#dystonia

[ericdoesinhale]

Lemon Razz by Distinkt Cannabis (Endo)

THC: 26.79%

CBD: 0.00%

Packed: October 11, 2023

Opened: January 18, 2024

#cannabis #medicine #dystonia #weed #pot #cannabis act #dont tax medicine #photography

[dartfrogs]

september is dystonia awareness month!

dystonia is a group of movement disorders that occurs when nerves in certain muscles are too active. this causes these muscles to contract involuntarily. these contractions can cause parts of the body to be held in uncomfortable positions and can cause muscle spasms.

dystonia can have a few different causes, ranging from genetic to a side effect of certain medications, like antipsychotics. depending on the cause treatment options for it can be certain medications (anticholinergics, muscle relaxants, or dopamine promoters), physical therapy, botox injections to paralyze the overactive nerves, or a combination of those treatments.

some people find sensory tricks useful to help calm their symptoms down. as an example i get muscle spasms on the right side of my face, and having something touching my head calms them down. i wear band-aids on my face due to this. the sensory tricks that someone finds useful can vary depending on the type of dystonia as well.

to help spread awareness you can wear blue during the month of september. certain landmarks and buildings in the US will be illuminated with blue lights on specific dates to raise awareness as well. you can find out the dates through this link.

you can also help out by donating to the dystonia medical research foundation if you have the funds for it. and if you're someone who has dystonia you can also sign up to be a brain donor through them.

i hope everyone has a good september!

#disability #actually disabled #dystonia #dystonia awareness #disability awareness #disabled #dystonia awareness month #movement disorders

[queer-whatchamacallit]

Oh whump writers of The Bear fandom,

Consider Carmy with limb dystonia in his right (veg-chopping, sauce-stirring) hand, this being a lifelong disorder of muscle contractions which can sometimes be caused by overuse

Factors such as electrolyte imbalances (potentially caused by frequent vomiting), dehydration, and stress can put someone at much higher risk too

Consider it 1. For the good whump possibilities of him dealing with the pain as well as not really being able to cook for a little bit because his hand is so fucked. Even if he lets it unlock and stop spasming and everything, getting back to work too soon could potentially put him right back where he started

But also consider it 2. For the top tier narrative shit. It could essentially serve as a clear physical manifestation of Carmy’s overwork and lack of self-care. Have his unhealthy obsession with cooking cause muscle spasms that stop him from cooking. It essentially forces him to reevaluate his relationship with the restaurant and how he can be a part of it without it tearing him apart.

Show how being a part of the culinary world has ripped him to shreds mentally and physically. It has done horrible things to him, but it has shown him confidence and interpersonal connection and just a passion for life that nothing else could even try to.

Have him learn how to make The Bear something that doesn’t require self-flagellation for good results. Have dystonia hurt like a bitch but also teach him to be kinder to himself.

(Also, I have zero personal experience with dystonia, so if you do and have any qualms with this post, feel free to comment, and I’ll do my best to edit accordingly!!)

#this is what I want for him #this kid NEEDS to work in a kitchen #it has been really bad for him at times #but it doesn’t have to be #make things get extraordinarily worse for him before he can start to get better #the bear #the bear fx #whump #whump prompt #whumpblr #carmy berzatto #carmen berzatto #dystonia #headcanon #headcanons #character study #the bear season 3

[crippleprophet]

in need of involuntary movement advice

hi besties, so i have lupus that is currently untreated and have been developing a lot of neurological issues, most likely as a consequence of this. we are suspecting:

1) cerebellar ataxia because i list to the left, i have an intention tremor, my balance has gone to hell standing & walking and is worse with my eyes closed, and i’ve got dysmetria (issues with finger-to-nose test)

2) some sort of movement disorder(s) affecting the basal ganglia. i experience what seems to be dystonia (slow twisting movements & muscles being held still in a certain position), chorea (jerky sudden movements), and ballismus (large flinging movements). the involuntary movements seem to get worse with directed movements, especially fine motor skills (possibly in some sort of relationship with the intention tremor), and strong emotions such as distress or excitement.

