#hemiplegic migraine

[bodhrancomedy]

A sort of slam poem I wrote while fighting a hemiplegic migraine after a long day doing what I love (theatre) and having to briefly bow out due to going non-verbal.

I’ve been on the go for four days straight with deadlines, travel, cons, and networking and it’s moments like this that make me fear for my future as a creative.

I’m tired before anyone else. I’m the one who falters first. I’m the one that makes it difficult.

Four days of little sleep should be natural for an actor. A film is usually at least eight weeks. The West End runs for months at a time.

I’m so scared I’m not sustainable. Not the schedule. Me.

#deaf #tiktok #video #queer #actor #disabled #hemiplegic migraine #actuallyautistic #actuallyadhd #poetry #slam poetry

[audhd-space]

LIFE AS CHRONICALLY ILL PERSON

good news: finally had your symptoms taken seriously by HCWs enough that they booked MRI for you

bad news: waiting list is so long your next MRI appointment is October 2024

#personal #life update #spoonie #chronic illness #disability #chronic pain #chronic migraine #hemiplegic migraine #neurology #invisible illness #MRI appointment #neurological disability

[apparentlyautisticandanxious]

Not so fun facts about my migraines:

15-20% of people get migraines

0.002% of people get Hemiplegic migraines

Sometimes I get regular run of the mill migraine. The kind where your head hurts and lights and sounds are horrible.

Sometimes the left side of my face goes numb and I can’t smile right

Sometimes my right arm gets weak

Sometimes both of my legs get weak and I can’t walk without a cane or walker

Sometimes I struggle to find words

Sometimes the vision in my right eye is just not quite right

Sometimes I get terrible vertigo

Sometimes I get super nauseated

Sometimes my teeth hurt

Sometimes I feel super hot/flushed

Sometimes I get all of the above

Autism is an independent risk for migraines

Autistic children are far more likely to experience migraines

One study showed that autistic people were twice as likely to experience migraine

I started getting migraines at age 7

My triggers are weather changes (I can usually tell it’s going to rain based on my aura) and hormonal changes, especially PMS

These are the two triggers that are impossible to avoid

Thank you all for listening to me complain while I lay in bed miserable because I can’t walk or smile or have the lights on.

#hemiplegic migraine #migraine #rare migraine type #headache #sporadic Hemiplegic migraine #autistic adult #autism #autistic life #actually autistic #actually autism #actuallyautistic #autism migraine connection #actually disabled #mobility aid #mobility aid user #neurology

[changelingsandothernonsense]

Yay, I love 48 hour migraines that give you a 5 hour intermission.

I'm exhausted and just...it's similar to stroke symptoms and im still half paralysed and blind but the pain's faded and I'm not throwing up anymore. Oh and I can use words a bit.

So there's that....I require salt.

#really over being sick because “hormones” or #“you're exhausted” #or like the fact that it's hot and muggy outside #migraine #hemiplegic migraine #brain is jelly #personal shit

[0blognamehere0]

i love researching my migraines, y’know as one does, and finding out that i have one of the rarest migraines a person can have. like, um excuse me, what?? wdym that my migraines are basically just a stroke with longer lasting affects?? also how crazy is it that i can find more info about than i could when asking doctors? 😀 yeah but anyways we’ve unlocked a new achievement, the name of the migraines i get are “hemiplegic migraines” and only .01% of people have out of the 15-20% of the population who experience migraines

#hemiplegic migraine #migraine #possibly a disability? idfk man #i hate migraines like f u

[mesmoe-rizing]

I've had what I like to call a Daredevil class migraine almost all day.

What is a Daredevil class migraine you ask? Why thats when you get:

+1 Touch sensitivity

+1 Scent sensitivity

+2 Hearing sensitivity

+2 Light sensitivity

-3 Vision

#migraines #was experiencing some pretty vivid visual hallucinations for at least an hour #and im still super dizzy #i take so many meds for migraines #pls dont suggest treatment #i dont need advice from the peanut gallery #i visit a lot of doctors so i dont need it #IIH #idiopathic intracranial hypertension #mesmoe speaks #hemiplegic migraine

[mental-mona]

#hemiplegic migraine #migraine #migraines #mham

[lelibug]

FIBROMYALGIA Vs FND & Long COVID

BLOG | FIBROMYALGIA Vs FND & Long COVID | delphinemusic I have waited a LONG time to get to this point, to ask for this investigation into FND & Long COVID from the GP... #Fibromyalgia #trauma #chronicillness #ChronicPain #Dysphagia #LongCovid #FND

