#Actually Disabled

[crippledpunks]

i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary

#cripple punk #cripplepunk #crip punk #cpunk #actually disabled #chronic pain #disability culture #fibromyalgia #disability rights #disability advocacy #physical disability #c punk #angry cripple #queer cripple #cfsme #chronic fatigue syndrome #chronic fatigue #arthritis #diabetes #neurodiverse #neurodiversity #neurodivergent #autism #autistic #adhd #actually autistic #hypermobile eds #hypermobilty syndrome #our writing

[loonarmuunar]

Robot disabilities. Robot who charges slowly and loses power incredibly fast and is always tired. Robot with malfunctioning lenses and can’t process visual information properly. Robot that can’t process anything too large and at a fast rate or else they’ll shut down. Robot with limbs screwed on too loose/just can’t attach correctly, so if they’re not careful they fall out. Robot disabilities,,,

#ROBOT DISABILITIES. DO U SEE IT DO U UNDERSTAND #writing ideas #ideas #creative ideas #robots #android #androids #moonar shit #disabled #actually disabled #disability #disabilties

[matchakuracat]

chronically ill/physically disabled people, how do you deal with doctors appointments? what do you say/do to advocate for yourself? im autistic and not diagnosed with a chronic illness yet and i really struggle to know what to say to get them to listen to me and understand so that i can get the help and care i need. even if i bring someone with me, they also need to know what to say and i don't know anyone who understands well enough to explain to the doctor for me, which means that i have to tell them what to say before going. but that's the problem since i just don't know.

i have chronic joint pain that ive had for years but has only gotten worse over time. i also have hypermobile knees which are the worse they've ever been right now. i'm chronically fatigued and barely have the energy to eat and do basic hygiene. i have a few friends that i talk to fairly regularly and im very thankful for them but i still struggle so much with maintaining a social life when i cant even maintain my own physical wellbeing. i only go outside when i absolutely have to/when my pain is low enough and i have enough energy. on average i probably leave my house about once or twice a week, usually to go to medical appointments, to an internship i have once a week or to go grocery shopping. i usually try to do both at the same time if i can (like going grocery shopping after my internship) but most of the time i have to ask my parents to get me groceries since i dont have enough energy to. all i want is to be able to go outside just to take short walks and enjoy nature and the fresh air but i can't do so without the right treatment/a mobility aid. everything im doing right now is bordering the line of too much. im constantly tired and overwhelmed and everything feels like a struggle, even the smallest tasks most people do everyday without thinking twice about it.

i have almost only had bad experiences with doctors and other medical professionals like physiotherapists, which has given me a lot of extra anxiety on top of my already pretty bad social anxiety. i really struggle to make appointments and even more so to go to them, and when i bring myself to do so i really struggle to express myself and explain how i feel and how i want them to help me. i almost always get shut down and offered no actual help with any of my problems. i just don't know what to do anymore.

if anyone has any advice i'd really appreciate it. i know that i can't give up because my life right now without accommodations is too miserable, but i also don't know how to move forward.

sorry if this was hard to understand. i really tried my best to explain but im having a bit of a hard time expressing myself right now due to feeling worse than usual.

#chronically ill #chronic illness #autistic #actually autistic #physical disability #physically disabled #mentally and physically tired #chronic illnesses #chronic pain #chronic fatigue #undiagnosed chronic illness #undiagnosed chronic pain #cripplepunk #crip punk #cripple punk #chronic illness rant #disabled #actually disabled #disabled rant #mobility aid #mobility aids #medical gaslighting #doctors appointment

[thiefofgenders]

I was talking to a friend and found out this isn't normal for everyone to have so if you're one of the people who don't have an emergency hospital bag, this is your sign to start pulling one together. Hope you'll never need it but make it anyways because if you need it and you don't have one you'll kick yourself. It's designed so if you were suddenly rushed to hospital or had to go to A&E/ER then you or someone you know can just grab it and go. Trust me, it makes life so much easier when you have a bag in an allocated space that anyone can grab for you if you need it. All you need is a bag designed to be hand luggage on a plane. Everyone's is different and it's customisable to you but things I have in mine include:

A list of all my current medications and their dosages

A list of all diagnoses with the medications used for them noted since some medications have multiple uses

A list of any mobility or physical limitations due to disabilities or illnesses

A list of emergency contacts

A list of allergies and what happens when I come into contact with those allergens

My regular doctors and specialists information

A change of comfy clothes including two sets of underwear and socks

Pyjamas that are comfy enough to be in but not too revealing since it's a hospital

Dressing gown (if there's space - if not keep one close to the bag for convenience)

Wet wipes

Alcohol hand gel

Deodorant

Chewing gum

Travel sized toothpaste and toothbrush

Travel sized dry shampoo

Travel sized shampoo and conditioner

Travel sized shower gel

A small tube of hand cream

A small microfiber towel

A plastic bag to keep soiled clothes in

A book to read

A puzzle book with at least two pens/pencils

Headphones/ear plugs

A portable phone charger

Spare phone charger with plug

Small comfort items

Small stim items

An eye mask

A small fan

A bottle of water and some small snacks (no nuts!)