these have been getting significantly worse recently, and i’m especially concerned because my involuntary movements have “spread” to involve my legs and throat/tongue. i’m really struggling to find any practical advice & not just bullshit about exercise & taking care of your mental health or how brave caregivers are. my questions are including but not limited to:

if i’m walking while my legs start flinging, what do i do? i’ve started using my upright rollator around the house but i don’t think it could keep me from falling in that scenario

harm reduction in cooking for myself? i already don’t use knives but i’m worried about spilling boiling water or injuring myself with scissors

how to not break dishes. i need to use ceramic & glass because they can more reliably be cleaned for my allergy needs. someone suggested several small tables between the kitchen and couch which i’m going to try but would love any additional ideas as well

eating. i already use adaptive silverware and i think i’m going to invest in some bibs but it’s still so difficult

advice for choking - how to minimize it, what to do during it, etc

do you just take a pillow with you all the time or…? like i start hitting things around me really hard

we’re trying to find a community member who would be willing to drive me to appointments but in the event that i have to take a lyft somewhere, what do i tell the driver in case i start whacking their car?

if i for some reason have to be out alone, advice for not getting murdered by the police and/or forcibly hospitalized?

thank you so much to anyone who has advice, including any resources on where to look up this type of information!! i would really appreciate any reblogs for visibility

#chorea #ballismus #dystonia #movement disorder #involuntary movements #chronic illness #neurological disability #ataxia #cerebellar ataxia #lupus #systemic lupus erythematosus #sle #mac.txt #movements of the uncontrollable body

[spookietrex]

Had a neurologist appointment today that went really well. It was nice to just be...heard for once. I started in on my "my doctors aren't listening to me and are making things up" speech and she started to cut me off until I cut her off and explained that a certain hospital near us had actually documented in my medical record that I'd thrown up on purpose. (I didn't. They'd asked about nausea but unfortunately I'm dissociative in the hospital...especially if you're trying to involuntarily hospitalize me) and she stopped. She documented my symptoms and referred me to another provider who can actually help evaluate me for Parkinsons because my symptoms are more than just functional neurological disorder and I'm tired of being dismissed. She actually watched my videos of my tremoring and my muscles convulsing involuntarily and it switching sides.

#my journey to find healthcare that doesn't hate me #chronic health issues #chronically ill #chronic pain #chronic illness #chronic fatigue #chronic fatigue syndrome #hypermobile eds #fuck you eds #eds zebra #eds #hypermobile ehlers danlos #hypermobile joints #hypermobility #living with pots #fuck you pots #potsie #pots #post traumatic stress disorder #functional neurological disorder #fnd #seizure like activity #dystonia #parkinsons #my medical record is just my doctors telling me i'm lying #medical records #medical trauma #what my doctors think i sound like #my doctors hate me #actuallymentallyill

[cinivia]

When Quentin coldwater said “what’s the point of magic if it can’t cure illnesses.” Facts, what the fuck.

#my post #the magicians #quentin coldwater #Elliot magicians #eliot waugh #illness #epilepsy #dystonia

[mischiefmanifold]

Hey there, do you have some cool sources on other types on involuntary movement that are not tics?

Yes, I do! Here is a list of involuntary movements, a simple description, and links to resources on them:

Akathisia -> an inability to remain still

StatPearls article

cleveland clinic article (very good)

Akinesia -> the loss of spontaneous, voluntary muscle movement

StatPearls article (free article)

healthline article

Athetosis -> slow, continuous, involuntary writhing movements commonly affecting arms and hands

healthline article

Chorea -> rapid, chaotic movements that seem to flow from one body part to another

NINDS article

StatPearls article

Dystonia -> sustained or repetitious muscular contractions; often produces abnormal posture

mayo clinic article

NINDS article

StatPearls article

Hemiballismus -> sudden, intermittent, flinging, or ballistic high amplitude movements commonly affecting proximal limb muscles

StatPearls article

Myoclonus → sudden, brief, involuntary muscle twitches

mayo clinic article

NINDS article

StatPearls article

Parkinsonism -> a clinical syndrome characterized by slowness, rigidity, tremor, and postural instability

StatPearls article

parkinson's disease vs parkinsonism

types of parkinsonism (parkinson's UK)

types of parkinsonism (parkinson's foundation)

Stereotypies -> repetitive, rhythmic movements with typical onset in early childhood

stereotypies in adults

medlink article

Tardive Dyskinesia -> uncontrollable and repetitive movements of the tongue, lips, face, trunk, and extremities

webmd article

Tics -> sudden, rapid, recurrent, and nonrhythmic movements or vocalizations

mayo clinic article on tourette syndrome

NINDS article on tourette syndrome

child mind institute article on tics and tourette

Tremor -> rhythmic back-and-forth or oscillating involuntary movements

NINDS article

classification of tremor

(at request I can find Tumblr or blog posts talking about personal experiences with some of these movements)

Basic definitions come from this article: https://www.psychiatrist.com/pcc/effects/drug-induced-abnormal-involuntary-movements-prevalence-and-treatment/

#asks answered #anon asks #involuntary movements #akathisia #akinesia #athetosis #chorea #dystonia #hemiballism #hemiballismus #myoclonus #parkinsonism #stereotypies #tardive dyskinesia #tics #tremor #links

[thealienmoth]

Anyone with Tourettes and or Dystonia got Ankle-foot orthoses (AFOs)? It was recommended to me by one Dr. because I have a tic where I twist my ankles to the side, then the dystonia sets in and keeps it like that for a bit. Wich makes walking dangerous and I keep falling and spraining my ankles.

