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#i am medically diagnosed with all of these conditions
whumped-by-glitter · 14 days
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After having a series of discussions, I'm lowkey thinking about making an ADHD whumpee with Hypersomnia, anxiety, and depression, with a fawn response to trauma. Oh yeah, with dyscalculia as well, so they perpetually get their left and right mixed up..... 🤣
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isfjmel-phleg · 4 months
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🧐
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izzyspussy · 1 month
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listening to the sawbones episode on what i had. probably shouldn't have done that.
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vampstel · 1 year
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Hey ho, quick rant cause I keep seeing this discourse pop up on Twitter…
Self diagnosis is perfectly valid for a myriad of reasons. Many people (including myself) can’t get a professional diagnosis due to our income, where we live, our gender, our race, etc. I wish getting a diagnosis is simple but truth be told… it isn’t. This applies to physical illnesses too, not just neurodevelopmental or mental health disorders.
For example, I’m chronically ill. I’ve talked about that a lot on here. I am diagnosed with GERD and have suffered with it for 3-4 years. However, it took me a whole year to get myself properly diagnosed and medicated.
I went to multiple doctors and had several checkups. They all told me I was fine when I obviously wasn’t. I didn’t know what was wrong with me until I took it upon myself to research about multiple gastrointestinal diseases. I stumbled upon GERD and noticed I had all the symptoms. Then boom, when I mentioned that possibility to a doctor, they finally got me diagnosed and I got medication.
Self-diagnosis is one of the first steps to getting a proper diagnosis. Some of us can’t afford to do the next step, though. I personally believe that’s okay as long as you do extensive research on what you think you have.
Afterall, you know what you deal with. I know damn well I’m neurodivergent and I don’t want to waste thousands just to get someone to tell me what I already know. Plus, I’d risk getting my healthcare and privileges taken away.
Just know that not every self diagnoser is “trying to be quirky”. Majority aren’t like that. They just want to understand themselves better and realize what’s wrong with them. No one wants to be ill and no one wants to be apart of a minority that gets oppressed and misunderstood.
And don’t blame these people because “they make real diagnosed people look ridiculous”. We’ve always looked ridiculous to “normal” people regardless. A piece of paper isn’t going to stop that.
Thanks for coming to my TED talk. I have more to say but ehh this is long enough lol I’ll just ramble in tags
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silverislander · 3 months
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idk if it's genuine excitement or the energy drink i had earlier that's actually letting me focus and work but dude. i am CRUSHING this essay. this is Fun To Write. i think i'm actually doing a really good job here. wtf. i love my major man
#i am a LITTLE bit sad i cant do grad school bc like. im going to miss writing essays and researching and all once i graduate#i do genuinely like doing it. call me a nerd or whatever but i love it esp when its on smth fun and interesting like this#now im not sad enough to actually DO grad school lmao#unless i got offered a scholarship or smth idk. wont happen but. hm. if it did.#seriously tho. i would think more seriously abt it if it werent for my adhd. i just dont think its realistic for me#as much as i like my field i dont think i have the ability to focus well enough to complete the work id need to complete#i went to the meeting abt grad school i learned abt what it requires/why people do it and all. i just dont think i can do that#and bc i ultimately cant get diagnosed -> cannot get help/medication thats not going to improve any time soon#after years of learning how to adapt and work with my brain this is probably the best i can do without medical/institutional intervention#its not worth paying a shitload of money and possibly setting my career back by years only to fail out yk?#im not too torn up abt it. ill give it more thought if it becomes relevant but rn its not really on my radar#ive done an excellent job in school! im getting an honours degree (hopefully)! most people dont even get that far#a lot of people with my condition dont even get into university let alone graduate. im incredibly lucky to be able to do what i can#levi.txt#this is all over the place but takeaway is im having a good time! things are coming together i feel confident in my work#im gathering theorists and sources for the section on night of the living dead and having a blast#ive got my examples all lined up my arguments make sense in my head i know where to look for applicable theories etc etc#i just need supporting quotes and im working on that rn!! it hasnt even been that hard#ok. back to work. i need to harness the power of caffeine once more (made my brain quiet) (no longer full of bees) (im in charge)
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headspace-hotel · 9 months
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I forget why, but I was on the Wikipedia page for polycystic ovarian syndrome, and I started researching hirsutism in women, and I learned the following things in this order:
there's a diagnostic criteria used to evaluate how hairy a woman is
This is important because being too hairy is a diagnostic criteria of most disorders that cause hyperandrogenism
Disorders that cause hyperandrogenism can be diagnosed by...measuring how hairy you are (this is the main and most important diagnostic criterion for PCOS)
Disorders that cause hyperandrogenism are important because they are correlated with obesity, infertility, and...being too hairy?
I think to myself, wait, what is a normal range for testosterone in women? I find this article...which set reference ranges for "normal" testosterone levels in women...EXCLUDING WOMEN WITH PCOS?
Quote: "Polycystic ovary syndrome (PCOS) is another notable condition in genetic (XX) females, which is characterized by excessive ovarian production of androgens. This condition is included for comparison with DSD, as the affected females with PCOS are genetic and phenotypic females. The elevated levels of testosterone in these females can lead to hyperandrogenism, a clinical disorder characterized variably by hirsutism, acne, male-pattern balding, metabolic disturbances, impaired ovulation and infertility. PCOS is a common condition, affecting 7%-10% of premenopausal women."
So: the study claims to demonstrate a clear distinction between the normal range of hormone levels in "Healthy" men and "healthy" women...with "healthy" being defined in the study as...having hormones within the "normal" range.......................
So I researched what the clinically established "normal" range for testosterone in women is
THERE ISN'T ONE????
Quote from the above article: "Several different approaches have been used to define endocrine disorders. The statistical approach establishes the lower and the upper limits of hormone concentrations solely on the basis of the statistical distribution of hormone levels in a healthy reference population. As an illustration, hypo- and hypercalcemia have been defined on the basis of the statistical distribution of serum calcium concentrations. Using this approach, androgen deficiency could be defined as the occurrence of serum testosterone levels that are below the 97.5th percentile of testosterone levels in healthy population of young men. A second approach is to use a threshold hormone concentration below or above which there is high risk of developing adverse health outcomes. This approach has been used to define osteoporosis and hypercholesterolemia. However, we do not know with certainty the thresholds of testosterone levels which are associated with adverse health outcomes."
What the fuck?
What the fuck?
It's batshit crazy to make a diagnostic criteria for medical disorders by placing arbitrary cutoffs within 2-5% of either end of a statistical distribution. What the actual fuck?
"The results came back, you have Statistical Outlier Disease." "What treatments are available?" "Well, first, we recommend dietary change. You should probably stop eating so many spiders."
Another article which attempted to do this
Quote: "Subjects with signs of hirsutism or with a personal history of diabetes or hypertension, or a family history of polycystic ovarian syndrome (PCOS) were excluded."
"We're going to figure out the typical range of testosterone levels that occur in women! First, we're going to exclude all the women that are too hairy from the study. I am very good at science."
