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#chronic health issues
moss-opossum · 2 months
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It’s okay to have low pain tolerance.
It’s okay to cry because your pain is at a 2 out of 10.
It’s okay to have higher tolerance for certain types of pain and lower tolerance for others.
It’s okay to be upset that your pain makes you dissociate, but not know any other way to deal with it.
Chronic pain is awful, period. Everyone who deals with it deserves compassion.
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spookietrex · 1 month
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I am valid even when my small victory is that I took my meds that day.
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roxannarambles · 1 year
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Hey can I get our boi guzma with a s/o who's always sleepy, like, no matter how much sleep they get they're always still tired for like half of the day
Ooh, a request for headcanons? I don't normally do that, but sure!
• You try not to let it bother you, but it's frustrating sometimes, because it's hard to feel motivated or get anything done when you're like this. You remember that you used to have so much more energy and wonder what's wrong with you.
• Guzma tells you there's nothin' wrong with you, anyone's gonna feel like shit if they're surrounded by the same dismal four walls every damn day. Not your fault. He thinks a moment and then grabs your hand, says he's gonna take you somewhere
• You leave Po Town and you ask him where you're going, he says 'the beach.' You thought there wasn't any beach access this side of Ula'ula. The cliffs are too high. He says, for most people, sure, but not for us
• He leads you down a hidden path cut between the hills, covered by the undergrowth. You eventually reach a secluded beach that looks untouched by people, for the most part. You walk for a while in comfortable silence, feeling the crisp breeze ruffling your hair, listening to the lap of the waves, the wingull cries
• Guzma stops to skip a stone and says he likes to come here to clear his head. Then asks how you're doing. You say you're feeling a bit better, which is true. The fresh air and the walk helped a little. You just wish you weren't always like this. It feels dumb that even simple things are so much work for you. Makes you feel kinda worthless.
• He's quiet a while. He says you're not worthless.
"So you got a weakness. Health's not perfect or whatever. Whatever's going on. So what? Doesn't make you useless. You work around it. Figure out what works best for you."
He takes a pokeball from his pocket, looks at it.
"My Golisopod? He bails the second his health dips below half. I thought he'd grow out of it, he never did. But it doesn't matter. So what if he has to bail and take a break during battle? Found a way to work around it. It's part of the strategy now. Now he can wreck face with his First Impression all the time. He's a monster."
He smiles, the pride in his Golisopod clear to see.
"Everyone says bug pokemon are shit, but I don't give a fuck what anyone thinks. I do what I want, and I know bug pokemon are sick. They're used to getting stepped on by everyone else around them, treated like garbage. People kill them just for the crime of daring to exist. But they keep goin' anyway. Nothin' stops them."
He pockets the ball again.
"Anyway . . . you and me, we know what that's like. But we do our own thing anyway. Nothin' else matters. We're not like everyone else, but so what? I know the amazing stuff you can do."
He cups your face with a hand and gently tilts your chin up.
"So don't worry about it, aight, lovebug?"
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sshonuu · 11 hours
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People with physical health issues, what do you think about making a group of us, to support each other? We could also make some representation to spread awareness about our illnesses! Just tell me where you'll be comfortable to chat! And also, there's no matter which diagnosis you have, because we'll represent every physical health issues!
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lightthewaybackhome · 4 months
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PSA: if you have chronic health issues, remember to never judge your day by how you feel when you wake up.
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emsgoodthinkin · 8 months
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For the people who interact with my RP blogs.
I just wanna deeply apologize even though you’ll probably say there’s no need for me to, but I’m going to.
I just hate that I’m always coming and going over and over again; that I can’t control when my body wants to flare up and I know there’s people waiting for me and I feel so guilty, because when they talk to me, it makes them happy, and I feel like I’m taking it away from them yk? I always stop at the worst times leave at the worst times.. and I hate that it’s always gonna be like that.
I’m sorry that it’s not going to be continuous and there’s always going to be breaks and what not. Constantly having my phone in my hands, has been taking a toll on them and I didn’t realize how painful that would be..for me at least.
Yes, I know health first, but regardless. 
This isn’t some petty post. This is me expressing that I enjoy doing it but I’m also sorry when I end up stopping for a certain amount of time. 
When my physical health and mental gets worse, it causes delays for people.
In general, I have to take a break from even holding my phone physically because I don’t know what the hell is happening with my hands and wrists, but it hurts like a fucking bitch.
Hell, I have to use the microphone on the keyboard to write all this. 
anyways, I just hope that y’all will stick with me and bare with me.
I appreciate every single one of you that interact and again I truly am sorry for the disappointment.
Ps. this isn’t a post stating that I am stopping permanently.
