#god and lupus

[mawixtys]

DAY 7: free day! (@mcytphysicaldisabilityweek)

hey. hey you. hits you with my evil lupus beam again.

#scenario smp #legundo #i thuink i fucked up my arm and hand at some point during this week good lird. [explodes] #anyways. yes i did draw a character with lupus again no god nor man can stop me thats MY disability fucker. #tea.png #beetlart

[everymanpdf]

got sent this

#i like being a college radio DJ as a grad student. I’m only here for two years but by god i will make 35 chicagoans listen to circus lupus

[crimeronan]

like 5 weeks into hydroxychloroquine i'm regaining the energy to be giddily excited about stuff which is fun because i keep getting flappy about luz and hunter and other various fandom-related and original-fiction-related things & the happy wiggles power me enough to write and do chores and work and such. the lupuses had robbed me of 98% of this energy for an entire year so it's delightful to rediscover this in myself, i'd legitimately forgotten how it feels. every bit of excitement is a new and fascinating treasure

the downside of this, though.

is.

i am. SO annoying.

#i'm not gonna stop being annoying anytime soon because i want to have fun more than i want to self-censor for boring unfun people #but oh my god. i can feel myself being annoying. i havent had turbo autism for ages #lupus cured my turbo autism. now it's back. what do i do about this. #/SARCASM. THE REMOVAL OF THE TURBO AUTISM WAS NOT GOOD IN ANY WAY SHAPE OR FORM #autoimmune tag

[fishareglorious]

Aww, his constellation is of a pigeon! The little pigeon lad.

#mika #genshin impact #i love figuring out the constellation meanings of genshin characters #(mostly just checking the wiki or a quick google search tbh) #or if you know a thing or two about latin words you'd easily figure some of them out #or the scientific names of characters with animals constellations since it's often rooted in latin #such as fischl (corvus) or razor's (lupus minor) constellation name #or yae and tighnari's cons having vulpus/vulpes in them meaning 'fox' #OH YEAH I ALMOST FORGOT #also about zhongli and venti's constellations having 'dei' on them #meaning 'god' #signifying them as the original archons compared to nahida and ei who don't have dei in their constellations #yes im nerding out in the tags #also for me the funniest constellation name will always be shinobu's 'Tribulatio Demptio' #meaning 'trouble removal'

[cripplecryptid]

Sometimes i really just get so fucking crazy about how lupus is talked about. I so often read (in like. Scientific literature and shit) how lupus is characterised by periods of flares and periods of remission, in which "people can live normal lives" and it makes me wanna rip out someone's throat with my bare teeth. I have never in my life been able to lead a normal life. I have fucking never felt healthy. I have ALWAYS had SO many physical limitations. It is partly because of comorbidities, so I guess for some people with lupus it is a reality that they have periods where they live normal lives.

BUT I FUCKING DONT. I don't. I don't ever have periods where i live a normal life. I have periods where i dont actively feel wildly fucking sick every second, but even during those i have SUCH strict physical limits, and will feel sick IMMEDIATELY when i trespass across these limitations

#It makes me wanna scream until my lungs give out #It's never getting better #Good fucking god this is forever #And yes I'll take a life with lupus above not being alive at all. #But that doesn't take away any of the weight #Of knowing that this is it #Im not getting better #This is my best case scenario #Chronic illness tag #Lupus

[shinelikethunder]

iykyk

#dr house finally getting an honest-to-god lupus case energy #popehat #ken white #politics #Youtube #rico

[marc--chilton]

the hilson song you mentioned is Delicate by Damien Rice !! :]

holy fuck thank you my hero good dog not a failed dog, great dog actually

#asks #faileddog #you my dawg (comma) dog #i have some puppy friends if i should talk to you like a human person let me know #otherwise you're ouppy to me #WAIT i think a memory is unlocking #OH FUKCCKK I LISTENED TO DAMIEN RICE WHEN I WAS A FUCKNG LITTLE EMO IN MIDDLE SCHOOL #9 CRIMES WAS ON MY MP3 FUCKCCK #it's fate oh my god this is fate #i was destined to enjoy house first damien rice then my mom's lupus diagnosis #brb i am having revelations

[lucabyte]

Beach Locals

#clean furry #furry oc #sfw furry #furry art #cute furry #original character #oc art #anyway GOD fine ill draw my main characters for once #here you go kids have one drawing for once #lupus felidae #markus felidae #my art #lucabyteart

[eatyourdamnpears]

“elevated ANA levels are usually markers for an autoimmune health condition!”

well, not when the rheumatologist you see is completely invalidating about it and your rheumatology blood panel comes back negative for anything!