Anyway I got off topic but there are apparently race-specific diagnostic tools for "hirsutism." That's kinda weird on its own but when I looked more into this in relation to race I found this article that straight-up uses the term "mongoloid"
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vanessagillings · 27 days
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I’m posting the ever-so-rare photo of myself alongside one of my characters based on my childhood because today is World Autism Acceptance Day, and I wanted to show my little corner of the internet who this particular autistic person is:  
I was officially diagnosed in February, at age 38 (I’m now 39). A lot of people thought I couldn’t be autistic.  Some people who know me in real life still don’t.  And until around 10 years ago, I didn’t think I could be either, because I was nothing like the stereotype media portrays. I was told that autistics lacked empathy (untrue), and never played make-believe (also often untrue) and only enjoyed STEM.  I was — and am — an empathetic artist -- and make believe?  I can spend days sketching finely bedecked bears brewing tea or carefully choosing the right words to weave tapestries of fiction — though perhaps my hyper focus was a bit of a red flag.  Even so, how could autism describe me?  I was a good student.  I got straight A's. I didn’t act out in class.  I can make eye contact…if I must.  And lots of girls hate having their hair brushed with an unholy passion, right?  Clearly I swim in sarcasm like a fish, so autism couldn't be why I was so anxious all the time, could it?
If someone had told me when I was younger what autism ACTUALLY is — instead of the nonsense I’d seen on screens — I would have seen myself in it.  I didn’t hear that autistics have sensory issues until I was in my mid-twenties, which is when I first began to really research autism symptoms, and I had almost all of them:  sensitivity to light, smells, fabrics, temperatures, textures, and certain touches, all of which make me feel anxious, I fidget (stim), I never know what the hell to do with my hands or where to look, I talk too little or too much, I have special interests, I have entire animated movies memorized shot-by-shot and can remember the first time and place I saw every movie I've ever seen but I often forget what I'm trying to say mid-sentence, I echo movies and tv shows (my husband and I have a whole repertoire of shared echolalias, making up about 20% of our conversations), I was in speech therapy as a kid, I have issues with dysnomia and verbal fluency, I toe-walk, I can't multitask to save my life, I like things just-so, I’m deeply introverted but not shy, I need to recover from all social interaction — even social interaction I enjoy — and I find stupid, every day things like grocery shopping, driving and making appointments overwhelming and intensely stressful, sometimes to the point where I struggle to speak.  It turns out, I am definitely autistic. My results weren't borderline. Not even close. And while these aren’t all of my challenges, and not everyone with these symptoms is autistic, it’s definitely something to look into if you present with all of these things at once. 
So why did it take me so long to get diagnosed? The same bias that exists in media threads through the medical community as well, and because I'm a woman who can discuss the weather while smiling on cue, few people thought I was worth looking into. Even after I was fairly certain I was autistic, receiving an official diagnosis in the US is unnecessarily difficult and expensive, and in my case, completely uncovered by my insurance.  It cost me over $4000, and I could only afford it because my husband makes more money than I do as a freelance illustrator — a job I fell into largely because it didn’t require in-person work; like many autists, I have been chronically underemployed and underpaid, in part due to physical illness in my twenties, which is a topic for another day.  But it shouldn’t be like this.  It shouldn’t be so hard for adults to receive diagnoses and it shouldn’t be so hard for people to see themselves in this condition to begin with due to misinformation and stereotypes. Like many issues in America, these barriers are even higher for marginalized groups with multiple intersectionalities. 
It’s commonly said that if you’ve met one autistic person, you’ve met one autistic person.  This is why it’s called a spectrum, not because there’s a linear progression of severity (someone who appears to have low support needs like myself might need more than it seems, and vice versa), but because every autistic person has their own strengths and weaknesses, challenges and experiences, opinions and needs.  No two people on the spectrum present in the same way.  And that’s a good thing!  No way of being autistic is inherently any better than any other, and even if someone on the spectrum struggles with things I don’t — or can do things I can’t — doesn’t make them more or less deserving of respect and human dignity.
But speaking solely for myself, the more I learn about autism, the happier I am to be autistic.  I struggle to find words and exert fine motor control, but my deep passion and fixation has made me good at art and storytelling anyway.  I find more joy watching dogs and studying leaf shapes on my walks than most people do in an entire day.  More often than not, the barriers I’ve faced weren’t due to my autism directly, but due to society being overly rigid about what it considers a valid way of existing.  My hope in writing this today is that maybe one person will realize that autism isn’t what they thought — and that being different is not the same as being less than. My hope with my fiction is to give autistic children mirrors with which to see themselves, and everyone else windows through which to see us as we actually are.
If you’re interested in learning more about autism or think you might be autistic, too, I recommend the Autism Self Advocacy Network  autisticadvocacy.org and the following books:
What I Mean When I Say I’m Autistic by Annie Kotowicz
We're Not Broken by Eric Garcia
Knowing Why edited by Elizabeth Bartmess
Unmasking Autism by Devon Price, PhD
Loud Hands edited by Julia Bascom
Neurotribes by Steve Silberman
(trigger warning: the last two contain quite a lot of upsetting material involving institutionalized child abuse, but I think it’s important for people to know how often autistic children were — and are — abused simply for being neurodivergent).
Thanks for reading 💛
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lorax177 · 10 months
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Fun fatphobia fact of the day:
CMS/HCC is a way for insurance companies to estimate how much money a patient will cost to insure, based on the major problems they have.
This is my list of diagnoses.
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I blacked out one of them because it is my intersex condition and has to do with my assigned gender, which I don't want to be associated with my online presence. Also, there are a few repeats because doctors will put in their own phrasing, so sometimes when I switch doctors, I get re-diagnosed with the same thing, with slightly different wording. It's also missing a few diagnoses i got as a kid, namely my autism and a comprehensive list of the specific learning disorders I have, because I didn't think they were relevant to a general practitioner and i didn't want them on my record for safety reasons. Anyways, you'll notice that there are several of them that have the aforementioned CMS/HCC label. Those are schizoaffective disorder, major depression (which is part of my sza,) and two counts of "morbid obesity". My adhd, which I need to take two different medications daily to treat sufficiently enough to function, is not labeled as a major disorder, but my size is. Twice!
You'll notice that nowhere on this list is any diagnosis that is supposedly related to my fatness. That is because, metabolically speaking, my health is perfect. My lipids, a1c, blood pressure, pulse, and o2 are all in the excellent range. I am not on any kind of medications for any of these, either. The fact that I have more body tissue than their ideal, which has no bearing on my actual health, is considered more important to address than my neurodevelopmental disorder that requires two expensive medications to treat. They think that I am more of a risk for them because of an imagined bogeyman of a diagnosis ("morbid obesity", aka being fat) than something which actually has real life functional and financial consequences (my severe combined type adhd). Or, for that matter, my ocd, which I needed intensive outpatient therapy for; my transgender identity, which has cost them thousands of dollars in hormones and surgery; my asthma, which requires two medications to treat; and my gerd, which requires one.
I'm not advocating for medical insurance companies to make it harder for people with these diagnoses to get treatment. I'm just pointing out that the medical system sees me as a drain on their resources specifically because of my weight rather than the diagnoses that actually cost them money (albeit with one exception). They think my adipose tissue, which is not causing me any health problems, is more important to note than most of my legitimate health problems.
That is medical fatphobia.