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jmtorres · 10 months
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how to math foods from their nutrition info and ingredient list:
in the US, ingredient lists have to be in order from largest to smallest amount. so like I'm looking at these chicken gyoza I get from Sprouts:
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nutrition label:
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serving size: 7 gyoza, or 140g. This is slightly complicated by the fact that the ingredients list (below) is divided into filling and wrapper, but I'm mostly interested in mathing out the filling anyway. by looking up gyoza wrappers separately I have determined 7 wrappers is around 39-40g. (fodmap app says I'm good up to like. 30 wrappers. yay I don't have to worry about the wrappers.)
So I'm looking at a serving size of 100g for the filling.
the ingredient list looks like this:
Ingredients: Filling: Boneless Chicken, Cabbage, Sugar, Salt, Onion, Soybean Oil, Sesame Seed Oil, Ginger, Garlic, White Pepper. Wrapper: Unbleached And Enriched Wheat Flour (Niacin, Reduced Iron, Thiamine Mononitrate, Riboflavin, Folic Acid), Water, Food Starch, Salt, Soybean Oil.
Because the ingredient list is by amount, I know that chicken (the first ingredient) could be almost all of that 100g, but the most cabbage (second ingredient) there could be is just under 50g, because there has to be more chicken than cabbage. and the same applies down the line. so the list is:
chicken - less than 100g
cabbage - less than 50g (half)
sugar - less than 33g (one third)
salt - less than 25g (one fourth) 1.6g (see below)
onion - less than 20g (one fifth) 1.6g
soybean oil - less than 17g (one sixth) 1.6g
sesame oil - less than 14g (one seventh)1.6g
ginger - less than 12.5g (one eighth) 1.6g
garlic - less than 11g (one ninth) 1.6g
white pepper - less than 10g (one tenth) 1.6g
and likely everything from sugar down is actually much lower -- you don't have your seasonings take up a third of your material. but those are the greatest amounts a serving could contain based on this nutritional label. and in fact, I can look up what the sodium content is--650mg, or less than a single gram, according to the nutrition label. sodium is about 40% of salt's mass so call that 1.6g salt, and then figure out that everything lower on the list than salt (4) has to also be less than 1.6g. (and. salt is also in the wrappers. so this is more salt and more subsequent seasonings than is in the fillings. 1.6g is our high safety estimate.)
so, what does my fodmap app say about these ingredients?
chicken's fine, don't need to worry about my meats pretty much.
cabbage: safe serve is 75g. I'm good.
sugar: safe serve is 50g. I'm good.
salt: does not contain fodmaps
onion: 12g is a yellow serve. but since we know onion actually has to be less than 1.6g, I think this is safe.
oils: no fodmaps
ginger: 5g is a safe serve, since we're under 1.6g we're good.
garlic: I had to look up a bunch of stuff to figure out what qualifies as a safe serve of garlic, because it's miniscule. but it's like 1.46g. that's close enough to 1.6g (and garlic is enough ingredients down from that salt) that I think this is probably safe.
white pepper: not sure, but black pepper would be fine?
Yay, I can eat a serving of these gyoza! my tendency to eat two servings for a meal might be pushing things but like. overall. safe food despite inclusion of fodmap ingredients due to how little of those ingredients are actually in there.
I do shit like this in my head like all the time. like when I'm trying to figure out how much lactose a cheese has, I'll check its sugar content. regular milk runs at about 4% lactose but I know 1-2% is generally safe for me to consume, so if the g of sugar in a cheese is less than 2% of the serving size I'll know it's okay for my level of lactose intolerance. (although there's a complication on sugar! if the amount of sugar in a serving is less than 5 calories - less than about a gram - the label does not have to report it! which is why tic tacs are listed at 0 calories and 0g of sugar even though their primary ingredient is sugar. because a serving size is less than half a gram. anyway this means that if i'm looking at a label that says 0g sugar and i want to be sure the percent of sugar (that is potentially lactose) is less than 2% of the serving, that serving size has to be at least 50g for me to be sure the "rounded down" to zero sugar is still at a safe amount. tricky with cream cheese where they set the serving at 30g.)
anyway shoutout to the gnocchi company (Del Cecco ftw) that put on the ingredient list that the first ingredient (mashed potatoes) comprised 80% of the gnocchi and the second ingredient (potato starch) comprised 15%, you made my life so much easier.
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distracteddaintydemon · 2 months
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Actually, my disabled daily life is a lot like Sunless Sea gameplay. You have to calculate route and time and energy and food and cargo and everything, else you'll get stranded on waters that should be familiar but now they're a full-on fuck-know-where wastes and your hunger meter goes up and your sanity meter goes down. And you'll probably live but it will cost you. By gods it will cost you.
Also you can keep margin for unexpected but sometimes three unexpected things line up one after another and you're fucked over.
And there is no easier mode this is how the life is.