#I can accept that maybe I don’t have a disorder like lupus or ra that they were testing for but like #the fact that out the gate he was just like ‘‘yeah some people just have naturally elevated ANA levels it’s usually nothing’’ #like SIR???? #I’m sitting in your office because I’ve had elevated ANA levels for over a year now and I cannot function in society due to my health issues #it probably IS something #I don’t know I wanna see if I can see another rheumatologist about it but what would even be the point? #no one wants to see me anyways because of my chronic Lyme diagnosis it took FOREVER for this guy to just see me #it’s at a point where when my doctor needs to refer me to places she leaves that off whatever she sends to them because otherwise #they won’t see me #like the only reason I haven’t seen a neurologist yet is because the ones I get referred to all refuse to see me #they can’t outright SAY that #but I remember my mom constantly checking to see about the referral and the receptionist basically said it in a way so it wouldn’t be #like grounds to sue for discrimination or whatever #even my mom tells me in appointments like this that I shouldn’t bring the Lyme up unless absolutely necessary #and every time it does come up the vibe instantly changes #like I don’t get it??? why do doctors hate me??? #anyways yeah and I don’t know if it’d be a waste of time to see another rheumatologist because of the results I’ve already gotten #but I also can’t find them anywhere in the MyHealth app when I swear to god I had access to them before so?? #I don’t know. I’m sorry I’m complaining. I just remember the time my doctor first brought it up to me and how excited I was #to finally have a lead on what could be happening inside my body and how to treat it #and then I get crushed when I realize that it doesn’t mean shit to anyone #I’m just having a hard night tonight #and no one wants to see Ethel Cain with me either and I’m just sad about that #and my depression is all fucky lately #everything is so big and loud and overwhelming and I’m so tired of it #vent tw

[jonahpearl]

Reimagining my art as BOOK COVERS ♥ please don't repost without permission and please give credit! ♥

#jonahpearl #jonahpearlart #art #illustration #fanart #digitalpainting #painting #percy jackson #percyjackson #reynaavilaramirezarellano #reyna #praetor lupus #chalice of gods #oracle of delphy #annabeth chase #rachel elizabeth dare #heroes of olympus #rick riordan

[anthonyspage]

🌌🌘🐺✨

#Cosmic #Celestial #Moon #Crescent Moon #Lupus #Wolf Constellation #Cosmic Wolf #Wolf God #Wolf Goddess #Divine #Spirit Animal #Totem Animal #Power Animal #Magical Creatures #Mystical Creatures #Supernatural Creatures #Magic #Magical #Mystical #Supernatural #Art #App #Adult Colouring Book #Adult Coloring Book #Tap Color - Color By Number

[wayward-wren]

Me, age ten, reading Roman Mysteries: Jonathan my beloved my fictional crush

Me, age twenty-two, watching Roman Mysteries: Why Jonathan's Dad lowkey the most attractive man here???

#wren rambles #roman mysteries #watching this show is like: Hey. You see this boy. Your past fictional crush your blorbo your beloved who goes through so much? #Yeah he's a CHILD he is a BABY #anyway jonathan's father is like the Ideal Man tho #attractive? Family man? Protective? God fearing Christian? #get me a guy like that #this show is fun and i'm not sure if i'm excited or terrified for Jonathan's gladiator arc #he's just a BABY he goes through so much #i love kids books that are borderline horrific but you don't notice because you are ten years old #also they gave lupus a tongue and idk how i feel about that #ig it makes sense cos they can't really cut out an actor's tongue #plus it's kinda hard for a 8-10 year old actor to have to factor that into his acting ig