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mercifullymad · 10 months
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i feel passionately about the need to enfold people experiencing (or diagnosed) with "just" depression or anxiety into the mad pride project. the more people who view themselves as mad, the better. much as the rhetorical move from "neurotypical" to "neuroconforming" emphasizes the artifice & social construction of "neurotypicality," so too will expanding identification as "mad" expose the sane/mad dichotomy as a false one.
it's true that (some) people with "just" depression and/or anxiety have an easier time navigating the psych system than people who have more stigmatized diagnoses. but this is not to say that they necessarily have an easy time — the carceral psych system is hostile to everyone subsumed by it, even the most "privileged" patients. we should of course critique & examine how our experiences are shaped by various intersections of privilege, but we cannot forget or ignore how someone with "just" a depression/anxiety diagnosis can still experience the full force of the carceral psych system brought down upon them (including but not limited to involuntary institutionalization, police intervention, & forced medication or other forced treatment).
we must encourage, if not insist, that those with the least-stigmatized diagnoses view their difficult experiences navigating the psych system as bound up with the liberation of people who have more stigmatized diagnoses &, often, a more violent experience of the psych system. we need more people to drop the "i have anxiety/depression but i'm not crazy" line and say loudly, "i have anxiety/depression & i am crazy. my access to just treatment is linked to the conditions of all other crazy people, who are my allies, peers, & friends. we are united in our cause & we all deserve a more liberating system of care."
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turtletaubwrites · 2 months
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Bend Until You Break ~ Part 1
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Thank you for this request from the lovely @anemptypuddingcup for a Yandere!Law that the Reader goes to for help with a serious health condition, only for Law to take a liking to her... I swear I will write sweet Law one of these days, but for now please enjoy Yandere!Law. This contains !!DARK CONTENT!! so please check the warnings, and skip this one if it may be triggering or uncomfortable for you. This one's for us hypermobile baddies out there. 🥄
Pairings: YANDERE!Trafalgar Law x Fem!Reader
Bend Until You Break ~ Masterlist
Word Count: 2679
Ao3 Link
Summary: You have struggled with mystery pains and injuries for most of your life, and had resigned yourself to suffer after every doctor told you there was nothing wrong. But when a world renowned doctor/pirate comes to town to offer aid in exchange for supplies, you decide to give hope one more chance. Maybe you'll finally find a doctor you can trust.
Rating/Warnings: Explicit Sexual Content, 18+ ONLY, MDNI, AFAB!Reader, She/Her Pronouns for Reader, Reader-Insert, DARK CONTENT, DUBCON, Dubious Consent, Swearing, Eventual Smut, Yandere, Manipulation, Power Imbalance, Hypermobility, Medical Examination, Medical Trauma, Medical Conditions, Chronic Pain, Injury, Physical Disability, Physical Therapy, Doctor/Patient, Abuse of Authority, Kidnapping, Possessive Behavior, Other Additional Tags to be Added, (Reader is described as having hair "above her shoulders" that she can brush)
A/N: This chapter is SFW, but I'm adding in many tags to start out with since this mini series will contain heavy/dark content. PLEASE heed the tags, and do not read this fic if you aren't comfortable with these topics. Some of these medical issues may or may not have come from personal experience 🙃
Extra A/N: I am not a doctor, and this is not meant to be educational, or to contain any health advice. Please seek a health professional. Hopefully you'll have better luck than Reader 🙄
| masterlist | about me | rules | ao3 |
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I should just leave. He’ll just tell me the same things. It’s a waste of time. 
You were close to convincing yourself to walk away, especially as the discomfort and pain of standing in one place for so long started radiating up your body. 
The line got shorter, and you stretched and bounced, trying to hang onto a sliver of hope.
“Hello, how’s your day going?”
A talking polar bear in an orange jumpsuit waved at you from behind a small table, handing you a clipboard. 
“I-I’m well thanks. How…”
“Good! It’s always nice when the captain can help people. He’s the best! Just fill that out, and he’ll be with you soon.”
Looking at the form brought you out of the shock of speaking to a bear. Instead, it filled you with intense frustration, until you were practically boiling in your skin.
‘Rate your pain from 1-10.’
How the fuck am I supposed to rate all the different types of pain I’m in on any given day?
‘Circle the parts of the body where you are experiencing pain.’
I could put circles over so many things. Might as well circle the whole fucking chart, and have them call me a liar.
‘List your diagnoses, and family medical history.’
I don’t have one, doctors never find anything. Mom has some similar symptoms, but they're so mild that she's never tried to get a diagnosis. You’re the one who’s supposed to figure this out!
You resisted the urge to vent your anger onto the page, bullshitting your way through instead. You tried to write in the most convincing way to get this new doctor to take you seriously. 
This new doctor. “The Surgeon of Death.” A fucking pirate. 
But he was supposed to be the best, and he was here on your shitty little island for a couple of weeks, trading medical treatment for the town's supplies. You had already heard reports of “miracles,” that he could perform surgeries in an instant, that he could fix anyone. 
Please fix me.
This was it. You couldn’t take anymore trying after this. Just trying to get a doctor to listen to or believe you was almost worse than the daily pain. Almost.
“Miss Y/N? The captain is ready for you now. My name is Bepo, by the way,” the bear grinned as he took the clipboard from your clammy hands. At least you hoped it was a grin.
He handed the form back to you as he led you through the dimly lit hallways of this strange submarine. It felt like you’d entered some other realm, an underworld, on your way to strike a deal with a demon. 
As long as he can fix me…
“Here you are,” Bepo motioned as he opened a large metal door. “You’re in great hands.”
Hands. 
Hands were the first things you noticed as you entered the examination room. 
Those hands were tensed over the back of a rolling chair, gripping the thin padding as if waiting for you so he could sit down. 
Long fingers mesmerized you, tattoos etched along the back of each hand. And as you stepped into the well lit room, you saw the word “death,” spelled out across both sets of those fingers. 
The sound of his throat clearing snapped your eyes to his, your skin flushing as you realized he’d been speaking to you. 
As you realized how fucking gorgeous he was. His black hair looked a bit mussed, but it only added to the effect, along with his goatee, and his dark, pretty eyes.
Already more useful than my other doctors. Easy on the eyes. 
“May I look at your form, miss?”
‘Oh, of course,'' you stuttered, thrusting the paper toward him. “I’m Y/N.”
“Dr. Trafalgar. You can take a seat.”
Well, his bedside manner seems pretty standard, you thought with a small sigh, sitting down on the familiar crinkly paper covering the exam table. 
He circled behind you to close the door, and what sounded like a lock clicking into place had your heart rate spiking. 
“Stand up, please,” he said firmly, your form still unseen in his hand. 
“Oh, sorry. I thought you said–”
“Walk to the corner, and sit back down, please.”
His voice was unreal. You would have jumped through hoops for him anyway, praying that any doctor would listen. 
But his command seemed to curl into your brain, and you followed it immediately. 
“Why are you favoring that hip?”
“Oh, it…” 
Here’s where your credibility would fall apart. Your nails dug into your palms as you willed him to believe you.
“Sometimes if I stand too quickly, it feels loose. Sometimes it pops, and is so painful that I can’t put any weight on it.”
He stared at you for a moment, and you fought not to recite a list of excuses, to try to explain why it hurts when you’d never been injured before. 
“And your right knee?”
“Oh, it’s not bad right now. It used to swell sometimes, and was really painful. But it’s not as bad as it used to be.”
“Did you sustain any injuries?”
“N-No. None that I can recall.”
His lips quirked a bit before he reviewed your chart.
Believe me. Believe me. Believe me.
“You’ve reported your shoulders as being your most pressing concern. Why is that?”
His eyes were almost painfully sharp as he scanned you, focusing on your face as you answered him. He’d sat backwards on the rolling chair, his arms folded across the back with his legs spread wide to either side.
