Hi guys! I am so sorry for the long post. I have adhd and I know if I saw this I would skim past but if you have migraines or know lots about migraine treatment PLEASE READ I’m getting super desperate now. I’ve had chronic headaches for about 10 years and chronic migraines for about 7. For me this means I get at least 1 headache every single day (that will not respond to normal OtC painkillers except sometimes aspirin) and about 3-10 migraines in a fortnight (recently this has been closer to a migraine every day or every other day).
I’ve been prescribed:
Propranolol (as a preventative)
— something about relaxing blood vessels
Topamax
—theres apparently an idea of treating the migraines as mini seizures
Imigran/Relpax
—taken when I get a migraine (works about 80% of the time if I am also able to lie down in the dark and do nothing for a few hours after taking it. If not drops to working about 50% of the time)
The tests/treatments I’ve done to investigate the cause of the migraine (sometimes done as an aside to another issue):
Brain scan, eye test, hearing test, dentist(TMJ pain), chiro (got an upper back and neck scan), blood test (low iron but no change since taking iron) and other shit that I can’t remember. I’m also booked in for a neurologist but not till September.
I’m a musician (trumpet and composer) and I often have to miss rehearsals and starting to miss shows and I’m doing more musicals/productions and those kind of settings (noise, hours, focus, cramped) tend to trigger migraines and saying that it’s starting to bum me out is a bit of an understatement haha if anyone has any advice I’d love to hear it
Edit: (Additional Info)
Imma keep listing things I’ve done to try and improve my headaches/migraines with varying results
-drink more water (probs helped)
-drink electrolytes (too soon to tell/I might be placebo-ing myself into thinking it’s working)
-get those ice hat things (sometimes works but also only after I have a migraine)
-air purifier (who knows)
-meditation (helps me sleep?)
-put plants in my room (who knows in terms of air quality but the plants are nice)
-humidifier (sinuses are less dry?)
-sinus wash thing (who knows)
-somnilight migraine glasses and fl-41 glasses (seem to help a bit?)
-blue light glasses (who knows/maybe a placebo)
-weird pressure point things that go on the webbing bit in between my thumb and pointer (nope)
Edit 2:
-track barometric pressure (I’m in western australia and it’s not been the rainy season since I started tracking it so tbd)
-got a sleep mouthguard for TMJ pain (helped with jaw pain, less waking up with a headache)
-therapy (not specific to migraines but apparently counts as treatment?)
-dark chocolate (like I’m talkin 70%cocoa - or more honestly helps a lil if it’s a moderate headache - might be a placebo)
do you ever feel physical pain because you need the perfect song to be coursing through your veins and completely take over your body and soul and it's so intense you are shaking but you can't find the right songto listen to so you start listening to old hyperfixation music and then nothing is working so you just chuck on Rasputin to feel happier ?
publicly shaming this piece for being entirely in triplets. just change the time signature! or write a different piece! this one sure didn't need to exist!
does anyone else who plays an instrument sing their part in their head?? or it that just me . . . Cuz apparently most ppl count. when I play I usually just go
BAAAAH bu ka kaka dudah bakaka buh buh buakaa du da dada daaa duguguh beooowww neee newe dugga gugga bee neeeeeww gugu deeeneeenooeee dundu beeewwwwoo dugu deee neeeee bu buh duuu nuuuu be be dada baaaa gigu danna naaaa dugu beeenoowwnowwww duuh beeeeeoooo deee noooo wweeeeee ooooohhh dugugadooo
I hate applying for things because wtf do you mean "what are your hobbies outside music?” when I'm not in a rehearsal I'm at school and when I'm not at school I'm sat on my bed doom scrolling until I fall asleep or get the motivation to practice