoes, if the fungus doesn’t see a need to propagate (IE all biological needs are met) it won’t try to reproduce.
If she were starved though? Like full on, the hunger pangs have come and gone, massive brain fog, her fingers are looking a lot like carrot sticks rn. Then the fungus might start being aggressive and turn her.
Whatever that may be, the Fireflies digging around her noggin without even a FUCKING MRI was stupid no matter what and on god I know it’s the apocalypse but they don’t even check if her lymph nodes were swollen, or if her reflexes are unusual!
An actual living specimen that as far as anyone knows has had the fungus rocking around in their brain stem for 14 odd years and no one wants to check if she had say… faster healing? Strengthened immune system? Increased/decreased metabolism!
THERE IS SO MUCH SHIT THAT COULDVE BEEN EFFECTED BECAUSE SHES GOT FUNGUS ALL UP IN HER MUSCLE TISSUE!!!! AND NO ONE WAS WILLING TO PUT THE “CURE” ON HOLD AND TRY TO DOCUMENT ACTUAL IDENTIFIABLE DATA!!!!
JESUS CHRIST!!!! EVERY SINGLE MF IN SCRUBS SHREAD YOUR DIPLOMA!! I DONT CARE IF YOUR NAN MADE IT FOR YOU WHEN YOU SHOULDVE GRADUATED YOU DONT DESERVE EVEN THAT!!!
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thebibliosphere · 1 year
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hello! a friend sent me your post about cirs and mcas the other day and it’s got me doing a lot of research, i’ve been sick since 2019 and was diagnosed w cirs in 2020, i’ve since hit a plateau where i’m not really improving tho and my cirs doctor doesn’t really know what to do with me until i build tolerance to a nasal spray or somehow banish more toxins from my already toxin-free room. i wanted to ask what your experience with cirs doctors was and how you figured out you were misdiagnosed? a lot of stuff around cirs is pretty sketchy but i’ve been at a point where i’ve just overlooked that :/ thank u i hope ur having a good day !!!!!
So, unfortunately, my experience sounds a lot like yours. I (skeptically and out of desperation) followed the advice of several alt-medicine doctors who believed I had CIRS and saw some improvement that ultimately hit a plateau and never really moved beyond it.
This was because some of their recommendations removed triggers from my environment that were causing my mast cells to react (scented candles, perfumes, strong chemical cleansers) as well as some high histamine foods. Gluten, for example, is a mast cell destabilizer and iirc “go gluten free!” is common CIRS advice but they never really explain why beyond some pseudo-science.
And while removing some triggers did help, they weren't doing anything else to meaningfully shore up my immune system or address the fact that mast cell dysfunction can fluctuate rapidly due to things like seasonal allergies, stress and also your own monthly hormonal cycle. (This is more common in individuals who menstruate, or those who use estrogen hormonal therapy, as estrogen can cause inflammation and act as a histamine liberator.)
I already suspected that CIRS was not my issue, but I ultimately soured on my doctors, when, like yourself, they continued to insist there was “toxins” in my environment* and I must not be following their advice properly. There was also heavy emphasis on things like essential oils and herbalism, which I knew from being a licensed practitioner of numerous holistic therapies in my 20s that they were promoting inaccurately and sometimes unsafely when they also continued to insist that my reactions to certain things were caused by “toxins” leaving my body and if I just persisted long enough, I’d see the benefit.
(As an aside, what nasal spray are they insisting you take?)
While it is true many of chronically ill people suffer from chemical sensitivities, the insistence on labelling everything a “toxin” and pushing natural alternatives to an extreme, made me nope out and continue my medical research.
A few years later, I started getting worse following a gnarly dental infection, and I began to experience slow-acting anaphylaxis which a Horrendous number of doctors misdiagnosed as panic attacks and even in one spectacular instance of medical incompetence, bipolar disorder.
By then, I had learned about and suspected that I had MCAS but was too ill to keep fighting my doctors. It wasnt until I almost died in 2019, that a new doctor panicked, threw me at seven specialits in a week and I walked away with a diagnosis of perniciois anemia, likely caused by a mast cell disorder and my body’s inability to absorb things properly.
The hematologist who saved my life referred me to an MCAS specialist who took my hand to shake, looked at how the joints moved in her grasp, and said, “this is now an Ehlers Danlos exam.”
I walked out eight hours later with a diagnosis of hEDS and “probable MCAS and undefined dysautonomia.” which is a fancy way of saying I have a genetic disorder and multiple forms of autonomic nervous system dysfunction.
Not everyone with MCAS has Ehlers Danlos Syndrome, but a lot of us do. So if you have problems with chronic pain, joint instability, hyper flexibility (muscles), hyper mobility (joints), soft and easily bruised skin, migraines or a lot of unexplained GI symptoms, it might be worth your while to check and see if EDS might be relevant to you.
The Ehlers Danlos Society has a global directory of physicians you can look up.
Its also worth noting there’s a lot of overlap between people with Autism and ADHD with Ehlers Danlos and Joint Hypermobility Disorder.
Like I said, it may or may not be relavent to you. I’m just throwing it out there in case it helps.
So yeah, that’s basically how it went for me. Two years on mast cell stabilizers and a lot of prescription supplements to combat numerous deficiencies, and my health is unrecognizable from what it was. I still have nasty flare-ups (like now), but that's just an unfortunate reality of life with the numerous conditions I have. I’ll take it any day, however, over what I was living before.