“They’ve been acting up recently. They often feel… loose. That’s how it feels to me. Sometimes if I move a certain way it almost feels like they pop out of place. But I can still move them after, it’s just incredibly painful. And then it’s weak, and I can barely hold anything.”
“What are some of the activities that have caused this to happen?”
He was impossible to read. But you couldn’t lie. He wouldn’t be able to help you if you lied.
“Um, brushing my hair. Taking off a jacket. P-Putting a sports bra on.”
“Did you used to have longer hair?”
“What?”
“Do you keep your hair above your shoulders to prevent shoulder pain? Or does brushing it still cause issues at this length?”
“Oh. Yes, actually. I used to have much longer hair.”
“I imagine you’ve adjusted many aspects of your life to cope with this pain.” 
Warmth flowed into that deep voice, and you shivered as you watched him steeple his fingers against his lips for a moment. 
“If you are comfortable, I would like to run through a few simple movements to check your flexibility. Many of which you can do on your own, but I will check in again if you are comfortable with me touching you for the others. You can always let me know if you would like to stop.”
“Okay.”
The doctor dug through a drawer to pull out a clear measuring device, almost like two rulers connected at one end. He adjusted it, creating an angle before setting it aside. 
He never picked up the device again, and you fought not to shake. He looked at your elbows, your knees, your thumbs, your pinkies, frowning slightly as you followed his instructions.
“Now, please bend over, and try to touch your toes. Just go as far as you– hm.”
Your palms were flat on the ground, just as they’d always been able to go. You could even put the back of your hands down, and stretch them along the ground behind you if you wanted to. 
“Doctor?”
“You can take a seat.”
Wincing as you sat, you shook out your legs, feeling his eyes as he watched your every movement. 
He stood, towering over you as he came close.
“For this next part of the examination, I will be touching you with my hands, and in some cases leaning or holding parts of your body against mine so that I can check the range of motion in your joints. I may also massage certain tight muscles to help you relax as we move through the problem areas. You have quite the list for us to get through, but if at any time you wish for us to stop, just let me know. Do you understand?”
“I do,” you breathed, your face angled up to meet his.
“Do you consent to me touching you?”
His voice came out softer once again, and you couldn’t hold in a shiver as you consented.
Those fingers…
His long fingers were so gentle as they crept across your body, testing, pushing, pulling. You fought to listen to his commands, pushing against or holding your body how he told you. 
“I imagine that seeking treatment has been challenging for you,” he rasped as he leaned over your face, his fingers gently massaging your shoulders. 
The pain and pleasure of his hands testing you had brought up a strangely emotional pressure, almost like tears in your throat.
“It has.”
“I’m sorry, Y/N. It must be incredibly difficult to suffer so much pain, and not be believed.”
You started to nod to keep your voice from cracking, but he pressed his fingers into your skin just a bit.
“Can you keep still for me,” he whispered, and it sounded so close that you opened your eyes.
“Just relax,” the doctor soothed as he stepped away, pulling a few tissues out to press against your cheeks and temples, catching the tears that had spilled when you’d opened your burning eyes.
“I’m sorry, doc–”
“No need to be sorry, Y/N. You have been suffering, been living with pain for years. It’s all those doctors that left you like this that should feel ashamed.”
His fingers had returned to your body, still relaxing, and testing.
“Thank you, doctor.”
“Please, call me Law.”
He was pressing gently along your collarbones as his name rolled over you, a small sound escaping your throat as you melted beneath him. 
“Do you have a good support system? People in your life that can help you with this?”
“I mean, my mom and my boyfriend help me. They’re supportive.”
He took those fingers away, and you mourned them, wishing you could feel that soothing touch forever.
“I’m going to test your hips now, Y/N. Please tell me if you experience any pain.”
“Okay,” you agreed, feeling self conscious of your breathy voice. His words just kept pouring over you, his voice so relaxing, so good. 
“How does that feel, Y/N?”
“Fine.”
He had your leg stretched along his torso, your foot dangling over his shoulder. You clamped your eyes shut. The sight of him between your spread legs, pushing your leg toward you, had you biting your lip, trying not to make any more embarrassing noises. 
“How’s this?”
“Fine.”
He hadn’t gotten close to your limit, but he went agonizingly slow. You could feel his firm abs warming your thigh through your clothes, his thin shirt not doing much to keep the press of him at bay. 
“You said that your mom and your boyfriend support you. How do they do that?”
“Oh, uh,” you shook your head, trying to focus on the question, and not the gentle rocking motion he’d started as he pushed you even further.
“They help me when… They help me when I’m having bad days. They listen. They both do little different things when things are bad.”
“How’s this?”
“Still fine.”
“You can go further?”
“Yeah, I can–,” you had reached for your thigh, planning to pull it toward your chest to show him, but his eyes above you stopped you before his voice did. 
“I’ll get you there, Y/N. You can hurt yourself if you rush. Can you take it slow for me?”
“Perfect,” he praised when you nodded, still gently rocking your body forward and back as he pushed, finally reaching the limit. 
“That is quite the range of motion,” he noted, carefully laying that leg down to move to the other side. “May I?”
He set himself up again, moving slow as he used his body to stretch you.
“You said that they help you on bad days, is that right?”
Meeting his sharp eyes, you took a minute to understand.
“Yes, they do.”
His face tilted a bit as he pressed closer. He started that gentle rocking motion, almost thrusting against you to help your body relax. 
“But Y/N, from what I’ve seen today, it seems like all of your days are bad. Aren’t they?”
“I…”
“All these years with no one to believe you. It must be hard to believe yourself sometimes. Do you think they really believe you, Y/N? Do they believe how much pain you’re in as you struggle through each day? As you stand up too fast, or brush your hair? Do you think they understand?”
He’d pushed closer, looming over you as he held your thigh against him. 
“Why are you–”
“I need to make sure that my patients have the support systems they need.”
His voice had smoothed back now, from almost heated to cool and detached.
He’s the only person that’s ever seemed like they understand. He must believe me. Of course he would be passionate about it, he’s a doctor. A doctor that believes me.
Closer and closer, his eyes watching yours.
“Do they believe you?”
“I think,” you started, eyes wide as you fought more tears, “I think they try to believe me. They just… They don’t know what it’s like. They don’t understand.”
“How’s this?”
“It’s fine.”
“Alright, last push.”
Your thigh was pressed between your bodies, and he stayed there.
“Does this hurt, Y/N,” he rasped, his breath warming your face. 
“No.”
He helped you stretch your leg out on the table, sitting backwards in the rolling chair before he told you to sit up.
“I believe I understand the cause of your pain, and why you’ve had a difficult time obtaining a diagnosis.”
“Can you fix it?”
Your thrill of excitement got caught in your throat at the look in his eyes, his palm up to halt your questions. 
“I believe it may be a connective tissue disorder, which would explain your hypermobility, as well as the complications you’ve had with many parts of your body. You've already met the criteria for one type based on our examination today. I would like you to come back tomorrow so that we can review more of your symptoms to be sure, and to discuss treatments.”
“You can do surgery, right? Can you fix it?”
You had gestured to him, your body panicking with failing hope. A gasp left your throat as those tattooed fingers caught your hand, his thumb rubbing over your skin as his voice went low.
