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#eds awareness
badger-with-a-boa · 11 months
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AAAAAAAAAAAAAAAAAAA
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Made another zine while stuck at home, but I like it so much that I think I'm going to make copies to give out to people! I'm thinking of taking a bunch of copies to pride next month :D
[ID: Two photos of a zine spread out. The zine is written in purple pen. In order, the pages read:
Cover page: Ehlers Danlos syndrome.
Page 1: What is EDS? EDS is a group of 13 genetic connective tissue disorders. Most, if not all, subtypes are rare diseases. Hypermobile, classical, vascular, myopathic, periodontal EDS + more.
Page 2: EDS can cause many problems, including chronic migraines and heart problems. It can affect everything from friendships, to hobbies, to your diet.
Page 3: Symptoms. Hypermobile joints. Fragile, stretchy, translucent skin. Digestive issues. Dislocations. Chronic pain.
Page 4: Fast facts. 80% of people with EDS also have POTS. EDS is commonly misdiagnosed. EDS is a dynamic disability.
Page 5: Why the zebra? "When you hear hoofbeats, think horses, not zebras." Doctors are taught this phrase, meaning many rare diseases are missed.
Page 6: Sometimes, when you hear hoofbeats, it really is a zebra!
Back cover: Share to raise awareness!
On the cover page is a zebra patterned awareness ribbon. On page four are drawings of a cane, a forearm crutch, and a wheelchair. /end ID]
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live-from-flaturn · 11 months
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My EDS is flaring like never before. To the point that my pain is a solid 9 (from 1-10) and I am gasping every few breaths. We got home from visiting Boytoy's parents and I immediately took some of my Nuclear Option pain meds. As my dad the pharmacist refers to them.
However, while I wait for them to kick in, it feels like I'm being gently tased. Like my fingers keep curling up randomly from little electric zippies of Owch through my nervous system and my knees are locking/unlocking faster than a hacked 2023 Kia Sorrento.
To avoid having a breakdown, I'm just gonna pretend this is my Mafia anti-interrogation training. If you can't beat 'em, cope however possible.
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thebeesbox · 10 months
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Day 47 of Pride Flags Drawn as Foxes: Ehlers Danlos Syndrome
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kuri kuri motherfuckers it's EDS awareness month tomorrow
Get ready to be Aware of me
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blueskyheadleft010 · 1 year
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There needs to be more awareness about Ehlers Danlos Syndrome.
I went to the dentist to get cavities filled and didn’t know I needed more numbing agent until after they started the operation.
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ed-recoverry · 10 months
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To anyone who was suicidal at age 14 or younger, here’s your permission to grieve. Here’s your permission to not joke about it or just flat out ignore it. Here’s your permission to acknowledge that lost child who felt way more pain than any child should ever feel. You’re allowed to cry for that child, whether you healed or are still suffering the same thoughts. Finally allow yourself to grieve for that child filled with undeserved hurt.
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lovely-bloomy · 2 months
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JZ
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dead-core · 3 months
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part of knowing me is watching me self-destruct. you cannot save me, you cannot fix me, and you cannot stop me.
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orangelemonart · 3 months
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Made a few more, probably not done yet lmao.
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crippledpunks · 1 month
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this is your daily reminder to stop being abusive and mean toward people with bladder and bowel issues.
im tired of hearing people mock those who struggle with bladder/bowl control, for people who can't tell when they need to go until it's too late or at all, for people who have uncontrollable voidings and leaking, for people who need to wear incontinence products around the clock, for people who need them influctuating amounts and need different kinds of products, for those who bedwet, for those who can't afford incontinence products so their clothes get dirty- to everyone with bowel and bladder issues.
we are human. we are still people. we are not gross, we are disabled. we are struggling with a disability. if you make cutesy posts about canes and wheelchairs, you need to include people who wear diapers, people who need plastic pants, plastic bedsheets and absorbent bed pads. you need to include people who can't tell when they need to go. people who need/use catheters. people who have colostomy bags. people with stained and dirty clothing. people who have to change their incontinence products in public.
you need to include autistic and ADHD and ND and disabled people who feel unsafe without diapers. you need to include people with spinal injuries and ehlers danlos syndrome and muscular control disorders with need incontinence products and feel safe with them. you need to include people who like their diapers and not just tragic stories where it's never discussed or doesn't negatively impact their life and livelihood.
please include all disabilities in your disability positivity posts, and please be kind and treat all disabled people with respect and humility, including those of us with symptoms you may find "gross".
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gracethyomen · 9 days
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Happy First of May!!
Hello! May is EDS (Ehlers Danlos Syndrome) awareness month! As a person with suspected EDS and with chronic symptoms, this is a very important topic to me. EDS is hard to diagnose, and many patients fly under the radar of healthcare professionals which can cause them to suffer lack of treatment and forces them to live with their painful symptoms.
More Information about EDS and associated variations has been attached below and the infographs were originally found on an instagram account that I follow at the username the_chronic_chronicles
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But fuck yeah with all the excellent discussion about this today the angrier I get at Izzy for the absolute nerve he had in telling Ed the atmosphere on the ship was bad in s2e1.
Because. Whose fault is that, Izzy??? Last I checked everyone was hangin' out and vibing and planning a talent show until something happened, Izzy. Last I checked Ed was starting to feel better and was taking active steps to make himself happier until someone started yelling at him Izzy. What was it that made Ed feel so unsafe Izzy. Why does Ed now immediately assume any invitation to talk about his feelings is the leadup to a threat on his life Izzy. Why do you think this could be Izzy.
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dig-jules · 2 months
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HAPPY EATING DISORDER AWARENESS MONTH RECOVERY IS POSSIBLE
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babykittenteach · 2 months
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"They sat on the edge of the heated indoor pool, jammies rolled up to their knees, hands almost touching, legs dangling in the water. They’d abandoned their robes and slippers on one of the poolside chairs. Ed wasn’t gonna say anything, but he was a little bit chilly without it."
-from "A Little Haunting, Isn't it?" by @adamarks, done with permission.
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riddle-man · 1 year
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