#involuntary movements

[crippleprophet]

hey, i don't want to put you out or anything, i was just wondering if like off the top of your head if you knew any disability studies articles/books/whatever that center (or even just feature) tic/involuntary movement disorders?

so the answer to this was pretty much no but i spent a bit of time poking around and turned up this 2023 undergraduate honors thesis (link) by a student with tourette’s which seems like a solid starting point for going down the citation rabbit hole!

that piece is “The Embodied Performance of Tics and Tourette Syndrome in the Academic Environment” by Benjamin Allen; i’m only ~1/4th through rn but they argue for a continuum of ticcing + criticize the diagnostic system so i’m comfortable reccing it on that front! the (non-medical) tic-related works cited there are:

Buckser, Andrew. “Before Your Very Eyes: Illness, Agency, and the Management of Tourette Syndrome.” Medical Anthropology Quarterly, vol. 22, no. 2, 2008, pp. 167-192.

Buckser, Andrew. “The Empty Gesture: Tourette Syndrome and the Semantic Dimension of Illness.” Ethnology, vol. 45, no. 4, 2006, pp. 255- 24. https://www.jstor.org/stable/20456601.

Curtis-Wendlandt, Lisa. “Time and the Tic Disorder Triad.” Philosophy, Psychiatry, & Psychology, vol 27, no. 2, 2020, pp. 183-199.

Curtis-Wendlandt, Lisa, and Jack Reynolds. “Why Tourette syndrome research needs philosophical phenomenology.” Phenomenology and the Cognitive Sciences, vol. 20, no. 4, 2021, pp. 573-600.

Miller, James. “The Voice in Tourette Syndrome.” New Literary History, vol. 32 no. 3, 2001, pp. 519-536. Project MUSE, doi:10.1353/nlh.2001.0039.

Trubody, Ben. “Ticced off: An Interpretative Phenomenological Analysis of The Experience of Tourette’s Syndrome.” Journal of the Society for Existential Analysis, vol. 25, no. 2, 2014.

i also searched a handful of disability studies journals for a variety of keywords (movement disorder, tic, tourette’s, involuntary movement, chorea, huntington’s) but didn’t turn up much unfortunately, so all but the first of this next list include someone with tics and/or involuntary movements rather than being about moving involuntarily.

haven’t read these so i can’t speak to the politics / quality (although i’ll make a post if i’m able to read more) but here’s what seemed potentially relevant! also if anything is paywalled please don’t give T&F your money lol, try SciHub or if you can’t find something i can ask around for somebody with institutional access!

Cultural Differences in Reactions to Tics and Tic Severity (2021)

Using virtual reality to implement disability studies’ advocacy principles: uncovering the perspectives of people with disability (2023)

I had every right to be there: discriminatory acts towards young people with disabilities on public transport (2020)

From comedy targets to comedy-makers: disability and comedy in live performance (2015)

From the Case Files: Reconstructing a history of involuntary sterilisation (2010)

i also want to mention “Movements of the Uncontrollable Body Part Two” by Bronwyn Valentine (2019), a creative writing piece about her experiences of embodiment + ableism with spina bifida that i first read pretty soon after it was published & went looking for after developing my movement disorder a year ago because it was so impactful. @fndportal also has some incredibly vital work.

also if you haven’t already read Rosemarie Garland-Thomson’s Staring: Why We Look, it’s not specifically about involuntary movements but definitely a core text for theorizing any visibilized disability.

i hope some of that is helpful!! if anybody checks any of these out i’d love to hear your thoughts/critiques! all the best to you & i hope these offer some resonance with + understanding of your experiences 💓💓

#tics #ticcing #involuntary movements #movement disorder #disability studies #asks #reading lists #movements of the uncontrollable body

[mischiefmanifold]

reminder again that anxiety, ocd, autism, adhd, trauma, fnd, pandas/pans, etc., do NOT cause tics

if you have tics you have a tic disorder

if you have at least two motor tics and one vocal tic you have tourette syndrome

also remember that there's a lot of different types of involuntary movements

#tics #anxiety tics #autism tics #adhd tics #ocd tics #ptsd tics #fnd tics #fnd #pandas/pans #autism #adhd #ocd #anxiety #involuntary movements #tic disorder #tourette syndrome #tics and tourettes #tourette

[neuroticboyfriend]

i sure love suddenly feeling inexplicably Off and slightly unaware of my surroundings only for my body to begin randomly, sometimes violently, jolting. and then it goes back to normal as if nothing happened. like ??? hello ??? there wasnt even any loud/sudden noise this time. the tv was on normal volume. what do you want from me. what is this shit

#julian rants #vent #involuntary movement #involuntary movements

[roadzoflife]

Kidney Transplant Survivor Conversation

#youtube #documentary #interview #roadzoflife #kidney failure #involuntary movements #thought provoking

[creekfiend]

the other thing is that like... respectfully. antipsych may not have much to do with your life. that's fine. prison abolition does not have much to do with my life -- except as those two things intertwine institutionally. the prison system isn't one I have to face.