“I’m sorry, Y/N. This is not a condition that can be cured,” he confessed, squeezing your hand as your body slumped. “Connective tissues run throughout our entire body, and if I am correct, yours may be weaker than most. 'Loose,' as you said. Unfortunately, there is no known way to repair or replace those tissues.”
A weight fell over you, and you found yourself not quite in your body. Your body that you’d fought so hard to fix.
That can never be fixed.
The doctor pressed your hand between his, smoothing over and warming your fingers until you were present enough to meet his eyes.
“It may not be curable, Y/N, but it can be managed. You don’t need to suffer alone in such pain like you have been. I’ll do everything I can to ensure that things are better for you. Do you trust me?”
There was something so intense about his face. The way he looked at you felt heavy, like he really did see the weight you’d carried all these years. You sank into those gray eyes, and realized you did.
“I trust you, Doctor.”
“Please. Y/N,” he hummed, releasing your hand, “call me, Law.”
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Likes and reblogs bring me much ✨dopamine✨ thank you so much!
a/n: Thank you for reading! I hope you enjoyed it! Welcome to my frustration with the health care system 😅
Tag List: @shewrites02 | @jadeddangel
Part 2
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| masterlist | about me | rules | ao3 |
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txttletale · 1 month
Note
Obligatory 'in good faith' but when you talk about mental diagnoses not being legitimate - do you mean universally? Like, brains are organs and things can go wrong in ways that can be identified and dealt with, and families can have longstanding histories of these things. Is your point that these just aren't identifiable in distinct groups/'diagnosis'? am I using a different idea of what a diagnosis is? Is it just 'yeah brain conditions exist but the field is so fucked 50% of them are bullshit'?
it is more the latter than anything else. obviously some neurological conditions are 'real', in that they are terms that identify discrete and consistently diagnosable conditions -- e.g. epilepsy and TBIs. when i made that post i was talking about psychiatric diagnoses specifically, which despite using a similar language to that of medical diagnostics are basically just made up as hell. like, the DSM is just made up as all hell. the diagnoses in it (and, indeed, the processes provided for making those diagnoses) are not rigorous or consistent.
sure, some of those diagnoses can be useful for treatment and understanding of the conditions in question under some circumstances. but the idea that psychiatry is, like, 'a biological medicine of the brain', while flattering to psychiatrists, is basically totally disconnected from the realities of psychiatric research and practice. for the most part, psychiatry is not concerned with 'brain conditions' but instead with the categorization and pathologization of behaviour.
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ladamedusoif · 2 months
Text
able
(Joel Miller x disabled F!Reader)
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Pairing: Joel Miller x Disabled F!Reader
Summary: "I just don't think she'll be able for patrol". But then it's just you, Joel, and your trusty walking stick in the middle of nowhere...
Content/warnings: Reader is disabled (she has rheumatoid disease/arthritis in addition to panic attacks, she uses a walking stick as necessary); Reader had a sister; Reader is an art teacher; strong violence; blood; description of panic attack; references to impact of chronic illness and disability; references to medication; references to disease and death; non-canon compliant; Jackson!Joel; strong language; ableist language and abusive language
Rating: Mature; 18+ MDNI
Word Count: ~3.7k
A/N: After making a plea earlier in the week for people to actually write disabled Reader fic, as opposed to forcing writers to feel they have to tag literally everything in an able-bodied Reader story, I knew I had to put my money where my mouth was as a disabled, neurodivergent writer with various mental health things going on here and there. And this one-shot is the result.
This one is a little personal. I was diagnosed with rheumatoid disease about ten years ago, and Reader’s experiences are informed by my own (though, thankfully, I haven’t had to contend with an apocalypse that meant I couldn’t access the medication that has kept me going). She’s also inspired by @agentjackdaniels, who acted as consultant extraordinaire on walking sticks and panic attacks, and suggested the Joel picture for the moodboard. Thank you, Luce, for this, for fighting the good fight for representation in fic - and for beta-ing the story. 
(A note on terminology: rheumatoid disease/arthritis are sometimes used interchangeably. ‘Arthritis’ often sounds like it’s ‘just’ osteoarthritis to people who don’t know the difference. Rheumatoid, unlike osteoarthritis (which is shitty in its own ways), is a systemic, lifelong, chronic illness and an auto-immune disorder that affects the entire body, not just bones and/or joints. So personally I use ‘rheumatoid disease’ as it conveys more of the impact of the condition. It's also often seen as an 'old person' disease but this simply isn't true - not that this stops mobility aids being modelled by people in their 80s all the time...)
Please follow my writing blog @ladameecrit and turn on notifications to stay up to date with my work.
Dividers by @saradika - moodboard by me
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You weren’t supposed to make it.
Twenty-odd years in the apocalypse with your fucked-up joints and no steady supply of the meds that kept you going, pushing through the cycles of fatigue, and fighting off your own goddamned immune system as much as you were fighting clickers and raiders. 
You really weren’t supposed to make it. But you had Annie.
You were sharing an apartment when the outbreak happened, a quirk of shitty personal circumstances - she’d just broken up with her long-term boyfriend - that probably helped save your life. Annie was the all-action sister - the kind of person who thinks there’s nothing weird about spending your weekends doing triathlons and “Tough Mudder” challenges, who had a perfect bill of health your entire lives, who bounced out of bed in the mornings while you cracked and creaked and stiffly manoeuvered yourself into being. 
The good days generally outweighed the bad in the years between your diagnosis with rheumatoid disease and the initial outbreak - or maybe you had just gotten used to the aches and pains and the occasional flare-ups of fatigue. You invested in a walking stick to help on those days when mobility was particularly bad: solid, heavy, and carved in a pale yellow wood. It felt like a comfort in your hand, more a sign of strength, to you, than of weakness. 
Annie helped you through the panic attack that consumed you on outbreak day, working with you to regulate your breathing and relax your tense muscles until you could finally say what was on your mind.
“My meds. What am I going to do without my meds?”
Nothing a quick smash and grab at the local pharmacy couldn���t fix. It was the first of many, stockpiling the little yellow tablets you relied on and taking as many packs of over-the-counter painkillers as you could carry. Useful currency in the apocalypse, as it turned out.
All-Action Annie was never going to cope with life in a QZ. She got the two of you out after months of planning, nights of whispered talk about a town out west that was normal - or something close to it, anyway. She hadn’t entertained your protestations about you slowing her down, holding her back.
“You think I’m leaving behind a girl who’s so handy with a weapon?” she’d teased, pointing to your walking stick. “Be real. We’re busting out together.”
The infection took hold in her about three days from Jackson. Fuckin’ barbed wire, tearing a jagged line through Annie’s hand and leaving behind an old-fashioned kind of threat to life, the kind penicillin had mostly dealt with. But that was then. This was now. 
She died in an abandoned farmhouse in the middle of nowhere, you holding her hand until the end, talking to her about your childhoods and trying to keep smiling until she closed her beautiful eyes. 
It took all your strength to dig her grave. And then, somehow, you found more.
You weren’t supposed to make it. But you did. 
Jackson stands before you. 
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He sees you for the first time in the community dining hall, talking animatedly to Maria as you hungrily devour the food set in front of you. Eyes wide, face grubby, clothes ragged. Half-wild, he thinks, like most of the new arrivals. Like him and Ellie, once upon a time. He returns to his bowl of soup and his own thoughts - at least, until he’s interrupted by Maria.
“Joel? Want to introduce a new member of the community, just arrived.”