[crimeronan]

one funny thing about being diagnosed and starting treatment for the autoimmune stuff is that my response to test results is COMPLETELY different now. most of the testing i'm doing currently is to check for organ damage and assess my risk of future complications, so i no longer have to prove i'm sick or need help. i'm just learning Specifically How Sick I Am.

when i was seeking diagnosis, every normal blood test and imaging test was fucking Devastating. like i'd have a CBC panel come back totally fine and sob about it for Hours. when i finally tested positive for some antibodies that have scary lifelong implications, it was PARTY TIME, there was not a SINGLE downside. I WAS SO PSYCHED

now that i have meds prescribed and on-paper numbers proving i'm "really sick enough," the tests are much scarier. opened my chart with the new results today, saw that there was a❗️ by my urinalysis (indicating abnormalities), and my heart fucking DROPPED. turns out the abnormality was just from not getting a clear sample, my piss and kidneys and bladder and such are fine.

all the other tests came back without that telltale❗️and i wanted to throw Another Party. YAY FUNCTIONAL ORGANS WOOOO

so anyway. this has taught me a lot about why people often go thru years of denial about a serious autoimmune diagnosis. i've known for well over a year that whatever i have is chronic and dangerous, so i wasn't surprised or upset by the confirmation -- i imagine that the majority of people who go to the doc for persistent flu-like symptoms & pain are NOT expecting to be told it's something chronic and dangerous.

like yeah most people's hearts probably Do drop when they test positive for systemic antibodies. that's completely sensible and explains some of why docs are so hesitant to diagnose without irrefutable proof.

not me tho. i'm built different

#god i'm very worried about the brain MRI and very hopeful itll tell me i'm OK #that the memory problems and migraines and fog and nerve issues and hearing loss are related to lupus flares and will stop when the meds #kick in after a few more months. please god please. like if that's not the case i can manage and deal but Please God Pleeeaaasseeee #autoimmune tag

[modernmutiny]

Sometimes I wish I was able-bodied specifically so I no longer get exhausted halfway thru eating dinner and have to take a break. Food gives you energy! This is the opposite of what it should be doing! I just wanna finish a side serving of mashed potatoes in one go is that so much to ask?

#teddy talks #fuck lupus #god im so exhausted #to delete later

[50stressballs]

Yo I tried a new anti-inflammatory for my joint pain and it works AWESOME

unfortunately it is also making me EXTREMELY DEPRESSED so I am going to have to stop taking it immediately

yaaaaaaay :)

#chronic pain #disabled #meloxicam #at first I thought I was just like #having a bad brain day #but no this is definitely worse than usual #nsaids #why would an ANTI INFLAMMATORY do this #chronic illness #lupus #muscle pain #I’m so tired #god this sucks #for real though #like I just want to FEEL BETTER

[krispiecake]

i will never forget u two <3

#tumblr wont let me reply to anyone on my posts but i wanna say thank you to the people who replied to it #skylo (the smaller one) passed away in 2021 and putting lupus down on monday is just so hard #like these are my BABIES you know they were my first real childhood pets #skylo was 13 when she passed and lupus is 15! they got so old especially for dalmations snd they had wonderful lives #they were so sweet and so caring with all my siblings as they grew from babies to toddlers to now #ive got these pictures of my youngest sister just hanging off both of their necks and climbing them #and they were always so wonderful with them #one of my sisters played connect the dots of my lupus once and it took AGES to get all the pen off him #skylo once knocked a fence panel out with her forehead because she ran so fast for a pigeon and didnt stop in time #they were each other’s best friends #and skylo would always sprawl out and take all the space so lupus had to curl up in a little ball #i remember when this started getting bad for me and i would stay home from school #when i got the house to myself or really late at night when i couldnt sleep i would let the dogs up on the sofa #even though they were never allowed on there #and i would sit in the middle witb each on one side both their heads on my lap #or i would lay on the sofa in an s shape and one would sit behind my legs and one would sit in front of my chest #god im gonna miss them both so fucking much like i grew up with these dogs #losing skylo was so hard #im gonna cry so so much #but we’re gonna take him on a walk in the woods or in the river #and we’re gonna get him pigs ears because those are his favourite treat #and im gonna sit with him all day when i go back home on sunday #and hes gonna know he is so loved and treasured just like skylo knew