but it would not be appropriate for me to enter those conversations and be like "well what about when the cops helped me find my dog, who will help me find my dog" you know? like. or at the very least if I did that, people whose day to day lives have been horribly impacted by the prison system would be deeply justified in telling me to sit the fuck down, lol

#antipsych #by 'not having much to do with my life' i dont mean i do not care about it. i care about it LOTS #but i am not the person being harmed by it. at the moment. which does not diminish its import #is all i am saying. #same for this: perhaps you have not experienced and have no fear of experiencing involuntary institutionalization #thats fine. but it does not mean your personal concerns should be more central to this movement

[hulludragon]

I be ticcin again twitchin even feelin like a malfunctioning robot

fnaf

#a poem by me #no but fr I was diagnosed with tics caused by stress #<- tic = involuntary jerk or movement of the body #most commonly seen happening to people with tourettes #I have autism #jäyssi rambles

[rox-reads]

alec what the fuck

ok so his power is less being able to cause involuntary movement in his target, and more being able to make them move however he wants except he needs prolonged contact to reach that point

#worm #parahumans #worm lb #worm30 #ch 10.1 #so if he can only apply his power a few seconds at a time it will result in 'involuntary' movement but he can eventually fully take over #is he taking over the nervous system? #can he only do this to humans? #also is sophia awake right now?? #this is kinda fucked up

[mariamlovesyou]

no seriously somethings amiss

#i cant stop chattering my teeth and doing weird involuntary movements and it's not even a little bit cold

[beomurang]

Whats he digging there 😐

It's always Beomgyu at the crime scene.

#യ t : time ! 🍵༊*·˚ #❛ 𐂴 : moots 🍷‧ ⋆ ⁺ #— 🪻 : yerie ♡⊹₊˚ #tho i do that too 😀 #i feel him #it's just a involuntary muscle movement #if I go into details #i will turn soobin in that vlive when he was describing Yeonjun's butt and had to be stopped

[crippleprophet]

in need of involuntary movement advice

hi besties, so i have lupus that is currently untreated and have been developing a lot of neurological issues, most likely as a consequence of this. we are suspecting:

1) cerebellar ataxia because i list to the left, i have an intention tremor, my balance has gone to hell standing & walking and is worse with my eyes closed, and i’ve got dysmetria (issues with finger-to-nose test)

2) some sort of movement disorder(s) affecting the basal ganglia. i experience what seems to be dystonia (slow twisting movements & muscles being held still in a certain position), chorea (jerky sudden movements), and ballismus (large flinging movements). the involuntary movements seem to get worse with directed movements, especially fine motor skills (possibly in some sort of relationship with the intention tremor), and strong emotions such as distress or excitement.

these have been getting significantly worse recently, and i’m especially concerned because my involuntary movements have “spread” to involve my legs and throat/tongue. i’m really struggling to find any practical advice & not just bullshit about exercise & taking care of your mental health or how brave caregivers are. my questions are including but not limited to:

if i’m walking while my legs start flinging, what do i do? i’ve started using my upright rollator around the house but i don’t think it could keep me from falling in that scenario

harm reduction in cooking for myself? i already don’t use knives but i’m worried about spilling boiling water or injuring myself with scissors

how to not break dishes. i need to use ceramic & glass because they can more reliably be cleaned for my allergy needs. someone suggested several small tables between the kitchen and couch which i’m going to try but would love any additional ideas as well

eating. i already use adaptive silverware and i think i’m going to invest in some bibs but it’s still so difficult

advice for choking - how to minimize it, what to do during it, etc

do you just take a pillow with you all the time or…? like i start hitting things around me really hard

we’re trying to find a community member who would be willing to drive me to appointments but in the event that i have to take a lyft somewhere, what do i tell the driver in case i start whacking their car?

if i for some reason have to be out alone, advice for not getting murdered by the police and/or forcibly hospitalized?

thank you so much to anyone who has advice, including any resources on where to look up this type of information!! i would really appreciate any reblogs for visibility

#chorea #ballismus #dystonia #movement disorder #involuntary movements #chronic illness #neurological disability #ataxia #cerebellar ataxia #lupus #systemic lupus erythematosus #sle #mac.txt #movements of the uncontrollable body

[mischiefmanifold]

Hey there, do you have some cool sources on other types on involuntary movement that are not tics?