He doesn’t quite know why he’s surprised when he realises you’re leaning on a sturdy hand-carved walking stick in a solid, light yellow wood. Maybe it’s because he knows how physically hard it is to get here. Maybe he just assumed folks who needed a stick wouldn’t have been able to manage the journey. 
For a second he can hear Sarah’s voice in his head, chiding him for focusing on what a disabled person can’t do instead of what they can. 
“Joel?”
He snaps out of his reverie and looks from Maria to you. “Uh, hi. Sorry, just…sorry. Forgot my manners.”
“I was just saying how glad we are to have someone who can offer some art education in the town, isn’t that right, Joel?”
Your eyes are warm and mischievous as you meet his gaze, silently conveying your amusement at Maria’s rather brusque manner. It’s all Joel can do not to laugh.
“Sure is. You’re an artist, then?”
You shake your head. “Not a real one. I was an art teacher, before. Long time since I created anything, though, so I hope I remember how.”
He smiles softly, his gruff exterior receding a little. “Bet it’s just like riding a bike,” he says, before his face falls as he looks at your walking stick. “Oh, shit. Sorry. I didn’t mean… Shit. Hope I didn’t offend.”
“As it happens, I can ride a bike, Joel. The apocalypse just doesn’t give me much cause to.”
You leave him with a smile and a wink as Maria ushers you to meet other townsfolk. He watches you as you walk away, the tap-tap-tapping of your stick beating out a new rhythm in the heart of Jackson.
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You think of Annie every morning when you wake up in the little house you’d been assigned. Sometimes, as you potter around the kitchen, still revelling in the novelty of making yourself morning coffee for the first time in two decades, you even talk to her. You tell her about the town, the townsfolk, your work in the community vegetable garden, your art classes. 
“Honestly, An, you wouldn’t believe how popular they are,” you tell the Annie who, in an alternate universe, is sitting at the kitchen table with her own mug of coffee. “I’m setting up extra sessions to cater for demand.”
There’s something uplifting in how hungry the people of Jackson are to make art, no matter their experience or existing skill level. They’ll draw stuff from memory, they’ll dutifully work on a still life, they’ll even traipse outside with you, wooden sketching boards in hand, and make rapid-fire sketches of the goings-on on Main Street. 
Joel doesn’t join a class - but the teenage girl Maria refers to as “Joel’s kid” does, all potty-mouthed and enthusiastic and pretty damned talented, to boot. Ellie tells you how she’s pinned up the drawings she’s proudest of in their home, “like our own fuckin’ art gallery or some shit.” 
You pull up a tall stool and sit beside her, resting your stick over your thighs. “Joel’s got his guitar and those dumbass model figures he paints,” she continues, leaning around her easel and squinting at the woman who’d volunteered to act as a life model for this week’s classes. “But this shit? This is real art.” She adds a little highlight to the woman’s sweater and leans back to assess the work.
“You probably got exempt from patrols, I’m guessing. On account of the stick, an’ all.”
“Maria asked, and I signed up happily. I got all the way here, didn’t I? I’m sure I can manage patrols. And it’s the least I can do - they’ve even found me some of the medications I need.”
Ellie nods, somewhat convinced, and returns to sketching out the contours around the model’s jaw.
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The day of your first patrol arrives. You bundle up and set out early for the stables, allowing extra time to get there on account of the flare-up you’d been experiencing the day before. 
You arrive early - just in time, in fact, to overhear a heated conversation between Joel and Maria.
“She’s doing enough, ain’t she? I just don’t think she’ll be able for patrol.”
“You’ve seen her out and about, Joel. She’s mobile. She’s competent. She’s good with the horses. She got all the way here, the last stretch on her own. What more proof do you need?”
“You’re seriously gonna send a woman with a walking stick out on patrol?”
“I seriously am. Sent you and your bad back out, didn’t we?”
“That ain’t the same and you know it.”
“Just saddle the horses, Joel. And, in case you’re wondering - yes, I paired you together deliberately, just until she gets settled.” You hear her footsteps recede as she leaves him.
You had misjudged how much your already-limited grip would be further impeded by the gloves you’re wearing. The stick clatters to the ground.
“Who’s there?”
You emerge from the shadows. “Me. Sorry.”
Joel rolls his eyes and gruffly points out the tack and supplies.
The first patrol passes in silence. You wonder what happened to the softer man you’d caught a glimpse of the first day you arrived.
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On the second patrol, you ask him questions about himself. On the third patrol, he asks (fewer) questions about you. By the fourth, you’re having something approximating normal conversation. 
“Sarah loved to make all kinds of stuff,” he ventures, leading the way on his chestnut horse. “Those beaded bracelets, that girly Lego in the pink and purple, all of that. My girl had enough Magic Markers to supply a whole elementary school. Maybe two.”
You can hear him smile, even without seeing his face. His shoulders relax a little as he recalls the memory.
“So she was a creative kid?”
“Creative, sporty… she could do anything. Made the school soccer team, she was so proud. Just a…” He pauses. “A great kid.”
There’s a few beats of silence, punctuated only by the sound of the horses snickering and the steady rhythm of their hooves on the ground. 
“What about your sister, was she arty like you?”
You’d told him about Annie on the last patrol. This was the first time he’d asked about her explicitly.
“She was the sporty one. I think that’s why I survived so long, truth be told. She was so strong and fast and tough as fuck.”
He chuckles, the burr of his voice resonating in the cold air. “Sounds like a good balance, though.”
“It is - it was. Was.” Your voice grows quieter as you repeat the word to yourself, chest starting to tighten. The horse slows, responding to the tension of your body, as Joel continues to trot on, not realising you’ve come to a halt behind him. 
And then the tell-tale snapping of a twig, the sound of footsteps, and the realisation there’s someone else there, emerging out of the woods. Two someones. 
Raiders. 
The panic attack that has been building inside you gives way. An innate fight or flight response kicks in as you roar his name. 
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Joel turns and charges back towards you, just in time to see you take out one raider with a crack shot from your pistol. He slows the horse and readies his rifle, staring at the other man who is now trying to haul you off your mount.
“Get the fuck off me, motherfucker!” You flail against him, desperately shifting your weight to the other side of the saddle to try to shake him off. 
Joel takes aim. 
You think you’ve kicked the raider off. And that’s when you hit the ground.
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He can’t take the shot now, not with her half-hidden from his view and audibly fighting off the man who’s dragged her to the ground. Joel is still a little distance away, slightly too far to see exactly what’s happening. 
Why didn’t he hear her slowing? Why didn’t he realise she was further behind than she ought to be? Why did she slow in the fuckin’ first place?
Joel quickly dismounts, rifle in hand, moving closer so he can get a clearer shot at the guy who’s now standing over her. The horse’s elegant neck obscures the raider’s hands from Joel’s vision - he has no idea if he’s pointing a gun at her or not. 
He thinks he has a clear sight on the guy’s head, provided he stays in the same position. He readies the rifle. 
Suddenly, the raider disappears, letting out a primal roar before he hits the ground. 
“You fucking cunt!”
Joel can see she’s standing now, the man prone before her. As he rounds the horse he sees her lift her cane, hands securely gripping the pointed end of the stick. 
She brings the solid, weighty handle down on the raider’s leg with a sickening crunch. Even Joel recoils a little at the sight and the sound.
“F-f-fucking…c-c-cunt!”
Thwack. The other leg. 
Fuck. She knows exactly what she’s doing.
”Keep calling me that, and I’ll keep the blows coming.”