Good luck
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moss-opossum · 3 months
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I LOVE MY ROLLATOR!!!! I just used it in public for the first time, and despite my foot hurting since yesterday, I was able to get around with ease and visit three different stores!! I'm so happy I'm so happy!! I feel invigorated, I feel motivated, I feel free!
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spookietrex · 1 month
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Man I just love when my body riots for my reason. Like who DOESN'T love waking up and immediately throwing up for what seems like no reason and severe stomach pain for hours afterwards? Who doesn't love lying on the couch/in bed for days because you're in so much pain and so fatigued you literally can't move. Like it's literally the best.
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clairaworlds · 3 months
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The thing about getting sicker is you often find yourself missing things that were key parts of your idenity without even realizing it. Runs fade to walks, late nights turn to mid day naps, old hobbies are left to gather dust, clean and ordlery rooms end up messy and covered in piles of cloths, old fashion is left on hangers in dark closets.
It often happens so slowly no one even notices. Then someone says they had no idea you even liked sewing (shaky hands make threading needles hard). Or you'll notice that it's the exact kind of awful weather you used to love, but now it only means aching joints and an oncoming headache.
The thing about getting healthier (not truly recovering, there is no true cure) is that it has the same effect. It so often leaves you wondering if you were ever truly healthy. As your body changes to feel right in a way that leaves you wondering how you didn't know it felt wrong before. The very texture of flesh and the movment of muscle and bone feel altered. Clothes fit differently, and that's only the things that are noticeable. It's like learning to be a person in a body you never realized was full of holes. Only now some of the holes are covered by patchwork, and others still leak. You don't remember how to prevent them from leaking, you need to re-learn that.
It's not that you didn't know there was something wrong with this body, quite the opposite, actually. It's just... you never realized just how much every part of everything would change.
Sometimes it's hard to know what parts of you remain.
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live-from-flaturn · 10 months
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My EDS is flaring like never before. To the point that my pain is a solid 9 (from 1-10) and I am gasping every few breaths. We got home from visiting Boytoy's parents and I immediately took some of my Nuclear Option pain meds. As my dad the pharmacist refers to them.
However, while I wait for them to kick in, it feels like I'm being gently tased. Like my fingers keep curling up randomly from little electric zippies of Owch through my nervous system and my knees are locking/unlocking faster than a hacked 2023 Kia Sorrento.
To avoid having a breakdown, I'm just gonna pretend this is my Mafia anti-interrogation training. If you can't beat 'em, cope however possible.
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lightthewaybackhome · 4 months
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Feeling accomplished. I got behind in my budgeting post vacation and getting sick, so for about 3 weeks I've been using my early morning time to catch up. This became a slippery slope. The more I used my early morning time, the more I relied on it. Then I woke up one morning last week and realized I'm trying to work from 4 in the morning until 7 at night (yes, with breaks, but still). No wonder I'm feeling overwhelmed and burnt out!
Today, I finished the last things that needed catching up and a bunch of odds and ends. Tomorrow, I reclaim my early mornings dedicated to writing, reading, and resting!
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lethargicspacepotato · 7 months
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I have:
-Multiple sclerosis
-Dysphagia (related to MS and GERD)
-Autism
-Auditory processing disorder (related to Autism)
-ADHD
-Rejection Sensitive dysphoria (related to ADHD)
-Depression
-Generalized Anxiety disorder
-cPTSD
-Autonomic dysfunction (we haven't confirmed the type but it's most likely POTS)
-Carpal tunnel both wrists
-Asthma
-GERD
-PCOS
-Endometriosis
-Raynaud's syndrome
-Herniated disk
-Migraines
-Chronic allergies
-IBS "most likely" (I have had several doctors, including GIs, say it like this and it drives me insane)
-Moderate to severe sensory nerve damage (related to so many other issues)
***
Looking at it all written out, I know I'm forgetting some things. And although I have all these issues, they're all considered "mild" compared to other cases with the exception of the herniated disk. It is comically herniated.
I still feel like I should be able to function like an able-bodied, neurotypical person. I'm still expected to function like nothing is wrong during my 12 hour shifts as a 911 dispatcher. I'm a late diagnosed AuDHD, and there's so much to unpack from that and decades of never knowing why I was so different. But I dont get to stop and process it all.
Not being able to do what I used to takes it's toll. I'm burnt out and beyond exhausted, but I feel lazy and worthless as well. I can't seem to untie my worth with what I can do for others or their opinions of me. The only positive is my mom is dead so I don't have to take her abuse or judgement on top of it.
I'm just venting. I'm just so exhausted.
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watercolor-wings · 10 days
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You know CVS, some of us have multiple medications and multiple doctors and cannot simply divine what "H" is, especially when we don't get 3mo supplies or have requested any recently. Wtf even is this text.
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