I hope this was helpful and that you find real relief soon. Take care.
______
*nb: to any long-term readers, this was before I unknowingly moved into a house with mold, which is a mast cell destabilizer.
This is partly what makes me think that some people diagnosed with CIRS actually have undiagnosed MCAS because so much of CIRS theory hinges on things like mold sensitivity and other environmental factors, though they never explain why beyond a basic “it's a toxin and toxins are inflammatory.”
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pinkandpurple360 · 5 months
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Sorry if It's a random question, but do you have any Stella and Octavia related headcanons? The show barely talks about their mother and daughter relationship (because then it would actually be focused on members of Stolas' family that isn't him), but i'd like to hear about them if you have any
So many! For me, a huge part of my enjoyment of Via is the headcanon that she’s autistic like me. And I sometimes consider the idea of her being lesbian just because there are no lesbian characters and it wouldn’t be an oversexualised representation if it’s Octavia. But alas, she has never interacted with any characters who aren’t adults.
I’ve always had the headcanon that when Via is having a nightmare, or scared of monsters under her bed or the like, when Stolas takes his turn to help her he gently consoles her and assures her that he will keep her safe. And he loves showing her magic because it puts stars in her eyes. She goes to bed relaxed, calm, and smiling.
Stella doesn’t have that same approach. Or abilities.
When Stella takes her turn to comfort Via, she peeks under the bed and yells at the ‘monsters’ that they messed with the wrong princess, and her mom will tear them a new one with her bare hands, how dare they take residence under her bed without paying at least a million souls in rent per month!! This gets Via giggling and laughing at her mom, while also feeling safe. Nobody would mess with her when she has a nice dad like Stolas and a tough mom like Stella. I just like the idea of Stella using her anger to make someone feel safe instead of scared for once. And to have a scene mirroring Stolas’ comforting Via, because these are two flawed people who deserve humanisation. I’d really love just one scene of the three of them getting along and having one or two nice memories, even the most abusive families can have one nice memory—that causes them to cling to a broken situation, and it makes the falling out of their family an actually tragic story.
Of course she’s petty enough that her yelling “accidentally” still wakes up stolas because how dare he not get up first! a lady needs her beauty rest! He’d always get lectures from her about how to be chivalrous to a lady, while she herself is saying all of this with her mouth full of messy bonbons.
I also like the idea that Stella pays enough attention to Via to know what she likes to wear, even though her own hyper feminine glamorous look is so deeply different to Octavias low key skater girl gothic look. She buys her punk goth clothes that are actually ridiculously expensive designer label—to which Via says “mom that goes against the very concept of punk!!” To which the imp staff giggle and say ‘ok rich girl’ making Via blush in embarrassment. Via is the type to act like she’s poor, to fit in, and she relates to the angst of punk music made by the working class—but then she pulls out her top of the range 1,000 dollar mobile phone.
It’s no secret that I headcanon Octavia as autistic, mostly cause I’m autistic and see every young girl character labelled with ‘attitude problems’ as autistic. Stella, surprisingly enough, was the one who helped Via get an official diagnosis and therapy items to help cope with meltdowns, stimming, and prevent overstimulation.
She’s mad at Stolas for always taking her to places that are his special interest, but always end up overstimulating Via—like LooLoo Land and the time she ended up in Los Angeles (which of course, Octavia told her mother all about) Via tells her mom everything. I love Fizz/fizzbot but let’s be honest, he is overstimulation itself. Stolas is probably in denial about her being autistic cause he doesn’t really understand what it means and think they just need to negotiate or talk it out. Sometimes he just doesn’t pay attention. While Stella pays too much attention.
youtube
An adorable fan animatic by Cinnamon, basically Octavia info dumping to her parents about cartoons and anvils while they try to keep up with her. I headcanon that she’s been nonverbal for a few days leading up to this so now she physically can’t stop talking. Plus it has the adorable butler in it, and it shows the headcanoned relationship I had of Via being the one person in the palace who is nice to him and actually talks to him.
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strugglinguist · 11 months
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When I was 9, we moved out of state. This meant moving away from my best friend. I decided as a 4th grader in a new place that this meant I should hold best friend auditions. I had a rubric of the things I deemed most important as an undiagnosed AuDHD 9 year old. The biggest one I remember is that I required the person to have a vivid imagination so that our play could be immersive with the necessary collaborative world building. I think I just called it “in touch with their imagination.” I didn’t find a replacement lol
Anyway, now I’m 33, and I am again looking for new friends. I still don’t quite understand how the process works, so let’s mix it up.
If you want a friend who is autistic, ADHD, has OCD, and is almost always a very hyper verbal “DID YOU KNOW”er… then I’m the girl for you. I’m also queer and polyamorous. I have become exponentially more introverted with age, and I’m physically disabled and use a menagerie of mobility aids for hEDS and arthritis. I am also no longer fit for larger society because I decided to get my PhD, and now my brain only knows linguistics, random facts, and nerd things. My students often appreciate these traits in class.
If you are any of those things or like any of those things (let’s be real you kind of have to deal with the whole package in friendship) OR you live in central NY uhhhh hit me up? Follow this blog and comment? Idk. Be my friend! Lolololol
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