Holy fuck. Who is she?
”C-c-c-cripple.”
”Excuse me?”
The raider props himself up on his arms. “I said, cripple. Fucking crippled cunt.”
“You shut your fuckin’ mouth.” Joel cocks his rifle. 
The stranger sneers at Joel. “Awww, he’s actin’ the big man now. Weren’t too quick gettin’ back down here to save your cripple woman, were ya?”
Before Joel can react, she swings her stick over her head and brings it down on the man’s skull with a furious scream that seems to come from the very depths of her being. 
She screams and screams as she hits him, over and over, eyes wild in her blood-spattered face. Joel recognises this: in himself; hell, in Ellie. It’s the moment when the floodgates open and all those years of pain blend together and zone in on this convenient target, an avatar for everyone and everything who had forced loss and trauma upon you. 
He roars at her to stop, but knows she can’t hear him. It’s just her and the raider, now: her rage and fear and grief finding their expression through a walking stick turned cudgel.
A single shot ends it. She turns sharply, as if snapped out of a trance, and sees the smoke leaving Joel’s pistol. 
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“Hey. Hey. You alright?” His broad hands grip your biceps as he looks into your eyes.
Yes, you tell him, yes. You’re fine. But Joel keeps asking. 
“Talk to me. Are you okay? I’m worried about you. Please, just talk to me.”
You are moving your mouth, but no sound is coming out. The familiar vice is tightening around your chest. You look down at your blood-stained hands and you struggle to breathe. 
“‘M dying, Joel. Can’t breathe. All the blood. So much. Why can’t I breathe?”
Oh, he realises with a pang. She gets these things too. And I know how to help.
“You’re okay, you hear?” He’s rubbing your arms gently, keeping his gaze on you. “You’re alright. Breathe along with me, okay?”
It’s difficult to find the rhythm, at first. Joel’s hands find yours and squeeze them in time with his breath.
”In through your nose, that’s it. Slow and steady. Now out through your mouth.”
He can see your muscles starting to visibly relax. A wave of relief courses over him.
”Yeah, that’s it - you got this. You got this, good girl, you’re just fine. Gonna be alright.”
When he’s confident your breathing has settled and the panic attack receded somewhat, he gently guides you away from the body of the dead raider, one hand holding your horse’s bridle and the other holding yours. 
“Why don’t you have a seat for a minute, huh?” Joel gestures to a long, low tree trunk lying near the forest’s edge and opens his saddlebags, rummaging until he finds a cloth, a battered hip flask and a bag of dried apple slices.
”Here.” He wipes the blood as best he can from your hands and proffers the flask, settling his substantial frame beside you on the log. “Have a sip or two, just to relax you a little bit more. Got a snack, here, too.”
You flinch at the taste of the liquor, but take a second sip regardless. The apple slices barely taste of anything in the afterburn of the moonshine. Joel nibbles on some jerky and stares into the middle distance. 
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You take a break from patrol, agreed with Maria, and a few days off your art classes. It was tempting to keep going, to return to the light and airy studio and to your students. But you feared a relapse.
And your body needed to recover physically, too. You ached from head to toe, fingers and toes puffy and swollen and movement seriously restricted. You ration out the supply of medication you’ve secured since getting here, and use hot water bottles and plenty of rest to try to ride out the flare in your arthritis.
Three days after the incident, there’s a knock on the door. You hobble to answer it, leaning on your trusty stick for support.
”Came by to see how you were doing. Got you some things if you needed ‘em.”
Joel is standing on your front porch, holding a jute grocery bag. He pauses, as if waiting for you to give him permission to say more.
”That’s so very kind of you, Joel. Come in, won’t you? I was able to set a fire so it’s nice and cosy.”
He watches as you lead the way into the living room, noting how much slower you were today. Guilt laps at his conscience. He said she shouldn’t go on patrol. He knew.
”You want me to bring these into the kitchen for you?”
“That would be a great help. Thank you.” He’s glad to see you smile, after the trauma of the patrol. “If you want a drink, I’ve got some tea and coffee in the cupboard just to the left of the sink.”
He pops his head back into the living room. “What would you like?” 
“A tea would be perfect. Mugs are in the cupboard to the right.”
You wrap yourself back up in your blankets on the couch, making room for Joel when he returns with the drinks and a couple of cookies, sent over by Ellie as part of his care package for you. The mug feels like a comfort in your aching hands, its heat assuaging the inflammation ravaging your joints.
He sips his coffee and you sit in silence for a little bit, watching the flames dance over the firewood. 
“Have you, uh - you been okay, doing okay, since…”
Joel stares into his coffee cup and then looks at you, a little awkward. You smile, hoping to reassure him.
”I’ve been okay. Just the physical pain and exhaustion, mostly. And - well, you saw it. The panic. It can leave you drained.”
He nods and takes another swig of his drink. “I know. I - I’ve had times like that, too. Real fuckin’ scary, when you’ve never gone through it before.”
You study his face for a moment or two, noting the little scar on his temple, the lines on his face, the stern expression completely undermined by the warmth of his deep brown eyes. For an instant, he seems so vulnerable, this strong, tough man sitting on your little couch. 
“I haven’t had an attack like that in a while. But then, I hadn’t done anything like that in a while.”
This time Joel turns to look at you properly. “Not your first rodeo, huh?”
You giggle at the turn of phrase. “Not quite. Let’s just say my stick did a lot of work over the last twenty years. He wasn’t the first to feel the brunt of it.”
Joel nods, and you feel strangely relieved that he doesn’t seem surprised. “Doesn’t get easier, though, does it?”
“It does not. Which is why it’s better to avoid having to do it.”
”I agree. Gotta say, though, I - I was worried you wouldn’t be able for patrol, y’know?”
You arch an eyebrow at him. “I know. I overheard you, remember?”
He blushes. “Aw, shit. Yeah. I’m sorry about that. I just didn’t want anything happening to you, what with your - condition, and all.”
You sigh softly, not really noticing the affection in his voice. “Most of the time, I’m fine. Y’know? I’m slower, but I do okay. I get tired more easily, but I manage. I didn’t come here to be a drain on the community.”
”You aren’t.”
”I know, but I want to keep it that way. I want to pull my weight. I’m able, Joel.”
He huffs in agreement. “Not like I’m a perfect specimen these days, either. Knees, fuckin’ back, deaf in one ear…” 
You chuckle. “And you thought I wouldn’t manage patrol? Anyway, you’re not doing so bad, are you?”
He gives you a little smile, but that constant sadness still haunts his eyes. He stares at his coffee for a moment.
“You knew what you were doing, though.”
”I did. But I didn’t feel like I could stop.” You sip your tea, swallowing hard. “And I’m scared that makes me some kinda monster. You know?”
Oh, he knows. He knows it too well.
”You aren’t a monster.” Joel resists the urge to put an arm around you. “You just… something snapped, I guess. All that - well, all that hell you’ve gone through. It… it changes you. But it doesn’t make you a monster.”
He realises you’re crying before you do, spotting the fat tears that roll down your cheeks. He finds a clean handkerchief in his jeans and offers it to you. 
Fuck it. 
“Can I - can I put an arm round you? Just for some support?”
Your eyes light up, tears or no tears, and you nod enthusiastically. Joel is warm and comforting, his broad chest and strong arms a kind of anchor in the emotional storm. You nuzzle against him, and he gives you a little squeeze on the arm.