Yes, I do! Here is a list of involuntary movements, a simple description, and links to resources on them:

Akathisia -> an inability to remain still

StatPearls article

cleveland clinic article (very good)

Akinesia -> the loss of spontaneous, voluntary muscle movement

StatPearls article (free article)

healthline article

Athetosis -> slow, continuous, involuntary writhing movements commonly affecting arms and hands

healthline article

Chorea -> rapid, chaotic movements that seem to flow from one body part to another

NINDS article

StatPearls article

Dystonia -> sustained or repetitious muscular contractions; often produces abnormal posture

mayo clinic article

NINDS article

StatPearls article

Hemiballismus -> sudden, intermittent, flinging, or ballistic high amplitude movements commonly affecting proximal limb muscles

StatPearls article

Myoclonus → sudden, brief, involuntary muscle twitches

mayo clinic article

NINDS article

StatPearls article

Parkinsonism -> a clinical syndrome characterized by slowness, rigidity, tremor, and postural instability

StatPearls article

parkinson's disease vs parkinsonism

types of parkinsonism (parkinson's UK)

types of parkinsonism (parkinson's foundation)

Stereotypies -> repetitive, rhythmic movements with typical onset in early childhood

stereotypies in adults

medlink article

Tardive Dyskinesia -> uncontrollable and repetitive movements of the tongue, lips, face, trunk, and extremities

webmd article

Tics -> sudden, rapid, recurrent, and nonrhythmic movements or vocalizations

mayo clinic article on tourette syndrome

NINDS article on tourette syndrome

child mind institute article on tics and tourette

Tremor -> rhythmic back-and-forth or oscillating involuntary movements

NINDS article

classification of tremor

(at request I can find Tumblr or blog posts talking about personal experiences with some of these movements)

Basic definitions come from this article: https://www.psychiatrist.com/pcc/effects/drug-induced-abnormal-involuntary-movements-prevalence-and-treatment/

#asks answered #anon asks #involuntary movements #akathisia #akinesia #athetosis #chorea #dystonia #hemiballism #hemiballismus #myoclonus #parkinsonism #stereotypies #tardive dyskinesia #tics #tremor #links

[neuroticboyfriend]

This is a genuine question but would epilepsy fall under neuropunk? I just haven't looked into it fully and at a distance the community is mostly focused on autism/ADHD. It's confusing because it's a thing that isn't the same kind of punkness as my ADHD/BPD with NPD traits stuff. It's something else entirely. More physical than my BPD but less physical than hEDS, if that makes sense. Feels somewhere inbetween.

yeah, it would! nonpsychiatric neurological conditions count under neurodivergent (what neuropunk is based around). that's the cool thing about the term neurodivergent - it doesn't draw a line between "physical" and "mental," or encourage conditons being boxed into one or the other.

for example, I'm neurodivergent for both my schizophrenia and my spinal nerve condition. i'm neurodivergent for both my autism and my involuntary movements (which ,I don't know if they're seizures or from the spine condition). etc. etc. and i can be neuropunk in relation to all of these things.

#asks #anon #neuropunk #neurodivergent #neurodivergency #schizophrenia #schizophrenic #schizoaffective #schizospec #autism #autistic #epilepsy #seizures #involuntary movement #spinal stenosis #disabled #disability #adhd #bpd #npd #heds #neurological condition #neurological disability #mental illness #physical disability

[roadzoflife]

terrible problems like hallucinations

Placed in an asylum, she shares her experience, first taking slimming tablets age 17, drastically affecting her quality of life to the point of being committed. At the time of speaking with her she was now in her 60's. It is hard to fathom such large amounts of time in ones life being so drastically altered by what must have seemed at the time such a minor decision. She now suffers involuntary movements that she feels are embarrassing. During my own recovery process I spoke with this elderly woman on camera. I can relate to her story, we discussed openly the suffering we had both faced.

#youtube #share your story #realtalk #involuntary movements #roadzoflife #struggles are real #bizarre

[steampunk-raven]

my brain fails to understand that there is something in between “constant involuntary movement” and “paralysis” and that something is called “not being annoying”

#brain may I gently request that you send signals to the rest of my body correctly please and thank you #and then there’s dystonia which is the worst of both worlds in my experience lol #involuntary movement that then gets stuck like that. can’t move it #kinda the opposite of what I’d like #(although dystonia feels super different to paralysis don’t get me wrong lol)

[parappa-the-killer]

might fuck around and get my prescribed antipsychotics

the shrink specifically instructed me to do clown shit with them. i might try a different kind of clown shit and hope it will make me normaler without causing me to be half conscious at all times.

also today i got my neetbucks and i no longer have only 39 polish złoty [under 10 american dollar] in my bank account. so i can afford some clown shit

#me when i go outside and display symptoms of being naruto divergent and get self conches #me when the movements are involuntary. elle emm ayy oh. lets kill everynyan #[also. substance lore. some antipsychotics are also used for tourettes #not sure what my issue is (parents didnt love me and i kinda took antipsychotics from age 12 til i got off them a bit past age 18) but #there might be a connection between taking stuff used for tourettes and not having much of *gestures vaguely*. anyway] #crawlie.pdf

[docbe]

Yknow I know I’ve been having a lot of brain and fatigue issues for a while now, but parts of this last week or two I’ve been feeling like actually *awake* for the first time in what feels like years…which does help put it into perspective bc it’s really easy to start thinking like “what if I’m just blowing this out of proportion?”

No, the difference between Struggling and being actually mentally present is huge

#maybe the involuntary 6 month hibernation period actually did help #and like..daylight or whatever #but I’ve been completing Tasks! multiple! #that involve movement and active cognition or creativity for more than half an hour! #will update in 1-2 months on whether this is a trend or a weird outlier period #blarg