I really encourage everyone to build theirs and regularly check it and update it as needed. Even if you think you're the healthiest person in the world, you have no idea what tomorrow will bring and it's always better to be prepared than left floundering during an already stressful situation. Feel free to add on your own ideas for what people can put in theirs. My list is by no means complete and there's bound to be things I didn't think of

#chronic conditions #spoonie #spoonies #actually disabled #disabled #disability life #chronic illness #fibromyalgia #functional neurological disorder #fnd #chronic pain #chronically ill

[stories-by-starlight]

Too many people don’t take visibly disabled people’s emotions seriously. Not just in way that they don’t care about how feel, although that true for many people too. But also in way that they treat their/our emotions, especially negative emotions, as a spectacle.

A punchline to a bad joke.

We seen this for long long time, but the right words describe it never came until recent.

Many people do things bother or hurt us, then laugh it off when we get upset because: “What are you going do about it?” Because they know can’t yell back or fight back or make them stop, and it’s funny see us try because we look so odd.

Because don’t look “right/normal”, human emotions stop being real emotions and start being entertainment. Or maybe they confusing, to them.

Ask everyone to please respect boundaries of others. And if you do/done these things to people, please stop. It’s not funny, just cruel. Disabled people not your entertainment.

#disability #actually disabled #actually autistic #actually nonverbal #nonverbal #autism #aac user #storybook talks #cw ableism #ableism

[holierthanth0u]

i dont expect much traction here, but out of curiosity: if you are nonverbal/semiverbal or experience verbal shutdown, are you still able to audibly laugh?

personally during verbal shutdown i cant laugh, which makes me wonder about other peoples experiences.

EDIT: please be mindful that you cannot "go nonverbal", which is why the term verbal shutdown exists. if you are nonverbal/semiverbal, it means you are like that all the time. verbal shutdown is temporary. link

#disabled #disabilties #actually disabled #disability #autism #actually autistic #autistic #autistic things #autism poll #polls #autism spectrum disorder #asd #asd community #speech loss #verbal shutdown #nonverbal #semiverbal #nonspeaking

[beansintrenchcoats]

Let's talk about the other symptoms of chronic pain disorders.

Let's talk about how during a flare up, my brain fog becomes so bad that I can't remember my own full name or date of birth.

Let's talk about how I often can't stand not just because my legs hurt, but because they're so weak and shaky they can't support my weight.

Let's talk about how debilitating fatigue can be, when I can't move a muscle because I'm so bone-weary tired. My pain is the main symptom of my chronic illness but there are others. There are so many others. And they all fucking suck to live with. So why am I not taken seriously when I talk about them?

#physically disabled #disabled #actually disabled #crip punk #cpunk blog #physical disability #cripplepunk #chronic pain #cripple punk #cpunk #chronic pain disorder #chronic illness #fatigue #brainfog

[pixierainbows]

#washington #hiking #service dog #autism service dog #actually autistic #actually nonverbal #actually disabled #Sunshine and pixie

[atomicraft]

JRWIBLR DISABILITY WEEK INTEREST CHECK !!!

hello !! this is an interest check for potentially holding a disabled jrwi character week !!! Similar to the character weeks held in the past (such as the fnc week or ghostknife week) each day of the week would have a prompt centered around being disabled.

Anyone would be able to join, disabled or not ! It would probably be held in August (but the poster would come out a month in advance to give people time to work on their ideas) and I think it would be a really fun way to highlight disabled voices and rep in the jrwi community :]

#jrwi #jrwi show #just roll with it #just roll with it the suckening #riptide jrwi #prime defenders #blood in the bayou #jrwi week #disabled #actually disabled #jrwi fic #jrwi art #jrwi hcs #jrwi hc #interest check #jrwi interest check #jrw(d)isabled

[cistematicchaos]

I feel guilty sometimes when I visit doctors. Largely because of money but also because most doctors don't seem to like me much, or at least treat me badly and some part of my brain still believes that must be my fault.

After all, I've been going to doctors for years. How is it so many of them treat me like shit? How is it I am fighting for bare minimum treatment every time I see them? I guess part of me thinks since I'm the one involved every time, it has to be my fault.

I've been told frequently by others that I'm off-putting, strange, a pain to talk to-Hell, I had a doctor suggest I was "too dumb" to be in his office. It wouldn't greatly surprise me if there was something about me that just put all of these people off.