”You’re a really brave woman, you know that?”
His voice is quieter, more intentional. You look at him quizzically from under your lashes, unused to praise of this kind. For an instant you think about asking him what he means. But the safety you’ve found in the broad arm draped around you is all you need right now. 
You nuzzle a little against his chest, and watch the fire dancing for the rest of the night. 
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the-delta-quadrant · 9 months
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if the only reason you're considering medical diagnosis or legal recognition of your disability is to feel less like a fraud, don't do it.
it's not worth the effort nor does it actually work.
i got my autism diagnosis so i could get PIP. i got registered sight impaired so i could get PIP as well as some other accommodations. i got my ADHD diagnosis because i wanted to try meds.
i got my PIP and the benefits. i found out i can't go on ADHD meds.
for a few months, a side effect of getting diagnosed/registered was feeling validated and more confident in these disabilities.
that did not last.
every now and then i still wonder if i'm making my autism sound worse than it is, if it's really autism at all, if i just accidentally lied to the assessor because i wanted to be autistic. same with my ADHD.
with my vision, my eye conditions are an undeniable, visible fact. and yet i still feel like i'm making myself out to be more disabled than i am. i still think "i can read normal print, large print is just more comfortable, so i'm not really that disabled". i still think "i actually can see lots of things around me, so i can't really be that disabled".
i still feel like a fraud for using large text, magnification, a symbol cane, stim toys, a sunflower lanyard, not reading physical books etc.
i still feel like a fraud despite having 30 pages of diagnostic paperwork and certificate of visual impairment in my drawer. especially with my vision because no other vision impaired person's vision seems to be like mine at all. i am alone.
so yeah, if the only reason you want to get diagnosed is for confidence in your disability, it's not worth it. the doubts will come back anyway.
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nonspeakers-r-us · 1 year
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Nobody talks about episodes of uncontrollable emotion and dangerous behaviors in severe Autism.
I apologize for the long post. This is important to me. Heavy CW for mention of knives, self-injurious behaviors, description of intense emotions, brief descriptions of restraints and police. Yes, I used the word "severe" to describe my Autism. This is because I am Nonspeaking, very High Support Needs, visibly Autistic, and have a Borderline IDD. This is how I choose to describe my Autism. Please don't attack me for this, Tumblr. Anyways. Darting out into busy streets. Repeatedly banging your head against walls. Throwing objects, sometimes even very dangerous objects such as knives. Breaking things - anything - no matter the value or durability. Unplanned, sudden violence towards self and others. Lashing out, in pure emotion, just screaming into nothing at the top of your lungs, for no obvious reason other than pure, unadulterated, terrifying emotion. This may not seem like symptoms of Autism for anyone, and they may not be caused by Autism at all. But for many young people and adults with severe Autism, this is what our families deal with regularly. "Difficult behaviors", as I've often heard them described as by social workers. There's often no clear reason for then. They just. Happen. We are almost never diagnosed with secondary conditions. It is considered a symptom of our severe/profound Autism. While in many Speaking and Low Support Needs people with Autism, they would be diagnosed with various conditions. Conduct Disorder. Bipolar. Borderline Personality Disorder. Maybe even a severe case of Intermittent Explosive Disorder. But for those of us on the more visible part of the Spectrum, nobody knows how to deal with us. It's scary and heartbreaking for our families, and deeply traumatic for us. Many times, our families and caregivers will turn to emergency services such as police or EMTs when they have no where else to turn. I don't like this option, I hate it. But in moments of extreme panic and fear, I don't always blame families for this. Nobody talks about those of us who have been restrained by our arms and ankles to hospital beds for weeks at a time. Nobody talk about those of us who turn violent on the people we love most, when we just can't control ourselves. I wish I had good advice for those of us struggling with this. I wish I could comfort you. While mood stabilizers and antipsychotic medications have helped me, it doesn't help everyone. DBT for severely Autistic individuals is another thing that greatly helped me. This is a fact of life for many individuals with severe Autism and their families. It's terrifying. But please keep trying treatment, keep advocating for yourself as much as possible, and keep going. I'm sure you don't think this means anything, but you are strong. You are brave. I see you and I want you to keep going. Nobody talks about episodes of uncontrollable emotion and dangerous behaviors in severe Autism.
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scientia-rex · 4 months
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I really appreciate your breakdown on all of this, it’s both enlightening and vindicating.
I am about 50kg (110lb) above my “recommended” weight and am still getting over my general upbringing that told me I am at fault for being so much bigger than my peers. I still get surprised every time I talk to professionals about it and they just shoot down my assumptions.
My GP told me my extra weight gain after changing my medication is not a concern because I am fit and healthy. My endocrinologist diagnosed my various hormonal conditions that I’ve had since puberty and made it clear that I wouldn’t be able to lose weight without actually starving myself, which of course he did not recommend. My psychiatrist responded to my anxiety about my weight by telling me about HAES paradigm- Healthy At Every Size - and that I should not chastise myself for something both beyond my control, and also not a concern. My first physical trainer, when I talked about wanting to lose weight, made it very clear that regular exercise would not help me lose weight. I saw a dietician and they made it clear that they would not feel comfortable trying to bring me down to a “normal” weight range but would be very happy to help me balance my nutritional needs and make sure I’m getting enough vitamins.
All of these certified professionals agreed - being big is not inherently a problem. And yet every time I see my parents they make at least one comment about how I need to be losing weight. And I know it’s because they care but it’s really disheartening. It’s also really exhausting trying to respond to them with what I’ve learned because even if I could cite my sources right then and there, they would still think I’m making excuses. Sometimes they believe my doctors but very often they respond with “okay but” and still insist I’m just not trying.
So yes I really really appreciate you standing your ground and trying to educate people despite all the naysayers. I’m sure your determination has helped people learn that maybe they can be happy with their bodies as they are.
I’m glad your professionals are getting it right. I’m sorry your parents aren’t. You might consider asking them to read Fat Talk: Parenting in the Age of Diet Culture, or You Just Need to Lose Weight (and 19 Other Myths About Fat People), but you may also want to set a firm boundary: don’t talk about my weight or I will hang up/leave the house and go back to the hotel.
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55ludovicoplace · 8 months
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So today I got given a pretty stern ultimatum about being just outright cut off from medical care, which is always fun!
Hello, internet! I'm disabled by a host of chronic medical issues including autoimmune disease, dysautonomia, cognitive disorder, and seizures, I have little to no support in getting treatment, and I am several thousand dollars in debt! I am having an amount of money demanded of me that I literally cannot afford!
Without anticonvulsants, painkillers, and other medications I simply cease to be able to do just about anything. I am very afraid of going back to that state and my conditions are only getting worse over time, largely because I can't afford to get them properly diagnosed and treated. It's only after the intervention I've had that I've been able to have any real degree of respite, independence, or happiness. Without treatment I literally do not have a future.
I make very very little money at my job. I am miserable there and cannot get more hours. I am struggling to find more work, and do not have health insurance. I am in the process of getting health insurance but it is a miserable uphill battle. Being sick is incredibly expensive. I feel very very helpless. Please help me keep treading water until I can get back on stable ground. If I can continue paying exorbitant prices for medications I have a chance of getting insurance, getting a better job, and not having to live in this constant state of having no money and fearing for my basic needs. If I lose access to my medical treatment I will probably never be in a state to claw myself back up to where I am again.
Anything at all helps. Thank you so much.
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