I have waited a LONG time to get to this point, to ask for this investigation into FND & Long COVID from the GP. I am terrified of being laughed at, being told no, or that I’m being daft. Humiliated, burned, ghosted, gaslit, disdainfully told off… These are all the things I have experienced from health professionals and GPs since I was 12. That was when I was a 12yo traumatised child, living…

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#anxiety #aspirating #autistic #Autistic Adult #Autistic Burnout #Blacking Out #chest infection #chronic illness #chronic pain #COVID #disability #Dysphagia #Exhausted. #fatigue #fibro #fibromyalgia #Fibroplegia #FND #Functional Neuropathic Disorder #Hemiplegic Migraine #long COVID #mental health #Pain #petrified #Sippy Cup #terrifying #zone out #ZoneOuts

[sasontiptoes]

My right leg and foot are going fucking numb and I am fucking sick of it. I am “due” for an episode and worried it’s coming… who the fuck knows. Not me.

#neurological problems #hemiplegic migraine #seizures

[bodhrancomedy]

Sometimes when I’m having a really bad hemiplegic migraine attack I like to pretend I’m Frodo during the attack on Minas Tirith being slowly compelled by the ring to show myself to the Nazgûl and by lying in my bed in the dark and going to sleep is winning.

#deaf #funny #hemiplegic migraine #migraine #they were gone for ages!? #BUT THEYRE BACK BITCH #AND I HAVENT TAKEN MY MEDS IN MONTHS

[audhd-space]

Life update:

Chronic migraine gotten really worse for the past two months, mixed with face numbness and peripheral neuropathy. Balance issue, really bad vertigo that when flared up causing difficulty to walk.

Recent follow up at neurologist, they decided to change my prescription from Gabapentin to Pregabalin. I am still taking Topiramate for my hemiplegic migraine. I am also taking Bionerv supplement to support my nerve issues.

Currently observing the side effects.

#personal #life update #disability #chronic migraine #chronic illness #hemiplegic migraine #vertigo #spoonie #neurology #chronic pain

[hiisikoloart]

Having 5 separate migraines in 4 days should be illegal.

#migraine #hemiplegic migraine #i wanna puke #fuck this

[chicago-geniza]

Sometimes remember that I was first diagnosed with chronic migraines in the 3rd grade and to qualify for that diagnosis you must meet the clinical-significance criterion of "having 15 or more migraines per month" and taking that as an average, though the number has gradually lowered with effective treatment, I have spent about 50% of the past 20-odd years with a migraine. Anyway it sounds less absurd to apply for disability when you parse it quantitatively like that, not even accounting for quality of life

#Also I get hemiplegic migraines and have been hospitalized for them on numerous occasions #Once I had a migraine for over a year and went blind lmao

[vulcanette]

reading more about migraines and realizing the compulsive yawning that happens to me some days when I am very tense and have a lot of pressure in the mask of my face— the yawning is related to migraines too! Wild

#I sincerely and genuinely hope and pray that my migraines stay at this level for the rest of my life #and I do not develop hemiplegic migraine disorder like my mom #thankfully even though it seems like it’s ramping up this is totally normal for me #it’s just the season w a lot of pressure fluctuations triggering more migraines than usual #personal #a small diary entry

[an-assortment-of-forks]

I love switching insurances and learning the old one diagnosed me with like 5 things without telling me

#and also that im in the fucking LOWEST levels of testosterone when i asked to be mid range #fuck you kaiser and ur expensive bullshit #like i thought i was still waiting to be diagnosed with my chronic migraines? and the hemiplegic ones? #but no they just threw that shit in there #ALSO SINUS TACHYCARDIA #but my doc just said my heartbeat wasnt anything to worry about she did not fucking tell me she put a whole thing in my chart #i thought the heart monitor thing was just inconclusive? like she brushed it off #SMH #i hate doctors so so so so much fuck you

[changelingsandothernonsense]

Ah it finally ends at 1:30 in the morning! Now I'm going to actually properly sleep. And do nothing for a while. XD

I should know that hyperactivity is directly related to how many ice pick anvil headaches I get. And I was hyper as fuck for Wednesday/Thursday. XD

It's either that or seizures so *shrug* can't tell until either my scalp feels crackly or I get pain in my left eye and go blind for 24 hours. Sometimes its both! Auras always start the same. Time for postdrome self care/ sleep and not much else.. that was a rough one!

Because I had both today! I feel like a truck hit me! 😢

#bitching about brain malfunctions #epilepsy and hemiplegic migraines are a fun friendly day in #and now we start the timer again #i can never clear 5 months #sleep and then stare at nothing #actually epileptic