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#neurological condition
positivelyqueer · 2 months
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give love to people with traumatic brain injury, acquired brain injury, stroke, neurological condition, worsening mental health, trauma, PTSD and all other brain based conditions that make you feel conflicted about your identity. About whether or not you’re the ‘same person’ you were before your injury or illness. People constant evolve and change but can be more difficult when changes more sudden, pronounced, and noticed by others. I hope you are doing well and are able to find some peace, support and love.
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neuroticboyfriend · 3 months
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"physical" effects from "mental" disorders aren't just a side effect of the condition. they are an inherent part of the condition, and they have real rammifications for things like your heart or gut health, for your sleep and metabolic system, for everything in your body. your brain and nerves are all part of your body. the fatigue matters. the high blood pressure matters. the fainting matters. the lack of, or excessive, appetite matters.
all of it matters, all of it disables you, and all of it needs recognition and caring to. don't let weird gatekeeping online or ableism from society at large stop you from being kind to yourself. be disabled, be neurodivergent, be crippled, be a spoonie, and do it unashamedly. all chronic illnesses and neurological conditions matter. you got this and i'm with you.
sincerely, a disabled person whose "mental" conditions cripple them as much as their "physical" ones.
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sproutflags · 1 year
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Pseudobulbar Affect (PBA)
Pseudobulbar Affect (PBA) - a condition that's characterized by episodes of sudden uncontrollable and inappropriate laughing or crying. If you have Pseudobulbar Affect you'll experience emotions normally, but you'll sometimes express them in an exaggerated or inappropriate way.
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sparkofthetelling · 10 months
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Motor disability cross-sectional issues ?
The one thing I wish I was more able to explain to people about any of my disability issues is the very subtle ways PKD affects me, because I tricked myself into thinking essentially all of the symptoms of it are the result of my autism for a good 4-5 years, and that's just infeasible. Like, I have to go on a 10-15 minute walk any time I get an email from a couple of specific people because the sheer excitement in relation to my hopes, dreams, and special interests acts as a conflagration of nervous activation to the point where I can't focus on anything because said fire presents as the aura, so I know if I move, it'll trigger an episode, and when I'm excited I can end up flagellating (physical motion, not with any particular context attached) as a stim, which I don't want to 'set' as the input for an episode (not always how it works but sometimes) because that hurts! obviously And so like, I just have to go on a silly little walk to let all of that out in manners so that I can do literally anything again, because, in the only way I can think to describe it, my nervous system decided it wanted to press the send command button 50 extra times In a different bent, usually I find that episodes switch sides of my body if I'm doing something with the part afflicted by the aura, which is useful because it made doing chem labs slightly safer (s/o to the chem major who partnered with me because she saw my name and offered to do all the physical lab work, that was perfect), but if I do not conceive this object or action as "important", the episode will trigger on whatever I'm doing anyways, which leads to me just flinging markers and erasers around the room when I'm writing on the board for a class either that I'm taking or teaching, and depending on the circumstances that can be very offputting. It's good to know that I need to ask for accommodations at conferences in the future not just for POTS though, because back at the start of uni I took a public speech class where for the first presentation, I just stood there for a full like eighth of the presentation shaking on my legs trying desperately not to fall over because I don't know how to fall over safely, and couldn't speak because of how much focus I had to put into it. Thankfully that professor was sitting where she could see what was happening with my legs and I think that's why I still got a good grade but still, yeouch. I was hoping I wouldn't have issues with the talk I gave back in April, but because of just raw nerves rather than explicit nervousness, it triggered in my feet again and thankfully I was able to rest on the podium. I have no intention of trying to medicate this because afaik there's no harm in it and it should get better with age (and taking the rest of my meds is already hard enough), but oof is that a lot
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ofdinosanddais1 · 10 months
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I watched the Brain on Fire movie on netflix and I am crying just like that episode of Grey's Anatomy with Demi Lovato and fuck man. It sucks being told you're just crazy when you have neurological problems. Psychiatric illnesses are neurological problems and those illnesses can very well be symptoms too. Like I know my migraines and chiari malformation are the true answer because the meds are working and I am less anxious and less depressed now but I'm still going to have neurological damage because, guess what, migraines can cause brain damage. But now they're not getting worse. They are steady. They happen less often. They have meds to keep me comfortable and continue on living alongside my migraines because that's just how my brain works.
Now, to a not neurological related thing is my digestive problems and when she said her doctor found her, I resonated with that because, to me, I interpreted that as her doctor finding the her that is her brain and how she can finally figure out how to accommodate herself. And sometimes those accommodations are just meds. Sometimes they do require things outside of meds. And maybe the real Susannah Cahalan does not perceive that quote the same way but that's how that quote resonated with me. The doctor (and also the neuro physical therapist) who diagnosed me with chiari and migraines found me. The autism community found me by telling me that my behavior is me and my brain not me just being a weird outcast. Now I hope this gastroenterologist I'm seeing now finds me again whether that be celiac disease and the possibly permanent damage with that or something else wrong with my digestive tract or maybe my digestive tract is just a factor in something larger than I can understand.
I hope everyone out there without answers can be found too.