But I don't really think that's it anymore. I think neglect and abuse from doctors is actually far more common than people think. I think tons of people dislike people who need accommodations because of their disabilities, even (and some times especially) medical professionals. I think people look at "unsolved medical issues" and immediately jump to liar, and then mentally ill and let's just say that train of thought doesn't have good intentions.

I think I'm visibly Black and gender-weird, which also goes over badly. But I also think that no matter any of these things, even if I was faking, that those medical professionals made the choice to treat me like shit. And that's on them. It just takes time to actually accept that.

#chaos is speaking #ableism #disability #actually autistic #actually disabled #sanism #Medical neglect #medical abuse #Feel.free to reblog I don't mind #just been thinking on this a lot lately

[crippledpunks]

if you are a disabled person of any severity and can make it through a grocery shopping trip, i am proud of you and look up to you. if you can't make it through a grocery shopping trip for whatever reason, pain, anxiety, psychosis, ADHD, autism, depression, memory or attention issues, fatigue, exhaustion, irritability, confusion, dissociation, or anything else, you have my condolences because i'm right there with you, that shit sucks ass. it's needlessly complicated and its something that abled people take for granted

of course disabled people cant go across the entire store to put an item back every time. of course disabled people may need help getting items from high or low places. of course disabled people will get lost even in labeled places because of object blindness, blindness/eye problems, bad attention span, anxiety, or other issues, of course there are who can't make it through the entire store without collapsing

these stores are designed to confuse customers and trap them inside for as long as possible to increase impulse spending, of course disabled people are going to struggle to navigate the store. i love you if you're disabled and can navigate the store, kudos to you, but i also love you if you can't. it's not easy and people take for granted how easy it is for them when others can't do it at all

#actually disabled #chronic pain #disability culture #cripple punk #fibromyalgia #crip punk #cripplepunk #cpunk #disability rights #disability advocacy #fibroymalgia #psoriatic arthritis #arthritis #cfs/me #cfsme #chronic fatigue #chronically ill #chronic illness #physical disability #physdis #physically disabled #autism #autistic #adhd #did #dissociative identity disorder #osdd #anxiety #depression #bipolar

[lastoneout]

Anyway as much as I love the interactions checker on drugs.com there needs to be a website that breaks down in detail exactly how to safely smoke/drink/ect. when taking certain medications because trying to google "how long do I have to wait after being given an opioid pain killer before it's safe for me to consume marijuana" just gives me tons of results about how I'm going to die if I take them at the exact same time and that is not!! what I am asking!! and tbh despite weed being legal here understandably this is not a question I am comfortable posing to any of my actual doctors, so??

#actually disabled #marijuana #ask to tag

[wxrmeaterz]

if you get upset at disabled and mentally ill folks for not doing what you consider "basic hygeine" cmere a sec

*whacks you with my metal pipe*

#disabilities #disabled #disability #physically disabled #cognitive disability #physical disability #chronically ill #chronic illness #chronic pain #chronic fatigue #mental health #actually mentally ill #actually disabled #crip punk #disabled punk #cripple punk #neuropunk #madpunk

[pleastrop]

everyone talking about overdoing it on good days, but what if i just over did it on a bad day?

like, if you need me just don't, because it will take make an unimaginable amount of time to recover from this

#chronic illness #chronic pain #chronic fatigue #chronically ill #disabled #actually disabled #disability #disabilities #chronic disability

[chronicallyillandcoping]

Warning: I suggest if youve never heard of the subreddit mentioned in my post not to look it up.

The subreddit Emergancy medicine makes me

A) Never want to go get help for life threatening symptoms ever again

and

B) Questions why medical professionals decide to go into the profession they do when they all seem to have 0 empathy for young disabled people.

Like even if you think young people with disorders that are (for lack of a better word) "popular" on TikTok are faking If they're presenting with concerning symptoms you still need to treat them. It shouldn't matter but POTS has been on my notes for a long time (way before Tiktok helped it gain awareness) and its scary to think doctors will refuse to treat my more severe symptoms because they think anyone with a POTS diagnosis is faking.

The rise in diagnosis is based on information sharing people are seeing tiktoks and recognising symptoms in themselves it was never a rare disorder just an underdiagnosed one.

#disabled #chronically ill #chronic fatigue #chronic pain #disability #actually disabled #chronic disability #disabled community #disablity #medical gaslighting #medical neglect #reddit

[spectrumgarden]

If your way of responding to "an autism diagnosis can come with negative consequences" starts at and ends with "so dont get diagnosed" frankly I think you should shut up forever lol

#honestly same for ppl who like. respond to that by claiming that it isnt true either??? like wtf can u both sit down lol #actually autistic #autistic adult #medium support needs #autistic community #actually disabled #idk how often i have to say this but without a diagnosis i wouldve been institutionalized! wtf! shut up