Ik that an orthosis fixing my foot in a position would trigger the tics more but they couldn't happen. It would likely re-direct somewhere else.

I am still unsure tho.

#tourettes #dystonia #motortic #AFO

[macmanx]

Ever wonder what a dystopian wasteland with big anthropomorphic pandas would be like? Well good news, there was once a show called Wastelander Panda! … or at least I think there was.

With the exception of an IMDB page promising 2 whole seasons, there’s not much online besides these 3 episodes:

The next 2 episodes take place years later and follow a different panda. I prefer him to the first:

There’s even a trailer for what I think is a spin-off that might take place between episodes 1 and 2, and it sure looks finished, but again nothing I can find that remains online is clear.

Anyway, please enjoy something that probably existed at one time!

And if anyone knows more, please reblog with more info, thanks!

Update: I can confirm that Wastelander Panda: Exile existed, apparently retitled back to the original as just Wastelander Panda, because this (probably unofficial) YouTube playlist exists! 🎉

#wastelander panda #dystonia #panda #indie film

[prose2passion]

some very scary stuff in here for those of us building their happiness on playing musical instruments.

The bit that saved me came close to the end though:

"Perfectionist thinking, thought to be associated with dystonia, is a pre-requisite for entry into elite playing, with the expectation of a “clean” performance as the virtuoso’s signature. Researchers speculate that classical musicians are especially susceptible to dystonia, as opposed to jazz or other genre musicians, because of the limitations placed on personal expression by scored music, and the pressures to carbon-copy recordings of famous players."

Although I do play classical music, I have zero perfectionism in that endeavour and am playing it more like a jam session. So I'm hoping that I'm not at risk of the troubles discussed here ...

#science #dystonia #musical instruments #musicians #flute #k313

[ericdoesinhale]

Off Menu - Xeno by Lot 420

THC: 31.78%

CBD: 0.9%

Packed: October 6, 2022

Opened: December 3, 2022

#cannabis #medicine #dystonia #pot #weed #cannabis act #dont tax medicine #photography

[jgthirlwell]

New York Times just published a great review of ‘Dystonia’, JG Thirlwell’s new string quartet album with Mivos Quartet. You can pick it up on JG Thirlwell’s Bandcamp page and hear on streaming . The album was released by Cantaloupe Music

#New York Times #Dystonia #JG Thirlwell #Cantaloupe Music #Mivos Quartet

[gwydionmisha]

#Dystonia #Neurology #Disability

[crippleprophet]

guy who starts domming more after developing dystonia like at least i can control someone’s limb movements

#it’s the middle of the night & i’m high & think i’m funny. you agree. reblog #minors dni #dystonia #movement disorder #disabled nsft #cripsex #mac.txt #drugs ment in tags #involuntary movements #movements of the uncontrollable body

[lizzy-bonnet]

After a very physically demanding weekend, I screwed up my medication schedule somehow and ran out of spoons halfway through cleaning out the fridge; had to keep going so all my food wouldn't spoil. I will feel godawful (in pain, somehow both unable to move around and unable to sit still) for the next six hours and exhausted tomorrow; it will take a week to get my medication schedule back to normal and during that time there is a high possibility this will happen again. I am one of the lucky ones because my condition responds to medication.

#dystonia #chronic condition

[idontexistig]

So fuckin tired of being called crippled by people who only see me as their joke. Im tired of "friends" teasing me nonstop about the same old shit. Tired of hearing "oh im crippled too" over minor injuries that have no effect on your life because you want to compare yourself to my chronic, painful condition. Yes i joke about it because i have no other way of coping, that doesn't mean you make it all you ever joke about with me. Im tired of it. It hurts. Im tired of being your cripple. It never stops. I can't even ask them to stop because then im overdramatoc and hypocritical. Its bullshit.

#crippled #vent #brain injury #dystonia #spasticity #stroke survivor