And I do want to clarify that sometimes some people are just mentally ill and that's still a neurological problem. They still need to be taken seriously. They still deserve to be treated with kindness and compassion. They still deserve doctors giving them the required care and attention. It justs sucks how mentally ill people are used as scapegoats to dismiss someone else. That doesn't help mentally ill people. That doesn't help anyone at all. And you know what? Maybe they are anxious. Maybe they are depressed. Maybe that anxiety and depression is being amplified by being in pain all the god damn time.
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For individuals with intellectual and developmental disability in Northfield, New Jersey, living with cerebral palsy (CP) can present unique challenges. This neurological condition affects muscle tone, movement, and posture, impacting daily life in various ways. Yet, amidst these hurdles lies immense strength and resilience waiting to be embraced.
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mobilityimpairment · 2 months
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Navigating Cerebral Palsy: Symptoms Decoded and Treatment Insights
Navigating Cerebral Palsy: Unravel the symptoms and gain valuable insights into treatment options with our comprehensive guide. Explore the complexities of this neurological condition, understand its impact on daily life, and discover effective strategies for managing symptoms. Empower yourself with knowledge to support individuals with cerebral palsy on their journey to a fulfilling life."
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roadzoflife · 4 months
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leg spasms | involuntary movements | neurological condition #bizarre #wt...
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Depression and Autism Spectrum Disorder (ASD) are two distinct neurological conditions, but research suggests that they share complex and interconnected emotional ties. The link between depression and autism is multifaceted, as individuals with ASD may experience higher rates of depression compared to the general population.
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Autism is a complex neurological condition that affects many individuals worldwide. Traditional treatments for autism spectrum disorder in Ohio often involve medications, behavioral therapy, and other conventional methods.
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Attention deficit hyperactivity disorder (ADHD) is a neurological condition affecting millions of individuals across the world. Focusing issues, hyperactivity, and impulsivity are symptoms of ADHD. Any age can be affected. However, youngsters are typically the ones that are diagnosed with it.
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Gentle reminder that your disability and/or chronic illness struggles are valid, even if others have it worse. It’s not like there’s one definitive Most Disabled Person In The World and they’re the only one entitled to accommodations or reactive emotions. That’s not how it works <3
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neuroticboyfriend · 6 months
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people who are neurodivergent:
autistic people
people with ADHD
people who are ALSO neurodivergent:
anxious and depressed people
intellectually disabled people
people with Multiple Sclerosis
schizospec (schizophrenia spectrum) people
people with movement and tic disorders
antisocial and narcisstic people
people with brain injuries (ex, from physical trauma or stroke)
plural people, including nondisordered ones
people with paraphilic disorders
literally anyone with a condition related to the nervous system (brain, spinal cord, nerves) or other "atypical" brain experiences
neurodivergent is an umbrella term that covers a whole bunch of people! it is not a synonym for autism and adhd. please include all kinds of neurodivergent people in your activism!
(disclaimer: no one has to be neurodivergent if they dont want to; people are allowed to define themselves as they wish!)
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thiefofgenders · 2 days
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I was talking to a friend and found out this isn't normal for everyone to have so if you're one of the people who don't have an emergency hospital bag, this is your sign to start pulling one together. Hope you'll never need it but make it anyways because if you need it and you don't have one you'll kick yourself. It's designed so if you were suddenly rushed to hospital or had to go to A&E/ER then you or someone you know can just grab it and go. Trust me, it makes life so much easier when you have a bag in an allocated space that anyone can grab for you if you need it. All you need is a bag designed to be hand luggage on a plane. Everyone's is different and it's customisable to you but things I have in mine include:
A list of all my current medications and their dosages
A list of all diagnoses with the medications used for them noted since some medications have multiple uses
A list of any mobility or physical limitations due to disabilities or illnesses
A list of emergency contacts
A list of allergies and what happens when I come into contact with those allergens
My regular doctors and specialists information
A change of comfy clothes including two sets of underwear and socks
Pyjamas that are comfy enough to be in but not too revealing since it's a hospital
Dressing gown (if there's space - if not keep one close to the bag for convenience)
Wet wipes
Alcohol hand gel
Deodorant
Chewing gum
Travel sized toothpaste and toothbrush
Travel sized dry shampoo
Travel sized shampoo and conditioner
Travel sized shower gel
A small tube of hand cream
A small microfiber towel
A plastic bag to keep soiled clothes in
A book to read
A puzzle book with at least two pens/pencils
Headphones/ear plugs
A portable phone charger
Spare phone charger with plug
Small comfort items
Small stim items
An eye mask
A small fan
A bottle of water and some small snacks (no nuts!)
I really encourage everyone to build theirs and regularly check it and update it as needed. Even if you think you're the healthiest person in the world, you have no idea what tomorrow will bring and it's always better to be prepared than left floundering during an already stressful situation. Feel free to add on your own ideas for what people can put in theirs. My list is by no means complete and there's bound to be things I didn't think of
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serialunaliver · 1 month
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having brain damage is so funny i'll be staring at my phone and suddenly itfeels like i'm on the verge of having a seizure and my body convulses for a few seconds and then i'm normal. NO cure ^_^
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